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Silver_Meteor
Asperger Accountant
Joined: Jul 11, 2007
Posts: 1073
Location: North Kingstown, Rhode Island, USA
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 Posted: Sat Jun 28, 2008 5:30 pm Post subject: Coming Out About Aspergers On Facebook |
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If you wanted to come out about Asperger's Syndrome, would putting it on your profile on FaceBook(i.e. member of an Asperger Group) be a good way of doing it (without shoving it in people's faces)?
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Not by revolution but through evolution are all things accomplished in permanency.
Certified Bookkeeper:AIPB
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Diagnosed with Autism/Childhood Schizophrenia early 60s. Today, I would have Asperger Syndrome |
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trgd_15
Raven
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Joined: May 19, 2008
Age: 19
Posts: 119
Location: Canada
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| Posted: Sat Jun 28, 2008 5:37 pm Post subject: |
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| I mentioned I've been diagnosed with it before and my friend did too on Facebook and no one really noticed. Like... No one said anything about it to either of us. |
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Hodor
Phoenix
Joined: Mar 18, 2008
Age: 19
Posts: 834
Location: On a dumb island
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| Posted: Sat Jun 28, 2008 6:24 pm Post subject: |
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No, I'm not going to join. The only people I want to know that I have AS are family members, close friends and people on AS-related sites such as WP. All of my family members know already, as do some of my 'close friends' (for want of a better term.) I would rather not let most of my Facebook friends know about my AS on the Internet, without talking to them face-to-face first.
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ACHTUNG all WP'ers...I will not be online from Aug 18th for a while due to a house move. I'm still alive and well but might not have internet access for some time. So long!
[I have updated my blawg.]
Sprecst žu englisc? |
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JerryHatake
Kumdo Practitioner
Joined: Jul 02, 2006
Age: 20
Posts: 8930
Location: Woodbridge, VA
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| Posted: Sat Jun 28, 2008 7:58 pm Post subject: |
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I was honest about for a bit but I took off because saw no point. However on my profile I have Wrong Planet and Awareness for Autism Spectrum Disorders so some could figure it out but most of my close friends know I have AS and ADHD anyway.
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"We swore one day to build the future with our own hands
At any cost, on this planet, no matter where on it you are
And now the two of us stand with pained eyes and glances diverted,
But I believe we'll be able to meet again" Nami Tamaki |
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stochastic
Blue Jay
Joined: Jun 11, 2008
Posts: 85
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| Posted: Sat Jun 28, 2008 9:03 pm Post subject: |
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| I think that would be a good way, yeah. |
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CMaximus
Snowy Owl
Joined: Nov 04, 2007
Age: 25
Posts: 161
Location: live and work on hew-mon homeworld
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| Posted: Sun Jun 29, 2008 3:49 am Post subject: |
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| I joined a the group "Asperger's Syndrome" on Facebook, just to see who would come to me about it, and sure enough, that's how I initially clued my folks in. |
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wolphin
Velociraptor
Joined: Aug 16, 2007
Posts: 440
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| Posted: Sun Jun 29, 2008 4:50 am Post subject: |
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| That's probably a good way if you were going to come out publicly to everyone. But I would want to tell close friends and such before I made it public, so facebook wouldn't be too great for that (unless you keep your profile hidden to close friends only anyways) |
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gbollard
the oncoming storm
Joined: Oct 06, 2007
Age: 39
Posts: 3036
Location: Sydney, Australia
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nominalist
This WP Supporter climbed the pecking order ;-)
Joined: Jun 29, 2007
Age: 52
Posts: 1685
Location: The Kansas suburbs of Kansas City (originally from NYC)
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| Posted: Sun Jun 29, 2008 7:32 pm Post subject: |
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I am very open about my Asperger's autism. However, as a kid (when I was, like many aspies of the time, diagnosed with childhood schizophrenia), I never told anyone. I suspect that my change of heart has come, partially, as a result of being established in my career. I have also recognized that, by being open about it, I might be able to reach out to some of my students (who may be aspies, too).
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Mark A. Foster, Ph.D. (full-time & tenured sociology professor)
The League to Fight Neurelitism: http://neurelitism.com
My autistic autobiography: http://narrative.neurelitism.com
Portal to my 24 domains & 21 websites: http://markfoster.net |
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CowboyFromHell
Toucan
Joined: Dec 23, 2007
Age: 19
Posts: 257
Location: Arizona
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| Posted: Sun Jun 29, 2008 7:43 pm Post subject: |
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I come out with it offline as well as online. My social skills have improved greatly and many people can't tell I'm different AT ALL, so it comes as a surprise to them. I'm a lot more comfortable about it.
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Paguk
Raven
Joined: Nov 26, 2005
Posts: 116
Location: Between the Port of Indecision and Southwest of Disorder
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| Posted: Sun Jun 29, 2008 9:34 pm Post subject: |
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Why not?
I kept it kind of an open secret back in high school for fear of making myself a target as back in middle school; a paranoia that was in retrospect unfounded.
As for now, it's not really something that you could figure out by looking at the profile, though in the coming months I too may start posting links found on WP.
I personally don't see it as mattering. Anybody who could adversely affect my opportunities because of my neurological makeup already has access to that information.
Speaking of banners and flags, we've really got to get our own ribbon or symbol of some sort. The puzzle piece ribbon is not only too chaotic to really describe us but there's simply too much association with non-aspie conditions and groups. |
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Mage
Phoenix
Joined: Oct 11, 2006
Posts: 701
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| Posted: Sun Jun 29, 2008 9:36 pm Post subject: |
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| I was thinking of joining the Wrong Planet group on Facebook but I thought people might think I have Asperger's then when I have PDD-NOS (but I prefer to call it High-Functioning Autism). I would prefer to join a group that simply said Autism or something. I hate the term Asperger's. |
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equinn
Phoenix
Joined: Apr 20, 2007
Posts: 652
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| Posted: Mon Jun 30, 2008 8:48 am Post subject: |
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Great article, thanks! (Aspergers and the Big Secret...)
Also, the "N" story made me nutty! Why didn't they just let you paste the last letter? How awful! My son is exactly this way. A job is not worth doing unless he can put 200% into it. If he can't finish, he won't even start. This poses a problem at school, for obvious reasons, so he is coerced to "get his work done" so he can do something related to his interests. It's not a perfect situation. I can see why homeschooling aspies is a better fit. I'm not able to do this and don't know if I have the patience to do it.
Good reading.
equinn |
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ASPERGERSJOHN
Deinonychus
Joined: May 23, 2007
Posts: 392
Location: ON MY COMPUTER OR AT THE FOOTBALL GROUND
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| Posted: Mon Jun 30, 2008 9:42 am Post subject: |
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| I have put a piece about it on my bebo and joined some of the groups on bebo and Facebook. |
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