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NLD Information and Support Thread
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twinky333
Butterfly
Butterfly


Joined: May 01, 2009
Posts: 10
Location: Alabama

PostPosted: Sun May 10, 2009 11:25 pm    Post subject: Reply with quote

I have NLD and I inherited it from my dad. I have two children and one grandchild with NLD, one grandchild who is NT and one grandchild who has Classic Autism. People who have NLD have very poor visual recall, my daughter has no viual recall and all memories and thoughts are in words. I have very limited visual recall. I have to make an effort to see pictures in my mind and they are very blurry like snapshots coming from a dark mist. I never have a visual video or movie in my head, not for memories, day dreaming or planning. I do not see the lay out of a grocery store or the features of a person's face. I have the normal range of emotions and empathy. Most of the time I know what is going on socially but social behavior is based on memory not instinct. People with NLD do not have special intrest and in fact may suffer from a lack of this but they are very sensitive to the way they are treated by other people. They are often shunned and do not know why, after so much hurt most develop social anxiety. I think that young girls tend to become very quiet and teenage boys will often become aggressive as a survival skill because of being picked on.
One problem with NLD is slow visual and auditory processing so that I can't keep up with the conversation. I don't comprehend the social game. I see everybody as equals, think everyone should play by the same rules and have no concept of the box. I have learned to live within the box most of the time only because of the problems that come if you don't.
I do not have the same values as " the regular people " there is a huge difference. I value individuality, I do not want to be like everybody else or act like them, I don't need the groups approval, I am happy with just a few close friends and even then I don't seek their approval of the way I look or think. This material world just doesn't matter so much to me, I have a strong spiritual sense that guides me.
My strong desire for justice and fairness have caused me a lot of difficulty but I like the way that I am, I am content with myself. I first learned about NLD two years ago, up until then I thought I just had inherted some strange personality traits and a double dose of bad luck. I am glad I found out that there was a reason for some of the problems that I have had and to be aware that I am differant so that I can protect myself better.I am glad my kids can know that too because it's a tough world out there. The biggest disadvantage is not to be aware that you have one because some people know it right away and take advantage of that. ( stay away from used car salesmen )
I am glad not to be NT if it means being shallow and superficial, just giving lip service to certian values and to always live closed up inside that awful box never seeing the beauty outside. Still I wish that I could be NT for just one day so that I could know what is so great about playing the game and see their BIG PICTURE and compare it to mine.
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Greentea
Goddess of Wisdom
Phoenix


Joined: Jun 15, 2007
Age: 47
Posts: 5500
Location: Middle East

PostPosted: Sun May 10, 2009 11:52 pm    Post subject: Reply with quote

twinky333 wrote:
They are often shunned and do not know why


That's me, ever since I was born.
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starygrrl
Deinonychus
Deinonychus


Joined: Apr 13, 2009
Posts: 326

PostPosted: Mon May 11, 2009 9:42 am    Post subject: Reply with quote

twinky333 wrote:
I have NLD and I inherited it from my dad. I have two children and one grandchild with NLD, one grandchild who is NT and one grandchild who has Classic Autism. People who have NLD have very poor visual recall, my daughter has no viual recall and all memories and thoughts are in words. I have very limited visual recall. I have to make an effort to see pictures in my mind and they are very blurry like snapshots coming from a dark mist. I never have a visual video or movie in my head, not for memories, day dreaming or planning. I do not see the lay out of a grocery store or the features of a person's face. I have the normal range of emotions and empathy. Most of the time I know what is going on socially but social behavior is based on memory not instinct. People with NLD do not have special intrest and in fact may suffer from a lack of this but they are very sensitive to the way they are treated by other people. They are often shunned and do not know why, after so much hurt most develop social anxiety. I think that young girls tend to become very quiet and teenage boys will often become aggressive as a survival skill because of being picked on.
One problem with NLD is slow visual and auditory processing so that I can't keep up with the conversation. I don't comprehend the social game. I see everybody as equals, think everyone should play by the same rules and have no concept of the box. I have learned to live within the box most of the time only because of the problems that come if you don't.
I do not have the same values as " the regular people " there is a huge difference. I value individuality, I do not want to be like everybody else or act like them, I don't need the groups approval, I am happy with just a few close friends and even then I don't seek their approval of the way I look or think. This material world just doesn't matter so much to me, I have a strong spiritual sense that guides me.
My strong desire for justice and fairness have caused me a lot of difficulty but I like the way that I am, I am content with myself. I first learned about NLD two years ago, up until then I thought I just had inherted some strange personality traits and a double dose of bad luck. I am glad I found out that there was a reason for some of the problems that I have had and to be aware that I am differant so that I can protect myself better.I am glad my kids can know that too because it's a tough world out there. The biggest disadvantage is not to be aware that you have one because some people know it right away and take advantage of that. ( stay away from used car salesmen )
I am glad not to be NT if it means being shallow and superficial, just giving lip service to certian values and to always live closed up inside that awful box never seeing the beauty outside. Still I wish that I could be NT for just one day so that I could know what is so great about playing the game and see their BIG PICTURE and compare it to mine.



