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SamanthaBlake
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PostPosted: Sun Feb 27, 2011 10:45 pm    Post subject: Aspergers vitamin deficiencies etc.. Reply with quote

hello,I am going to the doctor tomorrow and I need to be prepared.
I read in an aspergers book that a few things might help alleviate symptoms.
1. like a gluten free diet.
2. I was also interested in taking vitamins and herbal supplements or alt.therapies instead of taking medication
3.it said aspies could have suration (sulfur?) deficiency ...(something to do with pee)
and that this can be determined by taking an enzyme immunosorbent assay

this is just my regular doctor,and i am going for a checkup/allergy test. I'm not sure if she knows anything about AS.
I would appreciate if someone could recommend a test or question for my doctor (by tomorrow)
or clarify what that deficiency is.
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SamanthaBlake
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PostPosted: Sun Feb 27, 2011 10:52 pm    Post subject: Reply with quote

maybe i should have come up with a fancier title to grab attention.bummer.
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joku_muko
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PostPosted: Sun Feb 27, 2011 11:12 pm    Post subject: Reply with quote

I take pro-biotics, B-complex, C, D3, L-Lysine, Milk Thistle, MSM (sulfur).
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Ikonovich
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PostPosted: Sun Feb 27, 2011 11:14 pm    Post subject: Reply with quote

There hasn't been any significant evidence that any diet changes alleviate the symptoms of Aspergers. Pretty much anything you'll hear is personal experience, hearsay, etc. But if you want to try, go for it.


Be prepared for a general practitioner to know next to nothing about Aspergers.
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PatrickNeville
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PostPosted: Sun Feb 27, 2011 11:19 pm    Post subject: Reply with quote

A gluten free diet has been helping me.

I suggest Quinolo (also spelt Quino). It is a gluten free grain which is full of vitamins and minerals.

I also suggest Mung beans. They offer 23 Amino Acids and can be added to pasta, curry, salads or anything as long as they cooked.

Joku_muku has the right idea also.
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SamanthaBlake
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PostPosted: Mon Feb 28, 2011 8:31 am    Post subject: Reply with quote

thank you,but I was more interested in that deficiency..and what it was.sulfur? or something.
also i need an example more specific to me like a recomendation of a book on vitamins/herbs..alt.therapies
or a website.
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SamanthaBlake
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PostPosted: Mon Feb 28, 2011 8:32 am    Post subject: Reply with quote

This is a completely unrelated topic but I was also wondering how to explain to my friend what aspergers is. its a lot tougher then it sounds.
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pgd
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PostPosted: Mon Feb 28, 2011 10:11 am    Post subject: Re: Aspergers vitamin deficiencies etc.. Reply with quote

SamanthaBlake wrote:
hello,I am going to the doctor tomorrow and I need to be prepared.
I read in an aspergers book that a few things might help alleviate symptoms.
1. like a gluten free diet.
2. I was also interested in taking vitamins and herbal supplements or alt.therapies instead of taking medication
3.it said aspies could have suration (sulfur?) deficiency ...(something to do with pee)
and that this can be determined by taking an enzyme immunosorbent assay

this is just my regular doctor,and i am going for a checkup/allergy test. I'm not sure if she knows anything about AS.
I would appreciate if someone could recommend a test or question for my doctor (by tomorrow)
or clarify what that deficiency is.


----

In terms of general health, one can look at the general ideas of Jack LaLanne (natural foods, exercise). If one is interested in a true story about hidden food additives and how coffee/caffeine can temporarily reduce ADHD symptoms a little (not a cure) somewhat similar to (not identical to) Ritalin, Dexedrine, Adderall and so on, one can look at the books by C. Thomas Wild. If one is interested in very unusual allergies/an almost endless list of allergies, one can look at the concepts of Theron G. Randolph. If one wants to look at nutritional diets and how they may help a few with epilepsy, one can look at Ketogenic/Atkins/etc. To my knowledge, there is zero evidence that Asperger's/autism is strongly linked to a vitamin deficiency at all. One can choose good nutrition/exercise for the maintenance of overall good health in general but that is quite different than (falsely) looking at good nutrition/exercise as being the missing remedy/magic bullet for Asperger's/autism (my view). Can a few persons make small changes here and there in what they eat and feel slightly better (not a cure)? Yes, but that is again extremely different than viewing those changes as providing a magic remedy for Asperger's/autism. People are born with Asperger's/autism (simplified).
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psychobabbler
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PostPosted: Mon Feb 28, 2011 12:32 pm    Post subject: Testing Reply with quote

