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Autism Politics, Activism, and Media Representation
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[quote="archetype"][quote="NicholasGray"] Still, they have all the money. [/quote] So what? Autism and truth are not purchased by money - human primates are, and the worst of them, at that. We have nothing to do with that lowest level of sentience on this planet. We each were created greater than that, above that, and it is inappropriate to take a position of leadership and ask us to act like human primates do, negotiate the truth like human primates do, and compomise what is true like human primates do. We are each better than that; all of us, and you know it. [quote="NicholasGray"] Still, [/quote] You just spoke everything you need to right there. All you need to know about what you really know and how you really feel. One of the most - if not the most - important gifts we share is that we can know our thoughts and feelings about ourselves, where-as humans can never know but an iceberg-tip about themselves. We have no need for human socio-politics; human primates have need for that because they do not know anything about themselves and cannot meet their own needs. There is only the truth in this matter, and we all know what it is. You know it ... you said it right above; "Still..." Your reluctancy is for a very good reason. It is because we are not human; we are better than that, and above such things as the need to influence or manipulate public opinion. Stay true, all, and there is no fear. What are you afraid of that you feel so weak that you must compromise everything that makes Autism, Autism? Here, let me clarify your thoughts and feelings with some abridging.... [quote="NicholasGray"] Still --- they ... money. They ... corporate. They ... influential. They ... machinery ... influence ... opinion ... government dollars. --- right? [/quote] No, wrong. All of it is all completely wrong. You know that; you just want the support to be able to stand tall and separate yourself from the "They" you refer to ... the "they" that is not "you", the "they" that is not "me" and the "they" that is not "us". Now you have that very conscious and adamant and powerful support. Here ... very most simply: I do not want any human primate government agencies in my life. I do not want any human primate corporations in my life. I do not want any human primate 'machinery' in my life. I do not want any human primate influence in my life. I do not want any human primate opinion in my life. I do not want any human primate government dollars in my life ... nor the unspoken toll that is required for those dollars; I will not enter into that 'agreement' with human primates - I have learned that lesson too many times. If you want to lower yourself to the human primate level, you may but do so to yourself only; nobody has the right to prevent you. But I would not advise it, and I do not want to and I will not go along for that particular ride. I have fought much too hard against all odds in my 45 years to lay myself down now, because you are uncertain, that I can be walked upon and stepped upon, compromised and collateralized, manipulated and influenced. Been there, done that, for far too long; it's time for that to end. NOR WILL I MANIPULATE NOR WILL I INFLUENCE NOR WILL I MARKET NOR WILL I NEGOTIATE NOR WILL I MAKE PUBLIC OPINION NOR WILL I COMPROMISE NOR WILL I FOOL MYSELF NOR WILL I FOOL OTHERS. I am Autistic. I am only interested in the one thing I have always been only interested in; That-which-is-true. There is nothing else. Human primates concern themselves with everything else except what is true. Human primates make the wrong choices for themselves because they do not know their own selves and cannot meet their own needs and so substitute a mockery and a devastation for what they need instead - tempted by money and influence and power over others; so when you ask if that is "Right?" ... the answer is an obvious "No." That is the opposite of Autism. The opposite of AS. How does Autism win being its own opposite? If you are uncertain do not take a place of leadership yet. What on this planet are you doing daring to speak such bombastic human primate attributes for the likes and kind of my caliber, who has never compromised and never will? If you are not strong enough or sure enough to navigate the right path, please stop navigating on others' behalf. While I work to find means of independence and complete freedom from the ways and means of human primates, you would sign your soul away - and mine, too - to such beasts as have done to me and to you and to all and to themselves and to this entire world as they have done and will only continue to do? Human primates must learn to share this planet with another sentient species - when they cannot even share it with themselves. We do not ever operate as they do. We are always better than that. We do not politic. or influence .. or hire human primate lobbyists or anything but represent the truth. That is who and what we are and we lose any other way, whether it is ourselves that we lose or just a 'campaign'. I will not lose myself. I have fought too hard to keep myself. I have never battled human primates using human primate means - I and we have much more powerful and far more pure means; I simply represent the invariable truth and let them flail themselves against that monolith, should they wish. We 'win' by one means and one means only; by staying true to ourselves. If humans cannot help themselves, and we wish to survive on this planet, then we must help humans help themselves. We come from a position of absolute authority and power. There is nothing weak or petty about Autism. We do not play patty-cake with humans; they will always win human games in a human arena. When was the last time Autistics lied for profit? When was the last time Autistics crafted subliminal advertising? Ar ye gone insane, me lad??? Listen to your self; you naturally tell yourself everything you need to know. THAT is our power and our authority. Be true. Be strong. Fear not, and so resist temptation to kneel, for there is no need. How can you lead through the dark, if you are afraid of the dark? We are stronger than that, look and see and be amazed - and Time and Nature and Destiny are all on our side.[/quote]
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Bopkasen
Posted: Mon May 12, 2008 3:43 pm
Post subject:
morning_after wrote:
alex wrote:
Here's the video:
Alex, did you feel like they lied to you at all? You were there and I wasn't.
