Guidance for UK Assessment & Diagnosis through the NHS

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Cornflake
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29 Mar 2013, 5:04 pm

While regional forums seem a good idea, popularity and forum clutter are still important considerations.

Forums will not be created unless there is a clear, demonstrable requirement for them - this is not just sensible housekeeping, intended to minimise forum clutter and avoiding having members wading through pages of forum listings; it is also demonstrated by the history of forum additions made to WP in the past. Alex has always been reluctant to add new forums without a clear and demonstrable need for them and in most cases, requests for increasingly more specific forums are already addressed by and large with the existing ones.

What never helps support the case for a new forum is little to no evidence of posts on the topic requested - one would expect a very busy thread or two to demonstrate that there is at least a fairly active posting rate for some topic, but this practically never happens. Instead, requests are made in isolation and without being backed by a visible, constant requirement or other obvious reason to exist, they're unlikely to ever be created.

When considering regional forums one must first define how regional. It's complex enough deciding which countries should have their own forum (and what about those who lose out - don't they have a say?) but in many cases that would still be too broad - so further country-specific sub-divisions would need to be considered and very rapidly, a rat's nest of largely unused forums would result.
Well, so what? Empty forums won't take up that much disk space - but attempting to navigate their index entries would likely be a nightmare spread over several pages and although it's an easy matter to airily say "Oh, so just modify the site software", the reality of attempting that is never as easy and is often extremely expensive.


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whirlingmind
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29 Mar 2013, 7:21 pm

This is pointless. I'm beginning to think we need a UK only site. Whether that is run by Alex or not. Britons are marginalised here. It's bad enough that US members regularly assume all other members are also in the US, but to not even be able to address the needs of UK members in an obvious and realistic way... :wall:


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hyperlexian
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29 Mar 2013, 7:40 pm

there is at least one UK-only site:

http://aspievillage.org.uk/


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whirlingmind
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29 Mar 2013, 7:52 pm

Thanks for the link Hyperlexian. You know that thing we have about not liking change....therefore stuck between a rock and a hard place :?


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hyperlexian
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29 Mar 2013, 7:55 pm

yeah, i know. i am a member in both places.


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30 Mar 2013, 5:51 am

whirlingmind
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30 Mar 2013, 7:06 am

I liked the jokes page on Aspergernauts (nice blue background)...until I went to the forums. There is was like the one Hyperlexian recommended, a glaring white background (I have scotopic sensitivity) and was too different.


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whirlingmind
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03 Apr 2013, 9:36 pm

No reply from Alex about stickying it. Shame we can't have a subforum for this type of thing either.

:(


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07 Apr 2013, 1:31 pm

Further Helpful Information

The Four Sub-Types of Asperger's (by Lorna Wing)


Aloof

Most frequent subtype among the lower functioning. Most high-functioning in this group are a mixture of aloof and passive. Limited language use. Copes with life using autistic routines. Most are recognised in childhood. Independence is difficult to achieve. There may be loneliness and sadness beneath the aloofness. Rain Man is an excellent example of this subgroup.

Passive

Often amiable, gentle, and easily led. Those passive rather than aloof from infancy may fit AS. More likely than the aloof to have had a mainstream education, and their psych skill profiles are less uneven. Social approaches passively accepted (little response or show of feelings). Characteristic autistic egocentricity less obvious in this group than in others. Activities are limited and repetitive, but less so than other autistics. Can react with unexpected anger or distress. Recognition of their autism depends more on observing the absence of the social and creative aspects of normal development than the presence of positive abnormalities. The general amenability is an advantage in work, and they are reliable, but sometimes their passivity and naivete can cause great problems. If undiagnosed, parents and teachers may be disappointed they cannot keep a job at the level predicted from their schoolwork.

Active-but-odd

Can fall in any of the other groups in early childhood. Some show early developmental course of Kanner's, some show AS. Some have the characteristic picture of higher visuospatial abilities, others have better verbal scores (mainly due to wide vocabulary and memory for facts). May be specific learning disorders (e.g., numerical). School placement often difficult. They show social naivete, odd, persistent approaches to others, and are uncooperative in uninteresting tasks. Diagnosis often missed. Tend to look at people too long and hard. Circumscribed interests in subjects are common.

Stilted

Few, if any clues to the underlying subtle handicap upon first meeting. The features of AS are particularly frequent. Early histories vary. Normal range of ability with some peaks of performance. Polite and conventional. Manage well at work. Sometimes pompous and long-winded style of speech. Problems arise in family relationships, where spontaneity and empathy are required. Poor judgement as to the relative importance of different demands on their time. Characteristically pursue interests to the exclusion of everything and everyone else. May have temper tantrums or aggression if routine broken at home, but are polite at work. Diagnosis very often missed. Most attend mainstream schools. Independence achieved in most cases. This group shades into the eccentric end of normality.

Lorna Wing: http://en.wikipedia.org/wiki/Lorna_Wing

Information on the differences in females with Asperger's

http://www.autism.org.uk/about-autism/a ... ctrum.aspx


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AgentPalpatine
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17 Apr 2013, 3:53 pm

whirlingmind wrote:
This is pointless. I'm beginning to think we need a UK only site. Whether that is run by Alex or not. Britons are marginalised here. It's bad enough that US members regularly assume all other members are also in the US, but to not even be able to address the needs of UK members in an obvious and realistic way... :wall:


When I see a new member ask for information, the first question I ask is "where", because many members don't post where they are in their information box. If they are from our 2nd biggest national contigent (UK), well, there is'nt much I can do about it then, since I'm over on this side of the pond. Cousins, seperated by a common language and all that.

Actually, considering that AFF was heavily UK focused, it's interesting that they wern't mentioned.


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