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speedypg1979
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07 Sep 2014, 7:35 am

I feel like my arms and legs don't belong to me and also when I am lying on my bed with my eyes shut I have no idea where my arms hands legs are in space and time, if they are crossed or if my hands are together or by my side, these feeling are really taking its toll and often think of committing suicide, which I have tried 3 x so far. I have seen mental health workers, neurologists, everyone and no one has a clue what is wrong with me, i am considering electric shock treatment. I have researched into neurology like a nutcase and cant really come up with any answers other than there is a part of your brain around your cerebral cortex which is responsible for where you arms and legs are with in space and time and maybe this has malfunctioned in some way. I believe that if I had access to fmri machine (functional magnetic resonance imaging) and a trans cranial magnetic stimulator I might be able to help myself but obviously this is not easy to come buy. I have written numerous letters to oxford neuroscience department without any joy. does anyone have any idea what I am talking about????? its that bad that everyday is a massif struggle not to kill myself. I am currently taking 45mg mitazipine 100mg lamotrigine and 2mg of clanazipam, the only drug I find that helps is benzo's which is not good long term. I do not suffer with anxiety or depression but obviously get depressed as a result of my condition. thanks for taking the time to read my rather long message



CJ404
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07 Sep 2014, 10:44 am

That sounds really tough to deal with. I think you wouldn't be able to tell anything from an fMRI though, as you only see when areas of the brain are being used - for example imagining playing tennis would light up a different zone of the brain to imagining talking to someone. It's good you're in contact with mental health services though as this feeling about your arms and legs is making you feel depressed and suicidal. Do your meds help with the feeling in your arms and legs, or are they for the depression?
I know things might suck right now, but just keep ploughing through and hopefully things will change for the better



SignOfLazarus
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07 Sep 2014, 7:47 pm

It sounds something likes issues with proprioception, sensory/motorsensory issues... many neurologists should at least be able to recognize this sort of issue so I would suspect perhaps you may be having issues communicating your difficulties?

Many on the autism spectrum have some degree of proprioception issues but you don't clearly identify as being on the spectrum in any way so I can't contribute anything else from my personal experience. Also, just because you write of things that seem similar to what I think may be proprioception issues it doesn't mean that is what is going on OR that you are necesarily on the spectrum, I just thought I would throw those ideas out there. Maybe you could discuss either with a provider.


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Sweetleaf
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08 Sep 2014, 12:46 am

Does this only happen when you are lying on your bed with your eyes shut? Also I'd say you should get some help ASAP if you are sucidal to the point of potentially acting on it. However I have to admit if this only occurs when you're on your bed with your eyes shut and that is the only issue its very hard for me to understand why it makes you suicidal....is it because you're worried there is something horribly wrong or its just that unpleasant to deal with? I feel quite weird a lot when drifting off to sleep, sometimes might feel like I am just floating and don't exactly recognize where my arms and legs are or what position but I figured everyone got that sometimes.


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Katniss
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12 Sep 2014, 1:35 pm

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