Question regarding Asperger's and hormones

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verbal0rchid
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28 Jan 2011, 4:41 pm

Yep, I can vouch for all of that, with my condolences! I joke that I am a walking pharmacoepia because of all the stuff I take. Mostly supplements, since I loathe multi vitamins. I prefer to supp only what I'm deficient in and in proper amounts that are actually well above the "RDA". Magnesium, Selenium, sea salt (unrefined), potassium (prescription), D3, and B12/B5. Insulin resistance is common with PCOS. I'm borderline, which is why I take Metformin, 2250 mg per day.

Most Endos I've seen (and there have been a few) are clueless when it comes to real, practical HRT involving Adrenal Fatigue or Insufficiency. Most Hypothyroid patients I've met have better luck with Osteopaths, oddly enough, but even there it's bloody difficult to get someone who isn't afraid of Hydrocortisone to treat AF. If it's not blatant Addison's or Diabetes, they don't like to get involved, liability fears. *wrinkles nose*

That you are taking natural elements and you ARE feeling better is what I'd consider the single most important thing. Labs can be rendered useless by any number of mitigating factors; how much sleep you had the night before, what time you took your meds previously, IF you took your meds, if you smoked before having blood drawn, caffeine, stress. ALL play a role. As it does in the endocrine system itself. If you have PCOS, chances are some other hormones ARE out of balance since they are all interconnected in some fashion. Nothing can function without optimal adrenal output, thyroid, sex hormones, growth hormone, nada. The body just can't survive without Cortisol. There's a certain protocol to fixing these types of problems, just from the patients I've known, and the way my doc treats.

Adrenals, thyroid, sex hormones, growth hormone. The basic premise is that as you move down the 'line' (if you will), you can find sometimes that if you balance out the most necessary hormone functions, the other ones can sometimes even out on their own. My nurse friend has her son on Cortisone, and dessicated thyroid. He had super low growth hormone, and wanted to treat that, but our doctor (we have the same one) said "let's hold off and see how he does after treating his adrenals and thyroid first". Sure enough, within the last year his GH has literally doubled, and is very close to what it should be for his age and gender. And without having to take meds for it; it was all balancing his two "biggies" - Adrenals and thyroid.

Another friend from the thyroid forum tried for years to conceive, and was very hypothyroid. Once she supported her adrenals and thyroid, cleaned up her food supply and water supply - guess what? Yep, she's having a baby!

The late Dr. Broda Barnes stated in his book "Hypothyroidism: The Unsuspected Illness" that MOST of his female patients who came to see him didn't come to be treated for Hypothyroidism. They came for any number of other reasons. Migraines, fertility issues, menstrual pain and irregular periods, body pain, what we know now as Fibromyalgia, CFS. With trials of dessicated thyroid (before the advent of Synthroid, mind you), their body temps went up, their blood pressure came down, they went on to have children, healthy children at that, and live pain free for the most part of their lives.

I'm not saying that works for everyone, but I feel confident in saying a majority experience similar results, just from what I've personally experienced and known from other patients I've met.

Now whether or not this applies to someone with AS, I couldn't tell you. I have no way of knowing if the patients I've met have any illnesses on the Autism spectrum.



TARDIScompanion
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04 Oct 2012, 1:58 pm

ben10scotland wrote:
DemonAbyss10 wrote:
eh, I actually think my Adrenaline and testosterone levels are off the charts. Especially the adranaline levels, since I do have an extremely high naturally tense and aggressive states, which I feel may be linked to it. :/


I don;t think you can possibly know that without checking the blood. there are a few things that may indicate a high testosterone level -

I think these are greasy hair due to overactive sebacous glands, acne that is particularly bad and greasy skin

this was interesting, http://dontdatehimgirl.com/news_view/wh ... e-164.html

Personally I think I may have high testosterone levels, based on [some of]the measures mentioned in that link- I think the added impulsiveness may apply to me but I know when it could have an adverse effect on my health and dont engage in risky behaviours such as smoking or getting drunk [drining the 5 drinks in one sitting]

I think high testosterone levels in females may manifest differently

I am particularly interested between any suggested connection between hormones and autism, I take inositol and this has been reported to decrease testosterone levels [see video on PolycysticOvary syndrome [PCOS} produced by the youtube user Chiralbalance about D-chiro-inositol [DCI] - it details what is felt the mechanism of Inositol's action is.

I would be interested to hear from anyone regarding this. is there anyone else who feels they may have high testosterone and who has autism or any other neurological or neurodevelopmental condition? If so post on here or send me a PM


well, um, ifthis counts... i am 29 as of today, and I am female. I am also an aspie. I get hot spots on my body, mostly my head and about ten minutes ago my back just FLARED THE F&&K UP for some reason.. it feels REALLLLLY good though? I was thinking the other day taht maybe I get so mad soemtimes because of testosterone... I can;t figure out whether I should keep taking evening primrose or not beause of that. my doctor won't really do many tests for me...he WAS NICe enough to tset me for polycystic though, which was negatory. ;))) I feel like he thinks I'm hypochondriac. ;( which i am not. haha. I ahve been RIGht orclose to it about every diagnosis so far. but anyway, yeah.. does that help? maybe it's related to... thbis? O.O my ,and to a lessesr extent my fingers, get REALLY COLD easily and my legs tingle painfully/fall asleep a lot. but then I am person who sits adn does cimputer work all day... so... that really doesn't help my already wierd leg veins. but... geez. when your'e tired of walking around your own neighborhood and you can;t work and live with your parents still, what gives? ;) my head also gets reallllly hot and fuzzy sometimes, but that might just be allergens I have yet to completely eliminate from my environment. man, GFCF + paleo diet REALLY works wonders. I just wish there was, you know, more food we could eat on it. like the nono foods. ;( it's not much fun to eat anymorre, but if I eat teh nononfoods I get psycho.

does that help at all?


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emimeni
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04 Oct 2012, 5:27 pm

I have PCOS, and actually have polycystic ovaries, but no insulin resistance. I take birth control. It makes life a bit easier.


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TARDIScompanion
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05 Oct 2012, 9:28 am

emimeni wrote:
I have PCOS, and actually have polycystic ovaries, but no insulin resistance. I take birth control. It makes life a bit easier.


wow. i tried taking birth control... it made my head hurt, I couldn't get enough oxygen to my brain with my bra on even MOre than usual- hence why I no longer wear a bra) ;O and I was, to be perfectly precise, rendered dumb as rocks by the extra hormones. Also, it made me want to puke in the car even MORe than normal, only I never puke anymore, i just sit there miserable. ;)

;) so, i cannot take those thingies. does anyoen else have all that?
lucky that yo ucan nad it helps you though, so awesome on you for that!


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idratherbeatree
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05 Oct 2012, 10:19 am

Just thought I would cash in on my own endocrinology.

I have VERY high levels of Adrenaline, which my doctor is trying to regulate with medication.
I'm also transgender, and on HRT. I take an Anti-Androgen and Estradoil. The Oestragen levels are pretty normal, but my T level fluctuates if I ever forget a dose.


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TARDIScompanion
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05 Oct 2012, 10:39 am

idratherbeatree wrote:
Just thought I would cash in on my own endocrinology.

I have VERY high levels of Adrenaline, which my doctor is trying to regulate with medication.
I'm also transgender, and on HRT. I take an Anti-Androgen and Estradoil. The Oestragen levels are pretty normal, but my T level fluctuates if I ever forget a dose.


ugh. fluctuation. i can't imagine dealing with MORe fluctuation than what's already up here -pokes brain and ovaries-... you are awesome.


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