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NLD Information and Support Thread
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LostInSpace
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PostPosted: Thu Dec 04, 2008 7:12 pm    Post subject: Reply with quote

zen_mistress wrote:
Personally I would like a sticky in here. I just dont really mind whether it is on this board or another part as I visit pretty much most of the boards. In many ways it would be appropriate here because NLD is a spectrum-related topic.


I agree that the sticky would be more useful in this forum.

If it is stickied, do you think I should change the name to remove the acronym? Like "Nonverbal Learning Disorder sticky"? "Nonverbal Learning Disorder Forum"? "Nonverbal Learning Disorder Information Sticky?" Or even "Nonverbal Learning Disorder Information and Debate"? Maybe that would be a little long! Post suggestions please!

Edit: Yay, again! Three pages!

Edit the second: Boo! One vote for "I don't care." You had to rock the boat, didn't you, mystery person? Wink
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LostInSpace
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PostPosted: Fri Dec 05, 2008 2:41 pm    Post subject: Reply with quote

Okay, after perusing the site, I think a post in the Wrongplanet forum is the most appropriate way to ask for an NLD sticky:

http://www.wrongplanet.net/postp1898905.html#1898905

Hopefully we will get a mod response soon. If anyone interested in a sticky wants to post in that thread in order to indicate support, that would be great.
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Lightning88
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PostPosted: Thu Dec 18, 2008 12:52 pm    Post subject: Reply with quote

Looks like this thread's a sticky now!
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LostInSpace
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PostPosted: Thu Dec 18, 2008 12:59 pm    Post subject: Reply with quote

Lightning88 wrote:
Looks like this thread's a sticky now!


Yup! Yay! I need to edit the first post though to make it more useful for someone looking for information on NLD.
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Lightning88
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PostPosted: Thu Dec 18, 2008 1:02 pm    Post subject: Reply with quote

That's a good idea. BTW, I actually have NLD so if you have any questions, feel free to ask. Wink
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zen_mistress
im not sure what to write here.
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PostPosted: Thu Dec 18, 2008 2:05 pm    Post subject: Reply with quote

Excellent! I will be watching it closely Smile .
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Greentea
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PostPosted: Thu Dec 18, 2008 2:31 pm    Post subject: Reply with quote

Yay, congrats, you did it !!!! I'm happy!!!! Smile
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vivinator
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PostPosted: Thu Dec 18, 2008 3:31 pm    Post subject: Reply with quote

so this will be the stickied thread? perhaps chg the thread title too just take out poll. eyah! gettin; sticky wit it! tongue
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-as of now official dx is ADHD (inattentive type) but said ADD (314.00) on the dx paper, PDD-NOS and was told looks like I have NLD
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PostPosted: Thu Dec 18, 2008 3:32 pm    Post subject: Reply with quote

Lightning88 wrote:
That's a good idea. BTW, I actually have NLD so if you have any questions, feel free to ask. Wink


if you had any psych or neropsych evaluations before you were dx'd with nld what did it/they say?
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-as of now official dx is ADHD (inattentive type) but said ADD (314.00) on the dx paper, PDD-NOS and was told looks like I have NLD
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PostPosted: Thu Dec 18, 2008 4:41 pm    Post subject: Reply with quote

i fit the profile better for nvld, but i think i have both aspergers and nvld. or can you have only one?
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PostPosted: Thu Dec 18, 2008 4:49 pm    Post subject: Reply with quote

nah you can have both
here's one sentence from this paper.


http://www.nldontheweb.org/Dinklage_1.htm

ASPERGER's DISORDER AND NONVERBAL LEARNING DISABILITIES:
How are These Two Disorders Related to Each Other?

by David Dinklage, PhD


Studies conducted by the Yale Child-Study Group suggest that up to 80% of children who meet the criteria for AD also have NVLD.[u]
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-as of now official dx is ADHD (inattentive type) but said ADD (314.00) on the dx paper, PDD-NOS and was told looks like I have NLD
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zen_mistress
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PostPosted: Thu Dec 18, 2008 6:23 pm    Post subject: Reply with quote

I kind of feel like I have NLD and aspergers. I have interests and sensory problems and lots of OCD-like stuff. But I am sociable, sort of. I dont know.
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PostPosted: Thu Dec 18, 2008 7:31 pm    Post subject: Reply with quote

I voted for the sticky and I'm glad it's here.

