Autism council.
Ok, I'm fed up, and I know a lot of you are too, with NT's taking action "for autistic's." Why should NT's, who don't know what is going on in out heads, be in charge of how autism is represented? Shouldn't the autistic community be in charge of debates such as vaccines? I mean while yes having autism does make life hard, if a majority of autistic's support being vaccinated shouldn't that be the end of it? And is aspies want Asperger's syndrome put back in the DSM-5, shouldn't it? Why are blog mom's and celebrities in charge of how autism is perceived? I say that an online body such as wrongplanet be given authority over these matters. Of course a forum board wouldn't be an ideal governing body, I think that the autistic community needs to tell the NT's who's in charge of our lives. I'm not saying that autistic's are better than NT's but I AM saying that the people who should get the final say in matters regarding autism should be autistic's.
_________________
Do not be conformed to this world, but be transformed by the renewal of your mind, that by testing you may discern what is the will of God, what is good and acceptable and perfect.
-Romans 12:2
I speak on behalf of no-one but myself. For how can I represent anyone else? If someone shares my opinion on a topic, are we now the same person? With the same opinions on all topics? No, of course not.
-Blast335 (me)
I believe what you mean to support is an advocacy group along the lines of the autism-rights movement ( https://en.wikipedia.org/wiki/Autism_rights_movement ) that got started in the late 1980s to "communicate the anti-cure or autism rights perspective[.]" More recently, the Autistic Self Advocacy Network (ASAN) ( https://en.wikipedia.org/wiki/Autistic_ ... cy_Network ) was created in 2006 to achieve "the goal of autism advocacy should be a world in which Autistic people enjoy the same access, rights, and opportunities as all other people, and that Autistic voices should be included in the national conversation about autism." ASAN has had its successes and helps improve state and federal legislation and regulations, among other things including speaking out against Autism Speaks. Joining ASAN is free to people with ASD, but it relies on contributions to continue its work.
I support ASAN and would enthusiastically support a more strident non-partisan advocacy group.
_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
Do you mean less strident? Because I think that being harsh about going about representing autism should be avoided whenever possible.
_________________
Do not be conformed to this world, but be transformed by the renewal of your mind, that by testing you may discern what is the will of God, what is good and acceptable and perfect.
-Romans 12:2
I speak on behalf of no-one but myself. For how can I represent anyone else? If someone shares my opinion on a topic, are we now the same person? With the same opinions on all topics? No, of course not.
-Blast335 (me)
Do you mean less strident? Because I think that being harsh about going about representing autism should be avoided whenever possible.
Not more or less, but different. I meant that there are some things that ASAN can't do without jeopardizing its influence with legislation. Challenging corporate policies about ASD, for example, could be beneficial. Remember DRAC, ADAPT, ACT-UP, Queer Nation and Anonymous (not to mention the anti-GMO groups like Food Babe). Their ability to bring corporations which were/are hostile to the groups' agendas to the negotiating table are legend. They succeeded where legislation fell short.
_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
Since the world's population is made up of people with and without autism, perhaps the most effective Council would be one on which both groups were represented. That way it should be possible to achieve a consensus. But I think that Aspiens should always have the casting vote. A lot of - but not all - autism organisations are run by people on the spectrum and NTs.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,404
Location: Long Island, New York
For adults it would be be helpful but I do not see the consensus that parental decisions involving their children are sacrosanct(unless their is an extraordinary circumstance) changing.
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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
It is Autism Acceptance Month
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
What do you mean by "authority?" It is a word I've grown to dislike. "The exaltation of the creative will instills an indiscriminate contempt for authority."
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Now take a trip with me but don't be surprised when things aren't what they seem. I've known it from the start all these good ideas will tear your brain apart. Scared, but you can follow me. I'm too weird to live but much too rare to die. - a7x
Kinda. "Council" sounds great. "Authority" not so much. The following quote seems apropos.
_________________
From start to finish I've made you feel this
Uncomfort in turn with the world you've learned
To love through this hate to live with its weight
A burden discerned in the blood you taste
Here's what I had in mind as to what this council would have power to do:
•Reject "treatments" that are proposed
•Reject "causes" that have been identified (i.e. say that vaccines and gluten don't cause autism and that would be the end of it)
•Approve support organization that the majority of the council believes has the right idea and can help make a beneficial difference in the lives of autistics
•Advise legislation on laws regarding autism (and maybe other neurological disorders later on)
•Raise funds and donate them to help families with autistic members who need the support
And those are just some of the possibilites
_________________
Do not be conformed to this world, but be transformed by the renewal of your mind, that by testing you may discern what is the will of God, what is good and acceptable and perfect.
-Romans 12:2
I speak on behalf of no-one but myself. For how can I represent anyone else? If someone shares my opinion on a topic, are we now the same person? With the same opinions on all topics? No, of course not.
-Blast335 (me)
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