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Ten Myths about Autism - Debunked
Posted on Sunday, February 24 @ 10:54:31 EST by |
There are a lot of misconceptions about Autism floating around. Consequently, many people with Autism remain undiagnosed, countless autistics are misunderstood, and millions of dollars are donated to nonprofits who don't speak for those with Autism.
This is a troubling time for people with Autism (and I speak as one of those Autistics) because the media focuses a considerably large percentage of their Autism coverage on stories told by those who do not even have the condition. I've put together a list of only ten misconceptions that have been born out of the lack of an autistic voice in the media.
10. Autism is an epidemic.
Organizations like Autism Speaks and Cure Autism Now are quick to label Autism an epidemic, despite the fact that scientists have found the opposite to be true. For instance, Dr. Roy Grinker, an anthropologist at GWU, whose research was ironically funded by Autism Speaks (needless to say, they're not too happy), recently published Unstrange Minds, a book that debunks the idea of an "Autism Epidemic." And he's not the only scientist who has problems with the those who label it an epidemic.
9. Most Autistics are "low functioning."
Due to the negative connotations autism gets from the term "low functioning," the bigger nonprofits like to focus on low functioning autistics because people are more likely to donate to help severely affected people (these same organizations use the statistic of 1 in 150 but they imply that 1 in 150 people are low functioning). However, the most recent studies show that a little less than half of Autistics are low functioning. A lot of autism experts point out that Asperger's is underdiagnosed, which indicates there's an even lower percentage of people who would qualify as "low functioning."
8. Autism can be treated by ________ (insert unapproved treatment here).
This is one of the most troubling fallacies because it's usually spread around by people who try to take advantage of uneducated parents who will do anything to help their kids. Many of these self proclaimed experts cheat families out of small fortunes and conduct dangerous and highly illegal "treatments" on autistic children with absolutely no improvement in their condition. Throughout history, snake oil opportunists have popped up when scientists couldn't find a real cure, and this time its no different.
7. Autism is caused by mercury.
This myth is popular among the same snake oil opportunists I just mentioned. Because mercury is a real poison that exists in everything from vaccines to thermometers, it's easy to convince parents that it causes problems. While high doses of mercury are very dangerous, mercury doesn't cause autism at any dose. In addition, the amount of mercury in vaccines is not high enough to have any measurable effect. Studies have consistently shown that there is no link between autism and vaccines. This myth of a correlation is especially troubling when real outbreaks have been caused by parents' fear to vaccinate their children.
6. Nonverbal autistics are severely mentally impaired.
Becase they have trouble communicating with the rest of the world, you may think they're somehow less intelligent. The opposite is true. Low functioning autistics have impaired communications skills but they are just as smart as your average joe and many are even smarter.
5. Autistics can't be geniuses.
Actually,there are many historical geniuses who are thought to have had autism (Albert Einstein and Thomas Jefferson, for example). However, I think it's foolish to use them as evidence when I can merely point to currently living people like Nobel Prize winning economist Vernon Smith and actor Dan Ackroyd who have made public statements about being diagnosed with Autism.
4. We have a pretty good understanding of autism.
Scientists don't know very much about the brain, much less Autism. Every day, researchers are learning new things about Autism. Regardless, we still have a lot more research to do before we can begin to understand this puzzle.
3. Autistics want to be cured.
Most autistics, in fact, do not want to be cured because they've already accepted autism as part of their personality, identity, and lifestyle. You may not understand why anyone would want to be diagnosed with a psychiatric condition, but even homosexuality was listed in the DSM as being a disorder at one point in time.
2. People with Autism are alike.
While you may be quick to use autism to refer to someone's identity, autistics differ from each other just as much as those without the condition differ from each other.
When my friend Dan and I started Wrong Planet, we were surprised by just how different the members were from one another. We naively thought they'd be exactly like us. Needless to say, Wrong Planet members and autistics come in all shapes, sizes, professions, religions, political affiliations, and nationalities.
1. Autistics are represented by nonprofits like Autism Speaks and Cure Autism Now; donating to these causes helps people with Autism.
Actually, most autistics feel that these nonprofits are doing a disservice to those living with Autism by running campaigns that dehumanize people with the condition and painting an inaccurate picture of what Autism is like.
For example, Autism Speaks, the largest Autism organization in terms of financial capital, has no autistic employees and no board members with the condition. They disallow autistic individuals from speaking at their conferences with the rationale that "it wouldn't be appropriate."
