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[quote="sunshower"][quote="TallyMan"][quote="sunshower"]I understand TallyMan. Am struggling with severe very very rapid cycling myself (as fast as 1 to 3 hours). I could relate to everything you said. So far I have been diagnosed with Bipolar 2 as I have had full blown diagnosed episodes of major depression in the past, and what we now suspect were episodes of hypomania. This is my first experience of very severe extreme rapid cycling and it's utterly crippling. Not only the emotional extremes, but the severity of the physical symptoms - from seizure type fits when on "fast forward", to being completely catatonic and physically unable to move when in a low. It is also hard to understand why I was in the other state while I'm one way. It's like being on an out of control rollercoaster and being unable to get off, just barely surviving (eating, breathing, sleeping). I am an invalid living under constant supervision and care by my parents. I can't wait until we get the medication right, because it's got to be better than this.[/quote] I am sorry you are going through this. I am free of the type of physical effects you describe. From what I've read cyclothymia can sometimes progress into bipolar with age; but I'm hoping I will be spared such a fate. The biggest external stress I face is financial at the moment. I sell a certain amount of bespoke software to a handful of established customers and some shareware software but am struggling to survive financially. I'm unable to secure full time employment and this adds stress to the situation and I don't qualify for any sort of financial support, so basically I'm barely surviving in abject poverty at the moment. At least the medication is free of charge for me. Finding work in today's economic climate is difficult, especially for a 51 year old in software development. I can't afford to be ill or basically I won't be able to pay the bills. The future looks very bleak at the moment. Anyway, I'd better get working on my latest software project and hope that I will get some good sales from it. I hope you find some medication that helps you to level out and hopefully that doesn't leave you feeling drowsy. I don't have much confidence though that medicines have reached a stage where they can resolve the problems without introducing other problems as side effects.[/quote] I really hope it gets better. I used to study and do lots of creative activities, but I am in a bad way now and mostly can't even do basic things. At my best I am able to read old children's books. I am managing to hold onto my singing job, which is 2.5 hours a week and a little income. I am on the disability support pension. I would not survive without it. I just want my old life back, more than anything. I'm just praying that stabilizers will be enough to get me on that path, at least so I am able to achieve some small amount of work/study/creativity during good periods. It must be very hard for you to have to deal with all that AND support yourself. I couldn't, I would be on the street.[/quote]
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jackbus01
Posted: Thu May 10, 2012 2:15 pm
Post subject:
I am glad to hear you are doing better.
I try to keep track of objective things like: how many hours I sleep, how often I eat etc., for me that sometimes helps to figure out if I am starting having a mood swing. I also listen to feedback from others. It doesn't
always
work, but my brain shifts mood and really don't know why until way
after
the fact. You might want to continue staying on a mood stabilizer though.
slave
Posted: Wed May 09, 2012 8:34 pm
Post subject:
TallyMan wrote:
slave wrote:
How often can you identify a trigger?
Sometimes, but on other occasions there is a sense of something being wrong that I can't put my finger on - almost a sense of dread or foreboding about things. I think the word "trigger" can be a bit misleading because it implies it is the
cause
of a sudden mood shift, whereas I think the brain/mind has
already
shifted in such a way as to predispose it to a small trigger having a disproportionate effect on mood.
My cerebral Veterinarian has come to believe that each shift in mood is in response to a trigger. These triggers can be extremely subtle from sounds and smells to even bodily postures and so on. I don't know what to believe because I rarely sense a trigger although sometimes in hindsight I can see them.
TallyMan
Posted: Mon May 07, 2012 9:01 am
Post subject:
slave wrote:
How often can you identify a trigger?
Sometimes, but on other occasions there is a sense of something being wrong that I can't put my finger on - almost a sense of dread or foreboding about things. I think the word "trigger" can be a bit misleading because it implies it is the
cause
of a sudden mood shift, whereas I think the brain/mind has
already
shifted in such a way as to predispose it to a small trigger having a disproportionate effect on mood.
slave
Posted: Sun May 06, 2012 7:50 pm
Post subject:
TallyMan wrote:
Thanks for the positive wishes folks. I'm OK at the moment. That is the thing with cyclothymia - you can be fine for days, weeks or months then suddenly at rock bottom and suicidal with only a small trigger. Similarly with the highs, combined with Aspie special interests they can be really good times, living focussed on something and hardly sleeping due to the fascination and wonderment with the subject.
How often can you identify a trigger?
Asp-Z
Posted: Sun May 06, 2012 11:41 am
Post subject:
Sounds a lot like me, I'm seeing a doctor soon because I probably have some sort of bipolar too. I know how all that feels, when you feel down just think of the good times and remember they will be back
TallyMan
Posted: Sun May 06, 2012 11:09 am
Post subject:
Thanks for the positive wishes folks. I'm OK at the moment. That is the thing with cyclothymia - you can be fine for days, weeks or months then suddenly at rock bottom and suicidal with only a small trigger. Similarly with the highs, combined with Aspie special interests they can be really good times, living focussed on something and hardly sleeping due to the fascination and wonderment with the subject.
