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Alerion42
Hummingbird
Joined: Mar 23, 2008
Age: 30
Posts: 18
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 Posted: Fri May 02, 2008 5:10 am Post subject: Problems with incontinence |
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I wasn't really sure where to put this but since this is the health and fitness section I figgured I'd put it here. I've had off and on bladder problems since I was about 14, and it's been progrressivly getting worse. I potty trained late (I was almost 5, just barely made it to Kindergarden) and my childhood is spattered with embarassing accidents. I was wondering if this could have anything at all to do with AS.
From about 8 to 14 I was preaty much ok, until I started wetting the bed on a regular basis. Sometime in highschool, I started having daytime accidents and now at 30 I preaty much have to wear protection at all times. This is something I'm fairly embarassed about, and I was wondering if it might have to do with my AS, or if anyone else has had similar problems.
Any help would be greatly appreciated. |
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qgambit
Yellow-bellied Woodpecker
Joined: Feb 06, 2008
Age: 27
Posts: 68
Location: Los Angeles CA
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| Posted: Fri May 02, 2008 5:14 am Post subject: |
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| Have you seen a doctor about this? |
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ouinon
chemical reaction
Joined: Jul 11, 2007
Posts: 3124
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| Posted: Fri May 02, 2008 5:25 am Post subject: |
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I ( aspie) sometimes wet my bed until I was about 9, and also had some massively humiliating larger scale accidents in public/social situations until I was 11. But since then not really experienced a problem.
My 8 year old AS son only stopped daytime nappies aged 5, and night time ones at 6.
Is it because you don't feel it coming at all, or because you can't get to the toilet fast enough, ie: you feel it too late? Is it because don't know how to use the muscles to hold it in?
It sounds like a nightmare. Sorry can't help with advice. Have you googled the problem?
Wikipedia has: http://en.wikipedia.org/wiki/Urinary_incontinence
It sounds quite optimistic about the chances of treatment ( timed voidance, biofeedback, muscular exercises etc) solving the problem.
Good luck.  
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"Life is pain; anyone who says different is selling something" |
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Alerion42
Hummingbird
Joined: Mar 23, 2008
Age: 30
Posts: 18
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| Posted: Fri May 02, 2008 5:42 am Post subject: |
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| qgambit wrote: | | Have you seen a doctor about this? |
I've seen many doctors, and been put on many medications, none had any effect. My last doctor suggested that it may be psycological.
| ouinon wrote: | | Is it because you don't feel it coming at all, or because you can't get to the toilet fast enough, ie: you feel it too late? Is it because don't know how to use the muscles to hold it in? |
I've actualy gone through all of those stages. In Highschool I just couldn't make it to the bathroom in time, later I just wouldn't feel it until it was too late. Now, my bladder muscles just won't do what I want them to do. |
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ouinon
chemical reaction
Joined: Jul 11, 2007
Posts: 3124
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| Posted: Fri May 02, 2008 7:50 am Post subject: |
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| Alerion42 wrote: | | I've actually gone through all of those stages. In Highschool I just couldn't make it to the bathroom in time, later I just wouldn't feel it until it was too late. Now, my bladder muscles just won't do what I want them to do. |
Have you tried the timed voidance approach? That sounds the best if have no control/sensation/signal at all? ( going every 3 hours or so, though it would be a serious pain to have to organise  )
I'm really sorry; the wiki page makes recovery sound easy, at least fairly certain. What about the feedback-training to get a handle on some kind of signal for it and learn control of the muscles?
I am not surprised you thought it might perhaps be an AS thing seeing as poor proprioceptive system development is often an AS thing.
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ouinon
chemical reaction
Joined: Jul 11, 2007
Posts: 3124
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| Posted: Fri May 02, 2008 8:32 am Post subject: |
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I just found an article/paper about "ataxia", and related conditions, including an "apraxic" gait, ( i loathe these ugly medical terms), and ... mentioned in connection with frontal lobe ( as implicated in so much of AS ) disorders/impairment/damage is incontinence.
http://www.dartmouth.edu/~dons/part_2/chapter_15.html ( about 3/4 of the way down the page, it's a short piece)
Don't know if is useful, but might convince your doctor that is not psychological anyway. 
PS: I'm not suggesting that you have problems with gait/walk, just that a link is made here between the frontal lobe and incontinence, and the frontal lobe is prime mover in AS.
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CockneyRebel
Sid The Love Rat :O)
Joined: Jul 18, 2004
Age: 33
Posts: 20855
Location: Out in the evening, with me two best Rat Mates, somewhere in Canada :O)
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| Posted: Fri May 02, 2008 11:16 am Post subject: |
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I have to wear protection, but for a different reason. I have the other type of incontinence, like Sid.
