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Dillogic
you know how it goes
Phoenix


Joined: Nov 25, 2011
Posts: 3298

PostPosted: Thu Mar 22, 2012 7:51 pm    Post subject: Reply with quote

Generally, it's in comparison to your peers that defines disability (peers of age and intelligence level without the disorder in question).

You can be fine with it all, of course, but there's still objective measures for these things, which is why we have these labels.
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fragileclover
Velociraptor
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Joined: May 22, 2009
Posts: 496

PostPosted: Tue Apr 10, 2012 1:07 am    Post subject: Reply with quote

OJani wrote:
First, congrats, and thank you for clarifying by sharing so many details.

fragileclover wrote:
Alexender wrote:
In what way well this help you out? just wondering sense I have some people looking to get me diagnosed, but it would cost a lot of money. Not trying to be mean by asking this.


Knowing that I have Aspergers (even prior to diagnosis) helped me begin to create solutions with my boyfriend for troubles in our relationship, but only after HE accepted that I had AS, which he didn't until I went for diagnosis (he then realized I was serious). Knowing WHY I behave certain ways will help me think of solutions with my family, employer and friends, who currently think I'm just childish, lazy, distant and a 'know it all." I was tired of being misunderstood, and I'm hoping an official diagnosis will help somewhat.

You are perfectly right.

A little thought about my dx. While I accept that my dx says I'm on the spectrum, I can't accept that it says I have the rather unspecific PDD-NOS, while I have most of the typical traits of AS, except for good verbal memory, perhaps, which is not really a definitive criterion, afaik. It's though my psychs tried to tell that my symptoms aren't that severe anyway, which I firmly disagree with, for the very reasons that have been mentioned here in this thread. Anyway, my (almost) one and only relationship (at 36) with a woman fell apart miserably a year later, though I had more fortune with jobs and friends, I think.

I'm still interested in your IQ subscales.
Smile



Here ya go! I just got my report today.


VERBAL SUBTESTS

Information: 13
Similarities: 13
Vocabulary: 17
Comprehension: 14
Arithmetic: 12
Digit Span: 10

PERFORMANCE SUBTESTS

Picture Completion: 12
Matrix Reasoning: 13
Block Design: 11
Digit Symbol-Coding: 12
Picture Arrangement: 15
Symbol Search: 11

VERBAL COMPREHENSION INDEX=124 (95th percentile)
PERCEPTUAL ORGANIZATION INDEX=111 (77th percentile)
PROCESSING SPEED INDEX=108 (70th percentile)

VERBAL SCALE IQ=119 (90th percentile)
PERFORMANCE SCALE IQ=117 (87th percentile)
FULL SCALE IQ=120 (91st percentile)
_________________
Aspie Quiz: AS - 141/200, NT - 77/200 (Very likely an Aspie)
AQ: 34/50 (Aspie range)
EQ: 32 / SQ: 68 (Extreme Systemizing / AS or HFA)
Diagnosed with AS and Anxiety Disorder - NOS on 03/21/2012
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zeldazonk
Tufted Titmouse
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Joined: May 30, 2011
Posts: 47

PostPosted: Tue Apr 10, 2012 4:37 am    Post subject: Reply with quote

fragileclover wrote:


It's bizarre to me that people, both on and off the spectrum, believe that those with ASDs have to be unable to take care of themselves or require extensive support in order to get a diagnosis. I have all of the clinically required symptoms, dozens of secondary symptoms related to AS, and have issues in my life that drove me to seek diagnosis, versus accepting my own self-diagnosis. This is why I believe that the DSM-V, though nowhere near perfect, is at least on the right track in terms of defining one's Autism diagnosis by a need for support and severity of symptoms. There are people with Classic Autism who function better than some with AS, which people can't seem to believe or understand, either.


Hi Fragile & congrats on your dx.
I think you and I were diagnosed in the same week!

