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13 Secrets Parents Need to Know About Autism but Haven't Heard Yet
Posted on Monday, January 07 @ 10:46:30 EST by |
I am a parent. I have Asperger's syndrome. I have two grown children, one of whom is on the autism spectrum. I am very aware of how parents can react to an autism spectrum diagnosis in their child. It's not hard to find descriptions of their reactions on autism support sites on the Internet or in the popular media. I know how my friends and acquaintances have reacted to their child's diagnosis. It's unfortunate that many parents are frightened by the diagnosis. It's tragic that they are frequently given endless amounts of bad advice which leads them to waste their time and energy and money. Some of the ways they react emotionally, and some of what they do to their child is, at the very least, less than optimal for their child's development.
The good news is that there are parents who demonstrate that it's possible to get the diagnosis and not panic and not despair or do so only momentarily. These parents deal with the sometimes harsh and disabling realities of autism by making more level headed choices. They accept that autism is a part of their child, and from my observation, these parents have children who do better in life than those whose parents stay in panic or desperation mode and never learn to see the good things that are part of their child, some of which are there because of their child is autistic.
The following are some points that I believe will help parents to stay away from panic and despair, and to move toward acceptance which in turn will move them toward being more effective parents with happier children.
1. Autism is not new. Any problem parents of autistic children have now others have dealt with them in the past. This means you can use what others have learned about autism to help you. You don't have to reinvent the wheel.
2. Autistic people contribute to their communities in many ways, no matter what constellation of obvious abilities and disabilities they demonstrate. Autistic people are valuable as they are. They don't have value only if they can be transformed into less obviously autistic people.
3. The very wiring of an autistic brain means that the autistic person is likely to have significant and unusual abilities. Those abilities won't always be make us employable, but autistics usually have excellent memories for facts accompanied by a drive to collect them. These abilities shouldn't be seen as disabilities or freakish "splinter skills" just because they are less common among non-autistic people.
4. The term autism spectrum does NOT describe a line upon which a series of "functioning levels" are laid out stepwise, with "low functioning" on one end and "high functioning" on the other. Just because a person seems to belong to one category at one point in their life doesn't mean that he or she will seem the same at another point in his or her life. The situation the person is in often dictates how "functional" the person is. Children, especially, can get moved from one autism spectrum diagnostic category to another during early childhood.
5. Listen to and respect autistic adults. They may be your best resource for information about autism, even if their apparent "functioning level" doesn't seem to match your child's. Keep in mind, they are adults, whereas your child is a child.
6. Professionals are a great resource, they can also be a big disappointment. Some professionals only know the doom and gloom version of autism. This can set you up to see only where your child "fails." This is dangerous because it may cause you to overlook the places where your child is succeeding. On the other hand some professionals will try to sell you on expensive and exhausting cures for your child. They give the wrong kind of hope. They may convince you to attribute your child's development to a drug or therapy that is not responsible for the development at all.
7. Autistic children love their parents. You may have to learn to see how your child expresses affection and not take it personally if your child doesn't show affection in the way that typical children do. Deaf children may never speak the words, "I love you," and Deaf parents may never hear those words, but it doesn't mean that Deaf children don't love their parents.
8. Don't buy into the common "siege," "attack," or "war on autism" metaphors. Similarly don't listen to the rhetoric that says, "your kid is an empty shell," and "kidnapped, soulless husk". Ignore the threats that if you don't do this or that your child will "end up in an institution." Treat your child with gentleness and respect, but also remember that he or she needs to be challenged and exposed to new experiences.
9. Don't let anyone make you feel like you aren't the most important teacher in your child's life. Don't let them make you feel like your child is so unusual that only someone with an advanced degree can help him learn, thus making you, the parent, superfluous.
10. The idea of "critical periods" or "brief windows of time" during which you can teach your child something, has been exaggerated and oversold. No one is advocating that children be neglected, but pushing hard to teach or otherwise transform a child in a certain time period could be as damaging as outright neglect. Autistic development is not the same as typical development. Autistics learn things in their own way, sometimes on a very different schedule than non-autistics do.
11. All children have what might look like lags development, likewise all children have what look like sudden leaps forward in development. This bumpy trajectory may be more pronounced in autistic children. This fact makes parents of autistic children particularly vulnerable to attributing a regression or the acquiring of a new skill to something that changes in the child's life. In other words, just because someone says, "I gave my child this pill and he started speaking the next day...." or "I changed my child's diet and suddenly he was making better eye contact...." it doesn't mean that it was the pill or the diet that initiated the change, it can easily be a coincidence.
13. If you find an M.D. who doesn't help with your child's health problems because he or she sees every physical symptom as "autism," or conversely, if a doctor sees only a genetic or congenital disorder and health issues that your child may have, and can't see the traits of autism or learning disabilities your child also has and how they impact your child's health, you may need to educate that doctor about how your child is different, or you may need to find another doctor, one with more experience treating children like yours.
This was a guest article written by Autism Diva. She runs the Autism Diva Blog.
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Re: perfessinals... (Score: 1) by NoOne Tuesday, June 24 @ 14:41:31 EDT (User Info | Send a Message) | | hearing only Professionals give "authorized" "knowledge" about a condition they don't experience is...
the same experience as hearing only male doctors discuss what it means to mother a family of children.
Whatever book-knowledge they've got,
their ignorance-of-experience fundamentally means they are standing on NO ground.
Wanna understand mothering? Hear mothers.
Wanna understand autism? Hear autists.
