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natesmom
Sea Gull
Joined: May 16, 2008
Posts: 243
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 Posted: Tue Jun 10, 2008 3:43 pm Post subject: Fuming mad!!!! |
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I am so mad at my doctor!!
I am a school psych, he is a generalist for MEDICAL issues. I got my child into an OT evaluation for sensory issues which he has and the doctor refused to write a referral. The appt is tomorrow. I don't even know why a referral is needed because it's not required for my insurance - grr... I am not an OT but have a better idea about sensory issues as it relates to the school setting than he does because I live it. I have meetings all the time. I am good friends with the OT who talks with me about it every week.
He said, you need a dx first. I want you to see the developmental pediatrician first and see if they say you need an OT sensory evaluation. First off, I told him that he had the dx and even gave him the paperwork last time I saw him. I wanted to have it reconfirmed. Also, I KNOW my son has sensory issues. I work in a school as a psychologist. I work very closely with an OT who told me that my son has sensory issues. Good grief, wanna be god.
Doc said, "I don't see what the hurry is?" I then told him that OT is part of the whole picture. Nate is starting kindergarten in two months. We need a full sensory OT evaluation to give the teacher ideas on what exactly his sensory issues are and why he may do what he does (i.e., beeping if it gets too loud as he already does). I explained that if we wait until after kindergarten starts, it may already be too late. I have personally worked with many kindergartners who struggle because we are doing a trail by error approach because we don't have that essential information. Why not be proactive instead of reactive?? I also explained there are different specialties. The developmental pediatrician doesn't really do testing that is what the neuropsych and clinical psych does. They don't do OT testing, that is what the OT does. They all have their own role.
I wanted to say "Doc, your role is to stick with the general medical stuff and not try to act like you know everything." He said my son has ADHD after a few minutes and knows NOTHING about sensory issues or kids on the Autism spectrum. No two kids are alike. That is with NT's and kids on the spectrum,
HE THEN said, "Even if he gets the evaluation, the OT will dx him because they want the money!"
I told him, "I KNOW my son has sensory issues such as thinking that 90 degree bath water is too hot (and I named other sensory issues). I can't stand this man.
Doc said that a confirmed dx is essential prior to an OT eval. WTH. Whatever, doc. Stick with your profession please. How many times do I have to say that it doesn't matter what the hell the dx is. The OT evaluation will touch on the actual sensory issues and how to deal with them. Also, he does have a dx. Just accept it. You are not a professional in AUTISM. Two highly regarded professionals in that field dx him you FOOL.
Yes, I am getting him into testing but that will be in at least six months from now. That is too late.
I want people to stick to what they know! So pissed, so very pissed.
At the end of our discussion, he said "Fine, have to OT send me paperwork and I will sign." He is leaving for vacation this afternoon and the OT is NOT answering her phone and my appt is tomorrow.
Thanks for letting me vent. |
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KimJ
Legend in my own mind
Joined: Jun 11, 2006
Posts: 2538
Location: Arizona
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| Posted: Tue Jun 10, 2008 4:14 pm Post subject: |
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I guess this doc doesn't realize you can have sensory integration disorder without being autistic. It's a distinct condition.
But I'm sure you know that.  |
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2ukenkerl
Phoenix
Joined: Jul 20, 2007
Posts: 4883
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| Posted: Tue Jun 10, 2008 4:40 pm Post subject: |
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There is only one person ON THE ENTIRE PLANET that can tell anyone if nate has a problem with that. That person is ******NATE*******! The whole idea of a diagnosis is to make it more objective and have a record for everyone. If NATE seriously feels there is a problem, HIS word should be considered LAW! Give me a break!
Oh well, this just proves that being a doctor doesn't mean you are very bright. |
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krex
Phoenix
Joined: Jun 21, 2006
Age: 45
Posts: 4995
Location: Village of the Damned
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| Posted: Tue Jun 10, 2008 4:42 pm Post subject: |
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Arrrggg....*ripping hair out by the roots in frustration.