While a lot of the research they fund may be conducted by good scientists who are unaware of the organization's political slant, Autism Speaks' end-game is establishing prenatal screening. Any good that comes from this research is consequently undermined by the negative messages they send.
There are autistic-run organizations such as Wrong Planet and the Autistic Self Advocacy Network trying to give Autistics more voice in the media. ASAN, for example, recently succeeded in a media campaign criticizing the New York University Child Study Center. The center apologized for and rescinded an advertisement campaign (the Ransom Notes Campaign) that painted Autism and Asperger's Syndrome in an unrealistically negative light.
Also, there are great bloggers out there sending positive messages like Ballastexistenz, The Joy of Autism, Autism Diva, and even About.com.
Article by Wrong Planet founder Alex Plank
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Re: Ten Myths about Autism - Debunked (Score: 1) by Axon Monday, July 21 @ 00:28:49 EDT (User Info | Send a Message) | | Erm, re #3 statement: Autism is a neurological condition, not a psychiatric one. |
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Re: Ten Myths about Autism - Debunked (Score: 1) by n4mwd Saturday, July 19 @ 19:52:56 EDT (User Info | Send a Message) | | I was curious where the statistic "Most autistics, in fact, do not want to be cured" came from. I realize that there are a lot of aspies that don't want to be cured, but I am not one of them. If there was a REAL cure, I would sign up in a second......But I have to wonder how many of those "don't cure me" aspies are taking drugs to control the symptoms of depression, anxiety and ADHD? It seems kind of counter-intuitive that someone would want to take drugs to temporarily be cured of negative autism symptoms, but not want a permanent cure. |
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Why don't organized Actual Autists -- systematically inform the ones (Score: 1) by NoOne Tuesday, June 24 @ 14:21:16 EDT (User Info | Send a Message) | | who are suckered by
"Autism Speaks" ( but not through us!! Our Important Institution won't allow it! )
to give their true name...
I'm certain that IF WORD GOT AROUND among their suckered/financially-or-reputationally-abused,
THEY would spread the word,
to help others be not abused/robbed by 'em,
and then a tipping-point would be reached, eventually,
putting those who displace our speech about OUR condition in their proper place/perspective.
Try setting up alterna-conferences or alterna-presentations
( work through "Presenting to Win, 2nd ed" by Jerry Weissman,
if you want to win over your audiences )
Either change the market, or accept its consequences.
Perception IS responsibility's beginning. |
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Asperger's Diagnosis... (Score: 1) by NoOne Tuesday, June 24 @ 14:33:47 EDT (User Info | Send a Message) | | There was an interview/feature, in New Scientist,
a few years ago, of an Asperger's scientist,
who'd come-up-with a precise & foolproof self-diagnosis test.
One of the questions was something like
"Did requirements in English class,
to 'write a composition' leave you utterly stumped,
uncomprehending of how that could be done?"
it was 10 questions, and the rule was
ALL 10 == Asperger's or stronger autism.
9 or less == NOT Asperger's or stronger autism.
I've had doctors tell me that it's bogus,
because it wasn't administered by a doctor,
but it was DEVISED by an Asperger's scientist,
SPECIFICALLY FOR self-administration.
We aren't the ones devising the test,
we are using a previously-devised,
by an Asperger's scientist,
for self-administration,
test.
What fundamentally offends these doctors is that it isn't THEIR authority that decided, is all
( dad was a doctor: I know this )
Here: found it.
http://www.newscientist.com/article/mg17022865.200-in-a-different-world.html
Use the sharpest truth to cut away the bogusness, and
even outnumbered, you CAN win enough for the future's people's freedom. |
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Re: Ten Myths about Autism - Debunked (Score: 1) by Deadboy365 Wednesday, May 07 @ 16:09:54 EDT (User Info | Send a Message | Journal) | | oh btw... I am not sure but I think Bill Gates has it too...
that wot I heard, but... he has neva been diagnosed... |
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Re: Ten Myths about Autism - Debunked (Score: 1) by Deadboy365 Tuesday, May 06 @ 20:40:17 EDT (User Info | Send a Message | Journal) | | 10. Autism is an epidemic.
