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Cerebral Palsy + DNR order = one pissed off Strapples
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Do you think parents should be allowed to file DNR on a child under the age of 16
YES
15%
 15%  [ 7 ]
NO
84%
 84%  [ 38 ]
Total Votes : 45

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Strapples
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PostPosted: Tue Dec 11, 2007 7:44 pm    Post subject: Reply with quote

mmaestro wrote:
Strapples wrote:
well thank you very much... now your trying to say my life expectancy is going to be significantly lower because i cant move much for myself.

I said nothing of the sort. I have no idea what your life expectancy is - I'm not your doctor, either. And, what I said was directly related to CP - a condition you said you don't have. I've made absolutely no judgement on your quality of life, prognosis, anything.
Strapples wrote:
i believe these parents do not know all the arrays of therapies and treatments available for CP

That seems unlikely. Their daughter is in a specialist school which looked to have a number of other kids with severe CP in the classroom, they have a specialist doctor, and it seems like they've spent a long time thinking about this decision - and it took over two years for the school district to accept it. You don't spend two years fighting for this sort of thing without having alternatives presented to you.

i have no comment... please let other thread visitors make comments... if you wish to comment again with a comment that has a better "respondability" rate please do so Smile
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Strapples
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PostPosted: Tue Dec 11, 2007 7:56 pm    Post subject: Reply with quote

nicky wrote:
Strapples wrote:
nicky wrote:
Strapples wrote:

personally if they dont want the burden of caring for her why dont i get my parents to adopt her my parents wouldnt need to do much aside from monitor us both medically and also i would have some love in my life... how could such a little cutie be a burden on someone... if i were her parent i would have not had her going to school but being homeschooled and i would have her on the couch with me as we do the schooling thing on the computer with my arm wrapped around her softly... it would be such a beautiful picture... very easy for me to imagine...

and now i am going to ask myself a question (feel free to answer yourself)

What would you do if your parents adopted her?

there would be a few things, first business must get done... i would shred that DNR into bits!!! and then burn those bits!!! and then i would take the ashes and flush them down the toilet! then i would go get the raw sewage containing the DNR bits and bury them in a nuclear reactor waste storage center... then comes the biggest part, i would be quite quick to grab her and kiss her all over and hug her and tell her that its not about physical function, life is about love and fun, life isnt even about knowledge or money to me... its just about love and fun... parents like hers deserve another type of DNR... a Do Not Reproduce order!!!

I would really enjoy having someone here with me all the time like that... especially someone with a disability like mine... the thing is we would be so huggy kissy touchy that i wouldnt be able to get anywhere near the computer to get on the forums and talk to you guys...


if my parents adopted her, i'd be like, "yaaay!! a little sister!!! just what i always wanted!! Very Happy and i would definately love on her, too!! Very Happy and, yes!! i'd most definately get rid of that DNR!! lol, that should be on a t-shirt... "parents that get Do Not Resuscitate orders for their kids should recieve Do Not Reproduce orders for themselves!!"


i would really be celebrating the adoption big time, especially since it would be someone physically like me! only problem with the adoption idea is id be all over her all the time i wouldnt get much else done... you would probably have to literally peel me off of her he he... thats how clingy id get because when someone like that would be living with me... my god how clingy i would get...

the first thing i would do after adoption is destroy that DNR in multiple ways...

and you know what i think i am going to put that "parents that get Do Not Resuscitate orders for their kids should recieve Do Not Reproduce orders for themselves!!" on t-shirts... why stop there coffee mugs too... thanks to cafepress.com ill get a design made sometime tomorrow and have the products up by midnight tomorrow night!


it would be nice to be allowed to be that clingy with someone.. i adore kids, but my mom is always saying how people will think i'm a pedofile if i love on them too much... wtf??!! back to the sex thing again!! Mad that would be awesome if those mugs became really popular... Very Happy

ugh... i cant stand the way people stereotype ANY type of love platonic or not as sexual... the only time i say love is sexual is when i see a guys USB connector go inside of a girls USB port. so i agree WTF!!!??? i am still working on designing those mugs! and i seriously will sell them!

the link to my cafepress store is below.

http://www.cafepress.com/cp_shop
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Gamester
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PostPosted: Wed Dec 12, 2007 4:29 am    Post subject: Reply with quote

I find this very saddening.

Yes, we know that said girl has an uncurable disease, but still, it is in my opinion as someone who views life higher then anything, that she be allowed to live until she can no longer, and To Hell with the DNR. Tell the parents that they're UWTR and SNABTAS. That's just my opinion.

