WrongPlanet.net
WP Members: > 70,000

Aspie Affection

New Today: 2
New Yesterday: 34

A “Wise Latina” model for autism policy-making
Post new topic   Reply to topic    Wrong Planet Autism Forum Index -> Autism Politics, Activism, and Media Representation     

Should autistics take a big part in ASD policy-making?
Yes, who else is qualified?
82%
 82%  [ 14 ]
Maybe they could be consulted if qualified
5%
 5%  [ 1 ]
No, the NTs know what they are doing and I can't be bothered
11%
 11%  [ 2 ]
Total Votes : 17

Awiddershinlife
Pileated woodpecker
Pileated woodpecker


Joined: Jul 05, 2009
Age: 59
Posts: 198
Location: 3rd sunniest city in US

PostPosted: Thu Jul 16, 2009 6:42 pm    Post subject: A “Wise Latina” model for autism policy-making Reply with quote

Judge Sonia Sotomayor made two statements that could be extrapolated to autism (auties & aspies) politics

1. "I would hope that a wise Latina woman with the richness of her experiences would more often than not reach a better conclusion than a white male who hasn’t lived that life."

Try it on for size:

I would hope that wise autistics with the richness of their experiences would more often than not reach a better conclusion than an NT who hasn’t lived that life

The second statement

2. “there is no objective stance but only a series of perspectives - no neutrality, no escape from choice in judging”

This statement offers the CAUSE (NT lack of perspective) with the logical EFFECT (autistics taking a stronger position) in defining autism for the next edition of the DSM, international policy making, and research funding, etc.

Any “autism organization” that does not have autistics making up at least half of the board should be suspect. Appointing a token autistic just won’t ethically be enough.

There are autistics in pertinent fields: I personally know speech language pathologists, an occupational pathologist, and surely there are autie/aspie psychs out there.

There are also self-educated autistics who, thanks to their intensely focused interests in the area of autism, are leading experts in the field.

What do YOU think?
_________________
~
We sour green apples live our own inscrutable, carefree lives... (Max Frei)
~
Back to top
View user's profile Send private message
Odin
Supreme Genius
Phoenix


Joined: Oct 13, 2006
Age: 27
Posts: 2498
Location: Moorhead, Minnesota, USA

PostPosted: Thu Jul 16, 2009 9:40 pm    Post subject: Reply with quote

I agree, excellent post!
_________________
My Blog: My Autistic Life
Back to top
View user's profile Send private message Send e-mail
Eternal_Saber
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker


Joined: Mar 04, 2009
Age: 27
Posts: 68
Location: Australia

PostPosted: Thu Jul 16, 2009 10:31 pm    Post subject: Reply with quote

I beleve that with the aspies/auties having the experience, we should be the ones to tell the nerotypicals what we experience instead of letting them figure us out on thier own.

I voted yes.
Back to top
View user's profile Send private message Visit poster's website Yahoo Messenger MSN Messenger
Caterina
Tufted Titmouse
Tufted Titmouse


Joined: Nov 29, 2008
Age: 33
Posts: 38
Location: Pittsburgh, PA

PostPosted: Fri Jul 17, 2009 2:24 am    Post subject: Reply with quote

I have Asperger's, and I am getting my masters in occupational therapy for exactly this reason -- I strongly believe that people on the autism spectrum are better served by others on the spectrum than by NTs who do not share their experience and cannot truly understand their needs.

I currently work as a respite care provider, and one of the people I work with is a twelve year old girl with autism. Although she is nonverbal, I am quickly able to understand what she needs through her gestures, and I am the only person I know of that she will initiate eye contact and physical contact with.

I think it is crucial to have autism/Asperger's services that are run by and for people on the spectrum. The psychologist who diagnosed me, while competent to administer the necessary tests, had a very limited capacity to understand the struggles that I am having in a neurotypical world, and had very few suggestions for what I could do to improve my level of functioning. It is perhaps no surprise that I have gotten more focused and useful advice from my aspie boyfriend and my Asperger's group than from my NT psychologist. They were able to give me their advice because they had experienced similar situations and had needed to solve similar problems themselves. If my psychologist had been an aspie, as well, I suspect that she would likewise have been able to give me better recommendations for how to function in a NT world. That's certainly something I'll be able to offer my AS/autism clients when I work as an OT.

~ Caterina
_________________
"I've never been asked to belong. I've never joined anything except the Marvel Comics Club, but that was through the mail and even then they lost my membership."

~ Eleanor, from Starmites
Back to top
View user's profile Send private message Visit poster's website
Post new topic   Reply to topic    Wrong Planet Autism Forum Index -> Autism Politics, Activism, and Media Representation   

 
Read more Articles on Wrong Planet



Wrong Planet is a Registered Trademark.
Copyright 2004-2013, Wrong Planet, LLC and Alex Plank. Alex does public speaking for Autism.

Advertise on Wrong Planet

Alex Hotchalk / Glam 

Alex Plank  Aspie Affection 

Terms of Service - You must read this as a user of Wrong Planet | Privacy Policy

Subscribe: RSS Feed  Wrong Planet News  Wrong Planet Forums




fine art