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Moromillas
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15 Jul 2014, 1:39 am

cubedemon6073 wrote:
Well, it looks like he took down all of his articles. I asked him thorough questions and asked him to give specific, concrete examples. What is he afraid of? In fact, what are people afraid of when it comes to autism and aspergers? Why are they wanting to cure us so bad? Why don't we ever hear this for things like schizophrenia, bipolar, Williams syndrome? Why? What is it about us that differs from other disorders?


The same sort of resistance to accept any other minority, the fear that it will somehow negatively impact your life, or the society you live in.

You can see this happening with other examples, not just Autism.
The anti-Semitism of the Nazi party.
The racial history in the Americas.
Gay marriage rights, I'm sure there are other examples people can find.
Though I wish our history wasn't so extreme, the common theme does seem to be a fear that it will change your life for the worst.



ASPartOfMe
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01 Aug 2014, 3:45 am

cubedemon6073 wrote:
Well, it looks like he took down all of his articles. I asked him thorough questions and asked him to give specific, concrete examples. What is he afraid of? In fact, what are people afraid of when it comes to autism and aspergers? Why are they wanting to cure us so bad? Why don't we ever hear this for things like schizophrenia, bipolar, Williams syndrome? Why? What is it about us that differs from other disorders?


I did noticed it was gone. I don't know if it was the opposition, or a software glitch. Weird things happen with web links sometimes. Because of the possibility it was a glitch and it might come back under another link I did not change my signature or take down the petition right away. The article is not back and but all other asperger articles as well as other are blogs by Dr. Nemko still there, so it was PROBABLY us. I have updated the petition noting the article has been removed and I will remove it in a week or so.

Whether the negative reactions had anything to do with the articles removal or not there are lessons to be learned. We do not have to accept these things being said about us or the defeatist logic so prevalent here and in the autism advocacy community in general, that any publicity is better then none. In this internet era while they are a good thing to have you do not need big name Advocacy organizations or people. I emailed ASAN and John Robison (he blogs for PT) and did not get a response. As far as I can tell it was a grass roots response. We need to be patient. We are do not have the skills required for this type of endeavor so these things will take time.

I thank anybody did participate in any way. You DID something about it. Remember that.


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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Moromillas
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01 Aug 2014, 7:38 am

ASPartOfMe wrote:
I did noticed it was gone. I don't know if it was the opposition, or a software glitch. Weird things happen with web links sometimes. Because of the possibility it was a glitch and it might come back under another link I did not change my signature or take down the petition right away. The article is not back and but all other asperger articles as well as other are blogs by Dr. Nemko still there, so it was PROBABLY us. I have updated the petition noting the article has been removed and I will remove it in a week or so.

Whether the negative reactions had anything to do with the articles removal or not there are lessons to be learned. We do not have to accept these things being said about us or the defeatist logic so prevalent here and in the autism advocacy community in general, that any publicity is better then none. In this internet era while they are a good thing to have you do not need big name Advocacy organizations or people. I emailed ASAN and John Robison (he blogs for PT) and did not get a response. As far as I can tell it was a grass roots response. We need to be patient. We are do not have the skills required for this type of endeavor so these things will take time.

I thank anybody did participate in any way. You DID something about it. Remember that.


Sorry, that went over the top of my head. What endeavor or undertaking is going on, shooting for?



ASPartOfMe
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01 Aug 2014, 6:53 pm

Moromillas wrote:
ASPartOfMe wrote:
I did noticed it was gone. I don't know if it was the opposition, or a software glitch. Weird things happen with web links sometimes. Because of the possibility it was a glitch and it might come back under another link I did not change my signature or take down the petition right away. The article is not back and but all other asperger articles as well as other are blogs by Dr. Nemko still there, so it was PROBABLY us. I have updated the petition noting the article has been removed and I will remove it in a week or so.

Whether the negative reactions had anything to do with the articles removal or not there are lessons to be learned. We do not have to accept these things being said about us or the defeatist logic so prevalent here and in the autism advocacy community in general, that any publicity is better then none. In this internet era while they are a good thing to have you do not need big name Advocacy organizations or people. I emailed ASAN and John Robison (he blogs for PT) and did not get a response. As far as I can tell it was a grass roots response. We need to be patient. We are do not have the skills required for this type of endeavor so these things will take time.

I started an online petition to have psychology today remove the article.

I thank anybody did participate in any way. You DID something about it. Remember that.


Sorry, that went over the top of my head. What endeavor or undertaking is going on, shooting for?


I started an online petition to have Psychology Today remove the article. There was my petition, some people blogged about the article, a lot of people commented in the comments section of the article. Any type of advocacy like this is a marketing campaign. It involves contacting people, networking etc. People on the spectrum are not naturally skilled at this


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“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


MelissaCho
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08 Aug 2014, 9:49 pm

lostonearth35 wrote:
I can't take much more of this male-bovine-excretement from the media. I wish I was never born.
Don't let a couple of bozos get you down.



GregCav
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14 Aug 2014, 7:30 am

cubedemon6073 wrote:
Well, it looks like he took down all of his articles. I asked him thorough questions and asked him to give specific, concrete examples. What is he afraid of? In fact, what are people afraid of when it comes to autism and aspergers? Why are they wanting to cure us so bad? Why don't we ever hear this for things like schizophrenia, bipolar, Williams syndrome? Why? What is it about us that differs from other disorders?


