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peterd
Yellow-bellied Woodpecker
Joined: Dec 26, 2006
Age: 56
Posts: 59
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 Posted: Sun Aug 31, 2008 7:39 am Post subject: Aspergers and insulin dependency |
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I'd guess, from the evidence at hand, that there isn't much of a correlation here.
Still, when you've come back to consciousness a few times from extreme hypoglycaemia trapped in some dark hallway afraid of everything that isn't in sight, it's easy to see that there might be.
Is there anyone else out there stuck with type 1 as well as the aspie curse? Perhaps being able to make an obsession out of it helps - I've an endocrinologist who tells me I'm the healthiest twenty-year plus diabetic he knows. |
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Nan
Phoenix
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Joined: Mar 02, 2006
Posts: 3158
Location: left coast
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| Posted: Sun Aug 31, 2008 11:25 am Post subject: |
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Bummer.
My kid has type two and is aspie, but that's not the same thing at all.
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Novinson's Revolutionary Discovery: When comes the revolution, things will be different - not better, just different. |
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peterd
Yellow-bellied Woodpecker
Joined: Dec 26, 2006
Age: 56
Posts: 59
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| Posted: Wed Sep 03, 2008 8:48 am Post subject: |
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What, noone?
Jeez...
You mean. anyone who's insulin dependent and aspie just dies? |
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Cormac_doyle
Raven
Joined: Jun 26, 2008
Posts: 105
Location: Ireland
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| Posted: Wed Sep 03, 2008 9:47 am Post subject: Re: Aspergers and insulin dependency |
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| peterd wrote: | I'd guess, from the evidence at hand, that there isn't much of a correlation here.
Still, when you've come back to consciousness a few times from extreme hypoglycaemia trapped in some dark hallway afraid of everything that isn't in sight, it's easy to see that there might be.
Is there anyone else out there stuck with type 1 as well as the aspie curse? Perhaps being able to make an obsession out of it helps - I've an endocrinologist who tells me I'm the healthiest twenty-year plus diabetic he knows. |
I am insulin dependent ... but I'm also the single most insulin-resistant person in Ireland (according to at least four different doctor's I've spoken to).
how hypo-aware are you? normally I will notice becomming hypo ... my heart starts to race, I sweat profusely, I can't concentrate (unles I'm hyperfocused on something); as it gets worse, my speach begins to slur, I get dizzy, my hands shake.
The only times I go so radically Hypo that I pass out are if I am already asleep ... and you gotta admit that waking up out of a Hypo is NOT pleasent (especially since the entire bed will be soaking ... all of your clothes will be dripping wet)
I absolutely hate "fun-fairs" ... the adrenaline reaction is identical to the symptoms of a Hypo - so I can't tell if I'm about to pass out. This sensation of loss of control means that I avoid rollercoasters and other funfair rides at all costs. |
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peterd
Yellow-bellied Woodpecker
Joined: Dec 26, 2006
Age: 56
Posts: 59
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| Posted: Thu Sep 04, 2008 5:41 am Post subject: |
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I've lost awareness of my surroundings on occasion, but remained vertical. It's kind of hard to explain - sitting at a table eating and flaking out from hypoglycaemia.
And when I go low while I'm sleeping, anything can happen. It's hell for my partner - fortunately, it doesn't happen all that often. The slow return to awareness while standing in a cold, dark and unfamiliar corridor is one I'll never forget.
Coming back to consciousness with ambulancers in the room too - ever had a glucagon needle broken off in your backside? |
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Cormac_doyle
Raven
Joined: Jun 26, 2008
Posts: 105
Location: Ireland
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| Posted: Thu Sep 04, 2008 7:55 am Post subject: |
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| peterd wrote: | I've lost awareness of my surroundings on occasion, but remained vertical. It's kind of hard to explain - sitting at a table eating and flaking out from hypoglycaemia.
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I can remember once feeling woozy, but deciding to drive home (you don't always think rationally when you're low) ... I have absolutely no memory of actually driving ... but a couple of hours later, my (ex-)wife came home to find my motorbike parked outside the door, with the engine still running, and me completely passed out on the sofa; I only remember felling really sick as I came around after she had poured a couple of cups of hot chocolate all over me (presumably she got me to swallow some of it).
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And when I go low while I'm sleeping, anything can happen. It's hell for my partner - fortunately, it doesn't happen all that often. The slow return to awareness while standing in a cold, dark and unfamiliar corridor is one I'll never forget.
Coming back to consciousness with ambulancers in the room too - ever had a glucagon needle broken off in your backside? |
Never had glucagon, that I'm aware of.