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Sid The Rat is everything that I stand for. We're both large, proud Punkers with Cockney accents. We both have the same issues, as well. I don't see anything wrong, with that. I was put on this planet, to make myself happy. Sid :O) |
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zghost
Phoenix
Joined: Oct 29, 2007
Posts: 603
Location: Southeast Texas
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| Posted: Fri May 09, 2008 8:25 pm Post subject: |
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As a child, I had an intense fear of bathrooms. I would pee my pants rtather than go in one.
As for you, have you heard of Kegel exercises? If not look it up, it would help.
That, and making a point to regularly use the closest bathroom, wether you think you need to or not. |
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Shrubbie
Emu Egg
Joined: May 14, 2008
Age: 53
Posts: 5
Location: Minnesota
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| Posted: Sat May 17, 2008 12:44 pm Post subject: Incontinence |
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Go see a urologist (preferably female) who can help you. I don't think this problem is an AS problem but a big problem that affects millions of women. I have an overactive bladder and IC (interstial cystitus) which makes living very challenging at times. I have tried Detrol and others meds which helped me for about one year. I'm now on Sanctura which cuts down on the frequency but does nothing for the incontinence. I finally switched to a female urologist and she did more for me in the first visit than my other urologist of 2 years did. If you have IC or not you can try a diet approach. They usually have handouts which tell you to avoid certain foods for a week then try another food (caffeine is my biggest problem, next was citrus fruits) If those don't work and meds don't help you can practice Kegal exercises or go for an hour long test which measures your bladder capacity and they can look inside to see if there are any irritated 'things' in your bladder. I 'm going for that test right after Memorial Day and will probably elect to have a 'sling' put in surgically since I've had 2 kids and she noticed my uterus dropped a bit. But definitely purpose it with your gyno or a urologist who is familiar with female anatomy.
Good luck! |
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Pandora
Cat Lady
Joined: Jun 18, 2005
Age: 47
Posts: 4684
Location: Townsville
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| Posted: Tue Jun 10, 2008 9:19 am Post subject: |
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For the past few years, I've had trouble with leaking if I laugh or sneeze suddenly or have a panic attack. It seems to be related to having had children. I've learned to do some exercises but think I might still need to have a small operation later on.
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history_of_psychiatry
Velociraptor
Joined: Dec 23, 2006
Age: 24
Posts: 425
Location: Central Florida
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| Posted: Tue Jun 10, 2008 5:03 pm Post subject: |
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Are there certain things that trigger wetting incidents??
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Fidget
Supporting Member
Joined: Jun 30, 2008
Age: 18
Posts: 276
Location: IL, USA
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| Posted: Mon Jul 28, 2008 2:01 am Post subject: |
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| I don't think it has anything to do with AS, but that is pretty horrible... |
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strapshoechris
Raven
Joined: Dec 16, 2005
Posts: 116
Location: Rocky Mountains
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| Posted: Mon Jul 28, 2008 10:27 am Post subject: |
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| My mother used to brag to pepole frequently that she had me compleatly toilet trained before I turned a year old. Ten years ago I had emergency gall bladder surgery and my situation did a "180". For one thing, the loss of this organ seemed to change the way my system processed the foods I eat. I now have rapid onset of urge to deficate and have been using pull up diapers when I'm out of the house for extended periods where I may not be close to a bathroom. This never really happened pryor to losing my gall bladder. I've met others that definatly don't have AS that experienced similar problems after their procedures. As for urinary issues, I was fitted with a Foley (indwelling) catheter for a very long time following that surgery. I'm not sure if it traumatised my uretha or sphincter, but now I have the "dribbles", even when I'm dead certain I've finished voiding. Fortunatly the residual volume is small enough that I can wear a condom to catch it, so that's how I've remedied that part of the situation. Even though I often wear pull ups for the other reason, I still don't like dribbling urine in them. I can get condoms free and carry a few in my pocket and just roll on a fresh one each time I urinate. Obviously this won't work if you're a female, but there are still appliance options and a medical supply place might have some good suggestions. However getting something "invasive" like an indwelling catheter might require a prescription. Males can get an external roll on catheter and bag that fits under pants without doctor's orders though, at least in the U.S. I buy these, tape them on and wear them on roadtrips or sometimes when I go out to the bar to "tie one on", as they can hold several hundred C.C's of urine, unlike the condom which will "pop" if it gets too full. I usually buy these appliances in bulk from eBay sellers. |
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strapshoechris
Raven
Joined: Dec 16, 2005
Posts: 116
Location: Rocky Mountains
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