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Shidash
Blue Jay
Joined: May 12, 2007
Age: 14
Posts: 80
Location: Maine
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 Posted: Fri Jun 27, 2008 9:01 pm Post subject: Anti Autism Speaks Info and Links Needed! |
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Okay, so here is my situation.
I hate Autism Speaks, but for some reason my parents and the people that work with me on different things love it. I need some anti Autism Speaks info with links and such to back it up if possible... I would refer them to WP, but they don't think forums are credible sources and I want to keep what I do on here somewhat between me and the members here. I will email everyone these links and at the very least I can at least get them to see something from my point of view. It drives me crazy! My parents really support Autism Speaks and they even get things like Autism Speaks pretzels and golf balls! Then tell me I am a liar when I say what I know is bad about it... this has gotten way out of hand.
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Last edited by Shidash on Sat Jun 28, 2008 1:01 pm; edited 1 time in total |
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Sir_Beefy
Snowy Owl
Joined: Jun 10, 2008
Age: 20
Posts: 126
Location: Middle of Nowhere, Maryland
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| Posted: Fri Jun 27, 2008 9:06 pm Post subject: |
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um, there aren't any autistic people involved in Autism Speaks. So there you have it.
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The_Cucumber
Phoenix
Joined: May 05, 2007
Posts: 524
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| Posted: Fri Jun 27, 2008 9:16 pm Post subject: |
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| Sir_Beefy wrote: | | um, there aren't any autistic people involved in Autism Speaks. So there you have it. |
Correct. However I am not sure where it is formally reported. But I've never seen it disputed. I suppose you could just get your parents to ask Autism speaks directly (or do it yourself).
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The improbable goal: Fear nothing, hate nothing, and let nothing anger you. |
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stochastic
Blue Jay
Joined: Jun 11, 2008
Posts: 85
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| Posted: Fri Jun 27, 2008 9:24 pm Post subject: |
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Rong Planet? 
I would show them the articles about how they bully autistic kids.
also they tend to have a cure oriented viewpoint, like we are diseased.
They claim to speak for autistics but they simply don't, the autistic communities disagree with them.
They generally do not empower the ASD communities. |
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Jayman
Sea Gull
Joined: May 26, 2008
Posts: 200
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| Posted: Sat Jun 28, 2008 1:20 am Post subject: |
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I hate Autism Speaks to. Here you go:
http://www.ntspeaks.com/
http://www.autism-hub.co.uk/autism-speaks-dont-speak-for-me/index.php
http://www.wrongplanet.net/article371.html
You can just tell them that they fund research towards eugenics. Which is of course the termination of babies in the womb after a test found that he/she has Autism or Asperger's Syndrome. Their attitude is like; "We shouldn't let autistic people live. Einstein should not have lived or Newton. We are dumb-ass corrupt lobbyists that don't know squat about autism. We just thought it would be profitable. After all who cares about those people because they are just freaks." You see? |
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sinsboldly
Free Range Aspie
Joined: Nov 22, 2006
Age: 57
Posts: 8059
Location: Oregon, USA
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| Posted: Sat Jun 28, 2008 1:43 am Post subject: |
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there is a test that determines Asperger's autism that they can do in the womb?
if you can do it with a blood test, why do we have to go get evaluated once we are OUT of the womb?
please post the link where they have developed the test for the Autism gene, please.
Merle
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I freed thousands of slaves; I could have freed more if they knew they were slaves.
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Orwell
Outer Party Member
Joined: Aug 09, 2007
Age: 19
Posts: 4240
Location: Room 101
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| Posted: Sat Jun 28, 2008 1:48 am Post subject: |
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| sinsboldly wrote: | there is a test that determines Asperger's autism that they can do in the womb?
if you can do it with a blood test, why do we have to go get evaluated once we are OUT of the womb?
please post the link where they have developed the test for the Autism gene, please.
Merle |
It's not a reality yet, but it's what they're working toward. The same thing happened with Down's Syndrome: they found a genetic marker, and subsequently initiated genocide ops against Down's. Autism Speaks seeks to do the same with autism.