This is no doubt too late for your current appointment, but may be useful to you and others in the future.
I just attended an all-day conference sponsored by Red Autismo and The Great Plains Laboratory, Inc. Drs. Leticia and William Shaw were very helpful explaining all the biomedical tests available to determine what remedies are best to alleviate autistic symptoms. Here is their link: url=http://www.greatplainslaboratory.com
At the very end of the top paragraph on the home page is a "here" button to see all the kinds of tests available. There are also buttons for asking a question and for contacting the labs. Much luck to you! Please keep us posted on your experience with your doctor!!
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blueroses
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PostPosted: Mon Feb 28, 2011 1:41 pm    Post subject: Reply with quote

There aren't supplements that help with Asperger's, per se. There are vitamins and minerals that studies have found beneficial for common comorbids or other issues that some persons with Asperger's might experience, though.

So, a good approach might be to talk with a physician about specific medical problems you experience on a case-by-case basis, as opposed to trying to find supplements to help with Asperger's in general. I would be pretty cautious and skeptical about any biomedical and herbal treatments that claim to help with Asperger's in general, actually.

For example, magnesium is related to many functions in the body, including making muscles contract. People who are deficient in magnesium can experience muscle tension, anxiety/sleep problems and digestive problems, as a result. Some people with Asperger's have digestive problems and anxiety issues and, if they are magnesium deficient, may find taking magnesium supplements helpful. But, to say magnesium supplements are a treatment for ASD would be inaccurate.
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Cicely
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PostPosted: Mon Feb 28, 2011 2:40 pm    Post subject: Reply with quote

Vitamins and supplements won't help with anything unless you actually have a deficiency. I take calcium supplements because I don't like a lot of dairy products, and vitamin D because there's very little sun around here in winter.

There's a lack of empirical evidence to support gluten-free or other special diets as a treatment for Asperger's. Anecdotes are not evidence. There's no need to go on a gluten-free diet unless you have a legitimate gluten allergy.

If alternative medicine worked, it would just be called medicine. If you don't want to take conventional medication, try therapy instead.

Eating a healthy diet and getting regular exercise wouldn't hurt. I recommend not starting a vitamin regime until you consult with a doctor.
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SamanthaBlake
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PostPosted: Mon Feb 28, 2011 4:24 pm    Post subject: Reply with quote

Ikonovich-I asked my doctor and she knew what aspergers was. so hah! Razz

psychobabbler-thanks i will look into that information,i just came back from my visit and i am 100 percent healthy just have to wait for the blood test results to come in.everything went fine aside from a near-fainting episode when i had my blood taken.

Cicely-what therapies do you recommend? I know alt medicine isnt going to be as effective or proven to be effective at all.but i at least want to try.some can relieve anxiety a little and just help when i eventually stop taking medication.Also i live a healthy lifestyle,i eat very healthy but should exercise a little more.
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eb31
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PostPosted: Thu Mar 03, 2011 2:43 pm    Post subject: Reply with quote

I personally have had improvement taking vitamin D, B12, and liquid minerals for the last 3 months. I also eat whole foods, nothing processed, few canned foods, and I am learning to make meals completely from scratch. Many foods have chemicals and hormones in them that negatively affect behavior, health, and mood (especially conventional meat and dairy). I also highly recommend the ELISA food sensitivity test so you can eliminate allergic foods.

The biggest change for me has been the total absence of meltdown fits I used to have on an almost daily basis.
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Moog
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PostPosted: Thu Mar 03, 2011 3:00 pm    Post subject: Reply with quote

Cicely wrote:
Vitamins and supplements won't help with anything unless you actually have a deficiency. I take calcium supplements because I don't like a lot of dairy products, and vitamin D because there's very little sun around here in winter.

There's a lack of empirical evidence to support gluten-free or other special diets as a treatment for Asperger's. Anecdotes are not evidence. There's no need to go on a gluten-free diet unless you have a legitimate gluten allergy.

If alternative medicine worked, it would just be called medicine. If you don't want to take conventional medication, try therapy instead.


It's called alternative to differentiate it from allopathic medicine, which it rarely resembles.

Many alternative medicines are effective for many different ailments.

Many allopathic or 'regular' medical treatments are useless or worse.

I am not against allopathic medicine per se, but I fear your statement is misleading and perhaps prejudged.
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PatrickNeville
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PostPosted: Thu Mar 03, 2011 3:26 pm    Post subject: Reply with quote

Moog is absolutely right actually.

Also fair to point out that alternative therapies can sometimes be better sometimes be worse, but it often happens that the Pharma industry may fund research to disprove alternative therapies unfairly, so that the established treatment can continue to make a profit.
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