Author	Message
MathThinkerSpain	Posted: Sun Jul 20, 2008 3:30 pm    Post subject: Re: Autisim Speaks anbuend wrote: QFT. Boy do I get sick of explaining that. (Especially people who claim they desperately want a cure because of what severe problems they have, where in all the measures given their problems are less severe than mine.) Well, some false concepts, PEOPLE!!! When you speak of cure, you are not really talking about cure. You mean to change brain elements which make you AS, and move this elements into NT form. It is not curing, it is converting your moods and way of life. You become Somebody else, maybe an stranger for yourself, in your samebody.(did you see the film "TWO FACES" OF NICOLAS CAGE and JOHN TRAVOLTA, hehe THAT IS a idea of moving personalities, the mafia-man took(changed) his face into the police-chief's, and everybody, friends, family where confusing about it, and police-chief got the face of somebody in prison, ) CURE AS=AS_Moved_into_something_new_you_do_not_know_what_is_it_going_into. Maybe any sort of Frankestein. Yeahh!! If you get cured anbuend you will not be anymore anbuend but you will become dneubna, and THE_CUCUMBER=REBMUCUC_EHT_CURED. Do you know really, what you are talking about? CURED? It is a total nonsense. Why do they not cure NTs, AND convert them into AS, so we can speak same language. We have freedoom to express our own AS personality how it is, how it becomes and how it will be. They wanted also to cure Homosexual? Or black people because of the skin colour? We were speaking about that in this thread How to prevent your children NT Birth using embryo gene analisis: By the way, I am not for pills, if possible, as they change also your personality, I have seen some boys and ppl got into a new kind of ZOMBIES full pills to relax. (IF POSSIBLE, I know some ppl need for sure) If we were living thousands of years without AS-pills, why do we need them nowadays???? Some natural solution... may be Salud
anbuend	Posted: Sun Jul 20, 2008 10:35 am    Post subject: KingdomOfRats wrote: The_Cucumber wrote: The problem with Autism Speaks has 3 main causes: 1. They are called "Autism Speaks" yet membership and leadership is mainly comprised of family members of severely autistic children. Thus their very name is seen as misleading 2. The vast majority of their funding goes to fund cure research. And this cure research mainly focuses around identifying the genes associated with autism with the purpose of creating a prenatal screening test, which would effectively cause a genocide of autistic individuals, while doing nothing to help people who are already autistic. 3. They push a purely tragic picture of autism. Completely ignoring the high functioning end of the spectrum, they certainly don't talk about people like me where my symptoms boil down to just a few more quirks then the average person. they are biased and ignoring of,towards adults who come under the 'severe' end as well,they try to push beliefs to others that LFAs can never use the internet,communicate in any form or type,and any users on their forum who are LFA are non existant because are using a forum,its not just aspies and HFAs they're ignorant of,its adult LFAs to. Yeah the only regular user on their forum who's been labeled LFA is someone who trashes and slanders other people she encounters online who've been labeled LFA (including at least two from this forum - me and age1600). Go figure.
anbuend	Posted: Sun Jul 20, 2008 10:31 am    Post subject: Re: Autisim Speaks Sora wrote: I don't think it depends on where someone is on the spectrum. A person without many impairments may really strive for a cure and someone whom other autistic people would view as very miserable because they're seen as 'low functioning' might say they don't want a cure. Their reasons for not wanting a cure are as good as the ones from the barely impaired person who wants a cure. Before the law, that's different of course. People demand that those who need some kind of assistance declare themselves as leading a bad life because of the need of help, but that does not mean the ones in question personally agree with it. QFT. Boy do I get sick of explaining that. (Especially people who claim they desperately want a cure because of what severe problems they have, where in all the measures given their problems are less severe than mine.)
Sora	Posted: Sun Jul 20, 2008 8:02 am    Post subject: Re: Autisim Speaks t0 wrote: Buttersboy142 wrote: I dont't understand why anybody would choose to remain the way we are. It depends on where you are on the spectrum. I feel that the ability I have to focus intently on my areas of interest offsets the sensory overload and other issues I may face. If I had a magic pill to take that would get rid of my sensory issues - would it leave me with the advantages? Or would it change me as a whole? All things considered, I'd rather be me. I don't think it depends on where someone is on the spectrum. A person without many impairments may really strive for a cure and someone whom other autistic people would view as very miserable because they're seen as 'low functioning' might say they don't want a cure. Their reasons for not wanting a cure are as good as the ones from the barely impaired person who wants a cure. Before the law, that's different of course. People demand that those who need some kind of assistance declare themselves as leading a bad life because of the need of help, but that does not mean the ones in question personally agree with it.