Can you switch DRs sooooon ? I wouldn't trust this guy with my health issues as he appears to lack the basic fundamentals in logical thought. I know that wont resolve the immediate issue but it might give you a sense of relief not to have to deal with this particular power monger. Perhaps ask the OT if she knows of any good GP's ?
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aurea
Deinonychus
Joined: Sep 22, 2007
Posts: 381
Location: melb,Australia
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| Posted: Tue Jun 10, 2008 4:53 pm Post subject: |
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It's probably to late now, but can you get into to see another doc for the referal?
When I had to go see my GP for another medical issue, I asked him if he had recieved the offical letter from my sons autism team with his offical AS dx. Yes he had. I wanted to ask a question about AS, so I said to him "what do you know about aspergers?' at least he was honest and said 'nothing, you will have to teach me".
The power goes to some of their heads. He's your child, it's your money, they have a duty to perform, to serve you and your health needs.
Vent away, I would have felt like smaking him one.  |
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natesmom
Sea Gull
Joined: May 16, 2008
Posts: 243
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| Posted: Tue Jun 10, 2008 5:02 pm Post subject: |
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| 2ukenkerl wrote: | There is only one person ON THE ENTIRE PLANET that can tell anyone if nate has a problem with that. That person is ******NATE*******! The whole idea of a diagnosis is to make it more objective and have a record for everyone. If NATE seriously feels there is a problem, HIS word should be considered LAW! Give me a break!
Oh well, this just proves that being a doctor doesn't mean you are very bright. |
Nate has told me plenty of times. SO MANY TIMES
That is why I am just so ticked off. He maybe only 4 years old but he can verbalize what bothers him.
I am changing doctors ASAP. I am looking for one today.
This doctor has shown me many times that he lacks common sense and is not very bright. Having a not-so-bright doctor is one thing, but having a not-so-bright doctor who is also ARROGANT is far worse!!
All I want is to help Nate ease into Kindergarten. I want him to be happy. I actually told the doc "I am trying to do all I can to make sure his transition to kindergarten is a positive one, and I feel like you are preventing that from happening by refusing to refer!"
I will ask the OT tomorrow, if she even sees me without the doctor's information. When he finally agreed to do a referral the doctor said, "I don't send referrals; professionals fax me a form and I fill it out!" Good grief. All the OT wants is "Occupational Therapy Evaluation" on a prescription form along with the dx. I told him that on the phone. I said, it's fine if you don't want to write the dx. I just want the referral so we can be proactive. I just want this evaluation to help him teacher next year!!
I have seen WAY TOO MANY KIDS, especially kids who are the spectrum experience horrible kindergarten years because we lack information! I am trying to gather this information ahead of time. I can honestly say I have never been so pissed off. I am a psych and I am having this difficulty. I can't imagine what it's like if you are a parent and don't have the "title" behind your name or if you have it and the doctor's don't believe you. What the heck is it with this whole god complex people exhibit.
At my job, I can honestly say that I don't do that. I don't know all the answers. that is probably why I have a very good relationship with all the parents and kids I work with. I like "difficult parents" because they are only difficult (usually) because they want what's best for their child. This whole experience will help me relate with them that much more. I listen to kids.
I will have a sit down discussion with Nate and ask him some of those sensory questions. It will actually be interesting to see what he says. I am filling out a checklist right now. |
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natesmom
Sea Gull
Joined: May 16, 2008
Posts: 243
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| Posted: Tue Jun 10, 2008 5:15 pm Post subject: |
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Talked with OT.
She did tell me a few doctors that were good and will give me the information tomorrow IF the doctor fills out the referral information in time.
It is state law.
I told her how pissed I was and she said, "Oh my, that doctor sounds horrible!"
She sounds really good. My doctor better not be gone already or I will be very pissed off. |
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natesmom
Sea Gull
Joined: May 16, 2008
Posts: 243
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| Posted: Wed Jun 11, 2008 10:52 am Post subject: |
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OT told me that she would call or email me to tell me whether or not she got the referral.
Nothing
It is 15 minutes prior to the appt and she has done nothing.
