Which one of these people is doing more damage to our image?

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Which one of these is doing the most damage to our image?
1. Chris Chan 15%  15%  [ 11 ]
2. Simon Baron-Cohen 8%  8%  [ 6 ]
3. The blogging Autism Moms 44%  44%  [ 31 ]
4. Nobody 10%  10%  [ 7 ]
5. Somebody else entirely - tell me who, tell me, tell me, tell me. 23%  23%  [ 16 ]
Total votes : 71

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28 Jan 2015, 10:48 pm

OliveOilMom wrote:
There are plenty of NT's who are interested in the same special interests we are. There are plenty of NT's who have obsessive interests in things as well, so obsessive interest isn't just caused by AS. There are plenty of NT's who have the same sensory likes and dislikes we have but they are usually not as pronounced and severe.

Autism doesn't make you intelligent, it doesn't make you logical, it doesn't make you stupid, it doesn't make you slow, people are who they are whether they are autistic or not, whether they are smart or stupid, logical or illogical, magically changing their autistic status won't change that. However it would get rid of a lot of limitations they have that interfere with living their lives. Equating it with your personality is not fact. You would still have your personality whether or not you were autistic. You would of course be different somewhat but thats because you would be a person who hadn't been shaped by the limitations that autism put on you.


Congratulations for disregarding science.....

http://www.sciencealert.com/in-people-w ... dy-reveals

http://www.bbc.com/news/health-12937009

Seriously though, I wouldn't at all believe that if I didn't have autism, somehow my brain wouldn't be affected. Look, I understand what you're trying to say, but if there are various scientific studies that back at how autism effectively does shape interests, than I'm going to be inclined to believe such.



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29 Jan 2015, 3:55 am

Tim_Tex wrote:
Sweetleaf wrote:
Tim_Tex wrote:
Seriously, six pages and nobody has said Adam Lanza or Elliott Rodgers?

People like them are causing the most damage to our image, as well as to those with schizophrenia.


:roll: I knew eventually someone would not be able to resist bringing that up yet again. Elliot Rodgers was not diagnosed with aspergers syndrome and no substantial proof he had it for one. Also how do you figure people with schizophrenia damage the image of autistics? why do I get the feeling the answer to that will be filled with stigmatizing generalizations about people with schizophrenia.


What I meant is that because of Lanza and Rodgers, people could potentially generalize all of us as violent psychopaths. And in the case of Elliott Rodgers, they may generalize males on the spectrum as potential sexual abusers. Some people use people like John Hinckley and James Holmes in their generalizations of people with schizophrenia. This is the connection I was referring to.


But Rodgers did not have autism, so that makes no logical sense to assume people with aspergers are violent psychopaths because someone without aspergers committed a violent crime. The other thing makes no logical sense because I guess that would mean all neurotypicals are cheaters since neurotypicals sometimes cheat on each other, but people can be idiots.


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30 Jan 2015, 7:25 am

I don't think anyone takes chris chan seriously short of the internet trolls who like to poke fun at his misfortunes, to my knowledge he's never made it to mainstream media and hopefully never does.

It's an easy answer either way to go with autism mom bloggers, cure searchers, psuedoscience and vaccine rumors have caused more damage than anything..


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08 Feb 2015, 1:20 pm

OliveOilMom wrote:
It's a pretty straightforward question up there in the poll. Which of these if any, in your opinion, is doing more damage to our image, and why?

- Chris Chan, who runs all over the place acting like a fool in public and putting all kinds of stuff on the internet that probably really humiliates his parents

- Simon Baron Cohen, who every so often issues forth a missive hinting that aspies are probably the most mentally messed up people on the planet, and then explains why he thinks AS is worse than some debilitating and dangerous psychiatric illnesses

- The Autism Moms who blog, who detail the hardships of their lives and by the magic of the internet give the rest of the parents and anybody else who is curious, a very detailed glimpse into what they describe as constant and work and isolation that's done solely for the benefit of their child, with no guarantee of results

- None of these, because people who make a difference in the world and who are actually listened to, don't form their opinions from YouTube, blogs, or even the one guy in the autism study and education field who makes wilder claims every year.

