PlainsAspie wrote:
Amen. Alex has made huge contributions to the autistic community. If he didn't take funding the Autism $peaks, the money would have gone somewhere else, such as a scare ad campaign or a risky clinical trial.
Wow, it would have been great if there were more Autism Speaks haters like you, to have been around to support Alex during his trying years when he actually did receive funding from Autism Speaks.
Now that he no longer does, to use your logic and to explore the issue more thoroughly there will more funding available to research the condition of Fragile X-syndrome, a direct causal factor of approximately 5 percent of Autism Spectrum Disorders, according to research funding by the CDC. This comprises two and a half times more, demographically speaking, than the approximated 2 percent of females researched as existing on the spectrum as a percentage quantity of additional research sponsored by the CDC when that diagnosis was still available in the DSMIV per US measures of Autism specific spectrum disorders across the spectrum specific to Asperger's syndrome where males with Asperger's syndrome constituted slightly more at 7 percent of the entire spectrum.
Fragile X-syndrome sufferers often suffer a mid-life premature death where they slowly lose their cognitive faculties in a fate than not many people would wish on others, as one not properly researched and addressed for an effective remediation of cure, as is part of Autism Speaks and the Simon's Foundations goal to help humanity with less suffering in this world.
Additionally, Autism Speaks has funded research associated with 22Q11 deletion syndrome, also a direct causal factor associated with the autism spectrum, involved with auto-immune system deficiencies that my child actually died from at a very young age.
To suggest that what Autism Speaks does, does not contribute to potential eventual life saving measures for many children on the spectrum with these co-morbid conditions that are direct causal factors, is simply not to be aware fully of what the organization does, and not realize fully, of how people with these co-morbid conditions do suffer in life, with shorter lives as a direct association with these co-morbid conditions that Autism Speaks directly funds along with many other organizations like the Simon's foundation to help reduce suffering among humanity.
Now, if you cannot see the value of that, that overrides a few conspiracy theories about mis-intent of the organization's actual goals to help reduce suffering at this point, there is nothing I can further do to help you understand that other than to present to reams of research material to prove my point, and I've already done that ad-nauseam on this site, and many other sites that purport conspiracy theories about the organization, just to bide my time, while suffering myself from the worst pain known to mankind for five solid constant years, known as type two trigeminal neuralgia. In other words it was all I had to get my mind off of my pain.
All that information remains in my head, but I've got much greener pastures to pursue now, than a circular argument against an organization that will potentially reduce suffering among children like mine, eventually, and maybe even save their life.
When you have a child that dies, yes actually dies from a co-morbid condition associated with the autism spectrum, that Autism Speaks is funding with many many other organizations and private donors who have also lost children to precisely the same genetic co-morbid disease/casual factors, to potentially eventually remediate to potentially save lives, then come back and tell me how bad WHAT AUTISM SPEAKS DOES IS, as an organization, and I'll continue to lend you an ear on THAT ONE, my not fully informed friend, and more fully informed now, if it helps at all, which I do NOT EXPECT it will, as it has been predictable in the past, among SOME demographics, online, so yes I fully expect that, if any response at all.
OTHER THAN that I'm glad you are supporting Alex now, in what he intelligently did, to make it in life, as that is what folks who truly want to survive in life, do. They work to survive, and adapt to do, whatever it takes, to survive.
Some folks like my child, don't get that opportunity and that's where altruistic all volunteer efforts like what the founders of Autism Speaks, and Mr. Simon a billionaire philanthropist for the Simon's foundation are worth their weight in gold, in an immeasurable way to those, who truly suffer from some of the horrific symptoms of co-morbids that ARE DIRECT CAUSAL FACTORS for tens of thousands of more cases of autism, than will ever set foot online to be able to fully discuss it, without personal suffering.
I need not worry, or fret over that, as there are other people who do fill those very big shoes of effort, In REAL LIFE, working their tails off to make lives better for those children, with more than words, yes, in REAL LIFE, NOW AS we talk about it online.
And IF YOU EVER HAVE A CHILD THAT DIES FROM ONE OF THESE CO-MORBID CONDITIONS, IT IS ONLY A COMPLIMENT ON MY PART TO YOU, AS PER YOUR BASIC HUMAN HUMANITY, that you then will be as passionate about this, as I am now per basic human empathy in YOUR CONCERN, over these children who do SUFFER NOW, FROM the co-morbid genetic conditions that are direct causal factors of conditions on the Autism Spectrum, NOW, in my passionate and yes very well educated opinion on this matter, expressed as such fully here, without fear of the censorship I have received from sites that do not allow these educated opinions that further perpetuates the conspiracy theories for those who feed into them, for whatever reason, they do.
Last edited by aghogday on 22 Oct 2014, 12:25 pm, edited 4 times in total.
21 Oct 2014, 7:37 am