Flipmode	Posted: Sun Jul 20, 2008 2:33 am    Post subject: Were these the people that were advocating shock therapy? I heard there were people that believe that giving electric shocks to autistic kids would cure something, I hate those Nazi's
hadapurpura	Posted: Fri Jun 27, 2008 4:19 pm    Post subject: There's an interesting take on this here: autisticcbfhblogspot.com What she says is right. Autism Speaks is NOT an organization made to help people with autism. It's an organization made to help parents who feel burdened and embarrased by having an autistic child. Their biggest accomplishment is this movie called "Autism everyday", where you can finds pearls like these: Mother talks about killing her autistic daughter and herself This is the seven minutes version of the film for Youtube: Autism Everyday ---> as you can see, comments have been disabled for the video (well, for every video by Autism Speaks, actually). Nevermind that they have threatened to sue not one, but two autistic kids for speaking up against Autism Speaks. Generally, when I bump into organizations to help people with "x" or "y" condition (a lot of them run by parents or families of children with said condition, just like in AS's case), comments I see or hear talk about both the negative and positive side of it, what they learned and gained in life thanks to it, what makes their children special in the good sense of the word. Also, they tend to focus on how to help their children to adapt themselves to the world and to take advantage of what makes them unique. There's not a lot of denial about having rough times, but above all things, there's love for their children and looking for what's best for them. And this is true for blindness, musical talent, Down's syndrome, left-handedness or AIDS. -so not being run by autistic people is not an excuse, either. Is there a list of some sort with the names of celebrities or companies that sponsor or help AS? it'd be cool to write to them.
t0	Posted: Sat Jun 14, 2008 10:35 am    Post subject: Re: Autisim Speaks Buttersboy142 wrote: I dont't understand why anybody would choose to remain the way we are. It depends on where you are on the spectrum. I feel that the ability I have to focus intently on my areas of interest offsets the sensory overload and other issues I may face. If I had a magic pill to take that would get rid of my sensory issues - would it leave me with the advantages? Or would it change me as a whole? All things considered, I'd rather be me.
Buttersboy142	Posted: Sat Jun 14, 2008 2:12 am    Post subject: Re: Autisim Speaks Sylfa wrote: I've noticed some people on Wrong Planet really dislike Autism Speaks. Why is that? I'm new to the Aspergers/Autistic Spectrum community. Is there some reason I should avoid this group? Because alot of Autistic people and people with AS find the idea of a cure insulting. Myself I would like a cure. I believe Autism/ AS is nothing but "a condition that affects social interactions, creates abnormal behaviors, and affects ones everyday life." I dont't understand why anybody would choose to remain the way we are. I mean the thought of not being AI is like walking to the unknown and its scary but it could also be alot better. Plus if there is a possibility that I could have a child and have them live without this impairment I would love that.
ImMelody	Posted: Wed Jun 11, 2008 7:30 am    Post subject: My view of Autism Speaks is that they are a group of well meaning adults with misguided information. It's because of our local Autism Speaks president that three new bills were passed in my state. I cannot say that this is a bad thing, even if where they were coming from was wrong. I just spent a day volunteering for their walk this past weekend. While I don't agree with where the money was going, it was nice to see families out and participating in the festivities that went along with it. (Though, I whole-heartedly disagree with some of the "vendors" that were set up.) I never see where the money from AS goes. They rarely offer grants to families to assist with any of their large medical bills, but instead, they ask those same families to donate money. They never seem to have a lot of answers to questions of where families should turn once they realize they are living with autism. So yeah, my two cents as someone that first had contact as a part of autistic child now learning that she herself is aspie.
