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asplanet
Phoenix
Joined: Nov 11, 2007
Posts: 1772
Location: Cyberspace, New Zealand
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velodog
Gold Supporter
Joined: Mar 16, 2008
Posts: 1251
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 Posted: Mon Jun 23, 2008 11:20 pm Post subject: |
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Geeze Alyson, I thought that your Kiwi Government was more understanding of Autism than what we have in the States. Jonathan probably would have been better off going to a minimum security lock up for a minor felony than being DXed as Autistic.
I need to get over my inertia and stop in at AS Planet to say howdy to all you Kiwi folks, I haven't used my account for some time. |
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asplanet
Phoenix
Joined: Nov 11, 2007
Posts: 1772
Location: Cyberspace, New Zealand
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| Posted: Tue Jun 24, 2008 12:20 am Post subject: |
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| velodog wrote: | Geeze Alyson, I thought that your Kiwi Government was more understanding of Autism than what we have in the States. Jonathan probably would have been better off going to a minimum security lock up for a minor felony than being DXed as Autistic.
I need to get over my inertia and stop in at AS Planet to say howdy to all you Kiwi folks, I haven't used my account for some time. |
Hi Velodog
Your so right, coming from London myself some of the attitudes in NZ can be really frustrating, but it is an amazing place to live.
And AsPlanet is still chipping away, may take some time but will get there in the end...
Come say hi, always good to have some extra support, can be a little lonely.. sometimes feel my only link to reality is cyberspace.. except have meet some amazing people since being diagnosed myself last year.. best advice I have had so far, is just makes friends with like minded people, the rest will follow one day!
_________________
"Believe in your self, we are who we are - as it can feel like an endless task trying to be someone else!" Alyson Bradley ... Aspergers Parallel Planet web site - http://asplanet.info/index.php
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Anemone
Phoenix
Joined: Mar 18, 2008
Age: 43
Posts: 659
Location: Vancouver, Canada
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| Posted: Tue Jun 24, 2008 12:29 am Post subject: |
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| That story is horrifying. And I suppose he doesn't have internet access, either. So he can't blog his way to freedom (if he could). At least most of us can go for walks, or go on the internet, to deal with being trapped. |
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LeKiwi
Phoenix
Joined: Nov 27, 2007
Posts: 2505
Location: The murky waters of my mind...
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| Posted: Tue Jun 24, 2008 5:50 pm Post subject: |
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Wow, what a scary story. It's horrendous to think this kind of thing can happen in what is on so many other levels such a progressive country!!
Alyson, I've visited your site but not registered yet. I may be in touch in the next few months though..! 
Some of these quotes are so disturbing...
""Frankly, the Family Court is charged with deciding how to proceed with this process and I think they are probably in a better position to make value judgments on Jonathan's care or otherwise than the people who have brought this story to your attention."
And the parents putting him in leather cuffs? The restraints? The medication? How about trying to work WHY he's having the outbursts in the first place - he seems reasonably communicative, have they bothered asking him?!
His sister sounds amazing though...
"We've been very distressed to be constantly visiting him and supporting him in these environments and to see him deteriorate," says Rachel. "It wasn't fair to rip him out of his home and put him into care like that. He reacted and he's been reacting ever since. He misses his family. This is an autistic person who needs routine and stability and consistent relationships."
She says in the past 10 years the New Zealand system has failed Jonathan miserably from every angle. "The services are just dysfunctional - they don't address his needs. He breaks down so they call in a crisis team. The crisis team says, 'right, we'll stick him in here'. He breaks down again. They say, 'right, let's stick him over here'."
Elizabeth says when Jonathan has a bad day with "an incident", it's traumatic. "I've seen him utterly distressed and there is no one to listen or to care. He generally cries, he wails, he rips his clothes off. I've never seen any human being so distressed as him."
She says she feels powerless to make his life better. "He's been taken completely from us and we've lost our family unity, which was the one thing Jonathan really needed." "
This is just awful...
The family have put forward a care proposal that would involve Jonathan living in his own flat on the family property, assisted by caregivers and with a proper intervention programme to deal with his destructive behaviours and develop his abilities. The idea has been rejected by the Ministry of Health which does not permit families to be contracted to provide full-time residential services for their disabled family members. A year ago, then Minister of Health Pete Hodgson wrote to the family saying: "This is a long-standing policy to manage the potential risk of inappropriate dependency and/or poor quality service."
Rachel, a teacher, is frustrated by being so powerless. "I try to advocate for him, but the way you're treated is just awful. You're not listened to. I visit every week. I've shown I support him. All I want is something better for my brother. I have incredible admiration for Jonathan that he survives in this type of environment."
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We are a fever, we are a fever, we ain't born typical...
New Blog: http://onelittleaspergian.blogspot.com/ |
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KingdomOfRats
Phoenix
Joined: Nov 01, 2005
Age: 24
Posts: 2611
Location: Manchester
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| Posted: Tue Jun 24, 2008 9:05 pm Post subject: |
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| Anemone wrote: | | That story is horrifying. And I suppose he doesn't have internet access, either. So he can't blog his way to freedom (if he could). At least most of us can go for walks, or go on the internet, to deal with being trapped. |
it is standard enough for residential care,Johnathans story is typical,at least here it is.
most in residentials cant go out on own for many different reasons.
but residents are able to leave if risk assesments,guidelines and careplan show that are not at risk,others are not at risk and are able enough to be out on own.
bedroom is best with as less stuff in as possible if have regular meltdowns,challenging behavior etc,as things do get trashed quickly.
the bed can be bolted to the wall as this is what they did to the divan bed am have after broke last one,bolting a bed stops it being trashed or got under,so unless it's Johnathans choice to want only a mattress,they should look at something like this.
it's good that Johnathans story is being brought into the public,but it has been going on everywhere,for a long time,and it isnt just a one off.
most of the homes are not designed for autistics with high complex needs,autistics are often shoved into learning disability services which do not understand autism,so then keep moving the autist about,whilst they completely deteriorate.
they need to sort out residential care completely.
stop relying on too much chemical restraint so that autists are just doped out.
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[LFAutie]
["Even through the darkest days, this fire burns...always"-Killswitch Engage]
.:The residential autist:.
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earthmonkey
Velociraptor
Joined: Jun 06, 2005
Age: 18
Posts: 413
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| Posted: Tue Jun 24, 2008 9:59 pm Post subject: |
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| Quote: | | The family have put forward a care proposal that would involve Jonathan living in his own flat on the family property, assisted by caregivers and with a proper intervention programme to deal with his destructive behaviours and develop his abilities. The idea has been rejected by the Ministry of Health which does not permit families to be contracted to provide full-time residential services for their disabled family members. A year ago, then Minister of Health Pete Hodgson wrote to the family saying: "This is a long-standing policy to manage the potential risk of inappropriate dependency and/or poor quality service." |
This is a key thing that's got to change. There should be more emphasis on giving people more independence. as for "the potential risk of inappropriate dependency and/or poor quality service", the home is not the only place that can happen. I like how his sister pointed out, how is being over-drugged different to being over-restrained?
_________________
"Public transportation is for jerks and lesbians." --Homer Simpson
"why is it bad for me to discuss why I need the lights off above my desk but it is ok for you to tell me you had a camera shoved up your a#$?" --an aspie coming out |
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