- Somebody else entirely. Please tell us why and who. I wanna Google them.


The issues that result from these people, and others like them, are all cumulative. It never ends somewhere, it just gets worse over time, and the more ignorant the claim, the more people will believe it. People then spread this false information or biased content, and the ignorance is proliferated, then when yet more false information and/or biased content is placed for all the world to see, it only reaffirms it more with those same ignorant people, and it gives them more content to show other people who normally wouldn't believe the garbage. The more false information is out there, the more likely it is that someone will believe it, just out of proliferation alone.
Most people fail to see that commonality does not equate to reality/truth.


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17 Feb 2015, 1:54 am

The culprit(s) are those who cyber-bully an autistic individual to act foolishly. Unfortunately other people see this and start to assume that the behavior in question at the moment is the norm for autistic people.
As far as AutismSpeaks is concerned, their point of view on people with Asperger Syndrome isn't really all that terrible.

As for putting Chris Chan (or any other so-called "lolcow" for that matter) on a survey such as this, personally I think this should no longer be allowed if for no other reason that stuff like this encourages potential trolls to bully vulnerable individuals. Just my personal opinion.


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17 Feb 2015, 11:25 am

Silver_Meteor wrote:
The culprit(s) are those who cyber-bully an autistic individual to act foolishly. Unfortunately other people see this and start to assume that the behavior in question at the moment is the norm for autistic people.
As far as AutismSpeaks is concerned, their point of view on people with Asperger Syndrome isn't really all that terrible.

As for putting Chris Chan (or any other so-called "lolcow" for that matter) on a survey such as this, personally I think this should no longer be allowed if for no other reason that stuff like this encourages potential trolls to bully vulnerable individuals. Just my personal opinion.



DEFINITELY TRUE ON your note about Autism Speaks and I do agree with the rest of what you said. There are many false Internet urban legends about Autism Speaks ON so-called Autism Community InterwebZ lands, and then there is the TRUTH ALL IN BLACK IN WHITE FOR everyone ELSE to see TO THE tune OF MILLIONS OF Internet spectators...in the MUCH MUCH LARGER viewing audience.

https://www.autismspeaks.org/what-autism

Quote:
"What Does It Mean to Be “On the Spectrum”?


Each individual with autism is unique. Many of those on the autism spectrum have exceptional abilities in visual skills, music and academic skills. About 40 percent have average to above average intellectual abilities. Indeed, many persons on the spectrum take deserved pride in their distinctive abilities and “atypical” ways of viewing the world. Others with autism have significant disability and are unable to live independently. About 25 percent of individuals with ASD are nonverbal but can learn to communicate using other means. Autism Speaks’ mission is to improve the lives of all those on the autism spectrum. For some, this means the development and delivery of more effective treatments that can address significant challenges in communication and physical health. For others, it means increasing acceptance, respect and support."


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genesis529
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12 Mar 2015, 7:09 pm

99.9% of people probably don't even know who Chris Chan, Cohen, and the blogging mom's even are.



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12 Mar 2015, 8:19 pm

genesis529 wrote:
99.9% of people probably don't even know who Chris Chan, Cohen, and the blogging mom's even are.


Amen.

The interwebz is ONLY small pockets of reality spread out in infinity online..:)

It's easy to COME TO believe that 1 tenth of one percent means anything, when in reality it means almost
nothing at all.

IN other WORDS NO one give a c r
and a p about this, in the BIG FLESH AND BLOOD REAL WORLD,

where people hardly have time to take one, really take one PER THE
C AND P AND A AND R STUFF.
AND ON top of that its IRS time..;)


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12 Mar 2015, 9:04 pm

aghogday wrote:
genesis529 wrote:
99.9% of people probably don't even know who Chris Chan, Cohen, and the blogging mom's even are.


Amen.

The interwebz is ONLY small pockets of reality spread out in infinity online..:)

It's easy to COME TO believe that 1 tenth of one percent means anything, when in reality it means almost
nothing at all.

