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ImMelody
Phoenix
Joined: Jun 10, 2008
Posts: 779
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 Posted: Thu Jun 12, 2008 5:36 pm Post subject: School is Infuriating!!! |
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My 3 yr old AS son who has Sensory Integration Disorder was sent home with his so-called "OT evaluation." And reading it, it doesn't even sound like my son in the slightest.
Somehow despite having NO bilateral skills, they state that he was able to lace shoes, string beads and twist open a jar. Despite grasping EVERYTHING in a fist, it says that he used a pincer grip to pick up small objects and use "with some assistance" maintained a "tripod for a short time." Now someone please correct me if I'm wrong.. But I was under the impression that you are NOT supposed to assist with an evaluation. That an evaluation was supposed to be of the child's skills.
Then came the sensory profile. Keep in mind that my son has a formal diagnosis in sensory issues.
"In the sections of Registration (how sensory information is passively taken in and interpreted to what degree noticed), Seeking (behaviors actively seeking sensory input), Sensitivity (how sensory information is taken in and to what degree affects behavior), and Avoiding (behaviors actively avoiding sensory input), XXXXX's score reflected a typical performance."
Now, I would love for anything if my son didn't have these issues. Heck I would love to not have some of these issues. But that isn't the case. He's constantly taking in sensory information. He constantly needs to be moving. He needs to be running and jumping, pushing and shoving, spinning around or going fast. I wish he weren't sensory avoiding, then maybe he could touch a wider range of foods to eat. But this is not the case.
So now I'm frustrated and feel overwhelmed. I have to call the school tomorrow and call an emergency IEP meeting. If they refuse, I'm going to have to go to due process (this was the last in a loooooong string of things with both my children). And on top of it, I'm not even going to be able to have my advocate around as he is sick in the hospital. I feel really bad for he and his family, but I'm definitely scared and am going to have to do this all by myself. |
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natesmom
Sea Gull
Joined: May 16, 2008
Posts: 243
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| Posted: Thu Jun 12, 2008 7:37 pm Post subject: |
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| get a second opinion! Don't even show the results to the person doing the other evaluation. |
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ImMelody
Phoenix
Joined: Jun 10, 2008
Posts: 779
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| Posted: Thu Jun 12, 2008 7:41 pm Post subject: |
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| I already had a second evaluation done about a week and a half before this one was performed. The results are so drastically different that no one can doubt that one must obviously be wrong. |
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MomofTom
Phoenix
Joined: Aug 06, 2006
Posts: 601
Location: Where normalcy and bad puns collide
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| Posted: Thu Jun 12, 2008 8:03 pm Post subject: |
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You can do Mediation before Due Process. I hope the school takes the more relevant info seriously. Considering the lax evaluation that doesn't portray your child correctly, have you checked into the credentials of the people who performed the evaluation?
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Apathy is a dominant gene. Mutate. |
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ImMelody
Phoenix
Joined: Jun 10, 2008
Posts: 779
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| Posted: Thu Jun 12, 2008 8:28 pm Post subject: |
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| She is indeed licensed within my state. I know she does the OT work for both the preschools in district and came back from maternity leave to do this evaluation. I'd like to call an emergency IEP meeting, but have a strong feeling that I'll be blown off since there are only 4 days left of the school year. I have all the info to file both a complaint and due process, so maybe I should just do that. It doesn't help that I'm so overwhelmed. I can never think straight under pressure. |
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schoolpsycherin
Yellow-bellied Woodpecker
Joined: Apr 13, 2008
Posts: 57
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| Posted: Thu Jun 12, 2008 8:30 pm Post subject: |
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Did they recommend dismissal from OT services? If so nothing will happen if you don't sign. If this was an initial eval for services, show the other report you have and if they will not take it, request an IEE (Independent Educational Evaluation) at the cost of the school system.
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Erin
www.schoolpsychologistfiles.com |
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ImMelody
Phoenix
Joined: Jun 10, 2008
Posts: 779
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| Posted: Thu Jun 12, 2008 8:41 pm Post subject: |
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Actually, this was an "after thought" so to speak. They didn't do the evaluation with the initial evaluations for services. I had to keep pushing for them to do it. The problem is, they totally shut everything down for the summer. I already can't talk to the Sp. Ed. supervisor. (Her line has a message stating she won't be in her office the rest of the school year, despite the fact that I know she was at her office yesterday after I called it.) I'm thinking I just need to do due process because it definitely is a long line of not providing services.
