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Assessment Limbo 12-20-2011 05:42 pm MindWithoutWalls's Blog

Circular Referrals - Apparent Dead End

  I'm now being referred in circles, back to places I've already called. It looks like I've hit a dead end. Every place I try doesn't do assessments, does them but only for children, or does them for adults but doesn't take Medicaid. I have one more thing to check out, and then I'm done. My hope is not high. I think I'll never be able to learn if I truly have Asperger's or not. I'm simply being disallowed to find out. Nobody is willing to help me. Even the place that said it's what they do, when I told them it was the sole reason for my going to them, refused to actually do it when I went there. What a waste!

  I don't understand. Why this unwillingness? Without the assessment, what can I tell anyone without looking like I'm lying or deluded? I feel like a fool. I never should have let this become important to me. I never should have mentioned anything to my doctor, who doesn't seem interested in really understanding my fibromyalgia, either. I never should have told anyone. I should've kept all this to myself, even if it had allowed so much to go unexplained that my relationship had died because of it. It looks like it still might die anyway, now that so much has gone wrong because of the issues that have been revealed by circumstance. I can never make that go away, diagnosis or no.

  Dead end to my struggle. Dead relationship, maybe, as well. That's two out of three. Time will tell. Right now, I don't want to spoil anyone's holidays. That would really suck. But it looks like I'll be having some very serious decisions to make.

  What's happened to me is really wrong. People shouldn't be treated this way.



Comments

You're right [[People shouldn't be treated this way]] But until we do something, it'll continue. With aspergers, adults are stuck: noone knows of treatments that work, so the only therapists making money are charlatans. Keep trying - there'll be someone who knows enough to tip the balance for you. Emigrate to Australia...

12-23-2011 02:50 am peterd



Thanks! I feel a lot less dismal today, and your encouragement helps. You are also right, and I will try again after a little break for the holidays. I guess we all have to be very tough to keep going and work things out. I'm not down for the count yet!

I left a comment at your blog, btw.

12-23-2011 12:28 pm MindWithoutWalls




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Gender: Female

Location: In the Workshop, with the Toolbox

Occupation: Keeping my girlfriend happy!
Interests: SCA - drumming for belly dancers. Asperger's - self-help / self-advocacy.


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