She works out of her home. How hard is it to call or email me?? I emailed her and called her last night at 8:00 pm because she had already told me she would. I left her a message asking her to call me to let me know if we can come in.
Nothing
I am so sick of people like this. SHe sounded great on the phone but what the hell? What is it with this incompetence?
I have a feeling that she will either call or email me and ask, "Where are you?" She will probably also say that she said she would email me if she didn't get the referral information. That would be so bogus if she says that. I am not driving out there (20 minutes away) with gas prices the way they are to find out we can't see her.
Oh well
There are other OT's, other docs,
I am truly starting to hate this place
This is so stereotypical but I have noticed a lot of people in Boise ID are like that. It drives me nuts. I have lived in WA DC, Arizona, Ohio and Washington State and this place is the WORST when it comes to people returning phone calls and doing what they say they will do. Sure, you get that wherever you go but it truly is worse here. |
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schoolpsycherin
Yellow-bellied Woodpecker
Joined: Apr 13, 2008
Posts: 57
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| Posted: Wed Jun 11, 2008 11:16 am Post subject: |
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I'm sorry, that would really stink on so many levels. First off, the general issue of the inconvenience and having to go through hoops to get services for your son. Second of all, just his disrespect of you as a professional. Sorry to hear that, but I hope it all works out in the end. He said what's the hurry??? You would think that he would be aware that there is a hurry and early intervention is best!
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Erin
www.schoolpsychologistfiles.com |
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natesmom
Sea Gull
Joined: May 16, 2008
Posts: 243
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| Posted: Wed Jun 11, 2008 1:49 pm Post subject: |
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| schoolpsycherin wrote: | | I'm sorry, that would really stink on so many levels. First off, the general issue of the inconvenience and having to go through hoops to get services for your son. Second of all, just his disrespect of you as a professional. Sorry to hear that, but I hope it all works out in the end. He said what's the hurry??? You would think that he would be aware that there is a hurry and early intervention is best! |
Thanks Erin,
I feel completely disrespected. I am actually in the process of looking up his credentials and see if he has any complaints against him. There is something about him that just seems a little off. I wonder if he is a true physician? I wonder if he graduated at the bottom of his class? Is there a way I can find out if he has any complaints against him in other states. I know he graduated from Medical School in Hawaii and then he lived somewhere else before coming here. I really want to find out.
I spoke with the OT today. She called me on my cell phone last night and I didn't hear it ring. She couldn't email me because her email is down. Just a few unfortunate circumstances. So, it's still good. She will get us in probably next week. She stated that she had received the referral from Nate's FORMER "doctor" but the referral seemed strange. The doctor wrote under the dx portion "sensory processing issues" ONLY per parent request. He actually wrote the sensory processing issue in quotation as if he didn't believe Nathan had any problems. I just don't get it.
The OT told me that she has never had a referral like that before and I should RUN in the opposite direction and find someone else. He obviously has issues. The OT gave me a few good numbers to pediatricians that believe in sensory processing issues, how you can have that and not have ADHD, and also how individuals on the spectrum don't necessarily present in the same way. I do believe that all individuals with ADHD and Autism have at least some sensory processing issues.
The OT also gave me a number to a developmental psychiatrist who specializes in Autism and Sensory Processing Disorders.
We have an appt on the 24th with a Clinical Psych who specializes in Autism. He will be doing the testing. I really think I will like him because he offers social skills training. He has a game room and puts a few children together who are at about the same level and have similar issues and they work on areas of need together.
So, we are on the right track. |
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2ukenkerl
Phoenix
Joined: Jul 20, 2007
Posts: 4883
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| Posted: Wed Jun 11, 2008 5:44 pm Post subject: |
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| natesmom wrote: | We have an appt on the 24th with a Clinical Psych who specializes in Autism. He will be doing the testing. I really think I will like him because he offers social skills training. He has a game room and puts a few children together who are at about the same level and have similar issues and they work on areas of need together.
So, we are on the right track. |
THAT SOUNDS ****NEAT****! |
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