Hollie
Emu Egg
Joined: Jan 20, 2006
Posts: 8
Location: Missouri
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 Posted: Sun Jan 22, 2006 7:16 pm Post subject: What about seizure's? |
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[/i]My son began having seizures just before his 2nd birthday. He was checked thoroughly for epilepsy and such. He has had several EEG's, MRI's etc and they have never found a reason for the seizures. He has actually been seizure free for over a year now and is on no meds for that or anything else. I've wondered since he was diagnosed with AS if the seizure problem that occured could have been part of the AS. Does anyone know if seizure's play a part? And is there a possibility they may return?
They did use meds to treat the seizures for about a year but I couldn't stand putting drugs into him when I didn't even know why he was having to take it. The last thing they put him on was depakote. It made him so violent!! When I told the neurologist of the violence he displayed both home and in early childhood education, they told me that wasn't possible. I demanded they tell me how to safely ween him off the drug and I wanted no more meds for him unless I KNEW he needed them. I believe I made the right choice.
He was also diagnosed with encopresis. I have learned since he was diagnosed with AS that AS often goes hand in hand with some GI issues. For any who don't know what encopresis is, basically, he couldn't feel it when he needed to have a bowel movement. They tried meds for that too with no success. I removed him from those meds as well and just worked very hard with him on a one on one basis. I am proud to report that as of a couple months ago, he has completely concurred that obstacle and has no issues with it anymore.
I have so much more to say, but will wait for another time to post. If anyone has any knowledge to share about the seizure subject, I'd be grateful to hear from you.
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MsTriste
On the Spectrum
Joined: Dec 08, 2005
Age: 49
Posts: 3552
Location: Not here
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| Posted: Sun Jan 22, 2006 9:09 pm Post subject: |
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I would assume that you have spoken to your son's doctor about the seizures and whether or not they will recur.
Your question is specifically about seizures and AS. I have never come across anything in my reading that would indicate a connection. I think in your son's case it's probably a coincidence. |
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kevv729
Shai-Hulud
Joined: Sep 23, 2005
Age: 50
Posts: 2882
Location: SOUTH DAKOTA
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| Posted: Sun Jan 22, 2006 10:43 pm Post subject: |
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Is Your son still having seizures or not?
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Come on My children lets All get Along Okay.
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Hollie
Emu Egg
Joined: Jan 20, 2006
Posts: 8
Location: Missouri
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| Posted: Sun Jan 22, 2006 11:44 pm Post subject: |
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| kevv729 wrote: | | Is Your son still having seizures or not? |
I'm sorry, I get a little long winded and confusing sometimes. He is seizure free right now and has been for a little over a year. Also has been off meds for seizures for about a year.
He did have a spell recently that his pediatrician says was a seizure and his neurologist says was not a seizure. He said he felt sick to his stomach, then his pupils dilated (spelling) and he lost his sight, started yelling "I can't see, I can't see" then passed out and fell backwards. Became concious very quickly and was tired and just laid in bed for about an hour after that. The especially strange thing about that is that his older sister (12) had the very same spell the first time in May of 2005. She had no more for about 6 months and now has them almost daily. Doctors have not determined the cause as of yet. We did discover she has a heart defect but they say it has nothing to do with the spells and my son had an ECHO and does not have the same heart defect. This is all so confusing to me. I have so many questions and so few answers! Even the dr's can't figure out what's going on with either of them.
I'm doing this all wrong. I'm writing the story in pieces and probably confusing you all as much as I'm already confused. |
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Hollie
Emu Egg
Joined: Jan 20, 2006
Posts: 8
Location: Missouri
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| Posted: Sun Jan 22, 2006 11:47 pm Post subject: |
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| aylissa wrote: | I would assume that you have spoken to your son's doctor about the seizures and whether or not they will recur.
Your question is specifically about seizures and AS. I have never come across anything in my reading that would indicate a connection. I think in your son's case it's probably a coincidence. |
I have spoken with the neurologist and he says they probably will come back but couldn't say for sure. This was quite some time before the diagnoses of AS so I wondered about any connection. I hadn't come across anything connecting them either but wondered if others had. I appreciate your help. |
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MsTriste
On the Spectrum
Joined: Dec 08, 2005
Age: 49
Posts: 3552
Location: Not here
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| Posted: Mon Jan 23, 2006 1:18 am Post subject: |
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Well this is a coincidence. I was doing some reading on Wikipedia.org, and discovered the following comorbid conditions (i.e conditions that can occur with AS) and seizures ARE on the list. My apologies for misinforming you.