IN other WORDS NO one give a c r
and a p about this, in the BIG FLESH AND BLOOD REAL WORLD,

where people hardly have time to take one, really take one PER THE
C AND P AND A AND R STUFF.
AND ON top of that its IRS time..;)


The neurodiversity and boycott movements apparently have made a difference at least in their public presentations. This fundraising video was released two weeks ago.


As long as the Wrights are the leaders I am just as skeptical still about their motives as most of you are and the bottom line is the bottom line where does the money go? While most of you will find the parts if not most of the video objectionable I don't want to overstate but don't underestimate what has changed since "I am Autism" and I was thinking about driving my kids off the bridge videos. Two Autistic adults are featured in it.

Despite claims we are not even noticed, despite claims that the only the most negative shocking videos will raise the money apparently the marketing gurus over there feel differently.


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12 Mar 2015, 9:48 pm

ASPartOfMe wrote:
aghogday wrote:
genesis529 wrote:
99.9% of people probably don't even know who Chris Chan, Cohen, and the blogging mom's even are.


Amen.

The interwebz is ONLY small pockets of reality spread out in infinity online..:)

It's easy to COME TO believe that 1 tenth of one percent means anything, when in reality it means almost
nothing at all.

IN other WORDS NO one give a c r
and a p about this, in the BIG FLESH AND BLOOD REAL WORLD,

where people hardly have time to take one, really take one PER THE
C AND P AND A AND R STUFF.
AND ON top of that its IRS time..;)


The neurodiversity and boycott movements apparently have made a difference at least in their public presentations. This fundraising video was released two weeks ago.


As long as the Wrights are the leaders I am just as skeptical still about their motives as most of you are and the bottom line is the bottom line where does the money go? While most of you will find the parts if not most of the video objectionable I don't want to overstate but don't underestimate what has changed since "I am Autism" and I was thinking about driving my kids off the bridge videos. Two Autistic adults are featured in it.

Despite claims we are not even noticed, despite claims that the only the most negative shocking videos will raise the money apparently the marketing gurus over there feel differently.


Well, truly the complaints are not noticed in the general public, as honestly the general public has no idea what Asperger's is except for the meme in popular T.V. shows. If they even have heard of the label that's relatively rare in the real world. And to be able to actually define it is practically non-existent and even the case for some folks actually diagnosed with it.

I have yet to find anyone in my local area that's ever heard of it, who can actually define it, and now that it is gone from the DSM that's not going to get any better. And I interact with scores of real life flesh and blood people in an average day out and about.

It's just an abstract label anyway in the U.S., for a broad category of deficits in reciprocal social communication and RRB's that even top researchers acknowledge can be caused by almost anything in life, both genetic and environmental.

I truly have never paid any real mind to any labels in life.

I do not do labels at all.

But for the people who want to worry about stuff that really doesn't matter in real life, that's okay.

As I am worry free AND TOTALLY ANXIETY FREE, after living a life full of anxiety.

I simply learned to control my greatest assets, which are my mind and body in balance.

With that in tow, I for one am in control of how I feel about life, and me, with unconditional love for others, and that's a hell of an advantage when it comes to the stuff in life that matters not.

I mean seriously, who in the real world would notice if this Internet site fell off the map.

Truly no one, but the relative handful of regular posters here.

It's great for the people it helps but a none entity in the real world of folks.

There are much much bigger fish to fry, and bears to escape from, in real life, and it's hard for me to
imagine that folks do not realize this, unless they really never get out into the real world of flesh and blood
humans, and to some degree from what I hear here that's probably self evident.

And that's okay too, as after all, this is a support site, for people who have difficulties making it in the real world but I don't think it can hurt to find out what it's really about.

And honestly, Asperger's, is not on the map, or even real life radar. And not even Autism Speaks for that matter, except for the half of one percent of U.S. citizens that pour money into it, to the tune of around 1 million folks.

There's like a handful of people compared to all of that communication online with a so-called spectrum disorder.

The numbers tell an unmistakable tale of truth and logic, at least in this case.

But a special interest is a special interest I guess.