Asp-Z
Posted: Sun May 06, 2012 10:58 am
Post subject:
To quote Stephen Fry (who also has cyclothymia): "The mood is your own personal weather, and it's very like the weather: if you go outside and it's raining, it is real, you can't walk it off and suddenly it's sunny, the weather makes up its own mind... We all know that it can be a damn nuisance when it's raining, but the sun will come out... It will become incredibly sunny."
Hang in there
slave
Posted: Sat May 05, 2012 9:35 pm
Post subject:
I'm glad your status is reasonable at the moment. I wish that you were not suffering as you are.
Peace to you.
TallyMan
Posted: Sat May 05, 2012 8:25 pm
Post subject:
slave wrote:
Tallyman,
How are you doing now?
I'm OK at the moment. No depression and I'm off the medication, just taking the occasional mood stabiliser when necessary. Still up and down but within reasonable limits. I do think that eventually the cyclothymia + Aspergers will be the death of me though, it is just a matter of time; but hopefully not for a good number of years yet.
slave
Posted: Sat May 05, 2012 7:36 pm
Post subject:
Tallyman,
How are you doing now?
JoeRose
Posted: Wed Apr 18, 2012 6:11 pm
Post subject:
Hey there TallyMan!
I can definitely relate to this post. I'm self-diagnosed cyclothymic although whenever I have a mental status examination with a psych it always mentions hypomania and depression. So I don't know whether they've diagnosed me and just not told me! (Not sure how diagnosis works out in England... I think they only diagnose you once you've completely fallen off the rails. Which I've never done)!.
anyway, I can relate to a lot of what you've said. What I find helps me on the blue days is remembering that it WILL get better again. As much as it feels it won't and that nothing could ever get better - you learn from experience that it always does. So you've just got to keep telling yourself that the depression is only temporary. That's what I find helps anyway
Hope you're feeling better,
Joe
Kyra71
Posted: Wed Apr 18, 2012 10:45 am
Post subject:
I'm late to this thread, but glad you're feeling better! I have bipolar & AS, and it's a constant struggle for me too. But always heartening to see that what goes down
does
come back up eventually... I hope you're in for a better phase (and that it lasts a good long time!)
qwan
Posted: Wed Apr 18, 2012 10:32 am
Post subject:
I think I have cyclothymia. I'm dx by the Gp or someone with it anyway, if that counts. *shrugs*
I've had such fast cycling. Like one time I was up and down within minutes. 15 minutes I was hyper the next 15 I was suicidal. It didn't help that during my hyper stage I was begining to have a sugar crash but was too busy to eat, so when I got all down the sugar crash reached its peak and I was shaking and feeling sick and crying. Then they started blurring and I was having a mixed episode and my mom came in and got scared. =/
It passed soon enough but was horrible.
I think my anti-depressants make my mood shifts more frequent but I don't want mood stabilisers in case I'll never be hypomanic again; because I go years without knowing when the last time I was happy was. And when I'm hypomanic, I know what it feels like to be kinda happy. I don't like the idea of getting rid of that to balance it out. >_<
It's not always that bad, but mixed episodes are the worst thing. I think I'm going insane. =/
Glad you're feeling a bit better now TallyMan. I'm sure it's a case of getting used to the meds and retraining your brain to deal with the extra (theoretical) weight of drowsiness the meds cause. After all, the brain is a muscle, so in theory it's possible, just difficult.
*hugs* to everyone suffering.
TallyMan
Posted: Sat Nov 12, 2011 4:53 am
Post subject:
Just to add an update. I think the medication is working now. I've been quite stable the last couple of days and the severe depressive bouts appear to have gone. I hope they don't come back! The medication is still causing drowsiness but that is easing, presumably as my body gets used to the drugs. Thank you to the people who have posted in this thread, it has helped.
FaeryEthereal
Posted: Fri Nov 11, 2011 7:27 pm
Post subject:
TallyMan wrote:
When the Cyclothymia is less extreme I've found I can generally live with the highs and lows. I know that in a few hours time or few days I will be feeling level or high again. Cyclothymia is part of my temperament too. In fact I only discovered Cyclothymia a year or so ago after it was suggested to me by someone who also experiences similar tendencies. My doctor has since confirmed this suggestion. It is certainly a complex issue. When the highs are applied to the special interests of Aspergers it can make us highly creative and intuitive in those areas and give us insights that most people are oblivious of.
So very true and very validating to hear it from someone else who also has both AS & Cyclothymia.
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