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| Do you think parents should be allowed to file DNR on a child under the age of 16 |
| YES |
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18% |
[ 7 ] |
| NO |
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81% |
[ 31 ] |
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| Total Votes : 38 |
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| Author |
Message |
Strapples
Strapplius, God of straps!
Joined: Dec 01, 2007
Age: 17
Posts: 13168
Location: Chicago Area IL
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 Posted: Mon Dec 10, 2007 6:36 pm Post subject: Cerebral Palsy + DNR order = one pissed off Strapples |
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A smiling Katie Jones takes a break in the early afternoon at Laremont School in Gages Lake, part of the Special Education District of Lake County. Katie, who suffers from severe cerebral palsy, is a 2nd grader at the school, where officials decided to honor her Do Not Resuscitate order after two years of emotional debate. (Tribune photo by JIm Prisching / September 17, 2007) (chicago tribune)
this kind of pisses me off that the family did this... i dont think it is right to say "if my child goes into medical distress dont do anything" cerebral palsy is not terminal, not progressive, not life threatening, and i have a possibly life threatening, rapidly progressive condition and you dont see me have a yellow DNR on the back of my wheelchair... this is blasphemy... i dont think this is right... why would you want to throw away the life of a child like this... the mind is very powerful, even though she may possibly have severe CP and possibly severe learning disabilities it does not mean those disabilities can be mitigated through all of the great technologies and therapies available to this date...
P.S she is a real cutie and if she were a bit older i would sign her on as my girlfriend 
LINK TO FULL GALLERY
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Last edited by Strapples on Mon Dec 10, 2007 7:09 pm; edited 1 time in total |
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Basshead
Phoenix
Joined: Sep 16, 2007
Posts: 514
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| Posted: Mon Dec 10, 2007 6:39 pm Post subject: |
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Why don't they ask Katie?
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Strapples
Strapplius, God of straps!
Joined: Dec 01, 2007
Age: 17
Posts: 13168
Location: Chicago Area IL
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Spokane_Girl
I would walk 500 miles and I would walk 500 more
Joined: Jul 17, 2007
Age: 23
Posts: 3439
Location: Benny & Joon town (I wish)
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| Posted: Mon Dec 10, 2007 6:41 pm Post subject: |
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I had troubles following what your post was about. What exactly did Katie's parents do?
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Strapples
Strapplius, God of straps!
Joined: Dec 01, 2007
Age: 17
Posts: 13168
Location: Chicago Area IL
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doordoctor
door closer expert
Joined: Feb 06, 2006
Age: 24
Posts: 2965
Location: central nj
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| Posted: Mon Dec 10, 2007 6:49 pm Post subject: |
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my point of view is since CP will not kill a person and since she is a living being that may be having to use a head array to power a wheelchair if she did use a poewrchair, i dont think its right to refuse emergancy rescue procedures on a child. disabled or not
i think since people with cp live a long life and at 2nd grade (usually about 7 to 9 years old) its too early to tell about her outcome on life. i really think its both risky and DANGERUS to have her DNR order pinned to the back of her wheelchair, i mean since the patient's name and ssn are on there, anyone can steal that child's identity.
if this was because of some religion such as jehovahs witnesses, i think its time for the safety and well bing of this child to convert to a more free religion.
i really hate when adults and people assume what people can or cannot do when the assumed about hasnt had a chance to try soemthing or reach that point in time,
sehs human, has a mind, people with severe cp THINK and i really find it sad that they are treated like a broken toaster (tossed or not treated or fixed)
i voted no id not put a dnr on this cute looking child who may have a really good life ahaid of now
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Strapples
Strapplius, God of straps!
Joined: Dec 01, 2007
Age: 17
Posts: 13168
Location: Chicago Area IL
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| Posted: Mon Dec 10, 2007 6:52 pm Post subject: |
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| doordoctor wrote: | my point of view is since CP will not kill a person and since she is a living being that may be having to use a head array to power a wheelchair if she did use a poewrchair, i dont think its right to refuse emergancy rescue procedures on a child. disabled or not
i think since people with cp live a long life and at 2nd grade (usually about 7 to 9 years old) its too early to tell about her outcome on life. i really think its both risky and DANGERUS to have her DNR order pinned to the back of her wheelchair, i mean since the patient's name and ssn are on there, anyone can steal that child's identity.
if this was because of some religion such as jehovahs witnesses, i think its time for the safety and well bing of this child to convert to a more free religion.
i really hate when adults and people assume what people can or cannot do when the assumed about hasnt had a chance to try soemthing or reach that point in time,
sehs human, has a mind, people with severe cp THINK and i really find it sad that they are treated like a broken toaster (tossed or not treated or fixed)
i voted no id not put a dnr on this cute looking child who may have a really good life ahaid of now |
i personally would like to lobby against that DNR upon this specific case and also have all further DNRs on a disabled child under the age of 16 denied and voided...
and why would you have a DNR on such a cutie who might have a huge life ahead of her... who knows, we dont know, she might be the one to create the next big movement in art, might create a huge movement in music, we dont know... but all i can say is that there IS a future!!!
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mmaestro
Phoenix
Joined: Aug 07, 2007
Posts: 522
Location: Albuquerque, New Mexico, USA
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| Posted: Mon Dec 10, 2007 6:53 pm Post subject: |
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Do you have a link to the story? I don't see any indicator that this went through a court of law - just a decision made by the school district, which is an entirely different thing.
