Page 1 of 1 [ 6 posts ] 

KingdomOfRats
Veteran
Veteran

User avatar

Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK

02 Dec 2008, 7:57 pm

Would be great if anyone has an answer to this..

to try and make this short as possible....current residential home [trafford SS/council,learning disability services] has been a complete s****hole and agony to live because of neglect,bad treatment and abuse off staff,trafford had refused to get a small double glazing window,and sound proofing put in despite these being seen as essential disability needs by specialists-as well as they breaking the DDA law by not doing it,their excuse being 'there's no funding' [complete crap].

they also went back on the move they had got am use to the idea of [had posted about it a while back] -being moved to the institution used to live at,excuse being=they want to decorate the place properly now and cannot do it when am live there [they could have said this before getting am into planning mode].

....months later,am deteriorating due to everything what is going on here [a very long list] being seen as a burden constantly by most of the staff,and just being neglected by trafford managers instead of them trying to find a suitable residential.

the national autistic society support staff,keyworker,bosses and social worker,had a meeting with ld services today,am found out the NAS are aiming to transfer all care from council to NAS residential-so can get moved out of here as soon as possible,but [there is always a 'but' with this sort of stuff] keyworker said the council may refuse to fund the swap for the NAS and say its got to be a cheap [=crap alternative] instead,they mentioned one such company-
creative support,am felt sick come up when heard their name,they would be on a CSCI version of 'watchdog',know all what goes on there to clients due to sister having worked with them for some years,as well as creative support being a specialist in mental health not LD/DD,the autism training is supposed to be useless,complete crap,how they are bad is also same reason am hope to leave trafford for.

so,question is,is it possible for the council/SS/LD services to force am to go to a organisation/company they want,such as creative support,or is there a choice-as they are paying the funding?
will not find out how it went till thursday,so am constantly thinking about whats going to happen,dont trust anything that has had council involved,its all about funding to them,they couldn't care less.


_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!


outlier
Veteran
Veteran

User avatar

Joined: 16 Oct 2008
Age: 46
Gender: Female
Posts: 1,429

03 Dec 2008, 6:29 am

They would be going against the UK's Department of Health (DOH) Person-centred planning objectives for learning disability if they try to force you, which is related to human and disability rights legislation.

The DOH produced a white paper (in 2001) on the government's objectives for learning disability services. It is based on 4 key principles:
1) Legal and Civil Rights
2) Independence
3) Choice (people have in where they live and who cares for them etc.)
4) Inclusion

The principles are grounded in the legislation given in:

-the Human Rights Act (1998)
-the Disability Discrimination Act (1995)

and other acts.

Learning Disability Partnership Boards (at the local level) have lead responsibilty for ensuring implementation.

The DOH paper can be found at this link
Your key worker etc. could use it to help put pressure on the ld service (and others), or when making complaints. Since it has a basis in human and disability rights legislation, they should be taking it very seriously and trying to deliver and coordinate services in the way the DOH recommends. They should especially pay attention to chapters 4 and 7 (which cover choice and housing).

Related documents can be found at this link

Another option is to make a formal complaint about the services. Your key worker or other advocates should be aware of the pathway for doing this. Service providers, most often, get away with not delivering adequately (and lawfully). So even if complaints do not result in services needed, it is important they are still made so that those responsible are required to formally account for and justify their decisions.



KingdomOfRats
Veteran
Veteran

User avatar

Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK

03 Dec 2008, 10:10 am

Thanks a lot outlier!
will make sure she sees this tomorrow.


_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!


pandd
Veteran
Veteran

User avatar

Joined: 15 Jul 2006
Age: 50
Gender: Female
Posts: 2,430

03 Dec 2008, 9:57 pm

I had no idea the move had not gone ahead as planned.

They certainly went further than is reasonable if there was ever any question mark during the course of planning, and if there was a question mark it was both unacceptable and unreasonable to not be very clear about that during planning. It's also very unlikely they would not have suggested there might be a problem earlier if indeed there was one earlier.

I find it very odd. It sounds to me like a unilateral decision made at the last minute, and not at all like a contingency that was plausible during the earlier decision and the planning that went into executing it (only to not happen at the very last moment).

I am very suspicious about this decision to not move you to the former residence you mention, as was planned and agreed earlier by all parties with standing (in the matter). I think there is more to it than they have told you, and that someone is not being entirely honest with you.

In my opinion someone has interfered at the last moment to frustrate the plan (possibly someone 'further up' the heirarchy of some involved agency, possibly because of resourcing and a reluctance to fund services to you in accordance with your need).

In my opinion, the way you have been treated in unacceptable.



Magliabechi
Toucan
Toucan

User avatar

Joined: 9 Oct 2007
Age: 48
Gender: Male
Posts: 284
Location: Britain

04 Dec 2008, 3:40 pm

It's sad to hear that things are not working out at the moment, KOR.

I hope that the NAS are able to sort out better living arrangements for you.


Magliabechi.



KingdomOfRats
Veteran
Veteran

User avatar

Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK

08 Dec 2008, 10:35 pm

sorry for late replies [as usual].

thanks Pandd,
,that describes them well, nothing has changed at all to the building-in or out since they said it wasn't going ahead [which had heard that only off staff,when they realised their rotas had swapped back from the institution to the residential again,manager never actually came and said it herself].
the entire of manchesters respite is still based there,so they are not allowed to close,or be shut whilst anything big is done to the place,so they must be bothered about funding it for one person?

one of the high up service/home managers was recently suspended and has been given a new job in the council for giving her adult children jobs as support workers without going through things like other staff,giving them extra induction time,and they had also never done support work or any training before.
is exactly what expect off trafford.

thanks for replying Magliabechi,
have not heard back about the meeting last week so dont know what has gone on,but have got one of the managers working with am as support this week [have got two-to-one on wendsdays so she will be with a regular NAS support staff] ,keyworker said she will be able to see what am like for herself to tell the bosses above her,as they dont listen the staff,so am just beginning to realise maybe she actually meant something about the meeting in that,that they weren't listened to.
sister has arranged a meeting to see the home manager and social worker as well for either this week or next week to find out what is going on,and to put a few complaints in.,am think what is going to happen again,is trafford are going to try and do an emergency move to another s**** residential again to make it look like theyre doing something,keyworker has said that trafford are trying to be careful now the NAS are watching what they're doing.


_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!