You made the following comment in a post in a thread I started:
"Note that 'high functioning' is not your diagnosis, though, it's just a remark about you display your symptoms." (Did your psych explain it that way Question )
I found that very helpful because I feel like that term makes it sound like I'm doing just fine and I've got it all sorted out, no worries.
Hearing all your details & knowing that you're considered high functioning too makes me realise that it's just a term that means you've figured out how to pretend very well.

I know that without medication, my wonderful partner and wealthy parents, I wouldn't seem anywhere near as "high functioning".

Best, Zel.
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fragileclover
Velociraptor
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Joined: May 22, 2009
Posts: 496

PostPosted: Tue Apr 10, 2012 6:50 am    Post subject: Reply with quote

zeldazonk wrote:
fragileclover wrote:


It's bizarre to me that people, both on and off the spectrum, believe that those with ASDs have to be unable to take care of themselves or require extensive support in order to get a diagnosis. I have all of the clinically required symptoms, dozens of secondary symptoms related to AS, and have issues in my life that drove me to seek diagnosis, versus accepting my own self-diagnosis. This is why I believe that the DSM-V, though nowhere near perfect, is at least on the right track in terms of defining one's Autism diagnosis by a need for support and severity of symptoms. There are people with Classic Autism who function better than some with AS, which people can't seem to believe or understand, either.


Hi Fragile & congrats on your dx.
I think you and I were diagnosed in the same week!

You made the following comment in a post in a thread I started:
"Note that 'high functioning' is not your diagnosis, though, it's just a remark about you display your symptoms." (Did your psych explain it that way Question )
I found that very helpful because I feel like that term makes it sound like I'm doing just fine and I've got it all sorted out, no worries.
Hearing all your details & knowing that you're considered high functioning too makes me realise that it's just a term that means you've figured out how to pretend very well.

I know that without medication, my wonderful partner and wealthy parents, I wouldn't seem anywhere near as "high functioning".

Best, Zel.


I am unable to argue with the term 'high functioning' being applied to me, because as far as I can tell, it's very true. There's nothing at all obvious about me in terms of my AS, unless one is very close to me and has a much more in depth understanding of AS than the textbook definition. My most apparent problem some years ago was an issue with eye contact, but once someone pointed it out to me, I made a conscious effort to make eye contact, even if brief. I'm also very quiet around people, because I am incapable of small talk, but this has been misinterpreted as me not liking the person in question, or just being shy.

Often when I'm alone, I'll begin to doubt myself and my diagnosis, because in those moments, I feel normal. When I'm at work, and I interact with customers proficiently, I feel normal. When I smile and laugh and go on with the few friends I do have, I feel normal. Then I have an experience like yesterday evening, when I had plans to meet my stepbrother and his girlfriend for dinner at 8, right from work, and then there ended up being some severe family drama at home, and they sent me a text to see if I could come home instead, and we would go later. I couldn't answer them because I was paralyzed. The change to the plans literally shut off my ability to function in that moment, and I began to rock and cry. Then there are the times when a customer at work asks me something 'off script', and I begin to fumble my words, unable to think quickly enough to give them a concise answer. Then there are times when I smile and laugh when I get a text saying my dad and stepmom are fighting, and he just called her, whom I adore, a horrible parent.

I am labeled 'high functioning' appropriately, because I could live and function every day on my own, and I could get by without most people ever noticing that anything was wrong. No one ever did notice, until my boyfriend and I began dating, and I actually spent a great deal of time with another person. I'm 'high functioning' because I was quite successful in high school, and graduated summa cum laude, top of my class, from college, and have held down a job for 9 consecutive years.

