Bun
Bunnymen
Joined: Jan 09, 2012
Posts: 3250
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 Posted: Fri Jan 20, 2012 9:14 pm Post subject: |
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Thank you.  |
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goodwitchy
Phoenix
Joined: Dec 29, 2011
Posts: 785
Location: Interplanetary
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| Posted: Fri Jan 20, 2012 9:15 pm Post subject: |
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| kahlua wrote: | There are lots of reasons to fake it....
- disability pension
- sympathy
- not as much being asked workwise due to AS issues
- To get out of doing things etc.
- special aids\assistance for kids at school
- grants\funding for kids
Personally it makes me angry - I haven't told anyone other than my OH, and have a job so don't get any monetary benefits. |
If anything, my traits have only helped me with my career. My job is apparently one of my special interests and I think I'm pretty good at it. No one in the entire massive building I'm in works as many hours as I do. 
I think more companies should hire people with AS and HFA.
_________________
Aspie score: 161 of 200
Neurotypical (non-autistic) score: 38 of 200
Autistic/BAP -123 aloof, 124 rigid and 108 pragmatic
Autism Spectrum quotient: 41, Empathy Quotient: 19
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iceveela
Velociraptor
Joined: Aug 17, 2011
Posts: 438
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| Posted: Fri Jan 20, 2012 10:08 pm Post subject: |
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| RandomNickname wrote: | | I don't think it's faking, i think insecure people do it to try and excuse their lack of friends/weird behaviors. I think the majority of people on here are doing just this. |
Isn't aspergers defined as weird behaviors and poor social ability? The "Restricted repetitive & stereotyped patterns of behavior, interests and activities" and "Qualitative impairment in social interaction"
At least thats what I got out of it... Not all friendless, weird people have aspergers. I am ok without friends. the less people bugging me, the more time and energy I have for work I can do on my research or crafts. If I need people to talk to, facebook will always be there for me! 
We need a new smiley for laughing... this smiley is annoying... I know nobody who laughs like they have a stutter, or epilepsy.
_________________
Aspie score: 164/200
NT score: 60/200
You are very likely an Aspie!
AQ: 36
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infinitenull
Velociraptor
Joined: Jan 01, 2012
Posts: 466
Location: Home in the desert
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| Posted: Fri Jan 20, 2012 10:18 pm Post subject: |
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| goodwitchy wrote: | If anything, my traits have only helped me with my career. My job is apparently one of my special interests and I think I'm pretty good at it. No one in the entire massive building I'm in works as many hours as I do.
I think more companies should hire people with AS and HFA. |
Someone needs to write a book about the benefit of having AS level objectivity on teams... teams and management and meetings are HUGE topics in business writing these days... now someone just needs to link Autism into that. I lead meetings that I've only seen topped by VP's and Directors with MBA degrees and 10-20 years experience in my field... Screw social a meeting should be on topic and until you have someone in charge who feels that way meetings are just chit-chat sessions...
I wish I could write a book lol... I would do it, but there is nooooo way I'll ever be able to do that... I could happily provide someone an outline of chapters if any writer was ever interested 
| iceveela wrote: | | We need a new smiley for laughing... this smiley is annoying... I know nobody who laughs like they have a stutter, or epilepsy. |
on a site, full of people, who have troubles understanding expressions of others... a smiley that reeeeeeeeeally is off base... hmmm... conspiracy?
_________________
er um... w.. eh... y.. you cant hear me um like.................. stammer on the internet ha ha ha |
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iceveela
Velociraptor
Joined: Aug 17, 2011
Posts: 438
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| Posted: Fri Jan 20, 2012 10:42 pm Post subject: |
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| infinitenull wrote: |
| iceveela wrote: | | We need a new smiley for laughing... this smiley is annoying... I know nobody who laughs like they have a stutter, or epilepsy. |
on a site, full of people, who have troubles understanding expressions of others... a smiley that reeeeeeeeeally is off base... hmmm... conspiracy? |
umm.... maybe? idk... I am going to "out on a limb" and assume that is a rhetorical question...
_________________
Aspie score: 164/200
NT score: 60/200
You are very likely an Aspie!