You could point out that they don't spend any money on support or actually helping autistics (someone recently posted government accounting of their budget for the past couple years). They spend money on: paying themselves, "research" (ie search for a eugenic cure, or else funding crap like chelation), fundraising, and "awareness" (which mostly consists of them painting a negative picture of autism, saying we need to be cured, and asking people to give them money).
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Orwell
Outer Party Member
Joined: Aug 09, 2007
Age: 19
Posts: 4240
Location: Room 101
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| Posted: Sat Jun 28, 2008 1:52 am Post subject: |
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OK, here it is. http://www.wrongplanet.net/postt69848.html This thread has links to Autism Speaks financial reports. You want dirt on someone, you look for their bank statements first. 
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jat
Snowy Owl
Joined: Mar 30, 2008
Posts: 151
Location: Pennsylvania
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| Posted: Sat Jun 28, 2008 10:30 am Post subject: |
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| Right now, we have a situation in Pennsylvania that underscores why so many people dislike Autism Speaks. HB 1150 was written and passed the House, to guarantee that insurance providers would cover autism related services, up to $36,000/year for up to five (or seven? - I forget) years. At this point, insurance companies can totally refuse to cover any autism-related services (speech therapy, occupational therapy, physical therapy, etc.). The bill was stuck in committee in the Senate. It was finally voted out of committee, with substantial, BAD changes. Many organizations have been working very hard on this legislation and this last move, orchestrated by Senator Don White, was very upsetting. Autism Speaks is encouraging everyone to THANK Don White for moving the bill out of committee (he's the one who was keeping it in committee and refusing phone calls from any but his own constituents) and to support the gutted bill! All the other people who have worked so hard on this legislation are trying to get the bill changed back, or voted down. The bill, as changed, will hurt kids and families in Pennsylvania. The changes were those that were demanded by the insurance lobbies. Autism Speaks doesn't care about what the bill looks like, or what it does to Pennsylvanians - they just want to check off another "win" in their score sheet for their PR about national statistics on what "they" have accomplished. We'll have to live with it. |
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Shidash
Blue Jay
Joined: May 12, 2007
Age: 14
Posts: 80
Location: Maine
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| Posted: Sat Jun 28, 2008 1:02 pm Post subject: |
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Thanks guys  . RP was a typo, thanks for catching it, corrected now.
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Featherways
Snowy Owl
Joined: Nov 06, 2005
Posts: 128
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| Posted: Sat Jun 28, 2008 5:19 pm Post subject: |
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Well, I've tried to engage people on Autism Speaks in reasonable and polite debate about cure, and had some very scary responses - some shouting at me, indicating I had no right to an opinion, that I didn't have a form of autism as it was Asperger syndrome and that's different, etc, and comparing my life experiences of living day to day with AS with someone being mildly annoyed at ordinary things. They couldn't see how the two could be different, it seems. So I had to re-explain, which seemed to get the point across a little better, but you have to wonder how many people on there have any idea at all what the world is like for us if they think it's the same as being mildly annoyed over something ordinary and us allegedly just expecting everyone else to do hard work adapting to us because we're too lazy to do it ourselves (!!). Not everyone on there was like this, but it was a fascinating experience.
And all that happened in the space of a very few posts over one day.
I'm not having another go. |
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beau99
B.S. Detector
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Joined: Nov 06, 2007
Age: 22
Posts: 1308
Location: A cruel H*llhole called Earth.
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| Posted: Sun Jun 29, 2008 2:46 am Post subject: |
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| Featherways wrote: | Well, I've tried to engage people on Autism Speaks in reasonable and polite debate about cure, and had some very scary responses - some shouting at me, indicating I had no right to an opinion, that I didn't have a form of autism as it was Asperger syndrome and that's different, etc, and comparing my life experiences of living day to day with AS with someone being mildly annoyed at ordinary things. They couldn't see how the two could be different, it seems. So I had to re-explain, which seemed to get the point across a little better, but you have to wonder how many people on there have any idea at all what the world is like for us if they think it's the same as being mildly annoyed over something ordinary and us allegedly just expecting everyone else to do hard work adapting to us because we're too lazy to do it ourselves (!!). Not everyone on there was like this, but it was a fascinating experience.
And all that happened in the space of a very few posts over one day.
