| Do you eat CF/GF Diet? |
| yes, i eat and it help me |
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26% |
[ 20 ] |
| no, i don`t |
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70% |
[ 53 ] |
| yes, i eat ; but it don`t help me |
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2% |
[ 2 ] |
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| Total Votes : 75 |
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hhyyjj163
Yellow-bellied Woodpecker
Joined: Jun 19, 2007
Age: 39
Posts: 69
Location: wuhan,china
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 Posted: Thu Jul 12, 2007 10:05 am Post subject: Do you eat gluten-free casein-free diet? |
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gluten-free casein-free diet (or GFCF diet) is a restrictive diet which entirely eliminates intake of the naturally-occurring proteins gluten (found naturally in wheat, barley, and rye), and casein (found in milk). The GFCF diet is recommended by advocacy groups, such as the Autism Research Institute, to reduce the prevalence of certain behaviors associated with pervasive developmental disorders, especially autism.
more information ,visit this web
http://en.wikipedia.org/wiki/Gluten-free%2C_casein-free_diet
I have eat GF/CF Diet for about a month.
but it don not work for me.
_________________
i have Asperger,adhd,Claustrophobia,Depression,Avoidant personality disorder,socal anxiety disorder
Last edited by hhyyjj163 on Thu Jul 12, 2007 11:21 am; edited 1 time in total |
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Bart21
Phoenix
Joined: Mar 29, 2006
Posts: 663
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| Posted: Thu Jul 12, 2007 11:10 am Post subject: |
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| No, i don't. |
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DandyLyon
Tufted Titmouse
Joined: Jun 29, 2007
Posts: 39
Location: Kurri Kurri, NSW, Australia
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| Posted: Thu Jul 12, 2007 11:57 am Post subject: |
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I eat quite a few gluten free meals, but it's nothing to do with my Asperger's. My partner (who does not have AS) has Coeliac's Disease which is an intolerance to gluten. In layperson's terms, gluten damages the villi in the intestines. Without healthy villi, you can't absorb nutrients and vitamins. Undiagnosed people with Coeliac's Disease can have IBS symptoms such as diarrhoea, cramping and constipation. In rare and severe cases, anaphylaxis or psychiatric symptoms (which have in the past been mistaken for schizophrenic) may present.
I'm very sceptical about this diet. I know a lot of people on the spectrum have higher than average trouble with allergies. It would make sense for some people to be helped by removing wheat and milk - two of the main food allergens. I'd imagine it would help with behaviour problems with both NT and autistic kids, if they're sensitive to the gluten or casein proteins. But I think claiming it as a cure-all is just plain silly. As the wikipedia article states, most of the hype is from people promoting it and individuals. It's bad science. The one genuine study that it mentions states that in a double-blind, there was no discernible difference between kids on the diet and not on the diet.
I read Karyn Seroussi's book a few months ago, and remember feeling disgusted that she seemed to think anyone who wasn't helped by the diet "wasn't put on it soon enough". She started dribbling on about how people with things like Down's Syndrome, schizophrenia and other conditions should all be on this diet, how it could fix them. She sounded like a zealot, almost like a cult member. She had seen the "light" and couldn't imagine anyone doing anything different. Parents out there not using the diet seemed in her eyes to be doing tantamount to child abuse, feeding their kids regular foods.
The other major problem I see with the diet is it's something that MUST be managed by a doctor or dietician. Any radical change in diet can't be done alone, ESPECIALLY if it's to be done on a child or someone with limited communication. The majority of vegetarians who do it alone without doing their homework end up anaemic, or with other deficiencies. This is because they just decide to give up meat, and don't compensate for the lack of nutrients they could be getting from meat in their new diet. Talk to anyone who's been a vegetarian for many years, and you'd find out how carefully they manage their protein intake so they don't end up with complications. Going gluten and/or casein free is no different. Gluten is found in wheat, barley, oats and rye, and anything made from these. You'd be surprised what you'd find gluten in. Casein as far as I know is in just about anything dairy. I can only imagine how many people out there are getting sucked in by the hype and just cutting these out of their kids' or their own diets without realising that if it's not done properly, they or their family could get very sick.
So yeah, GF/CF diet - okay for some IF THEY ARE SENSITIVE. Not a cure-all. Definitely not a "cure" for autism.
