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Is autism like deafness?

 
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Gwendolyn
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PostPosted: Thu Jun 12, 2008 4:55 am    Post subject: Is autism like deafness? Reply with quote

I recently read a wonderful (if somewhat out of date) book about the perception of deafness in today's society by writer-neurologist Oliver Sacks, and noticed what I see as parallels between the perception of deaf people and the perception of autists and aspergians.

While being deaf is considered a handicap, many deaf people, mainly those who are fluent in ASL and have been exposed to deaf culture, consider the problem to be not with their hearing but with hearing people's attitude towards them. Sign language is a rich, well developed language, or can be, if a child is exposed to it at the proper time. Children who are, and who find places for themselves in deaf culture, become capable adults, but children who are not exposed to it during the optimum period of language development have trouble developing their minds properly, and often never become native-fluent in either English or ASL. Adults usually prevent children from receiving the proper exposure to sign language because they want to normalize the child, not recognizing that a totally deaf child needs to learn language in a way different than a hearing child.

Deaf people are trying to change societies perception of them, and also to get ASL commonly taught to deaf children, as it is not currently.

What strikes me as similar is the perception of Autism and Asperger's syndrome with the perception of deafness.

Like deafness, autism is a handicap in children, who need special education and therapy, different from the education and learning styles of NTs, but like deaf people, many autists and aspergians say that they would not choose a cure if they had a choice.

What normal adult would not cure a deaf child if they had the choice? And yet (I'm afraid I forgot where I read this) there has been at least one case of a deaf child who, having undergone surgery to give him hearing without his consent, demanded from his parents what right they had to do so.

It is different, of course, for autists. Profoundly deaf people still have a tool for communication, while many severe autists do not. I am in favor of find a cure for total isolation, for overwhelming anxiety, for uncontrollable, life-consuming urges. Just as deaf people who are not exposed to ASL do not learn to communicate well, many autists do not flourish without therapy and coping strategies But just as the deaf experience life in beautiful ways unimaginable to the hearing, from their amazing language, to their differences in perception, and just as they should be accepted as whole human beings-- though different, perhaps from the norm-- so should autists.

Many deaf people say that the only difficulties they encounter in life are from living in a world made for the hearing, but that truth (substituting NT for hearing, of course) is even more poignant for us. While people may misunderstand deaf reality, they still understand what deafness is. But how many NTs understand autism, especially of the high functioning varieties? If I were deaf I could explain my odd speech and my moments of being unable to understand people. Instead people look at me and see an intelligent, lazy, unmotivated woman who is rude and uncouth. My voice is too loud or too soft, and I am continuously asking people to repeat themselves. I say the wrong things, or just stand in the middle of a party pretending I'm not there.

But I don't need to be cured.

Deaf people(as a group) are fighting for their freedom to be seen as a unique culture with a unique language. They are fighting for their rights to be seen as responsible, capable adults. They need provisions because they cannot hear, but that does not mean they should be treated as disabled people. I believe that people with autism need to be given the same chances to live full, meaningful lives as people with autism, not marginalized, or forced to mimic NTs at the loss of our own personalities. It is said that one in 150 people are thought to have autism. The occurrence of profound deafness is one in a thousand. I think that there are enough of us that NTs need to be aware of us.

What do you think?
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Pandora
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PostPosted: Thu Jun 12, 2008 5:11 am    Post subject: Reply with quote

I agree. Perhaps the aspie culture isn't as fully developed yet as the autism culture but there is a similar dilemma about whether to cure or not to cure if either condition is discovered in early childhood. I might add that cochlear implants do not give a person "normal" hearing and that there is currently no cure for autism; only treatments that sometimes help an autistic child become "higher functioning".
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roche12
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PostPosted: Thu Jun 12, 2008 5:38 am    Post subject: Reply with quote

Somehow the normal people decided anyone labeled with a disability of any kind is brain dead.

Blind, deaf, crippled, autistic, downs and others do just fine with a community that supports us, just like the normals do. They havnt figured out that the world is set up for them and that they could adjust to help us too.