I'm honestly not sure how I feel about this. In principle, I think we ought to respect parents' wishes on things like this, but it seems an odd decision on their part, to put things mildly. I disagree with Jehovah's Witnesses who refuse blood transfusions for their children, but I still feel that I have to support their right to choose the medical treatment their kids do or do not get, nomatter how wrongheaded I think their decision is. This seems similar - I think it's the wrong decision, but I'm not sure I'd want anyone else making a decision in the parents' place.
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DivaD
Phoenix
Joined: Feb 10, 2005
Posts: 781
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| Posted: Mon Dec 10, 2007 6:57 pm Post subject: |
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grrr... parents that stupid should be served with a Do Not Reproduce order 
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Strapples
Strapplius, God of straps!
Joined: Dec 01, 2007
Age: 17
Posts: 13168
Location: Chicago Area IL
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| Posted: Mon Dec 10, 2007 6:58 pm Post subject: |
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| mmaestro wrote: | Do you have a link to the story? I don't see any indicator that this went through a court of law - just a decision made by the school district, which is an entirely different thing.
I'm honestly not sure how I feel about this. In principle, I think we ought to respect parents' wishes on things like this, but it seems an odd decision on their part, to put things mildly. I disagree with Jehovah's Witnesses who refuse blood transfusions for their children, but I still feel that I have to support their right to choose the medical treatment their kids do or do not get, nomatter how wrongheaded I think their decision is. This seems similar - I think it's the wrong decision, but I'm not sure I'd want anyone else making a decision in the parents' place. |
I personally think that PARENTS should NOT have the right to decide if a child under 16 gets a DNR or not... i personally think that it is the childs decision on their 16th birthday if they wish to receive a DNR order or not...
i am sorry but i do NOT respect these peoples wish... i think it is VERY wrong that they are practically saying "dont help her we dont care if she dies from a medical emergency"
i also strongly disagree with the Jehovas witness thing on transfusions and other medical care scenarios...
Hell i have a condition thats rapidly progressive, can become life threatening, and yet i dont have a yellow DNR on the back of my wheelchair!!! this is nuts!!!
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Strapples
Strapplius, God of straps!
Joined: Dec 01, 2007
Age: 17
Posts: 13168
Location: Chicago Area IL
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LeKiwi
Phoenix
Joined: Nov 27, 2007
Posts: 2505
Location: The murky waters of my mind...
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| Posted: Mon Dec 10, 2007 7:08 pm Post subject: |
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This just pisses me off. I know two kids with severe cerebral palsy and they're both wonderful children. Biggest smiles you'll ever see, happy as larry most of the time (though they've worked out some rather rude codes using their eyes to let you know when they're pissed off... and believe me, you know!!).
One of them can move his knee, so they've linked up a giant button he can kick to a computer programme with the alphabet and a word processor. He kicks the button with his knee, chooses what letter he wants, and writes fantastic stories. He's also bilingual at age 8!!
CP is NOT retardedness. So what if the body doesn't work properly for the most part; the mind is there, the spirit is there, the ego is there, the PERSON is there. That's all that matters. Yes, it's difficult for the parents (to say the least) but they're still your kids, people!! Can't you see that?! |
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Strapples
Strapplius, God of straps!
Joined: Dec 01, 2007
Age: 17
Posts: 13168
Location: Chicago Area IL
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| Posted: Mon Dec 10, 2007 7:14 pm Post subject: |
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| LeKiwi wrote: | This just pisses me off. I know two kids with severe cerebral palsy and they're both wonderful children. Biggest smiles you'll ever see, happy as larry most of the time (though they've worked out some rather rude codes using their eyes to let you know when they're pissed off... and believe me, you know!!).
One of them can move his knee, so they've linked up a giant button he can kick to a computer programme with the alphabet and a word processor. He kicks the button with his knee, chooses what letter he wants, and writes fantastic stories. He's also bilingual at age 8!!
CP is NOT retardedness. So what if the body doesn't work properly for the most part; the mind is there, the spirit is there, the ego is there, the PERSON is there. That's all that matters. Yes, it's difficult for the parents (to say the least) but they're still your kids, people!! Can't you see that?! |
again i am totally in agreement with you LeKiwi... my old girlfriend had severe cerebral palsy and i would look forward to going to see her every weekend... it was such an enjoyable thing being with her seeing her smile and hugging with her... i wish i still had her but sadly her parents were afraid the relationship was too touchy feely huggy kissy and cut me off from her... it really depresses me how parents lock down so tight on controlling every aspect of a child with disabilities... my parents did the exact reverse they let go more when they found out i had this disease.
who gives a crap if the body does not work correctly... mine definitely does not work correctly and yet i dont go around with a bright yellow DNR on the back of my wheelchair... and nor will i get a bright yellow DNR as an accessory to my powerchair!
Bilingual at the age of 8 is very young, talk about smart cookie!
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EvilKimEvil
zoo-music girl
Joined: Sep 27, 2007
Posts: 3040
Location: highway to hell
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| Posted: Mon Dec 10, 2007 7:49 pm Post subject: |
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I couldn't find a link to the article from the photo gallery, but I did eventually find it:
http://www.chicagotribune.com/news/local/chi-dnrkids_bd_09dec09,0,3568955.story?page=1
According to the article, the doctor told the parents that her condition was getting worse and suggested the DNR so that she could die peacefully at home. I still don't agree with it, considering that they didn't ask her. |
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Strapples
Strapplius, God of straps!
Joined: Dec 01, 2007
Age: 17
Posts: 13168
Location: Chicago Area IL
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