Actually people with NLD can have a special interests, but it stems more being prone to overlearning in areas which play to one assets than to the naturally restrictive interests of AS, with that being said folks with NLD can have restrictive interests, but it is usually related to a co-morribund condition. Also having empathy often does not happen with people with NLD, as it is with AS, since NLD is noted for its executive functioning problems, especially theory of mind issues. This is what leads to alot of social difficulties. With that being said, you are right about the full emotional range, but it is an atypical emotional range, in that people with NLD tend to be over-sensitive and react to different emotional stimuli than folks who are NT.

The one thing that you are off on in general is with regards to audio processing, especially in conversation, audio processing with NLD is known to be very fast, better than average usually, at least in general. Auditory and verbal processing and memory is actually an ASSET of NLD. Audio and verbal assets are often noted, and that includes speech, while we may be prone to literalism, folks with NLD usually catch much of what a person says, no matter how fast they are saying it. People with NLD are known for "coctail speech" which is basically the ability to be verbally astute in conversation at a young age. Most people with NLD can keep up with conversations since the verbal and auditory strengths are there, the problem is you miss alot of the nonverbal cues of the conversation and don't understand them when they present, which holds folks with NLD back. The slow auditory processing is way off as a general deficit, and may be more related to your individual manifestation, but is not a general trait of NLD. Sorry to be critical...just kind of have to be in this case, since it involves one of the most noted asset of NLD, which is auditory and verbal processing streangths.

The problem I noticed myself with auditory processing is I pick up way too much, which is part of the reason I have problems in some crowded places, it is sensory overload at times.
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Greentea
Goddess of Wisdom
Phoenix


Joined: Jun 15, 2007
Age: 47
Posts: 5500
Location: Middle East

PostPosted: Mon May 11, 2009 11:12 am    Post subject: Reply with quote

starygrrl, that's all true about me. I'm well above average in language learning, I master 3 languages at a near-native level, and another 3 partially. I'm often talking to 3 people at the same time, where each of them knows only 1 of the 3 languages I know and I'm translating simultaneously to all. I write and have been commended for my writing since I was a child. I learn new languages with the same easiness an NT makes a new friend.

Where can I read more about NLD? The articles I've found on the web have been very basic and I haven't found any decent forums....
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twinky333
Butterfly
Butterfly


Joined: May 01, 2009
Posts: 10
Location: Alabama

PostPosted: Tue May 12, 2009 12:29 am    Post subject: Reply with quote

Starygrrl
Maybe what I am trying to describe is not auditory processing and we are all verbally gifted and love language and words in my family. In fact my daughter could quote her little golden books word for word and recite long poems before she was two. She amazed everybody and she has written some beautiful poems and had some of her work published, She is also a great artist. In fact all of us who have NLD in my family are very good artist.
I guess the problem I am trying to describe in conversation might just be the social awkwardness and not knowing how to respond which make me confuse it with slow processing. It is not the actual hearing but the understanding since so much is going on that I don't understand with the non verbal factor. I always recall what people have said, maybe to clearly because later I will mull it over and over in my head to try to make sense out of a situation that I don't understand. I don't understand why people don't come out and say what they mean or gine you a direct answer to a direct question.
My son is having a difficult time in school because his teachers think he is being disrespectful when that is not his intention.
Another thing that can be confusing is trying to follow verbal direction because I don't see the pictures in my head and I really hate it when people ask me to find something on a shelf or maybe hand them something that is right under my nose but I don't see it.
At work I will be doing something like typing so that I am not talking to anyone or answering questions right away and they accuse me of being rude. Most people know by now that I can't talk and concentrate on something else at the same time because I tell them. I am real upfront about my personal limitations without putting a label on myself. That seems to work well with people who know me pretty well.
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vivinator
Deinonychus
Deinonychus


Joined: Nov 16, 2008
Age: 29
Posts: 300
Location: MD

PostPosted: Wed May 13, 2009 6:11 pm    Post subject: Reply with quote

Greentea wrote:
starygrrl, that's all true about me. I'm well above average in language learning, I master 3 languages at a near-native level, and another 3 partially. I'm often talking to 3 people at the same time, where each of them knows only 1 of the 3 languages I know and I'm translating simultaneously to all. I write and have been commended for my writing since I was a child. I learn new languages with the same easiness an NT makes a new friend.

Where can I read more about NLD? The articles I've found on the web have been very basic and I haven't found any decent forums....


Rourke's website:
http://www.nld-bprourke.ca/index.html

NLD Association
http://www.nlda.org/index.php?src=

there's som eyhoo groups too
_________________
All men are frauds. The only difference between them is that some admit it. I myself deny it.

-HL Mencken


-as of now official dx is ADHD (inattentive type) but said ADD (314.00) on the dx paper, PDD-NOS and was told looks like I have NLD
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mikemmlj
Pileated woodpecker
Pileated woodpecker


Joined: Mar 14, 2009
Age: 38
Posts: 192
Location: Albuquerque, NM

PostPosted: Thu May 14, 2009 4:18 am    Post subject: Reply with quote

I speak my own made up language that is based purely on emotion, I have started speaking this more and more at work and people are getting beyond amused with it and think it is strange. The folks at work noticed this because I am very sensitive to touch and always "speak" this language when they poke me. Anyone else??