AQ: 36
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CrazyCatLord
Phoenix
Joined: Oct 25, 2011
Posts: 2177
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| Posted: Sat Jan 21, 2012 1:15 am Post subject: |
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| LipstickKiller wrote: | | To some people Asperger is kind of quaint. Sort of a cutesie syndrome that makes you special. I don't know why anyone would knowingly pretend to have Asperger's, but I can see that someone who suffers from other problems might prefer the Asperger label to other labels diagnoses and then convince themselves that it's true. I think a lot of poeple who self-diagnose may in fact have other issues, but pin them on AS because they aren't professionals and they feel that being an aspie provides them with a better sense of self, whether it's genuine or not. |
Reading "professional" in this context makes me cringe a bit. A neurologist, for example, is a professional medical scientist. A psychiatrist, on the other hand, is a guy with a diagnostic manual, a prescription pad, and delusions of grandeur. Only a few decades ago, psychiatrists were busy strapping gay people into chairs and showing them photos of naked men while administering electric shocks. They called it aversion therapy. In many countries, psychiatrists were still performing lobotomies and forced sterilizations when I was a child, and they are using electroconvulsive "therapy" to this day.
This is not meant to be an attack against you, I'm merely thoroughly disillusioned with this medical profession. Perhaps it is different in other countries, but around here, many so-called professionals seem to have no idea what AS is. They often use schizophrenia type disorders as a catch-all diagnosis. I don't suffer from any common schizophrenia symptoms such as delusions, paranoia, auditory hallucinations, cognitive impairments or flat effect as far as I can tell, and antipsychotics only gave me serious side effects without improving my social abilities. Schizophrenia also doesn't explain my childhood problems, which suddenly all made sense when I read about AS.
I might have one or more comorbid mental conditions in addition to AS, but AS is the one thing that I'm 99% sure about. But when you check yourself into a clinic to get professional help and end up being strapped to a bed and pumped full of antipsychotics because you had a minor meltdown, you start losing trust in the medical competence of these people. I still sought help and a professional diagnosis one more time, without knowing anything about AS, and all I got was "I'm not sure what you have, let's just try Zyprexa and see if it takes the edge off things".
At this point, it seems like a self-diagnosis is my best and only option. Not that I need a diagnosis for anything since I'm already on disability. I just want to know what's wrong with me, and AS is the only diagnosis that fits my symptoms and my life experience. It might seem less credible or authentic to some, but in the end online tests employ the same diagnostic criteria that specialists use (or would use if they had a clue about AS). |
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CrazyCatLord
Phoenix
Joined: Oct 25, 2011
Posts: 2177
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| Posted: Sat Jan 21, 2012 1:40 am Post subject: |
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| Matt62 wrote: | Anyway, aside from a select few, here is the only place I discuss this at all. People always put labels on me all my life, I really hate 'em to be honest.
Here are some of my favorites:
Creep
Weirdo
Witch/warlock
Afflicted/possessed
schizoprenic/schizoid
my all time favorite "Gay" (Why is different equated with being gay????)
***************************************
It beats the He** out of me why anyone would pretend to be autistic. Like I said, in childhood I lived with the very real fear of being sent to someplace like Penhurst! (Check out some of the Reality TV shows on the Paranormal for a history of that NIGHTMARE). Not to mention being CONSTANTLY bullied in Middle School & High School. Heck, I encounter bullying in the workplace, even now.
Trendy? I have been alone romantically most of my adult life, this thing HURTS.
Sincerely,
Matt |
I couldn't agree more. It does hurt. That's why I was so desperate to find out what's really wrong with me, because I wanted it to be fixed. It would be extremely counter-productive for me to pick a condition that is unfixable (i.e., can't be managed with drugs), but nothing else fits the bill. I'd rather be schizophrenic or sociophobic or whatever. Then I could take my meds, get back out there and live a halfway normal life.