I agree because my mother was a nurse who worked with people who have autism... (I don’t know any who are still alive but hey!) this is an absurd statement made by those who would “label” themselves as being “normal”... and I do not agree with that crude statement at all and I also think it’s wrong to think of people who have Autism/Aspergers as some kind of diseased race! and that they should be ashamed to think that we are...
And also I think people are wrong to “label” people with Autism/Aspergers as being Autistic and being an Aspergerian.
8. Autism can be treated by ________ (insert unapproved treatment here).
I was diagnose when I was still in school but I didn’t actually find out that I had it until before I was actually diagnosed but I still don’t fully understand it...
5. Autistics can't be geniuses.
I personally resent this statement made by idiots...
I have autism and I am a writer in the making and soon to get published! and there for would you say I am not a “Literary Genius?”
4. We have a pretty good understanding of autism.
No this is wrong scientists claim that they understand it but they don’t you would have to bave autism to understand what it is like! but... even then I’m still learning about myself...
3. Autistics want to be cured.
I do not because it is part of me and I wanna be this way for the rest of my life! I blame the government for giving me that MMR jab and saying it is compulsory! I know people will say that the MMR vaccine has nothing to do with Autism but I disagree because I’m the only person in my family who has had the vaccine and I’m also the only person in my family who has Autism!
1. Autistics are represented by nonprofits like Autism Speaks and Cure Autism Now; donating to these causes helps people with Autism.
I recon those people are just trying to get us all in to one big place just so they can tell us how to live our lives!!! But I will not stand for this injustice!!!
They should try letting us be in charge of a company that will help other people like ourselves who have Autism and it will also help parents of children with Autism... but it would never ask for payment in return from that help!!!
And as for the big company “Autism Speaks”... just how can they expect to carry that name to heart if they have no members of their corporation/company who actually has Autism/Aspergers?
And also it is not very clear when they make it out that you can diagnose a baby with autism because it is impossible, because if that were true then every child would have autism!!! and it would feel very strange...
Every child is the same in the first few years because they are always curious about things... and so... it would be very hard to diagnose it at an early stage... and parents shouldn’t just say “my child was diagnosed at... whatever age!” because it is impossible!!! they should wait for about 3-4 years before getting their child diagnosed because they might never have been born with the traits of Autism and so they would have been misdiagnosed!!!
I found out when my father was talking to my auntie on the phone and I heard him telling her that I have Autism... |
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Re: Ten Myths about Autism - Debunked (Score: 1) by Deadboy365 Tuesday, May 06 @ 20:36:12 EDT (User Info | Send a Message | Journal) | | 10. Autism is an epidemic.
I agree because my mother was a nurse who worked with people who have autism... (I don’t know any who are still alive but hey!) this is an absurd statement made by those who would “label” themselves as being “normal”... and I do not agree with that crude statement at all and I also think it’s wrong to think of people who have Autism/Aspergers as some kind of diseased race! and that they should be ashamed to think that we are...
And also I think people are wrong to “label” people with Autism/Aspergers as being Autistic and being an Aspergerian.
8. Autism can be treated by ________ (insert unapproved treatment here).
I was diagnose when I was still in school but I didn’t actually find out that I had it until before I was actually diagnosed but I still don’t fully understand it...
5. Autistics can't be geniuses.
I personally resent this statement made by idiots...
I have autism and I am a writer in the making and soon to get published! and there for would you say I am not a “Literary Genius?”
4. We have a pretty good understanding of autism.
No this is wrong scientists claim that they understand it but they don’t you would have to bave autism to understand what it is like! but... even then I’m still learning about myself...
3. Autistics want to be cured.
I do not because it is part of me and I wanna be this way for the rest of my life! I blame the government for giving me that MMR jab and saying it is compulsory! I know people will say that the MMR vaccine has nothing to do with Autism but I disagree because I’m the only person in my family who has had the vaccine and I’m also the only person in my family who has Autism!
1. Autistics are represented by nonprofits like Autism Speaks and Cure Autism Now; donating to these causes helps people with Autism.
I recon those people are just trying to get us all in to one big place just so they can tell us how to live our lives!!! But I will not stand for this injustice!!!
They should try letting us be in charge of a company that will help other people like ourselves who have Autism and it will also help parents of children with Autism... but it would never ask for payment in return from that help!!!
And as for the big company “Autism Speaks”... just how can they expect to carry that name to heart if they have no members of their corporation/company who actually has Autism/Aspergers?