I think that if House were here, he'd make sure he could do whatever he could to fix her problem, because as much of a Horses ass he is, he's got a great heart, vicodin or no vicodin.
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Strapples
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PostPosted: Wed Dec 12, 2007 5:41 am    Post subject: Reply with quote

Gamester wrote:
I find this very saddening.

Yes, we know that said girl has an uncurable disease, but still, it is in my opinion as someone who views life higher then anything, that she be allowed to live until she can no longer, and To Hell with the DNR. Tell the parents that they're UWTR and SNABTAS. That's just my opinion.

I think that if House were here, he'd make sure he could do whatever he could to fix her problem, because as much of a Horses ass he is, he's got a great heart, vicodin or no vicodin.

good thing is CP its self does not progress... Someone like house needs to stop whatever is progressing on this girl... I give her priority for house... I'd rather die first than see an article on her death.
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PostPosted: Wed Dec 12, 2007 5:47 am    Post subject: Reply with quote

Grrr. How can they make that decision?
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Strapples
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PostPosted: Wed Dec 12, 2007 5:54 am    Post subject: Reply with quote

Anubis wrote:
Grrr. How can they make that decision?

i don't know but these kind of parents sicken me... If she were my daughter I would want them to do anything to keep her Alive. Its not like she is in a coma for 6 years... the parents should have another type of DNR issued to them a Do Not Reproduce order
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PostPosted: Wed Dec 12, 2007 2:10 pm    Post subject: Reply with quote

Strapples wrote:
Anubis wrote:
Grrr. How can they make that decision?

i don't know but these kind of parents sicken me... If she were my daughter I would want them to do anything to keep her Alive. Its not like she is in a coma for 6 years... the parents should have another type of DNR issued to them a Do Not Reproduce order


Aye.

And if that's how much they love her, to give her a DNR, then apparently they truly don't love her.
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PostPosted: Wed Dec 12, 2007 2:13 pm    Post subject: Reply with quote

Gamester wrote:
Strapples wrote:
Anubis wrote:
Grrr. How can they make that decision?

i don't know but these kind of parents sicken me... If she were my daughter I would want them to do anything to keep her Alive. Its not like she is in a coma for 6 years... the parents should have another type of DNR issued to them a Do Not Reproduce order


Aye.

And if that's how much they love her, to give her a DNR, then apparently they truly don't love her.


Gamester i fully agree... because if she were my daughter i would want her to receive any medical care needed to stay alive... and if she had to stay in the hospital i wouldnt leave that hospital room, i would be right there with her through everything... these parents appear to be looking to abandon and just be done dealing with her... if they really want to be done, sign her up for adoption... oh and call me when you find that shes open cuz ill have my parents pick her up Smile id love to have a little sister.
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PostPosted: Wed Dec 12, 2007 2:21 pm    Post subject: Reply with quote

Strapples wrote:
Gamester wrote:
Strapples wrote:
Anubis wrote:
Grrr. How can they make that decision?

i don't know but these kind of parents sicken me... If she were my daughter I would want them to do anything to keep her Alive. Its not like she is in a coma for 6 years... the parents should have another type of DNR issued to them a Do Not Reproduce order


Aye.

And if that's how much they love her, to give her a DNR, then apparently they truly don't love her.


Gamester i fully agree... because if she were my daughter i would want her to receive any medical care needed to stay alive... and if she had to stay in the hospital i wouldnt leave that hospital room, i would be right there with her through everything... these parents appear to be looking to abandon and just be done dealing with her... if they really want to be done, sign her up for adoption... oh and call me when you find that shes open cuz ill have my parents pick her up Smile id love to have a little sister.


Aye.

If I knew where this was, I'd check to see if I had any contact support in the area, and have them talk with the parents. Working for the military, I have contacts in a lot of strange places, and they're very useful...........specially those in intelligence.

But yeah. I totally agree, those parents don't seem to want to have anything to do with her. My parents when I was younger and diagnosed stood by me, helped me, disciplined me(a lot) but it helped. It helped me be the person I am today. I'm guessing that the little girl's parents parents(any easier way to say that, someone please tell me) must not have taught them to be supportive of people who are different, and it sickens me. truly and utterly.
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Strapples
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PostPosted: Wed Dec 12, 2007 3:42 pm    Post subject: Reply with quote

Gamester wrote:
Strapples wrote:
Gamester wrote:
Strapples wrote:
Anubis wrote:
Grrr. How can they make that decision?

i don't know but these kind of parents sicken me... If she were my daughter I would want them to do anything to keep her Alive. Its not like she is in a coma for 6 years... the parents should have another type of DNR issued to them a Do Not Reproduce order


Aye.

