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Re: Michael John Carley and Autism Speaks: The Collaboration Thickens (Score: 1)
by demeus Saturday, February 07 @ 15:48:12 EST
(User Info | Send a Message) | | Mr. Carley,
It looks like you need someone to back you up and am willing to take that stand. Alex and I disagree on quite a bit of stuff and this is one of the things where I disagree with him.
First off, if we want to look at an example, we can look no further than Temple Grandin. Rather than join PETA and take the fight to the meatpackers, slaughterhouses, and ranches, Temple joined the meatpackers, slaughterhouses, and ranches and preached her message from inside. It took quite a bit of work but she now not only has standing in the meat industry but also with PETA. Temple in fact, is the go between for the Meat industry and PETA and as such has made things better.
I think Mr. Carley is trying to do the same thing here. What we have now are 2 groups of people who are fighting each other in a counter-productive manner in which neither can win because one side has no regard or reason why the other side is acting the way it does. By offering the olive branch, Mr Carley has opened up dialog between those with ASD who are higher functioning and parents that may result in a policy that is united that can be taken the powers that be and that will be beneficial to all of us.
Does this mean that I am a curebie. Not in the slightest. I totally disagree with cures and eugenics and in fact, am slowly migrating to the pro-life camp as a result of selective abortion. I however see that nothing good will come about with this fighting and the best way to peace is understanding. Rather than fighting NTs all of the time, lets work with them and see if we cannot come up with a solution together.
I honor you Mr Carley for taking a step that can be seen as offensive by those who you are trying to help and with suspision by the other side. |
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Re: Michael John Carley and Autism Speaks: The Collaboration Thickens (Score: 1)
by Tera Friday, January 02 @ 23:28:11 EST
(User Info | Send a Message) | | Michael John Carley,
You repeatedly speculate about abfh's emotional state ("She's unhappy," what drives her is "anger, anxiety, or depression that so tragically accompanies life lived in the behavioral minority inside a world that doesn’t fully understand us"). Why is her emotional state relevant? Arguing about her emotional "problems" seems like a way to avoid engaging the points she actually made.
You say there are no secret payments or agreements--fine. The blurb for your book that "shows respect without claiming any agreement with [your] views"--fine. But perhaps you could respond to abfh's last paragraph, without slipping into an armchair psychologist interpretation of how she felt when she wrote it:
"I see no reasonable possibility of Autism Speaks ceasing to be a pro-eugenics hate group as long as Suzanne Wright is associated with the organization; and given Alison Tepper Singer's past history, I find it ludicrous that Carley thinks he has even the slightest chance of persuading the autistic community that Singer has had a change of heart." |
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Re: Michael John Carley and Autism Speaks: The Collaboration Thickens (Score: 1)
by Mixtli Saturday, January 03 @ 01:42:30 EST
(User Info | Send a Message) | | I read abfh's article out of curiosity and respectfully made a comment that it should probably fall under an OP/ED section rather than under the news tab. I have no idea of the validity of what she is stating; although I did provide some support in my comment out of respect for her and wrongplanet.
Being diagnosed with aspergers as recently as two days ago, I think that I might be approaching abfh's article and your comment with some objectivity. And although I understand your frustration, I am concerned about your tone.
Someone in your position, who presents himself as above the fray and regretfully responding to a wayward person who is unaware of their own sins, I would expect to respond very respectfully and with little more than the facts. However, the tone of your response is of someone who has not given enough time to move beyond the initial frustration of the negativity that was directed towards you.
You sound defensive.
I can understand this, except that it appears that you are speaking for GRASP on an official level, and likewise criticizing Wrongplanet. I believe that an official response should be in the tone that I stated above: objective.
This matters to me not just because I care who is right or wrong in this exchange, but rather, in newly coming into this world, I want to think, and hope, it is governed by individuals who are rational, intelligent, and looking out for the best for all involved. The tone of your response does not give me the impression that this is your goal.
Beyond the tone, there is something about the content of what you wrote that I found disturbing. You are very condescending to abfh. And you are condescending in a way that I feel can easily be translated to the spectrum as a whole. At least, I walked away with the impression that you feel that those with aspergers/ autism do not, or rather, often do not, understand their own actions or their consequences, and that this is due not to our humanity, but to the particularities of our minds. I think it is important for you to consider this if one of your goals is to speak for the aspergers or the spectrum.
In the future, I might recommend writing directly to the editors of Wrongplanet as a gesture of respect and professionalism, instead of writing a comment to a negative article. I would rather see an official article from you as a response, than knee-jerk commentary.
I look forward to response from you.
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Re: Michael John Carley and Autism Speaks: The Collaboration Thickens (Score: 1)
by happyautistic Friday, January 02 @ 20:47:26 EST
(User Info | Send a Message) | | What you have just experienced is Michael John Carley’s customary method of discrediting his autistic opposition. He spouts some pseudo-psychological diagnosis (suggesting that he has personal knowledge of the person’s mental and emotional state) based on autistic stereotypes (that he knows will most likely be believed by those who accept autistic stereotypes). But Carley’s own autism (according to his self-analysis) never takes that particular form, so he is always better equipped to represent autistics and determine their real needs – kind of like Autism Speaks. |
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Re: Michael John Carley and Autism Speaks: The Collaboration Thickens (Score: 1)
by Kassiane Thursday, January 01 @ 04:29:29 EST
(User Info | Send a Message) | | Well that was not only condescending, but also completely missed the point while proving it.
Michael John, why on earth does someone who unapologetically states her daughter is not abled and she wanted to drive her off a bridge count as having character? That's just asinine.
Your high horse: get off it. |
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