I've come to the conclusion that they really do have a herd mentality.

They talk about crowd mentality, and that once you're in a crowd, you do what the crowd does.
They don't feel comfortable making their own decisions, they need affirmation from someone else that their idea is a good one. Or a meeting, or committee.
They get bored or lonely if they don't talk to a friend on the phone that day.
They are really insecure.
If you don't call them by the end of they day, they're off believing you don't love them any more.

And yea, I'm disappointed the article has been disappeared from Psychology Today. They can't admit they were wrong, they couldn't leave the article up to demonstrate opposition to the idea. They try to disappear the article, to pretend it never happened. The shame is all on them in my opinion.



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29 Aug 2014, 10:20 pm

Ann2011 wrote:
cubedemon6073 wrote:
In fact, what are people afraid of when it comes to autism and aspergers? Why are they wanting to cure us so bad? Why don't we ever hear this for things like schizophrenia, bipolar, Williams syndrome? Why? What is it about us that differs from other disorders?

Good question. It is like people are afraid of us.


Conformity vs. nonconformity. People can't not conform that'd be chaos and anarchy! We don't tend to conform, therefore we threaten normals. All abnormalities have stigma, why do we have it worse? We probably don't. We just have different stigma. I would like to think is that we are a bit more stable than some of the others. The schizophrenics can be very delusional and therefore are easily dismissed off hand, once diagnosed though they can lose all credibility for the rest of their lives. Imagine never being believed? Williams Syndrome isn't well known in modern society, but in history has had some bad stigma. Bipolar people don't get too bad of a stigma unless you call it by another synonym, "manic depression." When that term is used instead of bipolar, people tend to assume you are psychotic killer.
The fear is based on stereotypes on the term, it's probably easier to abandon the label and choose something new. Most people don't understand Autism and tend to associate it with being mentally ret*d and incapable of functioning, they are wrong of course. Most people don't link autism with aspergers, and those that do know they are on the same spectrum don't understand it in the first place.
Right now there are organizations who are using fear to gain profits, which is something the other "nonconformists of thought" don't have against them. Organizations like Autism Speaks are going out of their way to create that fear, which is what is causing the stigma of fear. Fear sells.



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31 Aug 2014, 5:29 am

GregCav wrote:
cubedemon6073 wrote:
Well, it looks like he took down all of his articles. I asked him thorough questions and asked him to give specific, concrete examples. What is he afraid of? In fact, what are people afraid of when it comes to autism and aspergers? Why are they wanting to cure us so bad? Why don't we ever hear this for things like schizophrenia, bipolar, Williams syndrome? Why? What is it about us that differs from other disorders?


I've come to the conclusion that they really do have a herd mentality.

They talk about crowd mentality, and that once you're in a crowd, you do what the crowd does.
They don't feel comfortable making their own decisions, they need affirmation from someone else that their idea is a good one. Or a meeting, or committee.
They get bored or lonely if they don't talk to a friend on the phone that day.
They are really insecure.
If you don't call them by the end of they day, they're off believing you don't love them any more.

And yea, I'm disappointed the article has been disappeared from Psychology Today. They can't admit they were wrong, they couldn't leave the article up to demonstrate opposition to the idea. They try to disappear the article, to pretend it never happened. The shame is all on them in my opinion.

While I do think not having the article there possibly costing people jobs is preferable to having it there, it would have been much more preferable if they apologized instead of making it ?disappear? after most of the damage was done


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“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


gonewild
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01 Sep 2014, 11:33 am

Psychology is not a field of SCIENCE or a Medical discipline. It's closer to being a religion, with high priests who dictate what a human being should be - they dictate behavior that is narrow, restrictive, and which leaves out MOST human beings. Their "tests" are rigged for the outcome they want; most of their "studies" fail the standards for being scientific. Their conclusions are laughable.

They describe what they consider "normal" when no such thing as a normal human being exists. Psychologists have a desire to control people: their goal is to tell convince people that they are defective and then offer treatment - it's a profit-making industry. Who gave these people the right to sit in judgment on human value? It's time to QUESTION the validity of Asperger's as a disorder: there is far more evidence that we are a RARE TYPE of human with a particular set of personality traits.

Much of our distress comes from having to deal with a sick social environment that is not healthy for so-called "normal" people either.



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01 Sep 2014, 5:31 pm

Any social science finding is only as good as the methodology/design of the research and the way they use statistical processes and selections to report the findings. One of the biggest hidden biases is that they may report only part of the statistical analyses, the part that supports their theory - just like Big Pharma (who learned from the academic psychologists how to warp reported results). Researchers know that they don't build academic careers, nor find future research funding, by showing that their theories are wrong. So the whole field of academic psychology is biased by personal ambition, the same old quest for status, power, promotion, influence, more money.

Certainly the proponents of behaviourism acted like fundamentalist religious freaks in the 20th century, and dominated teaching in universities for a long time. Mercifully they are discredited now, though the ethos of academic psychology now is not much changed.



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20 Dec 2014, 1:35 pm

lostonearth35 wrote:
I can't take much more of this male-bovine-excretement from the media. I wish I was never born.


Don't say that! We need each and every person on planet Earth...whether it's the right or wrong planet for them.