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| Should we work with Autism Speaks to promote positive images of autism? |
| Yes! This isn't about spite. Any chance to get a positive message across is good. (Besides, if they back out now it will prove to everyone how they really feel.) |
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40% |
[ 36 ] |
| Not sure... (If this is your answer, please explain why in a Reply Post.) |
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13% |
[ 12 ] |
| No way! We don't want to make them look like they care while they are still working for a "cure". It's more important that people know we disapprove of their policies. |
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46% |
[ 41 ] |
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| Total Votes : 89 |
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santaclautism
Emu Egg
Joined: Apr 19, 2008
Age: 31
Posts: 7
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 Posted: Tue Apr 22, 2008 11:58 am Post subject: Re: Offer from Autism Speaks, please give your opinion |
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| archetype wrote: | | When was the last time Autistics crafted subliminal advertising? |
I don't know...what time is it, exactly? (Liminal points exist along a spectrum, and differ for each individual.)
This makes it incredibly difficult to define some objective notion of what is and is not "subliminal" for others.
Every time I act, there is some level of calculation involved in that act, either "conscious" or "subconscious".
More rigorously, it's always some combination of the two as they are impossible to separate out completely.
As with everything else, it boils down to balance, not just of intentionality and effect, but consciousness, too.
The same is true for those involved in "marketing" or "advertising", as it is in "producing" and "consuming".
Whether you like it or not - if you participate in the present society or economy, you advertise subliminally.
I would go so far as to say that if you exist, you advertise subliminally. You transmit messages to be read.
| Quote: | I do not want any human primate government agencies in my life.
I do not want any human primate corporations in my life.
I do not want any human primate 'machinery' in my life.
I do not want any human primate influence in my life.
I do not want any human primate opinion in my life.
I do not want any human primate government dollars in my life ... nor the unspoken toll that is required for those dollars; I will not enter into that 'agreement' with human primates - I have learned that lesson too many times. |
I suspect that you would only be differently unhappy if the phrase "human primate" were replaced by "autistic".
This leaves you (in the same method that you employed with someone else's post above) saying the following:
| Quote: | I do not want any ... government agencies in my life.
I do not want any ... corporations in my life.
I do not want any ... 'machinery' in my life.
I do not want any ... influence in my life.
I do not want any ... opinion in my life.
I do not want any ... government dollars in my life ... nor the unspoken toll that is required for those dollars; I will not enter into that 'agreement' with (anyone) - I have learned that lesson too many times. |
This does not strike me as a realistically tenable position. Please understand that I am not trying to be mean.
You close this thought with the underlying cause, the justification deriving from negative personal experience.
Your personal experience is not universal. Your focus, however, is universal - but maybe should be personal?
I wish you well. |
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NicholasGray
Tufted Titmouse
Joined: Jan 24, 2008
Posts: 46
Location: Phliadelphia
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| Posted: Mon Apr 28, 2008 3:29 pm Post subject: UPDATE |
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Hello all.
Just thought I'd share some updates on this whole topic.
First, I met this week with two advisors in non-prfit organization and fund-raising about helping me put this whole thing together. After reading everyone's concerns, I wanted to make sure to do these completely outside of AutismSpeaks's purview. We had a long dinner and talked about the specifics of getting some rcognizable names on-board and for how to get some attention to them on a national level.
Second, amusingly enough, I called the office of Special Projects at AutismSpeaks to follow up with them about issues such as "no right to re-edit" etc. The lady didn't call me back. A week later I called again. No response. I made a third call. Still nothing. I am going to try again by email this week.
I suppose she might just be very busy, but it looks more and more like the offer was completely insincere. I wonder what the best way to make THAT fact known might be...? |
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polarity
Toucan
Joined: Feb 16, 2006
Posts: 298
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| Posted: Mon Apr 28, 2008 4:24 pm Post subject: |
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A follow-up in the youtube comments to the video might be a good start, if they're still unwilling to follow up on it aftyer being informed of your intention to make their insincerity public.