First they wouldn't provide 1-on-1 speech services for either of my children (both in the preschool program, but different ages). Now they won't be providing OT. They will not classify either one under the autism label (since they're under 6 and don't have to be). They are segregating the students by not providing typical peers in the classroom. They won't even let my older son do half day services in the self-contained (that's all he's getting anyways) and half day in a typical room. So yeah.. Long long long list. This doesn't even consider their refusal (in writing) to hold a PPT LAST year. |
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jat
Snowy Owl
Joined: Mar 30, 2008
Posts: 152
Location: Pennsylvania
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| Posted: Thu Jun 12, 2008 10:04 pm Post subject: |
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It seems to me that it's premature to be asking for an IEP meeting. You need to have the appropriate evaluations for the team to work from before an IEP meeting can be useful. At this point, you need to request an IEE (independent educational evaluation) as to any and all portions of the evaluation with which you disagree. If it's just the OT, that's all you need to have re-done, but if there are other pieces of the evaluation that need to be re-done, request those as well. The school district is obligated to pay for it or to defend the one they have. If you have not yet shared the evaluation you already had done, it is probably time to do so: if the one you had done was done too recently, portions of theirs might be invalidated by the temporal proximity. Even if not, you need to share it to back up your claim as to the inaccuracy of their evaluation.
I'm assuming that you're in the US, since you're using the term "IEP." If not, none of the legal stuff might apply ... |
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ouinon
chemical reaction
Joined: Jul 11, 2007
Posts: 3478
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| Posted: Fri Jun 13, 2008 3:44 am Post subject: |
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I am once again feeling almost ill with sadness and shock at a thread on the Parents of AS-Children Forum.
What is a three year old child, whose mother describes as having many difficulties, doing going to school?    
The first time my ( AS/PDD ) child tried school, aged almost exactly 3 years old, I could feel it in his body , how he held me like a limpet when I collected him after the first morning, that he was terrified. We didn't take him back in the afternoon. It took him months to get over it.
The second time he tried at five years old, he kept trying for 3 weeks, before his screaming and fighting not to be left there, his reported total silence while in school, etc became too clear even for a parent who rationalises everything, ( me) to ignore.
I can not believe that such young children with developmental difficulties are being sent to school. Keep them at home where they feel safer, where there is less noise and pressure, where there is more one-to-one support, etc.
I cannot believe how many parents on here , with children who are struggling or in difficulty, think that school is the best environment for their child.
Home is, for most children, until at least 7 or 8 years old, the place that children learn best. Their parents, in most cases, are the best people to look after them until they are at least 7.
I have read a few threads on Parent's the last couple of days which have been doing my head in for this reason. What are these children doing in school?
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"Life is pain; anyone who says different is selling something" |
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Pandora
Cat Lady
Joined: Jun 18, 2005
Age: 47
Posts: 4684
Location: Townsville
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| Posted: Fri Jun 13, 2008 6:23 am Post subject: |
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Yes, it must be some kind of daycare.
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jat
Snowy Owl
Joined: Mar 30, 2008
Posts: 152
Location: Pennsylvania
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| Posted: Fri Jun 13, 2008 6:55 am Post subject: |
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ouinon,
You clearly made the best choice for your child. That does not mean it would be the best choice for all children. My children went to "school" from a much younger age, not as "daycare," as Pandora suggests (although that would be a valid reason, if necessary), but because it was the appropriate thing for them at the time. They went for a half day, so they could have some time with other children, and so they could have some regular exposure to other adults. It was a useful and positive thing for them.
My AS child, unlike yours, LOVED school at that time. He had not yet been diagnosed, so we didn't have the diagnosis to scare us off of school. He was a bit quirky, and his teachers loved his odd sense of humor. It was a wonderful transition, for him, into the concept of school, so that when it was time for "regular" school, the basic concepts of teachers, following classroom rules, etc. were familiar and part of his routine. It also gave him his start into socialization with peers. When he first started school, he went only two morning per week. He loved school so much that on the days he didn't go, he cried to go to his classroom. We sometimes had to go to his classroom to say hello on those days, just to calm him down. He would be reassured that he'd be there tomorrow, and then he would be willing to leave.
In addition, in the US, most services (occupational therapy, physical therapy, speech therapy, etc) are provided in the school environment to children above the age of three. Therefore, if a child is going to get those services, the child generally needs to be in a school environment. This doesn't have to be every day, nor does it have to be a full day, but that is where early intervention services are provided for 3-5 year old children. |
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ImMelody
Phoenix
Joined: Jun 10, 2008
Posts: 779
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| Posted: Fri Jun 13, 2008 7:54 am Post subject: |
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Both my 3 and 4 yr old ASD kids absolutely love school. They cry on the days they cannot go to school. Heck, my 4 yr old tries to get on the bus with my 3 yr old to go to school with him for the second time during the day. These are yes, special education preschool classes. I want them to have readiness skills and be prepared by the time they get to kindergarten. We have also gotten very VERY lucky that my oldest actually has a best friend from his preschool class. These are great skills that we can help them build on and from a point that they understand.
This is all besides the point, but I wanted to explain why my children are in pre-k.
I've decided against calling an emergency PPT, despite the fact that it will take until next school year to get anything done. Hopefully we (husband and I) can brainstorm and come up with other ideas of what to do. |
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