Simple, effective argument that most "get". |
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Re: 13 Secrets Parents Need to Know About Autism but Haven't Heard Yet (Score: 1) by Deadboy365 Wednesday, May 07 @ 17:56:49 EDT (User Info | Send a Message | Journal) | | 1. Autism is not new. This Is true because it has been evident throughout history but many people back then didn’t know what it was an so they misjudged people who have it and so created the one thing I despise: INSTITUTIONS AER EVIL DEATH TRAPS!!!.
3. Yes I so agree with that, but the thing is... doesn’t everyone of those NT’s have some scientifically unnoticeable form of autism? and yeah we do have excellent memories! Thank you for sharing that point, really, I mean it... And also... I have found that most employers want computer literate people but I don’t wanna do that purely because: if I so much as see or get near to a computer I’m bound to do my own thing... and they also want people working on machines in the back of their supermarkets away from customers! I AM A PEOPLE FRIENDLY PERSON AND NOT SOMETHING TO BE SHOVED UNDER A BLOODY CARPET!!!
4. I hate it when people say I am a “low functioning” autistic person... it makes me feel bad...
5. No it should be “Listen to and respect anyone” not just a specific grouping of people! And also when I say that I am talking about people who have autism so that they might be able to help you to further understand what it is like to have autism!
6. When you mention “cures” let me get one thing straight: THERE ARE NO CURES FOR AUTISM BECAUSE IT IS NOT AN EPIDEMIC!!! You cannot say there is a cure for something that is not a virus/disease/epidemic!
7. Not much to add there except: I LOVE MY PARENTS NOMATTER HOW SELFISH THEY ARE!!!
8. When I am famous I will make sure there is a war but not on autistic people! It will be a war on every damned institution that plagues this planet!!!
9. When I have kids... I will make sure they are well taught by me about this and try to help them to understand that they are not so different as “ordinary” or NT children!
10. The idea of "critical periods" or "brief windows of time" during which you can teach your child something, has been exaggerated and oversold. No one is advocating that children be neglected, but pushing hard to teach or otherwise transform a child in a certain time period could be as damaging as outright neglect. Autistic development is not the same as typical development. Autistics learn things in their own way, sometimes on a very different schedule than non-autistics do.
11. People develop in many different ways... and yes you are right in what you say about diets... the only thing a diet can do is change according to your own needs... Autistic people learn a little more slower in one thing but might learn faster in other areas in life... I do not know what you mean by “regression” unless you mean regression in how your child wants to be when they get older? For an example of what I mean: when they are in their mid-30’s they don’t feel like they are in their 30’s, but... they feel more like a child... Is that what you meant?
I’d like to add this for the one called “auroch”. DO NOT THINK OF AUTISM AS A LABEL BECAUSE IT IS NOT! A label is something that goes on a product that you are selling/buying!!!
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Re: 13 Secrets Parents Need to Know About Autism but Haven't Heard Yet (Score: 1) by marcopohlo Friday, March 14 @ 01:08:39 EDT (User Info | Send a Message) | | Why is there no number 12?
Perhaps, in order to fill in the gap, you should repeat number 7. It's critical. |
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Re: 13 Secrets Parents Need to Know About Autism but Haven't Heard Yet (Score: 1) by Aranittara Monday, March 03 @ 16:47:29 EST (User Info | Send a Message | Journal) | | Why do so many people on this site dismiss any relationship between digestive problems or problems processing toxins have with autism that isn't to say that i believe there is a cure to autism nor is it to say i'd want this cure if there was one however I do genuinely believe that the mental differences are not the only differences associated with autism. |
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Re: 13 Secrets Parents Need to Know About Autism but Haven't Heard Yet (Score: 1) by auroch Friday, February 08 @ 00:16:18 EST (User Info | Send a Message | Journal) | | Who am I to point out other people's short comings while I blatantly exercise my own? A dunce, that's who. Sorry Diva. I didn't mean to suggest that your article isn't good enough. I'll just shut up now... |
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Re: 13 Secrets Parents Need to Know About Autism but Haven't Heard Yet (Score: 1) by Sockpuppeta Sunday, February 10 @ 22:04:11 EST (User Info | Send a Message) http://Why the hell am I banned?! | | WHY THE HELL AM I BANNED?????WHY THE HELL AM I BANNED?????WHY THE HELL AM I BANNED?????WHY THE HELL WHY THE HELL AM I BANNED?????AM I BANNED???WHY THE HELL AM I BANNED???????WHY THE HELL AM I WHY THE HELL AM I BANNED?????BANNED????? |
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Re: 13 Secrets Parents Need to Know About Autism but Haven't Heard Yet (Score: 1) by auroch Wednesday, February 06 @ 23:28:54 EST (User Info | Send a Message | Journal) | | Perhaps it should have been "14 Secrets Parents Need to Know About Autism but Haven't Heard Yet" because one very important one has been missed. The most prominent and abundant misconception of autism is still extremely apparent even within this article itself. The missing point is that the autism label is exactly that. A label, a way for those that don't have it to categorize those who do. It is as much a label as is "normal". Forget "syndrome", forget "disorder", forget the entire concept that something is wrong with your child because there isn't. Your child is simply different. What a normal child may learn or experience with ease an autistic child may find very difficult and challenging, but where there is seeming inequality there is actually balance, because the same is true for what an autisic child will find with great ease. Some of the greatest minds in history and today will fall into the autism category. It's just the way society is that makes for an alien environment in the eyes of an autistic child. There's just more of them out there than there is of us. |
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