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wob182
Sea Gull
Joined: Apr 05, 2008
Age: 18
Posts: 203
Location: u.k.
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 Posted: Tue Jul 01, 2008 8:19 am Post subject: Family/friends misunderstanding ur AS. ur childhood stories |
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Just wanted to hear ur personal acounts of when your parents family friends who ever misunderstood ur AS. It could be because they didnt understand ur AS properly or Ur werent dignosed whatever
My story: I was about 11 my dad took me to a school fair, afterwoods there was a firework display at the end of the playground from the school. It was too loud and I put my hands over my ears instinctively my Dad told me not to be so silly and forced my hands down besides my sides. I tried to put them back but he held them there and made me listen and watch the fireworks. 
I think this is a sensory issue right?
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I'm fed up of explaining after every post, I have dyslexia so sometimes my spelling and punctuation is off. I do use spell check doesn't always work... |
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2ukenkerl
Phoenix
Joined: Jul 20, 2007
Posts: 4860
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| Posted: Tue Jul 01, 2008 8:21 am Post subject: |
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| Yeah. I do the same with alarms and some frequencies TO THIS DAY. |
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LiendaBalla
Phoenix
Joined: Oct 24, 2007
Age: 30
Posts: 747
Location: Houston Texas United States
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| Posted: Tue Jul 01, 2008 9:22 am Post subject: Re: Family/friends misunderstanding ur AS. ur childhood stor |
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| wob182 wrote: |
My story: I was about 11 my dad took me to a school fair, afterwoods there was a firework display at the end of the playground from the school. It was too loud and I put my hands over my ears instinctively my Dad told me not to be so silly and forced my hands down besides my sides. I tried to put them back but he held them there and made me listen and watch the fireworks.
I think this is a sensory issue right? |
'gasp'! Personaly I would never do that to a child. I'm sorry that he didn't understand that it was hurting your ears.
As for it being a sensory issue, I don't know. Yes I do have my own little stories of sound issues.  I guess I could share them since you asked.
ehem: The grade school I once attended had a basket ball game. Adults were in the jym, as well as alot of other children. Thank GOD I was very close to the doorways! Their cheering was very loud, and it hurt me ears enough. I plugged my ears, but it didn't help. I started crying and screaming. Finally some adult looked over and noticed my feeling of torment.
They took me to a quiet room to scribble for a while. Naturaly, I calmed right down. That was a huge, blistful relief. Oh the quiet. Thus, I don't want to go to any ball games, for sure. It might make me feel crasy. Did they know I had auditory issues? Heck no.
2: I was at the same school as mentioned above, taking one of those yearly ackedemic tests. The room was quiet, so the distractions I had were rediculess to me. I mean rediculess, because simple sounds would make me forget or cause my mind to suddenly focus on the sound.
I could hear them scribbling down their answers, and flipping their pages. The clock was the most noticed. I would read a question or sentence, then a sound happened, and because of that I forgot everything and my focus went to the sound. Couldn't help it. It was very frustrating. Later, I had to deal with the annoying reality of my parents being told how I screwed a test. They didn't understand what was actuly going on with me.
If they all knew AS was a likely culprit back then, my entire life would have been different just by the methods of learning used.
 I hope I didn't make this too long.
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Removing objects and material out of our mental perspective leaves only the thought of our souls.
Lienda Balla the EDIT QUEEN! |
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malithion2
Sea Gull
Joined: Jun 16, 2008
Age: 21
Posts: 209
Location: Albuquerque, NM
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| Posted: Tue Jul 01, 2008 3:39 pm Post subject: |
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| I remember being forced to do my homework where my parents could see me which would be the living room with the t.v on. I cant ever focus when someone is watching t.v and I'm trying to do something else sometimes to the point of getting upset. |
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GuyTypingOnComputer
Raven
Joined: Jun 10, 2008
Posts: 109
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| Posted: Tue Jul 01, 2008 8:35 pm Post subject: |
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It's the opposite with me. I have a better understanding of my parents now that I can see the family traits as AS.