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Aspiealidocious. |
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IdahoRose
Imaginary Friend
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Joined: Feb 25, 2007
Age: 22
Posts: 18651
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| Posted: Thu Jul 12, 2007 12:47 pm Post subject: |
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I'm on the eat-whatever-I-feel-like-eating diet.  |
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KenSan
Yellow-bellied Woodpecker
Joined: Jul 01, 2007
Posts: 64
Location: Berlin
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| Posted: Thu Jul 12, 2007 3:33 pm Post subject: |
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My mom figured out through trial (it was a trial for me) and error when I was younger that a gluten free diet helped reduce what I know see to be my Asperger's symptoms when I was younger. All she saw at the time was behavior problems, but they really fit everything.
The sad part is that now that I've mentioned Asperger's to her as an adult, she says "I think if you do have it, it's a mild case," and I'm like, "No sh** sherlock(no I didn't really say that), of course it's mild, I'm TREATING it with my diet!" She doesn't recognize how really bad things were for me when I was eating gluten when I was younger. *sigh*
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Demain il y a une autre jour.
Alles, was uns begegnet, läßt Spuren zurück. Alles trägt unmerklich zu unserer Bildung bei. |
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woodsman25
The Dude
Joined: May 19, 2007
Age: 31
Posts: 2437
Location: NY
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| Posted: Thu Jul 12, 2007 4:11 pm Post subject: |
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| Jeeze, i always thought these new theories were BS, but they r widly excepted, i have not read any madical evidence so far to suggest they work, but im sure its out their, maby i need to open my mind, for now, im pouring a glass of milk, and eating some ice cream! |
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Pugly
Man-child diligently becoming a Dude, man
Joined: Jan 10, 2005
Age: 30
Posts: 2809
Location: Wisconsin
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| Posted: Thu Jul 12, 2007 5:01 pm Post subject: |
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I've been kind of curious about Coeliac's Disease. I've always had strange digestion problems.
I don't really feel any different no matter what foods I eat. I would be willing to try going with out gluten... and see what happens.
I like too many foods with dairy in them to even attempt a casein-free diet.
_________________
Wonder what it feels like to be in love?
How would you describe it, like a push or shove?
Guess I could pretend that this is all I need
Wanting more than what I have might appear as greed.
Last edited by Pugly on Thu Jul 12, 2007 7:52 pm; edited 1 time in total |
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TheMachine1
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Joined: Jun 12, 2006
Posts: 9092
Location: 9099 will be my last post...what the hell 9011 will be.
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| Posted: Thu Jul 12, 2007 5:24 pm Post subject: |
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| Seems to help a small percentage of people who try it. I never tried it as milk and wheat are too common in my diet. |
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rdos
Phoenix
Joined: Jul 07, 2005
Age: 51
Posts: 1469
Location: Sweden
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| Posted: Fri Jul 13, 2007 5:07 pm Post subject: |
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| TheMachine1 wrote: | | Seems to help a small percentage of people who try it. I never tried it as milk and wheat are too common in my diet. |
Not really small and the problem really isn't trivial. Gluten-intolerance surely doesn't cause autism, but it surely makes it a whole lot harder for the person to function. I've had diarrhea ever since a child and have always been thin and running in "energy-save-mode" because of this. After I stopped with gluten I rarely have diarrhea and I've even managed to gain some weight. Besides, having untreated gluten intolerance predisposes you to cancer.
Look here for the "prevalence" of diarrhea in autism: http://www.rdos.net/eng/aspeval/#480. |
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TheMachine1
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Joined: Jun 12, 2006
Posts: 9092
Location: 9099 will be my last post...what the hell 9011 will be.
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| Posted: Fri Jul 13, 2007 5:18 pm Post subject: |
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| rdos wrote: | | TheMachine1 wrote: | | Seems to help a small percentage of people who try it. I never tried it as milk and wheat are too common in my diet. |
Not really small and the problem really isn't trivial. Gluten-intolerance surely doesn't cause autism, but it surely makes it a whole lot harder for the person to function. I've had diarrhea ever since a child and have always been thin and running in "energy-save-mode" because of this. After I stopped with gluten I rarely have diarrhea and I've even managed to gain some weight. Besides, having untreated gluten intolerance predisposes you to cancer.
