| View previous topic :: View next topic |
| Author |
Message |
Greentea
Bull in China Shop par Excellence!
Joined: Jun 15, 2007
Posts: 1869
Location: Middle East
|
 Posted: Sat May 10, 2008 10:24 am Post subject: ASD or NVSD or SPLD or PPOH-NO or who cares?? |
 |
|
Why do people on here care so much if what they have is called this or that by the (semi-ignorant) medical profession?
Know your limitations, know your strengths - and do the most with what you have.
To hell with what THEY call you or would call you if you had enough money to ask them. You'll get as many diagnoses as professionals there are in the world or you can afford to consult, anyway. And today they call you this, tomorrow they discover that and call you that. In 10 years' time they'll call you something else entirely. You remain you, whatever they say. And only you know what your weak and strong areas are, which is the only thing that counts for your life.
(unless you're concerned with how much gov't assistance you can get. In that case, of course how THEY label you is decisive).
_________________
"It is the wounded oyster that mends its shell with pearl" - Ralph Waldo Emerson |
|
| Back to top |
|
equinn
Phoenix
Joined: Apr 20, 2007
Posts: 652
|
| Posted: Sat May 10, 2008 11:04 am Post subject: |
|
|
Yep--I agree on a philosophical level. On a more practical plane, life, school, I will argue the finer points because professionals like to categorize---it's simply easier. As a teacher myself, if I glance at a student's records and see autism, I know this student will have a unique set of challenges. If it's OHI, I wonder what exactly it migth be--could be ED, ID, ADHD, ADD--who knows! ADHD connotes one thing. OCD connotes another. ODD connotes yet another. Teachers/staff like to itemize rather than see the big picture.
The big picture for my son is autism spectrum disorder--it is the root from which all else sprouts and the root needs to be recognized for what it is.
jmofwiw--equinn |
|
| Back to top |
|
Anemone
Phoenix
Joined: Mar 18, 2008
Age: 43
Posts: 540
Location: Vancouver, Canada
|
| Posted: Sat May 10, 2008 11:18 am Post subject: |
|
|
It matters as far as treatment. For example the difference between autism and schizophrenia - autism lifelong, schizophrenia something you can recover from. Used to all be called schizophrenia (schizophrenia doesn't always involve psychosis). Or if you've got a learning disorder then that's something you've got to tackle. The different diagnoses are still in flux but eventually they'll settle down into something practical.
Besides, how are you supposed to know your strengths and limitations without some sort of basis for comparison?
Do those terms mean anything or are they specious terms: PPOH-NO? |
|
| Back to top |
|
tailfins1959
Deinonychus
![]()
Joined: Apr 07, 2008
Posts: 345
|
| Posted: Sat May 10, 2008 11:46 am Post subject: |
|
|
It's important to have a shorthand way to communicate what your limitations are. Would you want society to completely generalize, just describing you as "off in the head", assuming you're dangerous?
_________________
Yeah with all of these men lining up to get neutered
It's hip now to be feminized
I don't highlight my hair
I've still got a pair
Yeah honey, I'm still a guy |
|
| Back to top |
|
Greentea
Bull in China Shop par Excellence!
Joined: Jun 15, 2007
Posts: 1869
Location: Middle East
|
| Posted: Sat May 10, 2008 3:13 pm Post subject: |
|
|
No, the abbreviations I wrote don't mean anything, I invented them. I guess PP-OHNO could mean pipi, oh no! or something 
_________________
"It is the wounded oyster that mends its shell with pearl" - Ralph Waldo Emerson |
|
| Back to top |
|
Whisperer
Velociraptor
Joined: Oct 14, 2007
Posts: 458
|
| Posted: Sat May 10, 2008 4:10 pm Post subject: |
|
|
I suppose it has to do with having a name - or at least how I'd see it from my own perspective.
What makes total loneliness even worse - or maybe that is in itself the essence total loneliness - is to not exist. I, for one, do not exist. I am not a person. There is nothing in the paradigm held by others or the society at large that can make sense of me in a just way.
Depending on their level of chagrin people might refer to me "a loser" or a very shy person - AS is an option amongst many. Others might bring up the stereotype of a rich person and hate me claiming "everything in life has always undeservedly been a piece of cake"; that's not true as I'm not even a rich person but some people, like my uncle, have that approach. Others like to say I'm a nerd with absolutely no idea what "the real world" and "the real life" are and at the same time others might say I'm "a shallow person that lives in the gym and that I judge people based on their looks".
In every case the label is so partial it is futile - nothing is really being said. I am nothing. I fulfill no purpose. Unlike others, I am not known. I have no part.