I think the question sounds genuine, and that they would like to see it.
In my public speaking and debate experiences, they parry you at the end.
I think the argument that curing all autism spectrum is bader than helping low functioning bracket. However, there is no real way to target specific spectrum for "cure" therefore it is pointless to go further in the global research.
This argument would have a "I agree" or some kind of statement from Wright to rebuttal.
They did made a neutral statement with a negative comparison that it April and it Autism Awareness.
I wished I was with you Alex, I would have do some speaking too since public speaking is my expertise. However, this plane cost and a 5 mins speech probably not worth it unless I was truly a wealthy lobbyist.
auntyjack
Posted: Tue May 06, 2008 11:25 am
Post subject:
autistican_beauty wrote:
Quote:
I say yes. No progress can be made without communication and compromise.
I will extend Speckles words to my opinion. If we as Aspies and NT's are EVER going to come together, it must be done with respect. The anger and attacks have to stop.
I agree about respect but if you think Autism Speaks respects us, you are kidding yourself. As long as they fund genocide there is no respect. What they want are asking us to do is give them credibility to eliminate autism, not because they respect us but because they are hearing the criticism that they do not represent autistics. if we provide material for their site, they can say they have the support of autistics. I am so amazed that people are agreeing to support genocide. Why don't we all just line up meekly for the gas chamber and save society the bother of fundraising for legal elimination? Jeez, maybe we deserve to be eliminated. We are dumber than cows. They don't happily hop onto the abattoir trucks, thanking the driver for the offer of a free ride to oblivion.
morning_after
Posted: Mon May 05, 2008 9:02 pm
Post subject:
Maybe they want to give themselves a better reputation among us.
Malachi_Rothschild
Posted: Mon May 05, 2008 1:35 pm
Post subject:
I think, just, be aware of the rule of reciprocity which they might think will come into play:
http://knowledge.wpcarey.asu.edu/article.cfm?articleid=1341
morning_after
Posted: Sun May 04, 2008 8:05 pm
Post subject:
I'll have to agree. If they are really willing to work with us we shouldn't have to agree with them.
autistican_beauty
Posted: Sun May 04, 2008 3:59 am
Post subject:
Quote:
I say yes. No progress can be made without communication and compromise.
I will extend Speckles words to my opinion. If we as Aspies and NT's are EVER going to come together, it must be done with respect. The anger and attacks have to stop. We have to be better than politicians. Nobody likes getting slapped across the face Aspie to Aspie, Aspie to NT, NT to NT, etc...if a system doesn't work after employing this simple but all-too-forgotten strategy, then cut it off like a limb with gangrene. Hate isn't healthy. I'm so disheartened to see the way it spreads like wildfire on social networking sites. I sent AS a poem for their World Autism Day writing contest. I did it in the hopes of enhancing adult awareness, an issue I find greatly ignored and lacking in terms of support and services. They did choose to publish it. I was glad because I achieved my goal and yes, it was good to see my work in print again after several years. My point is, let's agree to disagree, be respectful and work with the Wrights and AS. If they choose to cooperate, a gain for all. If not, we as the autism community cut our losses and move on.
Speckles
Posted: Sat May 03, 2008 11:57 pm
Post subject:
I say yes. No progress can be made without communication and compromise.
auntyjack
Posted: Sat May 03, 2008 4:24 am
Post subject:
The_Cucumber wrote:
Well, I suppose we could if we do it right.
Simply showing someone why they are wrong without actually saying "your wrong" can be far more effective then telling people they are wrong and backing up your argument.