I believe I definitely have NLD, and based on what I've learned about Asperger's, and what I've learned here on WP, it's likely I have AS too. But I've not been formally diagnosed, so I can't be sure.

When I was a teenager, I was diagnosed with a severe "organizational learning disability," with shadings of inattentive ADD (according to the neurologists & psychologists). This was before NLD & AS were even considered as diagnoses. Even the "hint" of ADD was just sort of whispered, as it was not yet common for girls to be considered ADD.

Still, the very astute neurologist recommended that I be switched from the fast-track school (where I was drowning) to an alternative high school that catered to kids with all kinds of learning issues.

My parents, while loving, just couldn't believe that their highly & precociously verbal daughter with the (supposedly) high IQ score (VIQ far higher than PIQ btw) needed such arrangements, and on I went in the advanced classes, drowning and feeling like a failure. My teachers couldn't believe it was anything but laziness and apathy, since I was supposedly "such a smart girl" "who writes better than the majority of the class" blah blah blah. I died every day trying to meet everyone's expectations. Finally they decided that I was not an intellectual (hah!), but a creative type (yeah, ok, but not fully true).

Anyone have similar experiences like this?
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earthmonkey
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PostPosted: Thu Dec 18, 2008 8:25 pm    Post subject: Reply with quote

I feel odd (as alway.)./..

Because while I have a dx. of autism, I have almost all of the traits of NLD (except that I am quite good with advanced math, though I am HORRIBLE with arithmetic, NEED a calculator). And my IQ had verbal about 90 and performance about 77, so that's about a standard deviation apart. But outside of the tests, I don't think I could math a NONVERBAL learning disability, unless it was called Verbal and Nonverbal LD, because IRL I have lots of difficulty with speech and language and am only about 60-80% verbal.

So I don't think I could actually get this diagnosis, but considering how consistent I am with it otherwise, I am quite confused.
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zen_mistress
im not sure what to write here.
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PostPosted: Thu Dec 18, 2008 9:09 pm    Post subject: Reply with quote

Persephone wrote:
I voted for the sticky and I'm glad it's here.

I believe I definitely have NLD, and based on what I've learned about Asperger's, and what I've learned here on WP, it's likely I have AS too. But I've not been formally diagnosed, so I can't be sure.

When I was a teenager, I was diagnosed with a severe "organizational learning disability," with shadings of inattentive ADD (according to the neurologists & psychologists). This was before NLD & AS were even considered as diagnoses. Even the "hint" of ADD was just sort of whispered, as it was not yet common for girls to be considered ADD.

Still, the very astute neurologist recommended that I be switched from the fast-track school (where I was drowning) to an alternative high school that catered to kids with all kinds of learning issues.

My parents, while loving, just couldn't believe that their highly & precociously verbal daughter with the (supposedly) high IQ score (VIQ far higher than PIQ btw) needed such arrangements, and on I went in the advanced classes, drowning and feeling like a failure. My teachers couldn't believe it was anything but laziness and apathy, since I was supposedly "such a smart girl" "who writes better than the majority of the class" blah blah blah. I died every day trying to meet everyone's expectations. Finally they decided that I was not an intellectual (hah!), but a creative type (yeah, ok, but not fully true).

Anyone have similar experiences like this?


I was just called lazy, troublesome and untidy. The only learning disability recognised in my school days was dyslexia.

My parents still dont think there is anything unusual about me though it is glaringly obvious to anyone outside my immediate family.
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