And also it is not very clear when they make it out that you can diagnose a baby with autism because it is impossible, because if that were true then every child would have autism!!! and it would feel very strange...
Every child is the same in the first few years because they are always curious about things... and so... it would be very hard to diagnose it at an early stage... and parents shouldn’t just say “my child was diagnosed at... whatever age!” because it is impossible!!! they should wait for about 3-4 years before getting their child diagnosed because they might never have been born with the traits of Autism and so they would have been misdiagnosed!!!
I found out when my father was talking to my auntie on the phone and I heard him telling her that I have Autism... |
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Re: Ten Myths about Autism - Debunked (Score: 1) by seattletuner Wednesday, April 30 @ 04:03:20 EDT (User Info | Send a Message) | | A few notes - numbered according to myths described above:
10. 'Autism is an epidemic' There are a lot of statistics given for Asperger's (like on Wikipedia) that make it seem to be a very RARE occurence in the autistic spectrum - which doesn't make sense. A lot of the problem, in my own opinion, is that the diagnostic criteria for ASDs is extremely sloppy and crosses one ASD over another - for example, "high-functioning" and "Asperger's." The criteria is so dumbfoundedly identical as to be ridiculous. Though it could be correct to label a "high functioning" autistic as such because they developed language capability later than "normal", it is also very cloudy as to what language is "normal" - and boys are especially apt to show a great variety in ages at which they become coherently vocal, if that makes sense.
Anyway, my point is that the diagnostic criteria is so out of whack, that it can cause confusion and give mental health specialists too much flexibility for diagnosing patients - by putting them in the wrong group (high-functioning rather than AS) or, by giving doctors too much leeway, allowing some to diagnosis many cases, and some to diagnose none (mostly because they find the criteria, as I do, too sketchy.)
Therefore, if more work were done to clarify different spectrum levels, and to re-write the criteria in the DSM, then perhaps the topic of an "autism epidemic" would lose ground when the numbers make more sense (do I make sense? Ha...)
8. Autism can be treated by ________ (insert unapproved treatment here).
Again, the diagnosis of autism spectrum disorders allows many "symptoms" to be associated with being a part of autism, where, in my opinion, they should be labeled otherwise.
For example, "disinterest in interaction" (or whatever wording you chose) is a supposed "symptom" - but it is, more specifically, a condition that can develop or coincide with autism, and is not representative of the whole ASD population.
Therefore, treatments and "cures" should not be labeled as being treatments and cures FOR autism disorders - they should be handled as treatments (and not cures) for some of the problems many autistic people may have, in relation to their autism, but not PART of their autism. Since we KNOW that autism isn't curable or even treatable as a WHOLE, we should encourage people to not state that they have treatments for autism. To try to make it simpler, imagine if someone said they had a "cure for cancer" because they found a way to cure the anxiety that cancer sufferers often have. Well, cancer doesn't CAUSE anxiety - but having cancer sure might make people anxious, not knowing what their future might bring!
5. Autistics can't be geniuses. I agree that trying to use historical figures as examples of "autistic geniuses" is detrimental to our cause. We do not have the RIGHT to label dead people as autistic, just because they had "traits" that make us wonder about them. We just don't KNOW because they aren't HERE and they either didn't have the diagnosis available in their lifetime, or they did but were never diagnosed. It's just like trying to sort out the historical figures who might have been gay - being gay myself, I also hate that because, if they WEREN'T gay but we try to label them as such, it's degrading to ourselves and to them - in other words, putting words in their mouths when the words might be wrong.
1. Autistics are represented by nonprofits like Autism Speaks and Cure Autism Now; donating to these causes helps people with Autism.
To say "most autistics feel..." is not correct, because many people with autism may not be AWARE of all these organizations. Most of us who look into these organizations find things that we disagree with; however, most of us probably aren't even looking much into these groups. Just an opinion - but I think it's a little dangerous to totally condemn those organizations - because while they may have some disagreeable methods and management, there are probably many parents out there who get some comfort out of their involvement in those groups, and by portraying Autism Speaks and other groups as being entirely bad and dangerous may do damage by alienating those members from this board and others.
