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Autism Politics, Activism, and Media Representation
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[quote="ShadesOfMe"][quote="Smelena"][quote]One of its stated goals is to "cure" autism - an aim some people with autism find offensive[/quote] I'm happy that this is being publicised. As a parent of 2 sons with Asperger's, I find Autism Speaks highly offensive. This needs publicity too! Helen[/quote] They want to cure fullblown Autism, and all spectrum disorders. Helllooo people, It's genetic. how else could a family end up with six autistic kids? Or a mis of Autie's and Aspies?[/quote]
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CockneyRebel
Posted: Wed Feb 27, 2008 11:23 pm
Post subject:
That doesn't surprise me, with the way that most people think about us.
matrix
Posted: Tue Feb 26, 2008 12:12 am
Post subject:
The usurping power grid can't have dissenting anti-socialites (eg individuals) now can they?
hyperbolic
Posted: Fri Feb 01, 2008 3:42 pm
Post subject:
DeaconBlues wrote:
To answer your question, Hyperbolic:
Because their press releases paint an unrelentingly bleak picture of the lives of autistics - we have no empathy, can never learn coping skills, will forever be overgrown children, etc.
Because they will not permit autistics to speak for ourselves. If we can speak, we are dismissed as "not really autistic".
Because their board consists
only
of parents of autistic children - adult autistics are unwelcome there. In fact, they do not seem to acknowledge that adult autistics even exist.
Because one of their officials, in testimony before the Canadian Parliament, reportedly said it would be better for children to be dead than autistic.
You can see how I might take some of this personally...
Thanks for the info.
The_Q
Posted: Fri Feb 01, 2008 9:22 am
Post subject:
tweety_fan wrote:
any autism organization that is any good has to have adult autistics involved as well as kids. It is really dumb to just have parents and not include the rest of the spectrum community.
anyway as i have said before spectrum peoples should be given a fair go, and they are not better off dead. what a horrible thing of that person to say. can't help but think that group is dedicated to wiping us out rather then helping us.
The United States has tried out Eugenics before. Hopefully, enough American's will learn of the mistakes made in their own history.
tweety_fan
Posted: Fri Feb 01, 2008 4:59 am
Post subject:
any autism organization that is any good has to have adult autistics involved as well as kids. It is really dumb to just have parents and not include the rest of the spectrum community.
anyway as i have said before spectrum peoples should be given a fair go, and they are not better off dead. what a horrible thing of that person to say. can't help but think that group is dedicated to wiping us out rather then helping us.
ShadesOfMe
Posted: Fri Feb 01, 2008 1:17 am
Post subject:
Smelena wrote:
Quote:
One of its stated goals is to "cure" autism - an aim some people with autism find offensive
I'm happy that this is being publicised.
As a parent of 2 sons with Asperger's, I find Autism Speaks highly offensive. This needs publicity too!
Helen
They want to cure fullblown Autism, and all spectrum disorders.
Helllooo people, It's genetic. how else could a family end up with six autistic kids? Or a mis of Autie's and Aspies?
DeaconBlues
Posted: Thu Jan 31, 2008 11:36 pm
Post subject:
To answer your question, Hyperbolic:
Because their press releases paint an unrelentingly bleak picture of the lives of autistics - we have no empathy, can never learn coping skills, will forever be overgrown children, etc.
Because they will not permit autistics to speak for ourselves. If we can speak, we are dismissed as "not really autistic".
Because their board consists
only
of parents of autistic children - adult autistics are unwelcome there. In fact, they do not seem to acknowledge that adult autistics even exist.
Because one of their officials, in testimony before the Canadian Parliament, reportedly said it would be better for children to be dead than autistic.
You can see how I might take some of this personally...
hyperbolic
Posted: Thu Jan 31, 2008 9:24 pm
Post subject:
Autism Speaks was started by the wife of an executive at General Electric whose grandson has autism. I read this in PARADE magazine. It sounds like the organization was founded out of concern, rather than fear. I am not exactly up to speed on why Autism Speaks is an considered by some in the autistic community to be an organization that negatively affects people with autism.
So, why is it, just curious?
P.S. I loved to read New Scientist online until the site ceased to be free. But the first several paragraphs that are still available for free reveal that the magazine has not stopped providing interesting headlines. Maybe I'll get a subscription one of these days.
The_Q
Posted: Thu Jan 31, 2008 8:42 pm
Post subject:
postpaleo wrote:
Good article, does it have a very wide reading? I hope so.
New Scientist has a fairly wide reading. It's often regarded as means for the world of science to be communicated to the public. I can imagine that quite a few people that have the power to make a difference would have read that article.
I'd also like to see someone take the legal fight back to AutismSpeaks. If I was living in the U.S. atm, I'd be getting involved.
Rjaye
Posted: Thu Jan 31, 2008 7:10 pm
Post subject:
YES!!
This kid still has her site up, and with the support from other autism advocates, and she is a hoot.
Amanda is quite amazing, and her blog is on my favorites, too. She always has something interesting to say.
And this is in "New Scientist." Awesome.
Smelena
Posted: Thu Jan 31, 2008 6:02 pm
Post subject:
Quote:
One of its stated goals is to "cure" autism - an aim some people with autism find offensive
I'm happy that this is being publicised.
As a parent of 2 sons with Asperger's, I find Autism Speaks highly offensive. This needs publicity too!
Helen
postpaleo
Posted: Thu Jan 31, 2008 5:13 pm
Post subject:
The bastards have money and they're rather use it to squash critics then listen and pay attention to what they should be.
Amanda is something else again, articulate to the point she can intimidate me. But I finally screwed up my courage enough to thank her for my AHA!! moment. (not that you can ever really thank someone for just being who they are, but I tried) A truly amazing woman. Her personal site is on my favorites list and what she has written in the past and now is very worthy of a look see.
Good article, does it have a very wide reading? I hope so.
jrknothead
Posted: Thu Jan 31, 2008 4:53 pm
Post subject:
oop, my bad....
I just noticed something else... the Autism Speaks logo has 'TM' written next to it, which is the proper symbol to use to claim trademark before it is registered... A registered trademark will feature an 'R' in a circle...
Without a registered trademark, they have no standing to sue anyone for infringement. Any cease and desist letter could be considered fraudulent... their demand for a cash payment, coupled with the fraudulent C&D letter, amounts to a very good case for fraud and coercion...
KimJ
Posted: Thu Jan 31, 2008 4:45 pm
Post subject:
That isn't messed up teeth, that's a child transitioning from baby teeth to adult teeth. All kids go through that stage. For a grade school child, he's rather attractive.
jrknothead
Posted: Thu Jan 31, 2008 4:42 pm
Post subject:
whats up with the teeth on the kid on the Autism Speaks website? Did they intentionally use a kid with messed up teeth for a more "retarded" look?
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