roche12	Posted: Wed Jun 11, 2008 1:20 am    Post subject: This is what is wrong with them. "You dont live with autism" So those of us that learned to communicate decently have no idea about what an autistic that cant talk is going through but a parent of an autistic child does. We experience the world the same ways they do but dont understand what they are feeling, but the parents who dont experience the world the autistic way know what its like. What I would like for these people to do is give me a list of things they cant stand, sounds, music, smells, lights, colors, ect. Let me know all the worst things that could happen to them. Then I am going to put them in a room full of people that do not speak their language and tell all those people to do these things. Maybe then they will "get it", maybe then they will understand the violent outbursts, the screaming and the self damaging things their severe autistic children(as they like to call them) do. "I dont want a cure for me, its for them" SURE!!!!!!! This is a lie they like to tell themselves so they dont feel bad. Ever notice how the parents of lfa children who dont want a cure have nothing bad to say about their child. They view them no different than any other child. The ones who want a cure see their children as suffering somehow. "Autism for you is different because you can talk" No its not, HFAs are just better then LFAs at fixing our problems, better at coping. So here is a crazy idea, lets all find a way to help LFAs deal with their world. Of course that would require listening to HFAs like the real experts do because we know more then anyone else does because we can best describe what is happening. IMO they are upset that they dont have the super smart kid, they cant show off how great their child is. Funny part is they appear to be out to destroy the very thing they wanted from their child. You know, the great inventors, scientists and artists of the world.... the ones who all seem to be on the spectrum..... Anyways, AutismSpeaks seems to believe that you can "cure" autism without killing the person. I dont believe this is possible, you cant rewire a brain without destroying it. Many of these people are the ones who think cancer would be better than autism because it kills those who suffer from it.... because death is sooooooooooooooo much better than life, rather funny because if I was given the option of death or forced cure I would take death, the idea of not being me is rather scary.
demoluca	Posted: Tue Jun 10, 2008 6:00 pm    Post subject: I just wish they would shut up for once.
LKL	Posted: Sun Jun 08, 2008 2:37 am    Post subject: beau99 wrote: LKL wrote: when actual autistics try to debate anything on their message boards, they are banned. O RLY? I've debated issues on there since November. I haven't been banned. Same goes for some others. The only people who get banned actually deserve it. there was a thread a few months ago that linked to a debate (about vaccines?) on the Autism Speaks site, and the person (from WP) who posted there was banned for being to aggressive/insulting/whatever; I read the thread in question, and she (?) wasn't being insulting - merely saying, 'what you are saying is incorrect, and here is the evidence to back me up.' Someone else from WP joined in the discussion, and they were banned too. I don't think that the second person was being insulting either. I don't remember either of their names. two people aren't a lot to base a whole analysis on, but they were clearly being banned for political reasons rather than any actual impoliteness.
Shidash	Posted: Sat Jun 07, 2008 9:40 pm    Post subject: Yes, AS needs to become like the NAS. The NAS sounds wonderful.
KingdomOfRats	Posted: Sat Jun 07, 2008 7:50 pm    Post subject: The_Cucumber wrote: The problem with Autism Speaks has 3 main causes: 1. They are called "Autism Speaks" yet membership and leadership is mainly comprised of family members of severely autistic children. Thus their very name is seen as misleading 2. The vast majority of their funding goes to fund cure research. And this cure research mainly focuses around identifying the genes associated with autism with the purpose of creating a prenatal screening test, which would effectively cause a genocide of autistic individuals, while doing nothing to help people who are already autistic. 3. They push a purely tragic picture of autism. Completely ignoring the high functioning end of the spectrum, they certainly don't talk about people like me where my symptoms boil down to just a few more quirks then the average person. they are biased and ignoring of,towards adults who come under the 'severe' end as well,they try to push beliefs to others that LFAs can never use the internet,communicate in any form or type,and any users on their forum who are LFA are non existant because are using a forum,its not just aspies and HFAs they're ignorant of,its adult LFAs to. Not all the AS supporters are ignorants or bad,quite a few have hfa/aspie children to,so it's not all of them. maybe its that all the actual members of AS need to have their children become adults to see what spectrumers had been telling them already. and AS should become something more like the NAS.
Chibi_Neko	Posted: Sat Jun 07, 2008 5:39 pm    Post subject: catspurr wrote: Shidash wrote: I dislike Autism Speaks because of what others have said, but because they also support the unsafe practice of tying young children on the spectrum to dogs. This is new to me. What do you mean? Basically parents are getting too lazy to hold on to their children's hands, so they tie them onto a dog and assume that all is well.