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SabbraCadabra
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22 Apr 2008, 4:11 pm

I feel a little weird posting here, but this was the only bustling forum I could find, and I thought I'd check out the community. That, and a lot of other resources I've found on the Internet seem to be geared towards (and comprised of) parents of children on the spectrum.

Anyway, my story, Reader's Digest ran an article about a year ago called Normal or Nuts, where they chose a few letters sent in from readers and had experts give their opinions on a diagnosis. One person wrote, well, let me just paste it:

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Q I’m a teenage girl and it drives me mad to have my food touching! I need separate plates for the meat, the potato, the vegetables—and a different fork too. My mum says it’s annoying for her to make all those arrangements, but it’s my food, right?

Mum wins our sympathy on this one. Almost all our experts think that you should seek help. This isn’t normal. Given just your three sentences, our experts came up with several possible reasons for your behaviour:

You may have a form of anorexia, suggests Dr Beresin, who specialises in eating disorders and says aversion to foods touching is a common symptom.

“It’s likely that you’re suffering from obsessive compulsive disorder,” believes Linda Blair. “Yet a third possibility”, she says, “is that your behaviour reflects an autistic spectrum disorder.”

You’re not autistic, per se, but you may have autistic tendencies. While people with OCD may fear contamination from food touching, those with autistic tendencies have no logical explanation for their aversion and make idiosyncratic rules about the universe, such as “food must be separated” and it drives them crazy when it isn’t.

Whatever the cause of your behaviour, it may get worse as you age and probably won’t be resolved without treatment, says Blair. “Ask your GP to refer you to a cognitive behavioural therapist,” she urges. Consider what will happen when you go out on a date. Will you demand that the kitchen sends you five plates and forks? Good luck getting a second date.


I don't need a seperate fork (I just lick it off good), and I normally don't need another plate unless I run out of clean space, but this hit a little too close to home for me, so I had to investigate (mostly Wikipedia for convenience, but for accuracy sake, I checked a few other sources as well). Both anorexia nervosa and OCD were way off, but ASD was eerily descriptive of me. I have most of the symptoms of Asperger's (even the really weird ones like walking on your tiptoes), and almost all of the symptoms of dyspraxia.

I'm not entirely sure if I have Asperger's or possibly something else on the spectrum, as some of the symptoms weren't very noticable until about middle school (like stacking/lining things up, preferring not to speak), but a lot of symptoms I've had since birth (rocking/stimming, shyness, clumsiness, sensory overload, etc.).

Speaking of sensory overload, having all of this thrown at me at once probably wasn't the best thing for me :x I was pretty overwhelmed for the first month or so. A bit afraid to know that I wasn't "normal, a bit relieved to know that I wasn't any of those things that mean kids called me in school...a lot of everything just swirling around...asking myself so many questions, a whole lot of self discovery...I found myself spending a lot of time going "Okay, so that's why I do that. But it's okay."

I'm 24 now, a lot less overwhelmed...it hasn't changed me too much, I'm a bit more self-concious about some things (I'll stop myself rocking in public if I catch myself doing it), a bit less reserved about other things (not as ashamed to refuse to "act my age"), and much more tolerant and forgiving towards people who just don't understand.

I hope we can see a lot more autism awareness, surely I'm not the only one who read Normal or Nuts thinking "This is me." Before that, my only knowledge of autism was from RainMan (which didn't seem like me at all). I even had a kid in highschool catch me rocking once, and ask me if I had autism...having no idea, I said "No." :roll:

Well, I intended to keep this short...I think I failed... ;) Just wondering if anyone else had a late diagnosis, if there's any good Internet or book sources for my situation. I tried checking Barnes and Noble, but I didn't find anything particularly helpful.



richie
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22 Apr 2008, 4:18 pm

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lau
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22 Apr 2008, 5:22 pm

SabbraCadabra wrote:
... Just wondering if anyone else had a late diagnosis...
Would you consider 58 late?

Welcome to WP.


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InMyOwnWorld
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22 Apr 2008, 5:32 pm

It can be quite overwhelming, but it does lead to a great many "aha" moments.

I highly recommend the book:
The complete Guide to Asperger's Syndrome by Tony Attwood. It is available at Barnes and Noble. It is a bit pricey for the hardcover (have not seen any paperback versions) but worth every penny/pence?.

You can get a bit of a preview of the book by doing a Google search. Enter the title:
The Complete Guide to Asperger's Syndrome and click on the first link. It will take you to a preview of the book. You will be able to read the preface, first chapter and table of contents.

Good luck to you on your journey of self-discovery.



Tim_Tex
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22 Apr 2008, 5:35 pm

Welcome to WP!


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SabbraCadabra
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22 Apr 2008, 5:54 pm

InMyOwnWorld wrote:
...worth every penny/pence?


Penny ;)

Thanks, I'll have to check it out next time I'm there. I saw a few books last time I was there (in or near the self help section), but most of them seemed more like biographies.



NOBS
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22 Apr 2008, 5:55 pm

Hi;
New here myself. I too am perhaps a little odd with regard to eating behaviour. I have always tended to eat one item at a time, and this is one of many of those little spouse things that we accept but tease about. Household clutter would be another.

Regards,



SabbraCadabra
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22 Apr 2008, 5:58 pm

NOBS wrote:
I have always tended to eat one item at a time...


Yep, I do that too. I've been looking around the board a bit, there's a lot of threads where someone will go "I have this weird habit.", everyone else goes "Me too!", and I'm thinking "Me three."...so at least I'm pretty sure I'm in the right place.



SilverProteus
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22 Apr 2008, 6:00 pm

Welcome SabbraCadabra!:)


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JerryHatake
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22 Apr 2008, 6:04 pm

Nice to meet you, SabbraCadabra. :) 8)


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23 Apr 2008, 2:49 am

SabbraCadabra wrote:
I hope we can see a lot more autism awareness


That would be great.

And welcome, SabbraCadabra.


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asplanet
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23 Apr 2008, 7:22 am

Hi SabbraCadabra welcome to the "right" planet..

I was only diagnosed last year I am 49 8O
At first I was in shock, then I grieved for the lost of the old me, then I read and read and with understanding came revelation, my life started to make sense and acceptance of the real me.


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Kaleido
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23 Apr 2008, 8:33 am

Hi there

SabbraCadabra wrote:
a lot of other resources I've found on the Internet seem to be geared towards (and comprised of) parents of children on the spectrum.

Yes, it does seem that way.

Quote:
Just wondering if anyone else had a late diagnosis, if there's any good Internet or book sources for my situation.

Yes, in my forties.

Try this: http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=418 for books, great list, just choose the link for the kind you want.

Welcome

Kaleido



pluto
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23 Apr 2008, 6:20 pm

Welcome Sabbracadabra.
I self-diagnosed at 45 after initially stumbling upon the Wikipedia
article on AS via a link from 'Albert Einstein'. Previous to that I thought
I was just unusually shy and unlucky in life !
I'd recommend the book 'Asperger's Syndrome' by Tony Attwood


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23 Apr 2008, 6:27 pm

hello there i'm 28 and just got diagnosed 2 years ago with a bunch of other official diagnoses that pretty much adds up to aspergers. schizophrenia, ptsd, motor delay, anxiety, ocd, and much more. welcome to WrongPlanet. :lol:



SabbraCadabra
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23 Apr 2008, 11:37 pm

Two votes for the Tony Attwood book, I'll definitely have to give it a look.

asplanet wrote:
At first I was in shock, then I grieved for the lost of the old me...


I never really felt that way...it's sort of like learning your heritage, you're still the same person, you're just more knowledgable about why you are that person.