Btw, I've pretty much come to self-identify as a weirdo and a creep. I realized that when I read a post in a Second Life forum. People discussed online relationships and real-life meetups, and somebody posted something like "before you meet in RL, have a webcam chat and make sure that your online sweetheart is not some creep or weirdo". It was very hurtful to read that, because I realized that most people would consider me to be both. That's not something I'd pick to be cool or trendy. |
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CrazyCatLord
Phoenix
Joined: Oct 25, 2011
Posts: 2177
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| Posted: Sat Jan 21, 2012 2:05 am Post subject: |
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| Bun wrote: | | There's a debate about whether or not Asperger should be considered separate to autism or not. Anyway, I think people on this thread expressed curiosity about 'self-diagnosed' people. I think that the world in general is open to accept autism spectrum disorders, but in my case locally if you go to the public health service and you raise suspicion - I quit school when I was at the legal permitted age to quit school, didn't have a job, fought with my mum - the assumption before you get diagnosed is that you are schizophrenic, and they asked you questions accordingly. I said no to all the symptoms, and I even had to argue that yes, I do see my friends; And it was beyond absurd. One might not need a diagnosis if everyone who's supposed to help them is functioning in that way, but when the public mental health system fails to provide apt service, that's when you might want to provide a better definition of what your difficulties are/were in the medical lexicon. |
It's pretty much the same situation around here. I think part of that is the desire of German medical professionals to simply fix their patients.
When I came across the English term "bedside manners", it puzzled me that we don't have a German expression for this. It's completely untranslatable because we don't even know the concept. Doctors aren't supposed to be nice and compassionate, we expect them to operate like car mechanics. The patient makes strange noises, let's pour some pharmaceutical oil into his engine and see if that does the trick.
Studies have found that German doctors listen to their patients for 7 to 15 seconds (not minutes, seconds), while simultaneously checking their medical history on their PC, before they interrupt the patient with questions or with their professional opinion. You may have to spend 4 or 5 hours in the waiting room, but you're in and out of the doctor's office in a matter of minutes carrying a prescription slip for an antipsychotic or an antidepressant. "See you in a week or two if you're still alive by then, now get back to work".
If there is no easy fix for something, German doctors are not very inclined to diagnose you with it. Our health insurances are cutting costs anywhere but at the pharmaceutical end of things. As a result, a long chat or a therapy session pays next to nothing. Medicine has pretty much become an assembly-line job. |
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CrazyCatLord
Phoenix
Joined: Oct 25, 2011
Posts: 2177
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| Posted: Sat Jan 21, 2012 2:11 am Post subject: |
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| iceveela wrote: | | We need a new smiley for laughing... this smiley is annoying... I know nobody who laughs like they have a stutter, or epilepsy. |
That smiley weirds me out a bit too. I use this one for laughter: |
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CrazyCatLord
Phoenix
Joined: Oct 25, 2011
Posts: 2177
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| Posted: Sat Jan 21, 2012 2:32 am Post subject: |
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| Bun wrote: | | goodwitchy wrote: | I'm concerned about the cost of DX, and don't know if I'll be able to afford it...still looking into that.
I don't personally want or need any type of disability benefits because I'm able to work and drive. I just want to know for myself, and hopefully find a doc who will prescribe Valium for my occasional emergencies. I don't want to be on daily meds; but I know they are helpful for some people. |
I'm on disability anyway, so no one can suspect it's my motive. I don't think getting the disability money helps me, I want to get actual professional help once in my life. It's sad that I need to fit the diagnosis in order to get better solutions than just be told to take medications. |
I feel the same way, except that I think I've deserved my early retirement / disability pension. I've worked from age 16 to 31. I've often put in over-hours and came in on weekends, because I hate saying No to people. But working your behind off is not enough in this society. You have to fit in, act "normal" and be socially capable, otherwise you find yourself subject to ridicule and peer abuse that will eventually break you.
Now that society broke me, society has to pay for me. Some people break sooner than others, often before they get a chance to enter the work force, and society has to pay for them too. That's only fair, imho. It's nothing to be ashamed of.