And if that's how much they love her, to give her a DNR, then apparently they truly don't love her.


Gamester i fully agree... because if she were my daughter i would want her to receive any medical care needed to stay alive... and if she had to stay in the hospital i wouldnt leave that hospital room, i would be right there with her through everything... these parents appear to be looking to abandon and just be done dealing with her... if they really want to be done, sign her up for adoption... oh and call me when you find that shes open cuz ill have my parents pick her up Smile id love to have a little sister.


Aye.

If I knew where this was, I'd check to see if I had any contact support in the area, and have them talk with the parents. Working for the military, I have contacts in a lot of strange places, and they're very useful...........specially those in intelligence.

But yeah. I totally agree, those parents don't seem to want to have anything to do with her. My parents when I was younger and diagnosed stood by me, helped me, disciplined me(a lot) but it helped. It helped me be the person I am today. I'm guessing that the little girl's parents parents(any easier way to say that, someone please tell me) must not have taught them to be supportive of people who are different, and it sickens me. truly and utterly.

location is lake county Illinois.

i agree i think the parents just dont want anything to do with her anymore i think they are thinking to themselves "why did we have to get the disabled one" personally i think the parents are terribly wrong...

if she were my daughter i would explain to her what a DNR is and ask HER what she thinks of it... i know she would instantaniously say FORGET IT!!!

i would want to be at her side the whole way and these parents definitely dont want to... i personally think you should call around in the area for some help, i do not want to see any obituary with this girls name on it... not until i hear about her 90th birthday...
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PostPosted: Wed Dec 12, 2007 4:05 pm    Post subject: Reply with quote

I am generally in favor of people deciding to put a Do Not Resuscitate order on themselves. This case is different because the girl was a minor and her parents, not her, made the decision to put a DNR order on her.

While I may not have all the facts in the case, if the girl's condition had progressed to a point where a) she was more debilitated than ever before and b) no longer conscious of reality, the girl's parents may well have acted in the best interests of the girl. They are her parents, who gave birth to her, and under those circumstances, they would be best qualified to make that decision.

However, if the girl had simply gone unconscious and there was a high chance that she could have been resuscitated and thereafter returned to her prior state for the most part, and back to consciousness, a decision not to resuscitate would have, in my opinion, been a major error. Let's say you had a broken arm, and your parents didn't like your suffering from that broken arm. Then somehow you became unconscious, and they pulled the plug, so to speak-- simply so that you would not suffer from that broken arm anymore. If they did that, it would be absurd, obviously, and a major mistake. If it is the case that this is what happened: to put it simply, a disabled person went unconscious for a while, and they were allowed to die, for no good reason. CP is just one of a number of disabilities. Yes, it is debilitating, but there are many people living to their fullest with CP. If she could have been revived and restored to what was normal for her, our medical system in the United States should have been able to provide care for this little girl's lifelong medical problems.
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PostPosted: Wed Dec 12, 2007 4:13 pm    Post subject: Reply with quote

hyperbolic wrote:
I am generally in favor of people deciding to put a Do Not Resuscitate order on themselves. This case is different because the girl was a minor and her parents, not her, made the decision to put a DNR order on her.

While I may not have all the facts in the case, if the girl's condition had progressed to a point where a) she was more debilitated than ever before and b) no longer conscious of reality, the girl's parents may well have acted in the best interests of the girl. They are her parents, who gave birth to her, and under those circumstances, they would be best qualified to make that decision.

However, if the girl had simply gone unconscious and there was a high chance that she could have been resuscitated and thereafter returned to her prior state for the most part, and back to consciousness, a decision not to resuscitate would have, in my opinion, been a major error. If you had a broken arm and your parents didn't like your suffering from that broken arm, and you somehow fell unconscious, and they pulled the plug, so to speak, just so that you would not suffer from that broken arm anymore, that is what it would have been like. If it is the case that this is what happened, to put it simply, a disabled person went unconscious for a while, and they were allowed to die, for no good reason. CP is just one of a number of disabilities. Yes, it is debilitating, but there are many people living to their fullest with CP.


agreed... a DNR on yourself initiated by yourself is perfectly ok... but placing a DNR on a minor and also without receiving any input from that minor is not acceptable...

and this type of DNR is saying that for a simple possible cardiac arrest where a defibbrilator could bring back to normal state prohibits use of a defibbrilator is completely unacceptable... i know vast numbers of people who live a full life even though they have a medical condition, and i am one of them... i dont have no big yellow DNR form on the back of my wheelchair, and nor is a DNR going to ever become one of the accessories on my powerchair...
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PostPosted: Fri Dec 14, 2007 1:53 am    Post subject: Reply with quote

Strapples wrote:
hyperbolic wrote:
I am generally in favor of people deciding to put a Do Not Resuscitate order on themselves. This case is different because the girl was a minor and her parents, not her, made the decision to put a DNR order on her.