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You aren't thinking or really existing unless you're willing to risk even your own sanity in the judgment of your existence. |
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MysteryFan3
Ex-COBOL dinosaur. roar.
Joined: Jun 09, 2007
Age: 52
Posts: 1358
Location: Indiana
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| Posted: Mon Apr 28, 2008 5:22 pm Post subject: |
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Not entirely unexpected. Her offer was made in a standard "business pretty" delivery. It's hard to tell if someone is sincere when they do that. Most often, they're just shifting the next step to someone else.
Still, they may actually follow though. Having poor organizational skills is not restricted to Aspies.
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To eliminate poverty, you have to eliminate at least three things: time, the bell curve and the Pauli Exclusion Principle. Have fun. |
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krex
Phoenix
Joined: Jun 21, 2006
Age: 46
Posts: 5090
Location: Village of the Damned
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| Posted: Mon Apr 28, 2008 9:23 pm Post subject: |
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Autism Speaks offer....Could you legally show a clip of her making the offer, (as shown in the meeting)? I did have my suspicions that the comment she made was "off the cuff" and not sincere but meant to present them as "reasonable". I was hoping I was wrong, regardless of how rare that is 
"Autism Speaks is so busy speaking for us, that they don't seem to have time to listen"...would make a good sound bite following the clip of her making the offer and your documented,(always keep a written record of when you call and what their response...or lack of one... was), attempts to contact them for follow-up.
I can't recall if I mentioned this before but if you are still looking for suggestions about your film for this....I would like the point to be made that....
1)There are new technologies that are allowing "non-speaking autistics" to communicate and prove themselves to be thinking, feeling and caring individuals...something that some did no realize until they were given a voice by technology...(thinking of Amanda Brags(sp?).
2)There is a lot of credit being given to various "treatments"...ABA and others...that are given credit for the improvement of autistics kids functioning that could be accounted for by nothing more then "time". Point being....I consider myself developmentally delayed and even without ABA, I improved in some areas over time and life experience. Scientist could learn a lot more about how this happens (what helps and what hinders), if they would spend more time "studying" aspies who were raised before there was a DX. The fact that many are ignoring the reality of their(our) existence is perpetuating the agenda that this is a "new epidemic", rather than the reality that we ave always been here.
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Just because one plane is flying out of formation, doesnt mean the formation is on course....R.D.Lang
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CockneyRebel
Mick Avory
Joined: Jul 18, 2004
Age: 35
Posts: 22463
Location: 1965 London with Ruby the Routemaster by my side
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| Posted: Tue Apr 29, 2008 7:58 am Post subject: |
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I've tried to sign it, again but they only take one signature per person, now.
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Mick Avory is my favourite Kink. He always has been and he always will be. Him and I are two peas in a pod. |
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NicholasGray
Tufted Titmouse
Joined: Jan 24, 2008
Posts: 46
Location: Phliadelphia
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| Posted: Thu May 01, 2008 3:10 pm Post subject: Autism Speaks spoke |
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Hey all.
Yesterday I received a call from Autism Speaks' Director of Special Programs. Apparently there were some snafus with their blackberry devices and international travel, so they just got my messages. Or maybe some our grousing got back to them, who knows.
But they are going to make good on their offer to create web space to host the videos (meeting next week about how/where on their site) and at least sound genuinely enthused to expand upon the messages they are putting out. I am cautiously optimistic right now.
When I talk with them next week, I will bring up all the concerns you guys have expressed to me before moving forward. And I will make sure to keep everyone on this board in the loop.
Nicholas |
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krex
Phoenix
Joined: Jun 21, 2006
Age: 46
Posts: 5090
Location: Village of the Damned
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| Posted: Thu May 01, 2008 6:45 pm Post subject: |
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_________________
Just because one plane is flying out of formation, doesnt mean the formation is on course....R.D.Lang
Visit my crafts store
http://www.etsy.com/shop.php?user_id=5412685 |
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auntyjack
Pileated woodpecker
Joined: Feb 03, 2006
Posts: 185
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| Posted: Sat May 03, 2008 4:20 am Post subject: Re: Offer from Autism Speaks, please give your opinion |
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| NicholasGray wrote: |
Suzanne Wright, the co-counder of Autism Speaks, responded with a public offer to promote positive stories on Autism Speaks' website if I provide them to her. This was, of course, right after she claimed her orgainzation is making a ton of progress to make autistics feel more accepted. She then promptly compared autistics to AIDS patients.