I always wondered why my neither of my parents had any friends (yet were very friendly) or showed any interest in my interests. Both had their obssessions and routines. My mother would get upset when people didn't follow rules, while my father didn't interfere or get involved in anyone else's life. My PHd father was never successful in his career despite his intelligence. Neither was fashionable. Neither was caring, affectionate or involved. I have strong memories going back to my toddler days, but I have no recollection of ever being hugged or feeling loved. My siblings and I were outcasts in every way and had some major problems growing up, but apparently none that my parents noticed. |
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AGMorehouse
Sea Gull
Joined: Jun 01, 2008
Age: 21
Posts: 204
Location: Wouldn't you like to know you stalker
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| Posted: Tue Jul 01, 2008 9:50 pm Post subject: |
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| I have had this issue with sensory. When I was in 8th grade, I had a sensory issue with the Fireworks at Disneyland - I still do as a matter of fact. When I hear bombastic sounds, my I brain usually...I don't know how to describe it. |
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2ukenkerl
Phoenix
Joined: Jul 20, 2007
Posts: 4860
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| Posted: Tue Jul 01, 2008 10:37 pm Post subject: Re: Family/friends misunderstanding ur AS. ur childhood stor |
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| LiendaBalla wrote: | | wob182 wrote: |
My story: I was about 11 my dad took me to a school fair, afterwoods there was a firework display at the end of the playground from the school. It was too loud and I put my hands over my ears instinctively my Dad told me not to be so silly and forced my hands down besides my sides. I tried to put them back but he held them there and made me listen and watch the fireworks.
I think this is a sensory issue right? |
'gasp'! Personaly I would never do that to a child. I'm sorry that he didn't understand that it was hurting your ears. |
MAN, as far as I am concerned, you just called her father a blithering idiot! I mean even a TODDLER would probably understand a dog holding it's ears under such a circumstance. As far as I am concerned, that is TORTURE!
| LiendaBalla wrote: | As for it being a sensory issue, I don't know. Yes I do have my own little stories of sound issues. I guess I could share them since you asked.
ehem: The grade school I once attended had a basket ball game. Adults were in the jym, as well as alot of other children. Thank GOD I was very close to the doorways! Their cheering was very loud, and it hurt me ears enough. I plugged my ears, but it didn't help. I started crying and screaming. Finally some adult looked over and noticed my feeling of torment.
They took me to a quiet room to scribble for a while. Naturaly, I calmed right down. That was a huge, blistful relief. Oh the quiet. Thus, I don't want to go to any ball games, for sure. It might make me feel crasy. Did they know I had auditory issues? Heck no. |
PROSECUTION RESTS!
| LiendaBalla wrote: | 2: I was at the same school as mentioned above, taking one of those yearly ackedemic tests. The room was quiet, so the distractions I had were rediculess to me. I mean rediculess, because simple sounds would make me forget or cause my mind to suddenly focus on the sound.
I could hear them scribbling down their answers, and flipping their pages. The clock was the most noticed. I would read a question or sentence, then a sound happened, and because of that I forgot everything and my focus went to the sound. Couldn't help it. It was very frustrating. Later, I had to deal with the annoying reality of my parents being told how I screwed a test. They didn't understand what was actuly going on with me.
If they all knew AS was a likely culprit back then, my entire life would have been different just by the methods of learning used.
I hope I didn't make this too long. |
That was a good post, even if I didn't like the claim that a person could torture their kid by forcing the childs hands down in a noisy environment, by ACCIDENT and with good intentions. |
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tomboy4good
Phoenix
Joined: Apr 15, 2008
Posts: 628
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| Posted: Tue Jul 01, 2008 11:06 pm Post subject: |
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| I can so relate...I also have issues with loud sounds/noises, scents, distractions, being forced to do things that to me were counter-intuitive, etc. |
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wob182
Sea Gull
Joined: Apr 05, 2008
Age: 18
Posts: 203
Location: u.k.