Yes, in general, I do believe 'high functioning' indicates an ability to fake 'normal' in most situations, but also remarks on your level of success in various pursuits, like school, work and relationships. My troubles are clear in a clinical setting, but even my psych said that had I not discovered Asperger's on my own, I would have never ended up in his office.
_________________
Aspie Quiz: AS - 141/200, NT - 77/200 (Very likely an Aspie)
AQ: 34/50 (Aspie range)
EQ: 32 / SQ: 68 (Extreme Systemizing / AS or HFA)
Diagnosed with AS and Anxiety Disorder - NOS on 03/21/2012
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zeldazonk
Tufted Titmouse
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Joined: May 30, 2011
Posts: 47

PostPosted: Tue Apr 10, 2012 7:16 am    Post subject: Reply with quote

fragileclover wrote:


Yes, in general, I do believe 'high functioning' indicates an ability to fake 'normal' in most situations, but also remarks on your level of success in various pursuits, like school, work and relationships. My troubles are clear in a clinical setting, but even my psych said that had I not discovered Asperger's on my own, I would have never ended up in his office.


Thanks Fragile,

I hope I didn't seem to belittle your achievements with my "...you're high functioning..."
That certainly was not my intention.

Best, Zel.
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fragileclover
Velociraptor
Velociraptor


Joined: May 22, 2009
Posts: 496

PostPosted: Tue Apr 10, 2012 1:43 pm    Post subject: Reply with quote

zeldazonk wrote:
fragileclover wrote:


Yes, in general, I do believe 'high functioning' indicates an ability to fake 'normal' in most situations, but also remarks on your level of success in various pursuits, like school, work and relationships. My troubles are clear in a clinical setting, but even my psych said that had I not discovered Asperger's on my own, I would have never ended up in his office.


Thanks Fragile,

I hope I didn't seem to belittle your achievements with my "...you're high functioning..."
That certainly was not my intention.

Best, Zel.


Oh, no. I didn't take offense to that.
_________________
Aspie Quiz: AS - 141/200, NT - 77/200 (Very likely an Aspie)
AQ: 34/50 (Aspie range)
EQ: 32 / SQ: 68 (Extreme Systemizing / AS or HFA)
Diagnosed with AS and Anxiety Disorder - NOS on 03/21/2012
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OJani
a brat
Phoenix


Joined: Feb 24, 2011
Age: 40
Posts: 2320
Location: Budapest, Hungary, Europe

PostPosted: Tue Apr 10, 2012 4:34 pm    Post subject: Reply with quote

PM sent. Smile
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SolAngel
Tufted Titmouse
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Joined: Jan 23, 2012
Posts: 25

PostPosted: Tue Apr 10, 2012 5:01 pm    Post subject: Reply with quote

So, how does it feel to have the diagnoses? What kinds of tests did they give you besides an I.Q. test?
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fragileclover
Velociraptor
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Joined: May 22, 2009
Posts: 496

PostPosted: Tue Apr 10, 2012 7:58 pm    Post subject: Reply with quote

SolAngel wrote:
So, how does it feel to have the diagnoses? What kinds of tests did they give you besides an I.Q. test?


It feels like a relief, but strange, also...kind of surreal. Like, wait, you mean I was right? This was me all along?

This is the list of instruments and evaluations utilized on my report:

WAIS-III
SLC-90-R: symptom checklist
Current Symptoms Scale
Childhood Symptoms Scale
Incomplete Sentences Form
Friendship Questionnaire (FQ)
Barkley Deficits in Executive Functioning Scale (one filled out by me, one by my boyfriend about me)
Multimodal Life History Questionnaire

He also included in the report the 20 pages of notes about myself that I gave to him, and all of the self-assessments that I completed online, which I gave him the results for:

Adult Asperger Assessment - AQ and EQ
Broad Autism Phenotype Test
Alexithymia
Highly Sensitive Person test
Mind in the Eyes
Face Recognition
Aspie Quiz
Ritvo Autism/Asperger Diagnostic Scale
_________________
Aspie Quiz: AS - 141/200, NT - 77/200 (Very likely an Aspie)
AQ: 34/50 (Aspie range)
EQ: 32 / SQ: 68 (Extreme Systemizing / AS or HFA)
Diagnosed with AS and Anxiety Disorder - NOS on 03/21/2012
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