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Yeah, that's pretty much what happens there each day.
I've actually made a couple friends over there, but otherwise, I'm surprised I haven't gone crazy yet.
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My site: Thoughts of an Autistic (updated May 20, 2008)
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KingdomOfRats
Phoenix
Joined: Nov 01, 2005
Age: 24
Posts: 2675
Location: Manchester
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| Posted: Sun Jun 29, 2008 1:56 pm Post subject: |
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| Featherways wrote: | Well, I've tried to engage people on Autism Speaks in reasonable and polite debate about cure, and had some very scary responses - some shouting at me, indicating I had no right to an opinion, that I didn't have a form of autism as it was Asperger syndrome and that's different, etc, and comparing my life experiences of living day to day with AS with someone being mildly annoyed at ordinary things. They couldn't see how the two could be different, it seems. So I had to re-explain, which seemed to get the point across a little better, but you have to wonder how many people on there have any idea at all what the world is like for us if they think it's the same as being mildly annoyed over something ordinary and us allegedly just expecting everyone else to do hard work adapting to us because we're too lazy to do it ourselves (!!). Not everyone on there was like this, but it was a fascinating experience.
And all that happened in the space of a very few posts over one day.
I'm not having another go. |
it's because many only have young children with a form of autism,and they base their view of autism on their child.
so if are doing something that their child cannot do,then do not have any form of autism because their child cant do it.
if are speech impaired/non verbal and do not have the username 'droopy',are often automatically classed as a fraud there as they say if are unable/have difficulty with speech/language then are not able to communicate on forums/through text.
they really have no idea of what autism in any form is like apart from for their own children/.
Am found it a good forum for the lf/autie end of the spectrum especially as some know a lot more about the adaptions and support am get/need than WP,and the good/non ignorant users of AS dont automatically class all autie members under frauds and all aspies under non autistic,but it's usually the ignorant ones who are the loudest and their hate campaigns can be too tiring to bother with.
they started one against all users of WP,because of the silly WP users who joined AS to rant about them classing all autism as being on the more severe sides,whilst they judged it all as being aspergers.
before that,they had one [and it still goes on and on...] against Amanda Baggs,another against Temple Grandin...
it is one forum to avoid if are not one for arguing,and seeing accusations everywhere.
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["Even through the darkest days, this fire burns...always"-Killswitch Engage]
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makuranososhi
Purple Monkey Dishwasher
Joined: May 13, 2008
Posts: 2253
Location: Arizona
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| Posted: Mon Jun 30, 2008 5:29 am Post subject: |
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^ Good response, KOR. I think you hit it on the head right off the bat - they only understand it through their children, they do not as an individual.
M.
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Why choose a lesser evil? Vote Cthulhu 2008! |
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roguetech
Deinonychus
Joined: Feb 14, 2008
Age: 35
Posts: 350
Location: Climax
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| Posted: Tue Jul 01, 2008 4:43 pm Post subject: |
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http://www.ageofautism.com/2008/01/by-katie-wright.html
Autism Speaks' founders' daughter speaks against them
http://www.autismvox.com/katie-wright-does-not-speak-for-autism-speaks/
Founders stating their daughter is not a spokesperson for Autism Speaks. Even though they founded Autism Speaks becuase of their grandchild, they publicly shun their daughter (and their grandson's mother)
http://www.walknowforautism.org/site/c.iuIRLcMUJtE/b.3895105/
Waiver for a charity walk, requiring rather broad terms (including rights to use photographs taken before and after without knowledge, consent, or compensation).
http://www.autismspeaks.org/whatisit/facts.php
Many misleading and deceptive "facts". For instance, 1 in 150 children is diagnosed with autism, and 1 in 94 boys is on the autism spectrum. The 1 in 150 figure (which is for "on the spectrum", assumes an equal incedence between boys and girls.
"There is no medical detection or cure for autism", and yet with no method of detection, they know how many people have it.
Only $130 million in private funding for diabetes, and $15 million for Autism... Should be easy to disprove those figures.
For cure related focus, see the "Combating Autism Act". Hell, the name gives you a clue. Comabt me, will you?!? Heh.
Google is thy (evil corporate) friend. |
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