Comorbid conditions
* 1.1 Bowel disease
* 1.2 Depression and anxiety disorders
* 1.3 Fragile X syndrome
* 1.4 Hyperactivity and attention abnormalities
* 1.5 Mental retardation
* 1.6 Neuroinflammation and immune disorders
* 1.7 Nonverbal learning disorder
* 1.8 Obsessive-compulsive disorder
* 1.9 Seizures
* 1.10 Sensory problems
* 1.11 Tuberous sclerosis
http://en.wikipedia.org/wiki/Conditions_comorbid_to_autism_spectrum_disorders
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ster
Phoenix
Joined: Sep 24, 2005
Posts: 2727
Location: new england
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| Posted: Mon Jan 23, 2006 7:21 am Post subject: |
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| my hubby (parts), had seizures when he was little and still does have them periodically.....he, too, was tested for epilepsy, and had EEGs....he wouldn't sit still because the machine kept making noises...................we still have no answers |
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Hollie
Emu Egg
Joined: Jan 20, 2006
Posts: 8
Location: Missouri
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| Posted: Mon Jan 23, 2006 8:13 am Post subject: |
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| ster wrote: | | my hubby (parts), had seizures when he was little and still does have them periodically.....he, too, was tested for epilepsy, and had EEGs....he wouldn't sit still because the machine kept making noises...................we still have no answers |
Yeah, when Kyle had his MRI they had to sedate him. He was only 3 and there was no way he would have been able to stand that noise. He is extremely sensetive to sound. The sleep deprived EEG we had to do twice because he wouldn't relax and go to sleep even after being up all night and....well.........sleep deprived. They were able to see seizure activity of his brain then. He had a 12 hour EEG this past September and they did not see any seizure activity. |
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Hollie
Emu Egg
Joined: Jan 20, 2006
Posts: 8
Location: Missouri
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| Posted: Mon Jan 23, 2006 8:16 am Post subject: |
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| aylissa wrote: | Well this is a coincidence. I was doing some reading on Wikipedia.org, and discovered the following comorbid conditions (i.e conditions that can occur with AS) and seizures ARE on the list. My apologies for misinforming you.
Comorbid conditions
* 1.1 Bowel disease
* 1.2 Depression and anxiety disorders
* 1.3 Fragile X syndrome
* 1.4 Hyperactivity and attention abnormalities
* 1.5 Mental retardation
* 1.6 Neuroinflammation and immune disorders
* 1.7 Nonverbal learning disorder
* 1.8 Obsessive-compulsive disorder
* 1.9 Seizures
* 1.10 Sensory problems
* 1.11 Tuberous sclerosis
http://en.wikipedia.org/wiki/Conditions_comorbid_to_autism_spectrum_disorders
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Please don't appologize. You can't give info you don't have. Thanks so much for providing that link. It may help to answer some of my questions. |
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Jetgirl
Hummingbird
Joined: Jan 20, 2006
Posts: 18
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| Posted: Mon Jan 23, 2006 9:10 am Post subject: |
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Hi Hollie,
I think you might want to look up some info on Tics. Seizures have been compared to tics inside the head. There are a number of drugs to contol seizures. I know this because Topomax is used for migraines and is seizure control. I have AS and there is a history of Tourette's in the family. I think my tics are causing my migraines, but they could just as easily cause a seizure like response. If this is true, there are triggers that can be avoided and just like a migraine I may never have another one.
Later
Jetgirl |
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kevv729
Shai-Hulud
Joined: Sep 23, 2005
Age: 50
Posts: 2882
Location: SOUTH DAKOTA
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| Posted: Mon Jan 23, 2006 6:45 pm Post subject: |
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You need Your doctors to agree or then to explain why or why not these are or are not seizures. I have had many seizures from childhood to adulthood. You need maybe need Your doctors to sit down with You and explain these spells to You. To Me they seem to be seizures but I am not a doctor. Has Your son had a EEG lately or not, that could help determine if it was a seizure. What You really need is the doctors to talk to each other then at least one of them to explain what if they can explain it to You. Two doctors that say two different things is not going to help You or Your Son.
You are doing find with what information with what You have given. I would not worry how this story is coming out okay.
The doctors are making it confusing for You as well for Themselves.
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Come on My children lets All get Along Okay.
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