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I Agree (Score: 1) by cyberscan Thursday, April 17 @ 16:23:58 EDT (User Info | Send a Message | Journal) http://www.autismeducationcenter.net | | I find organizations like Autism Speaks, Center for Autism Related Disorders, etc pretty useless. I offered my services as a research subject and have not even gotten a reply. These organization seem not to want to hear from us but rather dictate to everyone our needs. In my not so humble opinion, the only NT's that understand us are the ones who are our families and friends. |
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Re: Ten Myths about Autism - Debunked (Score: 1) by andriessendude Saturday, March 15 @ 23:04:40 EDT (User Info | Send a Message) | | Great article. Yeah I have been complaining about # 10 for a while. Where I live (San Francisco) there are these billboards all over the place, labeling autism as a widespread epidemic. The ads don't even urge you to do much other than visit a website. I wonder who gets all that money to place ads like these on billboards. I wish this money could be used better, maybe a billboard about aids awareness, abuse prevalence, or cancer prevention, one that could actually help people, not stigmatize them.
Carl |
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Re: Ten Myths about Autism - Debunked (Score: 1) by PaulV Friday, March 07 @ 08:12:40 EST (User Info | Send a Message) | | Starting with myths 9 & 10. You say it is not an epidemic, but even your own numbers suggest a significant increase in the number of children diagnosed in the past two decades.
And if the number of low functioning is 1 in 300 (myth 9) that is significant and counters the very point you are making.
Myths 7 & 8 are controversial. It doesn't help your position to state as fact things that are still contested and we don't know for sure. Perhaps saying "It is a myth to say that we know all cases of autism are caused by mercury." "It is a myth to say that we know all cases of autism can be cured by ___________".
No one can say for certain that mercury has not caused some of the cases of autism.
No one can say for certain that there haven't been or won't be some autistic people cured by something being tried right now.
Your debunking of the cure implies that there is no possibility of a cure now or in the future. |
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Re: Ten Myths about Autism - Debunked (Score: 1) by Aranittara Monday, March 03 @ 16:32:52 EST (User Info | Send a Message | Journal) | | Look I think your post was fairly good however I do take issue with 'myth' #7. The way I understand it Mercury doesn't cause Autism however those with a predisposition towards Autism can have an onset triggered by mercury or certain types of foods among other things. the reason for this is that the bodily systems of people with a predisposition towards autism have trouble processing certain toxic substances such as mercury.
Also I have a friend who is 'cured', that is to say he experiences almost no symptoms of his condition because he eats within the constraints of a restrictive diet. |
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Re: Ten Myths about Autism - Debunked (Score: 1) by Knaidle Friday, February 29 @ 03:21:06 EST (User Info | Send a Message) | | I agree with your portrayal of the current misunderstanding of autism yet I fail to understand your view on Autism research. On the one hand you seem to be irked by the concept of a 'cure' yet you claim that there is still much to be learned about the condition. Of what purpose would learning about Autism be if not to aid Autistics? In addition, you condemn the non-profits that fund the very research that you say there is a lack of.
I respectfully await your reply. |
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Re: Ten Myths about Autism - Debunked (Score: 1) by KenG Saturday, March 01 @ 08:39:49 EST (User Info | Send a Message) | | Dear Alex,
Whenever you mention autistic-run organizations, please be specific about them, and include links.
For example:
ANI - "Autism Network International" (lead by the autistic Jim Sinclair, in
USA). (http://ani.autistics.org/)
ASAN - "Autistic Self-Advocacy Network" (lead by the autistic Ari Ne'eman,
in USA). (http://www.autisticadvocacy.org/)
WP - "Wrong Planet" (lead by the autistic Alex Plank, in USA).
(http://www.wrongplanet.net/)
AFF - "Aspies for Freedom" (lead by the autistic Gareth Nelson, in UK).
(http://www.aspiesforfreedom.com/)
LARM - "London Autistic Rights Movement" (lead by the autistic Dr. Roderick
Cobley, in UK).
(http://uk.groups.yahoo.com/group/politicsofautism/)
Thank you,
Chen Gershuni (aka KenG)
Spokesman
ACI - Autistic Community of Israel
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Re: Ten Myths about Autism - Debunked (Score: 1) by NicholasGray Sunday, February 24 @ 13:54:36 EST (User Info | Send a Message) http://www.IfYouCould-Movie.com | | Great article! I've had to talk a lot recently for the movie about some of these exact topics, but you've done it in a much more concise and eloquent way.
Can I except this for the soon-to-be-built Asperger's page at the site for If You Could...? |
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