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| Posted: Wed Jul 02, 2008 8:17 am Post subject: Re: Family/friends misunderstanding ur AS. ur childhood stor |
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| 2ukenkerl wrote: | | LiendaBalla wrote: | | wob182 wrote: |
My story: I was about 11 my dad took me to a school fair, afterwoods there was a firework display at the end of the playground from the school. It was too loud and I put my hands over my ears instinctively my Dad told me not to be so silly and forced my hands down besides my sides. I tried to put them back but he held them there and made me listen and watch the fireworks.
I think this is a sensory issue right? |
'gasp'! Personaly I would never do that to a child. I'm sorry that he didn't understand that it was hurting your ears. |
MAN, as far as I am concerned, you just called her father a blithering idiot! I mean even a TODDLER would probably understand a dog holding it's ears under such a circumstance. As far as I am concerned, that is TORTURE!
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well, yeah my dad was being an idiot. But in his defence he didnt know then anything was wrong with me. But even if ur child is covering their ears at a firework u cud reasure them not force there hands down.
another story of my family misunderstanding is the fact I watch tv A LOT. They used to have horrible things they'd say about it " Ruled by the tv" "Slave to the tv" "You'll rot ur brain"
but to me it was where I could escape from the stress of socialising etc also u learn things on tv, like soaps or programs u see the consequences of what happens after u say the wrong thing. In real life u dont see if someone's upset if they go home about it, on tv u can see that.
anyway until the age of 13/14 they used to punish me if I had a really bad meltdown by taking away the sky card or the remotes or taking away the tv for a few days it drove me mad. It was also change in routine. Let me warn parents, meltdowns do NOT deserve that kind of punishment! I dont even think they deserve punishment they deserve a calm voice to listen to ur concerns. My parents thought they were spoilt tantrums
_________________
I'm fed up of explaining after every post, I have dyslexia so sometimes my spelling and punctuation is off. I do use spell check doesn't always work... |
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anbuend
Oak-Type Autie
Joined: Jul 06, 2004
Posts: 3302
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| Posted: Wed Jul 02, 2008 10:41 am Post subject: |
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The alarm thing reminds me of jumping and screaming and covering my ears every time the school bell rang, to the point where teachers got angry at me, because a person should apparently be able to get used to it and never be startled by it anymore.
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"We may seem in the gutter from up there where you are but maybe you don't know we still see the same stars." -Donna Williams |
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wob182
Sea Gull
Joined: Apr 05, 2008
Age: 18
Posts: 203
Location: u.k.
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| Posted: Wed Jul 02, 2008 12:16 pm Post subject: |
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| anbuend wrote: | | The alarm thing reminds me of jumping and screaming and covering my ears every time the school bell rang, to the point where teachers got angry at me, because a person should apparently be able to get used to it and never be startled by it anymore. |
omg!! same but only when I was near it. It used to be outside the classroom but when i was in the cordor under it or like a metre away I hated it covered my ears..though no one noticed..actually I only remeber that now when u made me think
_________________
I'm fed up of explaining after every post, I have dyslexia so sometimes my spelling and punctuation is off. I do use spell check doesn't always work... |
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Seshat
Butterfly
Joined: Mar 25, 2008
Posts: 13
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| Posted: Thu Jul 03, 2008 2:23 am Post subject: Re: Family/friends misunderstanding ur AS. ur childhood stor |
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| wob182 wrote: |
...afterwords there was a firework display at the end of the playground from the school. It was too loud and I put my hands over my ears instinctively my Dad told me not to be so silly and forced my hands down besides my sides. I tried to put them back but he held them there and made me listen and watch the fireworks.