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Nicholas |
The only way that I would support Autism Speaks would be if they were to reform their management team to include 50% autistic representation. I would then expect them to rework their website with regard to an evaluation by the autistic board members. I would expect them to insist that all research funded by them be subject to a member of the autism committee on the review team so that only proposals which meet an autism friendly protocol be funded. I suggest that fundraising no longer be promoted in a manner which demeans autistic people as damaged beings in need of fixing.
I suggest that as they clearly demonstrate a limited understanding of autism (the comment about Aids shows that) that autistic adults should boycott the organization until they are prepared to accept us as equals. |
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auntyjack
Pileated woodpecker
Joined: Feb 03, 2006
Posts: 185
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| Posted: Sat May 03, 2008 4:24 am Post subject: |
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| The_Cucumber wrote: | Well, I suppose we could if we do it right.
Simply showing someone why they are wrong without actually saying "your wrong" can be far more effective then telling people they are wrong and backing up your argument.
So I think we should send them as many success stories of people with autism as we can. Preferably, it can be inferred that if the person did not have autism they could not have succeeded in the way they did. |
If we send them materials to use on their site, we are supporting them. We give them validity. By our actions we say that they are ok.
The best thing that we can do is to refuse to support Autism Speaks until they accept us on our terms and let the world know that we do not support them and why. |
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Speckles
Velociraptor
Joined: May 03, 2008
Posts: 448
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| Posted: Sat May 03, 2008 11:57 pm Post subject: |
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| I say yes. No progress can be made without communication and compromise. |
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autistican_beauty
Tufted Titmouse
Joined: Apr 21, 2008
Age: 30
Posts: 34
Location: Between a rock and a hard place
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| Posted: Sun May 04, 2008 3:59 am Post subject: |
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| Quote: | | I say yes. No progress can be made without communication and compromise. |
I will extend Speckles words to my opinion. If we as Aspies and NT's are EVER going to come together, it must be done with respect. The anger and attacks have to stop. We have to be better than politicians. Nobody likes getting slapped across the face Aspie to Aspie, Aspie to NT, NT to NT, etc...if a system doesn't work after employing this simple but all-too-forgotten strategy, then cut it off like a limb with gangrene. Hate isn't healthy. I'm so disheartened to see the way it spreads like wildfire on social networking sites. I sent AS a poem for their World Autism Day writing contest. I did it in the hopes of enhancing adult awareness, an issue I find greatly ignored and lacking in terms of support and services. They did choose to publish it. I was glad because I achieved my goal and yes, it was good to see my work in print again after several years. My point is, let's agree to disagree, be respectful and work with the Wrights and AS. If they choose to cooperate, a gain for all. If not, we as the autism community cut our losses and move on. 
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D. Plainview
I DRINK YOUR MILKSHAKE!!!!!!!! |
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morning_after
Phoenix
Joined: Jan 29, 2008
Age: 28
Posts: 1041
Location: Arizona
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| Posted: Sun May 04, 2008 8:05 pm Post subject: |
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I'll have to agree. If they are really willing to work with us we shouldn't have to agree with them.
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Bill Cosby: Dad is great! Give us the chocolate cake!
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Malachi_Rothschild
Deinonychus
Joined: Aug 05, 2007
Age: 25
Posts: 335
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morning_after
Phoenix
Joined: Jan 29, 2008
Age: 28
Posts: 1041
Location: Arizona
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| Posted: Mon May 05, 2008 9:02 pm Post subject: |
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Maybe they want to give themselves a better reputation among us.
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Bill Cosby: Dad is great! Give us the chocolate cake!
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