What you are talking about is not a cure for autism, it is just a way for low functioning to communicate effectively.
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Postperson
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PostPosted: Thu Jun 12, 2008 8:23 am    Post subject: Reply with quote

Deaf people always notice me, like I'm one of them or something. I wish I was. Autism is like deafness, they recognise us.
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riverotter
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PostPosted: Thu Jun 12, 2008 8:47 am    Post subject: Reply with quote

Are you talking about the book Seeing Voices? I am re-reading that right now, because I skipped all the footnotes the first time- not realizing they comprise about a third of the book and are very interesting (I had thought the little numbers were works cited)! I too see the parallels between Deaf culture and Autistic culture (which is mostly online). For my ASL 1 class, taught by a Deaf woman who also made it a Deaf culture class, we also had to attend Deaf activities and write about them and one thing I emphasized in my papers was the similarities I see between the two cultures- communication styles different from the majority culture, majority culture intent on "changing" what are perceived to be deficits, strengths that are overlooked in order to focus on weaknesses, and interestingly, a much more blunt and honest communication style.
Here in Milwaukee we have an upcoming Deaf Bilingual Conference focusing on early acquisition of sign language for deaf infants. I am really excited about it. I could go on and on about early language acquisition and its importance...
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KingdomOfRats
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PostPosted: Thu Jun 12, 2008 10:08 am    Post subject: Reply with quote

good post Gwendolyn.

am think they're both very similar in many ways.
and one thing am did not used to realise was how many deaf and HIers say they are not disabled,until joining a multi disability forum with lots of users on the deaf/HI spectrum.
a lot of aspies and hf auties are exactly the same and say they are not disabled either.

another big similarity is the strong communities both have-deaf/HIers and autists all looking out for each other.


though there is a user on here [think is SKORAP/SKOREAP?] who isnt HI but also uses ASL,and he said the deaf community ignore him,seems it works for some autists and not others.



Quote:
It is different, of course, for autists. Profoundly deaf people still have a tool for communication, while many severe autists do not.

profoundly autistic auties communicate more common than not,but is not always obvious to those who dont know the autist,behavior is a common way to communicate for moderate,severe and profound autists as well as makaton-or own version of makaton and PECS,and am know of one profoundly autistic man who communicates by playing a board game as well as behavior.


autism uneducated NTs are also just as ignorant of 'severe' and 'profound' autism as they base on the few stereotypes they know.
they expect everyone who comes under either of those to be one set form of profound autism with severe mental retardation,
they dont believe a 'severe' autie can:
*write on a forum
and/or
*use typing for communication
and say its 'just' mild autism,or faking it instead.
what many see as severe autism,they really mean profound autism.
the ignorants also do this to deaf/HIers as well,they assume all are 'deaf' [no hearing] instead of hearing impaired [meaning any level of it].


am know that Gareth/Amy Nelson have been campaigning to get the spectrum treated like deafness [a minority] for years,
though its more so for the very high functioners benefit than any other on the spectrum.
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Brainsforbreakfast
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PostPosted: Thu Jun 12, 2008 10:18 am    Post subject: Reply with quote

I too, have noticed this.
Some of my friends study academic sign language / translator studies, and over here that also includes deaf culture and going to events for deaf people.

I joined a friend of mine to some of these events, and had some intresting conversations.. with a translater ofcoarse Razz

I wonder how life would be being both deaf *and* on the spectrum?
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zghost
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PostPosted: Thu Jun 12, 2008 1:06 pm    Post subject: Reply with quote

Quote:
I wonder how life would be being both deaf *and* on the spectrum?

Well, I'm half deaf (both ears) and have AS. I don't know any sign language. My speach is not affected, so nobody knows I can't hear until I tell them. And nobody knows I have AS, because I don't tell them.

All my problems growing up got blamed on my hearing. No one ever suspected there might be more to it. So I guess if nothing else, deafness is a good disguise.
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PostPosted: Fri Jun 13, 2008 1:28 am    Post subject: Reply with quote

I modeled the concept of neurelitism (see my signature) on audism toward the deaf community. The social model of disability, which looks at disability as an absence of social enablement, developed within both the deaf and autistic communities.
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