My sister collects buttons, and I dance.

The only difference is, I have friends all over the place in real life, and she is isolated.

Dance works better, if anyone asks me. And nah, I was clumsy and stiff as HELL, before I learned how WHAT I CONSIDER TO BE FULLY HUMAN. AND TO be clear that only applies to may life, and no one else here, as truly people here are as diverse or more diverse, as anywhere else.

The label means relatively nothing when the flesh and blood hits the real roads of life, as far as any real noticeable similarities between each unique individual.


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12 Mar 2015, 10:40 pm

It is not a matter of how many know but how influential they are in making Autism Policy. Autism policy how it is viewed will not effect as many people as Putin but as you say it will directly effect people on this board. 99.9% do not have any effect on the world but they are able to affect a mini part of it. That is not unimportant.


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13 Mar 2015, 3:29 am

ASPartOfMe wrote:
It is not a matter of how many know but how influential they are in making Autism Policy. Autism policy how it is viewed will not effect as many people as Putin but as you say it will directly effect people on this board. 99.9% do not have any effect on the world but they are able to affect a mini part of it. That is not unimportant.


I think people should be able to believe and be concerned with whatever they want to.

It's better to be concerned about something and engaged in it, no matter what it is, compared to nothing.

So I for one, certainly have no problem with people who engage time and effort into these issues, as it helped me keep my mind off the pain disorder I had, as this was an issue that would never end.

Now that I am over my illnesses, I just do different stuff. :)


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14 Mar 2015, 10:37 pm

Some of the "blogging mothers" Tho I have found a blog that is more about the truth about of what it's like for their son to have Aspergers but he's not on the cross about it as he posts both the positives and negatives.

However, it appears that whenever there is a mass shooting the media jumps on the Aspergers/Autism train granted A.Lanza had Aspergers it wasn't the overall case tho to those whom are uniformed they are now liking people whom have Autism as well as Aspergers as being cold blooded killers.


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16 Mar 2015, 12:19 pm

long thread, many derails.

to keep it brief, i don't think the average person knows what autism speaks is, much less the others on this list.
perhaps the media coverage of happy shooters when it veers toward instant diagnosis. (but does anyone take that jibber-jabber seriously as discourse?)

still, more than these, it's when shows use cartoony autism-signifiers as a source of automatic yuks that gets my goat. (i see the rosie project has a sequel out now.) i feel i understand what a modern african-american looking at 30s stereotypical movie characters must feel--& yet this is still better than invisibility, i'm sure.

it's just immensely dispiriting.


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16 Mar 2015, 12:36 pm

graywyvern wrote:
long thread, many derails.

to keep it brief, i don't think the average person knows what autism speaks is, much less the others on this list.

The average person will believe whatever the few say to them in regards to such topics, largely because those few are the people who are connected to it, so the average person thinks they are an authority on the matter, and I think most of us here can agree that Autism Speaks has done considerable damage, not just to our image to the public eye, but also to the families of those affected by autism directly. It's those people who proliferate that damaging image to the general public, and that is how such things are spread, it's all out of ignorance and fear.

graywyvern wrote:
perhaps the media coverage of happy shooters when it veers toward instant diagnosis. (but does anyone take that jibber-jabber seriously as discourse?)

You put too much faith in humanity, particularly their higher reasoning capabilities.
You'd be surprised how many people will believe what's on the news as fact, and as stated above, it's because they think the people reporting such nonsense are some authority on the matter, and it's again, ignorance and fear (and often stupidity as well) that proliferate that viewpoint.

Truth on a matter is rarely considered when you have a society that is torn every which way, by subterfuge, lies, and corruption, as ours is now. And it's even worse when fear is also in the equation because people don't stop and think about it or do research on the matter. Unfortunately speaking, any research into autism will lead 90% of people looking for answers to autism speaks, and since they're proliferating that same ignorance, fear, and even dehumanization of autistic people, while claiming to be an authority on the subject matter, it makes matters even worse.


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16 Mar 2015, 4:00 pm

Well said Jaden - and it also astounds me how gullible people are regarding the media.