I think this is a sensory issue right? |
This is a page right out of my own childhood! When I was about 7 or 8 years old, my family went to the 4th of July fireworks show down at the local college. It was out in the football field, and people brought blankets and picnic stuff with them to lay on the grass and watch some local bands play before the fireworks started. Of course, I didn't want to be there in the first place, what with the 1000+ crowd and the loud bands (even though we were far enough away from the stage to where it wasn't too bad), but then it got dark. I remember laying on my back and seeing the fireworks going off above us, and my first instinct was to cover my ears and pull the blanket over my head. My mom saw me freaking out and kept telling me, "it can't hurt you, trust me, it's okay, I'm your mother, why would I take you to something that would hurt you", but of course I kept freaking out and covering my ears and head. My mom got upset with me, because she thought I was just being a brat and having a tantrum.
Ah, the joys of being a child in the pre-diagnosis 80s. 
Eventually, my mom started letting me stay at my dad's house on the 4th, while her and my stepdad went to the fireworks show. To her credit, she does feel really bad about it now, especially after finding out about asperger's.
I still have trouble with loud, sudden noises, even when I'm expecting them. I have this strange ritual whenever I vacuum, where I'll put my left arm up over my head, covering both ears, while turning the switch on with my right hand. I'll stay like that for a few seconds, with one arm over my head, until I get used to the sound, then I'll finally let my arm down. This is probably why I like to vacuum alone. |
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ooOoOoOAnaOoOoOoo
Phoenix
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Joined: Jun 19, 2008
Posts: 1762
Location: US, midmap
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| Posted: Thu Jul 03, 2008 10:33 am Post subject: Re: Family/friends misunderstanding ur AS. ur childhood stor |
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| wob182 wrote: | | 2ukenkerl wrote: | | LiendaBalla wrote: | | wob182 wrote: |
My story: I was about 11 my dad took me to a school fair, afterwoods there was a firework display at the end of the playground from the school. It was too loud and I put my hands over my ears instinctively my Dad told me not to be so silly and forced my hands down besides my sides. I tried to put them back but he held them there and made me listen and watch the fireworks.
I think this is a sensory issue right? |
'gasp'! Personaly I would never do that to a child. I'm sorry that he didn't understand that it was hurting your ears. |
MAN, as far as I am concerned, you just called her father a blithering idiot! I mean even a TODDLER would probably understand a dog holding it's ears under such a circumstance. As far as I am concerned, that is TORTURE!
|
well, yeah my dad was being an idiot. But in his defence he didnt know then anything was wrong with me. But even if ur child is covering their ears at a firework u cud reasure them not force there hands down.
another story of my family misunderstanding is the fact I watch tv A LOT. They used to have horrible things they'd say about it " Ruled by the tv" "Slave to the tv" "You'll rot ur brain"
but to me it was where I could escape from the stress of socialising etc also u learn things on tv, like soaps or programs u see the consequences of what happens after u say the wrong thing. In real life u dont see if someone's upset if they go home about it, on tv u can see that.
anyway until the age of 13/14 they used to punish me if I had a really bad meltdown by taking away the sky card or the remotes or taking away the tv for a few days it drove me mad. It was also change in routine. Let me warn parents, meltdowns do NOT deserve that kind of punishment! I dont even think they deserve punishment they deserve a calm voice to listen to ur concerns. My parents thought they were spoilt tantrums |
I did the same thing with television.
Sometimes, episodes of "The Brady Bunch" would be on after school. When the station that aired the reruns put them on at three thirty instead of four, I would miss them because I rode the bus and this would really upset me. I had to see that show everyday after school. |
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NarfMann
Snowy Owl
Joined: Apr 18, 2008
Age: 28
Posts: 151
Location: Parker, CO
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| Posted: Thu Jul 03, 2008 4:40 pm Post subject: |
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My parents never believed me when I told them I didn't want to have a birthday party, so they made me have one anyway. They also made me go to my friends' birthday parties. They also made me try the cake every time I went to said parties, even though I continually told them that I didn't like cake because it was too fluffy.
Also, my sister would normally respond to my telling her that something was too loud by being louder, and was always surprised when I started going crazy and throwing things around and smashing my head through walls. I kind of envy today's aspie kids, they at least have a chance of being properly diagnosed and having their families get information that can add to understanding. |
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