Look here for the "prevalence" of diarrhea in autism: http://www.rdos.net/eng/aspeval/#480. |
One of the theories on the mechanism of action of gluten (and casein) in autism is it digest to peptides that are similar in structure to endorphins and have opiate like action(presumably put in the blood stream by a leaky gut). Opiates cause constipation not diarrhea. Studies have showed that GF/CF diets are no better than placebo but some people in the studies did report it helped them alot. Hence why I say a small percent are helped because there is a chance it will. But realistically 95%+ will be wasting their time.
This links talks about a study of constipation and autism. It does show a link to cows milk.
http://pediatrics.aappublications.org/cgi/content/full/112/4/939 |
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aspiebegood
Pileated woodpecker
Joined: Feb 25, 2007
Posts: 189
Location: Canada
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| Posted: Fri Jul 13, 2007 8:22 pm Post subject: |
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My family will not allow me to go anywhere near gluten.
_________________
37 male, AS diagnosed, and loving it! |
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ghostgurl
Phoenix
Joined: Nov 07, 2006
Age: 27
Posts: 1557
Location: Orange County, CA
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| Posted: Fri Jul 13, 2007 8:29 pm Post subject: |
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I would probably die if I wasn't allowed to eat wheat products. It's practically all I eat. I do know someone who has Celiac disease, but she doesn't have AS as far as I know.
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Currently Reading: Survival by Juliet E. Czerneda
http://dazed-girl.livejournal.com/
Vote Kalister 2008 |
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karasu
Snowy Owl
Joined: Jan 16, 2007
Posts: 163
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| Posted: Fri Jul 13, 2007 11:34 pm Post subject: |
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| DandyLyon wrote: |
I read Karyn Seroussi's book a few months ago, and remember feeling disgusted that she seemed to think anyone who wasn't helped by the diet "wasn't put on it soon enough". |
Holy crap, someone who does research and actually understands dietary stuff! I...I can't believe my eyes. People believe everything they read in health magazines, never follow up the research, and totally miss out on the key phrases like "one study suggests" or the use of percentages which are too low to be convincing, or the fact that they always make grand sweeping generalizations based on a single, unrepeated study of like 5 people. Gawd. I'm so tired of those lies-through-omission.
Also amen to the stuff about vegetarianism, the need for research and dietary understanding cannot be stressed enough, but most people use veggie-ness as a sort of subconscious eating disorder. Gah.
Anyway casein is also found in a great many soy-based cheeses so the great irony here is that even those who try to go veggie or avoid dairy products often wind up ingesting the very thing they're trying to avoid. And what is the point of a soy-based cheese with casein in it anyway? I ask you. |
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KimJ
Legend in my own mind
Joined: Jun 11, 2006
Posts: 2540
Location: Arizona
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| Posted: Sat Jul 14, 2007 12:24 am Post subject: |
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I think it comes down to, "what is your personal allergy?" and then avoiding it. My son acts "more autistic" (in a negative way) when his allergies flare up. They are grass (we live in a desert), cats (we have a dog) and some other mystery tree products we don't live near. No food allergies it seems.
I read a long time ago that food allergies are from being exposed to certain foods too early. There are allergenic foods that babies aren't to eat at certain ages. My son had the old style, "rice at 4 months, oats at 6 months, no milk, honey, eggs or orange juice until a year" which I remembered hearing years before. He had Breast and formula until a year as his main food. |
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TheMachine1
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Joined: Jun 12, 2006
Posts: 9092
Location: 9099 will be my last post...what the hell 9011 will be.
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| Posted: Sat Jul 14, 2007 12:45 am Post subject: |
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| KimJ wrote: | I think it comes down to, "what is your personal allergy?" and then avoiding it. My son acts "more autistic" (in a negative way) when his allergies flare up. They are grass (we live in a desert), cats (we have a dog) and some other mystery tree products we don't live near. No food allergies it seems.
I read a long time ago that food allergies are from being exposed to certain foods too early. There are allergenic foods that babies aren't to eat at certain ages. My son had the old style, "rice at 4 months, oats at 6 months, no milk, honey, eggs or orange juice until a year" which I remembered hearing years before. He had Breast and formula until a year as his main food. |
I read about one study that suggest being raised in a home with 2 pets before the age of 6 months greatly reduces the chance of having major allergy problems later in life. |
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