So I think we should send them as many success stories of people with autism as we can. Preferably, it can be inferred that if the person did not have autism they could not have succeeded in the way they did.
If we send them materials to use on their site, we are supporting them. We give them validity. By our actions we say that they are ok.
The best thing that we can do is to refuse to support Autism Speaks until they accept us on our terms and let the world know that we do not support them and why.
auntyjack
Posted: Sat May 03, 2008 4:20 am
Post subject: Re: Offer from Autism Speaks, please give your opinion
NicholasGray wrote:
Suzanne Wright, the co-counder of Autism Speaks, responded with a public offer to promote positive stories on Autism Speaks' website if I provide them to her. This was, of course, right after she claimed her orgainzation is making a ton of progress to make autistics feel more accepted. She then promptly compared autistics to AIDS patients.
..
Nicholas
The only way that I would support Autism Speaks would be if they were to reform their management team to include 50% autistic representation. I would then expect them to rework their website with regard to an evaluation by the autistic board members. I would expect them to insist that all research funded by them be subject to a member of the autism committee on the review team so that only proposals which meet an autism friendly protocol be funded. I suggest that fundraising no longer be promoted in a manner which demeans autistic people as damaged beings in need of fixing.
I suggest that as they clearly demonstrate a limited understanding of autism (the comment about Aids shows that) that
autistic adults should boycott the organization until they are prepared to accept us as equals.
krex
Posted: Thu May 01, 2008 6:45 pm
Post subject:
NicholasGray
Posted: Thu May 01, 2008 3:10 pm
Post subject: Autism Speaks spoke
Hey all.
Yesterday I received a call from Autism Speaks' Director of Special Programs. Apparently there were some snafus with their blackberry devices and international travel, so they just got my messages. Or maybe some our grousing got back to them, who knows.
But they are going to make good on their offer to create web space to host the videos (meeting next week about how/where on their site) and at least sound genuinely enthused to expand upon the messages they are putting out. I am cautiously optimistic right now.
When I talk with them next week, I will bring up all the concerns you guys have expressed to me before moving forward. And I will make sure to keep everyone on this board in the loop.
Nicholas
CockneyRebel
Posted: Tue Apr 29, 2008 7:58 am
Post subject:
I've tried to sign it, again but they only take one signature per person, now.
krex
Posted: Mon Apr 28, 2008 9:23 pm
Post subject:
Autism Speaks offer....Could you legally show a clip of her making the offer, (as shown in the meeting)? I did have my suspicions that the comment she made was "off the cuff" and not sincere but meant to present them as "reasonable". I was hoping I was wrong, regardless of how rare that is
"Autism Speaks is so busy speaking for us, that they don't seem to have time to listen"...would make a good sound bite following the clip of her making the offer and your documented,(always keep a written record of when you call and what their response...or lack of one... was), attempts to contact them for follow-up.
I can't recall if I mentioned this before but if you are still looking for suggestions about your film for this....I would like the point to be made that....
1)There are new technologies that are allowing "non-speaking autistics" to communicate and prove themselves to be thinking, feeling and caring individuals...something that some did no realize until they were given a voice by technology...(thinking of Amanda Brags(sp?).
2)There is a lot of credit being given to various "treatments"...ABA and others...that are given credit for the improvement of autistics kids functioning that could be accounted for by nothing more then "time". Point being....I consider myself developmentally delayed and even without ABA, I improved in some areas over time and life experience. Scientist could learn a lot more about how this happens (what helps and what hinders), if they would spend more time "studying" aspies who were raised before there was a DX. The fact that many are ignoring the reality of their(our) existence is perpetuating the agenda that this is a "new epidemic", rather than the reality that we ave always been here.
MysteryFan3
Posted: Mon Apr 28, 2008 5:22 pm
Post subject:
Not entirely unexpected. Her offer was made in a standard "business pretty" delivery. It's hard to tell if someone is sincere when they do that. Most often, they're just shifting the next step to someone else.
Still, they may actually follow though. Having poor organizational skills is not restricted to Aspies.
polarity
Posted: Mon Apr 28, 2008 4:24 pm
Post subject:
A follow-up in the youtube comments to the video might be a good start, if they're still unwilling to follow up on it aftyer being informed of your intention to make their insincerity public.
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