Btw, I think it would help a lot if companies were more aware of and accommodating to people on the spectrum. We need a quiet working space without distractions and without too much social stress. I got lucky that my first job after my apprenticeship was just like that. I was the only typesetter / DTP guy at that place, so I had my own little office. If things had stayed that way, I might still be able to work. Of course I could still work from home, but there don't seem to be any legitimate work-at-home jobs in Germany that don't require social skills and social interaction. |
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infinitenull
Velociraptor
Joined: Jan 01, 2012
Posts: 466
Location: Home in the desert
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| Posted: Sat Jan 21, 2012 4:51 am Post subject: |
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| iceveela wrote: | | infinitenull wrote: |
| iceveela wrote: | | We need a new smiley for laughing... this smiley is annoying... I know nobody who laughs like they have a stutter, or epilepsy. |
on a site, full of people, who have troubles understanding expressions of others... a smiley that reeeeeeeeeally is off base... hmmm... conspiracy? |
umm.... maybe? idk... I am going to "out on a limb" and assume that is a rhetorical question... |
♥♥♥♥♥♥♥♥♥♥♥♥♥♥
lolololol
I couldn't help... I should say the darn smiley is super creepy too but I try to ignore it so as not to be bugged. the conspiracy would be a smiley that would trigger discomfort on a site with the people who might be uncomfortable about it...
perhaps I am on my own "I think this is funny, but others might not" limb
all the same I got enjoyment out of it and since finding WP I am learning to consider that significant value
_________________
er um... w.. eh... y.. you cant hear me um like.................. stammer on the internet ha ha ha |
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Matt62
Phoenix
Joined: Jan 05, 2012
Age: 51
Posts: 1178
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| Posted: Sat Jan 21, 2012 11:41 am Post subject: |
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Yeah. I have not taken SSI myself actually. My Crohn's alone justifies it, but somehow my family actually infected me with their bullheaded pride. Plus, I worry if I DO take it, & get better that it will equal no JOB.
I only wish their was a medication/treatment that could help me. While I don't disparage the Psych community, they have made lots of mistakes along the way. Basically, NO ONE actually understands the brain/mind. Complex is far too simple a term!
But when I think of what the religious folk have done to us in the past, I think I'll take some weird medicine that probably won't work!
Sincerely,
Matt |
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EXPECIALLY
Phoenix
Joined: Oct 21, 2011
Age: 29
Posts: 700
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| Posted: Sat Jan 21, 2012 12:39 pm Post subject: |
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| Sibyl wrote: | | EXPECIALLY wrote: |
In my case, TRAITS of AS explain what I always thought was my "mysterious defect". I'm not self-DXed, I don't think most docs would DX me with it. Just reaffirm the ADHD diagnosis, but WrongPlanrt ha still explained a lot for me. |
I'm already on Retirement Social Security, and my diagnosis (I've known since forever that I have Clinical Depression: just looking at that name instead of "Major Depressive Disorder" should tell you _how_ long) took me by surprise -- and finding out more about it, I got exactly the same reaction to what I'd always known, my "mysterious defect". Just so wonderful to know that it's just Asperger's, not something Evil in me that other people can "smell". I'd had an idea that the Depression might account for it, but it just didn't entirely fit, when I was looking at Depressive symptoms and characteristics. Learning about it also informs me to communications difficulties that I had never even _noticed_, so I can learn my way around them. |
Exactly. I'm somewhere in between AS and ADHD I suppose, but never did fit in well with the ADHD DX, even as a kid. Loved to read for hours on end, had little trouble academically (but had temper tantrums, refused to cooperate in class, etc.)
I do have some traits of ADHD, though, like most people on the spectrum do. I lose everything I own about every 15 minutes (an exaggeration, but on some days it's truth lol) I am in my own world, I don't listen in conversation.
So maybe I'm a very mild Aspie or an NLVDer, either way, I REALLY also thought there was something just very wrong with me that I'd never figure out.
_________________
AD/HD BAP.
HDTV...
Whatever. |
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Matt62
Phoenix
Joined: Jan 05, 2012
Age: 51
Posts: 1178
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| Posted: Sat Jan 21, 2012 2:04 pm Post subject: |
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There is also the fact that in the past, in college, I brought up my problems. What did my counselors do? Put me in Group herapy!
Yeah, that worked..
Not at all. I hate talking in groups.
Matt |
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Bun
Bunnymen
Joined: Jan 09, 2012
Posts: 3250
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| Posted: Sat Jan 21, 2012 2:44 pm Post subject: |
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I almost got put in Dance Therapy.  But I said I didn't want to go. |
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