Once in kindergarden there was this small pretend game I had to play in a small group - I didn't like it; I think preferred blocks. It was called the "family". An aggressive fat girl that didn't like me chose the family roles for everyone. Usually popular kids who belonged to a clique would play that game - they would be "dad", the buddy of the most popular guy would be "the uncle",etc. . . Since I had been thence forced to play it and I knew I wasn't popular I tried to cope by allowing them to lead and eventually asked "Well, who am I then?". "You are just a kid!" was the reply meaning I wasn't even part of the game.
As far as I see social groups and society - the basics have not changed. Especially as far as I'm concerned. . .
The mental impairment label might seem cozy but IMO it has a high price - and not just a purely economic one.
Makes me think of the Soviet Union.
Makes me think of The Crucible.
Leave me my name. . . |
|
| Back to top |
|
Greentea
Bull in China Shop par Excellence!
Joined: Jun 15, 2007
Posts: 1869
Location: Middle East
|
| Posted: Sat May 10, 2008 4:54 pm Post subject: |
|
|
I see the having a name, such as AS, as extremely positive. God knows it has given me a place to feel I belong, at last. It's wonderful.
What I think is useless and often negative is trying to fit into the (hardly educated) definitions of the so-called professionals. I'd say give a damn what Dr. X or Dr. Y think you are. You know yourself better - especially because all the knowledge about "disorders" is so unreliable and unstable still.
I see people here celebrating that their doctor AT LAST agreed they have AS or PAS or NPS or whatever. Why do you need your doctor to agree? What do you need to convince them for (other than for gov't benefits of course)??? Even if he finally agreed with you, or gave you / didn't give you the diagnosis you wanted - he'll probably change his mind in any direction in 1-2 years, when a new research paper is published that happens to cross his desk.
_________________
"It is the wounded oyster that mends its shell with pearl" - Ralph Waldo Emerson |
|
| Back to top |
|
Felinity
Snowy Owl
Joined: Mar 03, 2008
Posts: 174
|
| Posted: Sat May 10, 2008 8:13 pm Post subject: |
|
|
Ha yeah, really.. so many labels! It's like they don't know what they're doing sometimes! The FINAL and BEST diagnosis I got was ADHD and NLD (they call it mild Asperger's also) I went to one of the best places in the country to get that last diagnosis and got thorough neuropsycho testing FINALLY! and I absolutely do NOT have bi-polar or any of the other things! YAY! (except occassional depression but who wouldn't!)
Here's some of the labels I have gotten:
ADD
ADHD (pretty severe)
NLD
AS (mild)
Depression (moderate)
PSTD
PDD-NOS (general term that could encompass several autistic spectrum disorders)
STPD
Bi-Polar
SPD
Last edited by Felinity on Sat May 10, 2008 8:24 pm; edited 1 time in total |
|
| Back to top |
|
equinn
Phoenix
Joined: Apr 20, 2007
Posts: 652
|
| Posted: Sat May 10, 2008 8:21 pm Post subject: |
|
|
| Felinity wrote: | Ha yeah, really.. so many labels! It's like they don't know what they're doing sometimes! Here's a few I got in the past... The last one is ADHD and NLD (they called it mild Asperger's also) I went to one of the best places in the country to get that last diagnosis.. .so, I think it's right FINALLY! and I absolutely do NOT have bi-polar or any of the other things! YAY! (except occassional depression but who wouldn't!)
ADD
ADHD
NLD
AS
PSTD
PDD-NOS
Depression
SPD
STPD
Bi-Polar |
This must be the new mild Aspergers combo (NLD and ADHD) because my son, a pdd-nos, was just recently given this label--oh, with a bit of ocd to boot.
funny.
equinn |
|
| Back to top |
|
Felinity
Snowy Owl
Joined: Mar 03, 2008
Posts: 174
|
| Posted: Sat May 10, 2008 8:33 pm Post subject: |
|
|
Hey Equinn,
I just edited my post a bit to show more specific levels of the diagnosis before I saw you had replied. YES! Ha! I think it is! "the new combo"
You can see where if you were to combine ADHD + NLD with a dash of OCD and you could end up with Mild Asperger's! How God-awful confusing they have to make it! HA! I guess they are just beginning to understand this stuff..
I don't happen to have the OCD.. not yet anyway.. with enough stress.. who knows! ha! No, but I can totally see where they could get mild Asperger's from ADHD + NLD.. especially when theirs a bit of OCD too.. A lot of "normal" people have OCD issues also..
L |
|
| Back to top |
|
bookwormde
Raven
Joined: May 04, 2008
Posts: 105
|
| Posted: Sat May 10, 2008 9:17 pm Post subject: |
|
|
There a just a lot of clinicians out there that do almost no continuing educations on spectrum issues but still feel they are qualified to give out (miss) diagnosises They should have to take some type of basic “I get it “ certification before they can make diagnosis in this area.
bookwormde |
|
| Back to top |
|
|
