asplanet
Phoenix
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Joined: Nov 11, 2007
Posts: 2445
Location: Cyberspace, New Zealand
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MishLuvsHer2Boys
Proud Mom to 2 Sons
Joined: Oct 09, 2004
Posts: 2676
Location: Canada
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 Posted: Mon Mar 29, 2010 4:35 pm Post subject: Re: Nominee to Disability Council Is Lightning Rod for Dispu |
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I'm honestly really happy to see Ari get nominated. I think we really need a strong voice in representation.  I may not be an American but it's about time we have more voices heard. |
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anbuend
Oak-Type Autie
Joined: Jul 06, 2004
Age: 32
Posts: 5482
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| Posted: Mon Mar 29, 2010 9:19 pm Post subject: |
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Autism Speaks are not even making sense on this. Nothing he will do in that position has anything to do with cures, medical treatment, or much of anything else AS is annoyed with him over. They're just pulling the "how to discredit self-advocates" crap and they'd say it no matter where on the spectrum he was, if he didn't agree with their views.
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"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams |
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BokeKaeru
Phoenix
Joined: Jun 23, 2008
Age: 25
Posts: 670
Location: Boston, MA
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| Posted: Mon Mar 29, 2010 10:02 pm Post subject: |
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A little bit of a tangent, but I particularly liked this bit:
"But in previous interviews with The New York Times and other publications, he has argued that those most severely affected by autism are the ones who benefit least from the pursuit of a cure, which he suggests is unattainable anytime soon. Instead, he says, resources should be devoted to accommodations and services that could improve their quality of life."
It seems like too often I hear how people, even in the neurodiversity community, are willing to concede the entire "low functioning" population to the curebies. That mentality disgusts me, one because it's hypocritical (we can't oppose a "for your own good" mentality for ourselves and then wish it on others) and two because it's allowing the curebies to drive a wedge into the community and divide people by what can sometimes be, or so I understand, arbitrary distinctions that don't necessarily apply to people throughout their entire lives. I am glad that Ne'eman has actually come out and said he doesn't think a cure is the best goal for low as well as high functioning people. The fact that he's willing to say this, as a public figure no less, is a very good sign. |
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