I speak Dutch conversationally and al ittle German. I love language and the study of minority language and culture.
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Luluchan531
Hummingbird
Hummingbird


Joined: Mar 16, 2009
Age: 23
Posts: 18

PostPosted: Thu May 14, 2009 4:55 am    Post subject: Reply with quote

vivinator wrote:
Greentea wrote:
starygrrl, that's all true about me. I'm well above average in language learning, I master 3 languages at a near-native level, and another 3 partially. I'm often talking to 3 people at the same time, where each of them knows only 1 of the 3 languages I know and I'm translating simultaneously to all. I write and have been commended for my writing since I was a child. I learn new languages with the same easiness an NT makes a new friend.

Where can I read more about NLD? The articles I've found on the web have been very basic and I haven't found any decent forums....


Rourke's website:
http://www.nld-bprourke.ca/index.html

NLD Association
http://www.nlda.org/index.php?src=

there's some yahoo groups too


And a couple really nice facebook support groups.
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Greentea
Goddess of Wisdom
Phoenix


Joined: Jun 15, 2007
Age: 47
Posts: 5500
Location: Middle East

PostPosted: Thu May 14, 2009 3:45 pm    Post subject: Reply with quote

I read some of Rourke's website today and became very depressed. Sad

If someone can recommend or post a link to one of the NLD online support groups, I'll strongly appreciate it.
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mikemmlj
Pileated woodpecker
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Joined: Mar 14, 2009
Age: 38
Posts: 192
Location: Albuquerque, NM

PostPosted: Fri May 15, 2009 2:43 am    Post subject: Reply with quote

There is an online dyspraxia group that is probably quite similar.
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starygrrl
Deinonychus
Deinonychus


Joined: Apr 13, 2009
Posts: 326

PostPosted: Fri May 15, 2009 10:18 am    Post subject: Reply with quote

Most local asperger and HFA groups have incorporated NLD and semantic pragmatic disorder into their accepted individuals, since the social deficits are common. NLD is very similar to AS, at least in the effect on individuals social lives.
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vivinator
Deinonychus
Deinonychus


Joined: Nov 16, 2008
Age: 29
Posts: 300
Location: MD

PostPosted: Fri May 15, 2009 3:40 pm    Post subject: Reply with quote

Greentea wrote:
I read some of Rourke's website today and became very depressed. Sad

If someone can recommend or post a link to one of the NLD online support groups, I'll strongly appreciate it.


that's too bad.
this one is more for parents, but adults are accepted

http://groups.yahoo.com/group/NLD-In-Common/

for adults:

http://groups.yahoo.com/group/nldadult/
_________________
All men are frauds. The only difference between them is that some admit it. I myself deny it.

-HL Mencken


-as of now official dx is ADHD (inattentive type) but said ADD (314.00) on the dx paper, PDD-NOS and was told looks like I have NLD
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mikemmlj
Pileated woodpecker
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Joined: Mar 14, 2009
Age: 38
Posts: 192
Location: Albuquerque, NM

PostPosted: Sat May 16, 2009 3:35 pm    Post subject: NLD vs Aspie traits link article Reply with quote

http://www.thelighthouseproject.com/NLD_vs_AS.html

Very Happy Shocked Cool Laughing Rolling Eyes
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Lightning88
Prefers Flamingos
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Joined: Aug 05, 2006
Age: 20
Posts: 3847
Location: Indiana

PostPosted: Wed May 20, 2009 1:08 pm    Post subject: Reply with quote

I have NLD and I remember things so much easier when it comes to visual memory rather than hearing it. Here's a good example:

I can listen to a song 300 times and not even learn all the words (not kidding). Yet, I can read the lyrics to the song just three times and memorize it with no problems at all. I don't know if I'm an exception or not, but that is just me.
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sbcmetroguy
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Joined: Sep 24, 2008
Age: 29
Posts: 879
Location: Louisiana

PostPosted: Wed May 20, 2009 2:01 pm    Post subject: Reply with quote

Lightning88 wrote:
I have NLD and I remember things so much easier when it comes to visual memory rather than hearing it. Here's a good example:

I can listen to a song 300 times and not even learn all the words (not kidding). Yet, I can read the lyrics to the song just three times and memorize it with no problems at all. I don't know if I'm an exception or not, but that is just me.


I have AS and am like this. I have often wondered if perhaps I'm not just NLD but misdiagnosed, but the more I read about the two I would have to say that this is not the case. I am definitely AS. But yes, I listen to songs all the time and never know all, or even very many of the words. But once I see it written, I am like ... wow, I never really paid attention to the words before! I have found that some of my favorite songs I no longer liked after I learned the words just because it ruined it. Some songs sound so beautiful and yet are not when you actually see the words written out before you.
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