Mum has a telephone appointment on 27th june

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jon85
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08 Jun 2018, 7:21 am

Finally! I kept having to call the centre and remind them not to forget about me lol

Is there anything she'll need to know/do to prepare? What kind of things will they ask her, apart from how i was when i was a kid etc?

I'm still not convinced talking to my mum will help my assessment as I know she'll just simply claim i was a normal kid. I was very reserved as a kid and was always careful about keeping my problems to myself. My quietness/shyness was mistaken for just simply 'being a good kid' and my mum just assumed that was normal since i was my mums only kid and my mum had nothing else to compare me to.

But anyways, i guess i'll just have to see what happens. I really hope I'm able to get to the bottom of it all. I need to know what direction i'm going, how to help myself, who to go to for help and to stabilise my life to something less stressful. If any of that is at all possible.


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neilson_wheels
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08 Jun 2018, 7:52 am

I should be able to find some information later today.



kraftiekortie
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08 Jun 2018, 7:57 am

It does help that you’re employed...for stabilization.



jon85
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08 Jun 2018, 8:05 am

neilson_wheels wrote:
I should be able to find some information later today.


Thanks, that would be great!


kraftiekortie wrote:
It does help that you’re employed...for stabilization.


I'm not sure i understand. You might have to explain, i've gone into simple brain mode :|


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kraftiekortie
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08 Jun 2018, 8:09 am

I mean the fact that you have a job helps more than you think.

I remember how I felt being unemployed.

It helps because part of your time is occupied constructively.

It gives you a sort of base when things get unstable.



kraftiekortie
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08 Jun 2018, 8:20 am

I sort of wish you had a “special interest” for when things feel hopeless.



jon85
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08 Jun 2018, 8:56 am

kraftiekortie wrote:
I sort of wish you had a “special interest” for when things feel hopeless.


I want everything to be my special interest, thats my problem. I take on far too may hobbies than I can handle. But i guess my main three are animals, entomology (recent one) and gaming. If everything else disappeared in the world, as long as I have those three, I could get by.


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neilson_wheels
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08 Jun 2018, 11:11 am

These are the questions working backwards from the summary of the conversation with my mother, for my assessment last year:

CHILD
Hit key developmental milestones? sitting, walking, talking etc.
How verbal is the child?
Phase of play/imitating everyday acts? Cooking, cleaning etc.
Attached to unusual objects?
Unusual interest in objects? Spin, patterns,shapes etc.
Unusual hand or finger mannerisms?

Interactions with other children?
Taking part in group games?
Difficulty taking turns or sharing?
Imaginative play?
Scripted play?
Over-riding interests?

ADULT
Social and conversational skills
Reciprocal communication, butting in, tendency to monologue.
Avoiding eye contact or making others uncomfortable with eye contact.
Ability to make and sustain friendships.
Recognising and respecting boundaries/personal space.

Ability to show normal range of emotions.
Use of descriptive gestures.
Smile when greeting people.
Excitability.
Ability to determine other peoples emotional state.

Sensory sensitivity.
Particular or special interests.
Rigid daily routines.
Distressed by unfamiliar events.
Arranging objects in specific ways.



BeaArthur
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08 Jun 2018, 9:49 pm

Those assessing professionals tend to be pretty clever with the way they ask things, so I wouldn't worry about how your mom answers.


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jon85
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09 Jun 2018, 2:03 am

neilson_wheels wrote:
These are the questions working backwards from the summary of the conversation with my mother, for my assessment last year:

CHILD
Hit key developmental milestones? sitting, walking, talking etc.
How verbal is the child?
Phase of play/imitating everyday acts? Cooking, cleaning etc.
Attached to unusual objects?
Unusual interest in objects? Spin, patterns,shapes etc.
Unusual hand or finger mannerisms?

Interactions with other children?
Taking part in group games?
Difficulty taking turns or sharing?
Imaginative play?
Scripted play?
Over-riding interests?

ADULT
Social and conversational skills
Reciprocal communication, butting in, tendency to monologue.
Avoiding eye contact or making others uncomfortable with eye contact.
Ability to make and sustain friendships.
Recognising and respecting boundaries/personal space.

Ability to show normal range of emotions.
Use of descriptive gestures.
Smile when greeting people.
Excitability.
Ability to determine other peoples emotional state.

Sensory sensitivity.
Particular or special interests.
Rigid daily routines.
Distressed by unfamiliar events.
Arranging objects in specific ways.


That's great, Neilson! Thanks :)


BeaArthur - thanks, just get so nervous, hate the wait and hate not knowing how it'll all pan out


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Tawaki
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09 Jun 2018, 8:55 am

Does your mom want to help you get your diagnosis?

If she does, and is honest (or her version of honest), I wouldn't worry about it.

My husband's mother felt very attacked and blamed for my husband's ASD issues. Why? She was in her 70s, and felt 1) the questioner would blame her. 2) her son is odd, not damaged.

So her answers to the questions were more or less *nothing to see here*. It was a hoot reading her responses. His mother had a huge shut down at the end and hung up on the interviewer.

Fast forward a few years last, his mother was diagnosed with ASD. It made sense as my MIL is a terrible historian when it comes to other people. She misses all sorts of social cues, and had CPS called on her a few times in the 1970s. It was more, " I didn't know I should be doing xyz." than outright abuse.

Good luck! I hope you get the results younwant.