While I may not have all the facts in the case, if the girl's condition had progressed to a point where a) she was more debilitated than ever before and b) no longer conscious of reality, the girl's parents may well have acted in the best interests of the girl. They are her parents, who gave birth to her, and under those circumstances, they would be best qualified to make that decision.

However, if the girl had simply gone unconscious and there was a high chance that she could have been resuscitated and thereafter returned to her prior state for the most part, and back to consciousness, a decision not to resuscitate would have, in my opinion, been a major error. If you had a broken arm and your parents didn't like your suffering from that broken arm, and you somehow fell unconscious, and they pulled the plug, so to speak, just so that you would not suffer from that broken arm anymore, that is what it would have been like. If it is the case that this is what happened, to put it simply, a disabled person went unconscious for a while, and they were allowed to die, for no good reason. CP is just one of a number of disabilities. Yes, it is debilitating, but there are many people living to their fullest with CP.


agreed... a DNR on yourself initiated by yourself is perfectly ok... but placing a DNR on a minor and also without receiving any input from that minor is not acceptable...

and this type of DNR is saying that for a simple possible cardiac arrest where a defibbrilator could bring back to normal state prohibits use of a defibbrilator is completely unacceptable... i know vast numbers of people who live a full life even though they have a medical condition, and i am one of them... i dont have no big yellow DNR form on the back of my wheelchair, and nor is a DNR going to ever become one of the accessories on my powerchair...



Goood. Good for you.

Yar.

If I had a heart issue and I had an attack, I would want to live again.

Still, some good may come of this.

With the fact that it's got us up in arms, then think about the outside world, what they're reactions might be. I haven't seen anything in papers recently(as of this month, or the week preceding the end of November) so apparently either this is not newsworthy, or else it's being hushed up.

Opinions?
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PostPosted: Sat Dec 15, 2007 4:52 am    Post subject: Reply with quote

Well, bless all of your hearts...

Strapples, have you talked to your parents about this case? It seems to have touched you very personally, and you're very upset about it. You have focused on only part of this girl's condition and not others. One thing people did not pick up on is that this little girl is in hospice care.

One does not go into hospice care unless time is running out and the person usually has six months or less to live. This is regardless of medical intervention.

She probably has infections that do not respond to antibiotics, and she is not able to recover from them completely, and there's lung or nerve damage. I can think of several related conditions that can also cause deterioration in this case.

I am glad you are not in this child's situation, and you do recover and respond well to medical treatment.

Please take care of yourself, and talk to your parents about this. Life is not easy, period, and we need all the support we can get.

Metta, and Karuna, Rjaye.
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PostPosted: Sat Dec 15, 2007 8:08 am    Post subject: Reply with quote

Rjaye wrote:
Well, bless all of your hearts...

Strapples, have you talked to your parents about this case? It seems to have touched you very personally, and you're very upset about it. You have focused on only part of this girl's condition and not others. One thing people did not pick up on is that this little girl is in hospice care.

One does not go into hospice care unless time is running out and the person usually has six months or less to live. This is regardless of medical intervention.

She probably has infections that do not respond to antibiotics, and she is not able to recover from them completely, and there's lung or nerve damage. I can think of several related conditions that can also cause deterioration in this case.

I am glad you are not in this child's situation, and you do recover and respond well to medical treatment.

Please take care of yourself, and talk to your parents about this. Life is not easy, period, and we need all the support we can get.

Metta, and Karuna, Rjaye.


*laughing hysterically*

respond to medical condition.... recover... yeah... right!!! check my website please, i have a neurological disease that is very rapidly progressive...

at some point my case is going to look exactly like this... if not worse. but i do NOT want a DNR strapped to the back of my wheelchair for ANY reason... i find that a DNR is not a useful thing when someone is this young. you dont know what the future holds for this case...

*points to signature*
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