My ex did call the ambulance once, but they didn't take me to hospital, and I have no memory of ever speaking to them. |
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peterd
Yellow-bellied Woodpecker
Joined: Dec 26, 2006
Age: 56
Posts: 59
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| Posted: Thu Sep 04, 2008 9:16 am Post subject: |
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| Quote: | | you don't always think rationally when you're low |
Some of us don't always think rationally when we have blood sugar either. I think my partner can smell hypoglycaemia - our deal is that if she asks, I drop what I'm doing and test. Like tonight - I thought I was fine, but she and the meter agreed on 1.6 (do the Irish measure millimoles/litre like us australians or grams/decilitre like the americans do?) |
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Hector
Phoenix
Joined: Mar 11, 2008
Posts: 902
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| Posted: Thu Sep 04, 2008 9:22 am Post subject: |
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| I'm not diabetic but there is a history of type two diabetes in my family. My mother had diabetes when she was pregnant with me but at no other time. |
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Cormac_doyle
Raven
Joined: Jun 26, 2008
Posts: 105
Location: Ireland
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| Posted: Thu Sep 04, 2008 6:26 pm Post subject: |
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| peterd wrote: | | Quote: | | you don't always think rationally when you're low |
Some of us don't always think rationally when we have blood sugar either. I think my partner can smell hypoglycaemia - our deal is that if she asks, I drop what I'm doing and test. Like tonight - I thought I was fine, but she and the meter agreed on 1.6 (do the Irish measure millimoles/litre like us australians or grams/decilitre like the americans do?) |
The USians are the only people to use mg/dl ... even canada uses the correct SI units |
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Sorenna
Deinonychus
Joined: May 13, 2008
Posts: 316
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| Posted: Sun Sep 21, 2008 11:04 am Post subject: |
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| I have blood sugar troubles, but not diabetes. |
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zen_mistress
In Pursuit of a Peaceful Life
Joined: Jun 12, 2007
Age: 31
Posts: 1102
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| Posted: Sun Sep 21, 2008 4:54 pm Post subject: |
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I have hypoglycaemia but not diabetes.
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bethany
Butterfly
Joined: Aug 12, 2007
Posts: 16
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| Posted: Mon Nov 03, 2008 5:14 pm Post subject: |
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| I have had type 1 diabetes since I was 17, and been on an insulin pump since 2005. |
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bethany
Butterfly
Joined: Aug 12, 2007
Posts: 16
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| Posted: Mon Nov 03, 2008 5:30 pm Post subject: |
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Cormac_doyle,
If you are believed to have type 1 diabetes and are the most insulin resistant person in Ireland, you should have tests done to see if you have developed antibodies to the insulin you inject. You should also likely switch brand names of insulin to see if you see a difference.
Feel free to clarify, because a lot of people confuse being prescribed insulin because it is necessary to control their blood sugar, and type 1 diabetes which means requiring injected insulin due to an absolute insulin deficiency.
The most insulin resistant person in Ireland is more likely to have type 2 diabetes, than type 1.
If you are using a tone of insulin and having bad lows like that you should look into an insulin pump, and a cgms. More so a cgms though. |
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Cormac_doyle
Raven
Joined: Jun 26, 2008
Posts: 105
Location: Ireland
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| Posted: Tue Nov 04, 2008 9:17 am Post subject: |
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I have no measurable inherent insulin production (my beta cells have all failed - my c-peptide ratings are negligible). However, I also have no measurable GAD levels.
The absence of c-peptide implies that I am type 1 (no endogenous insulin production): the use of traditional oral hypoglycaemics that increase the rate of insulin production have absolutely no effect on me ... however, it is an atypical T1 diagnosis (it was not caused by an antibody response).
The high level of insulin resistance means that I am *also* type 2.
However, the old "Type 1 / type 2" divide is no longer used as a true medical distinction ... there are (at current reckoning) more than 10 distinct types of diabetes ... and even the "popular media" identifies four basic types - T1, T2, LADA and MODY
Additionally ... many T1 diabetics gradually become insulin insensitive even where no new GAD antibodies are produced. this is more than just an "age" resposne, and actually relates to the fact that if you consistently "chase" your carb intake with insulin, the level of insulin in your blood stays too high, which promts the cells in your system to reduce their sensitivity to the insulin.
As such, it actually makes sense for all diabetics to adopt a low-carbohydrate diet |
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bethany
Butterfly
Joined: Aug 12, 2007
Posts: 16
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| Posted: Tue Nov 04, 2008 10:11 pm Post subject: |
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MODY and other forms of monogenic diabetes are definitely interesting but still extremely rare. LADA accounts for the fact that many of those who actually have LADA are misdiagnosed as type 2 because they don’t present with extremely high blood sugars, and ketones at diagnosis. People with LADA typically have antibodies.
Halle Berry is said to have type 1 b diabetes, or what they call idiopathic diabetes.
You could have type 1 b, but from what I understand one of the characteristics is that your insulin needs can change suddenly. Apparently some come off of insulin for brief periods that re-occur. Also, Type 1 b is pretty much confined to minorities.
You could also have one of the identified forms of monogetic diabetes.
Other than that you may have an antibody that they are not able to identify with the current technology. Or another form of monogenic diabetes. I don’t think you are likely to have one of the currently identified forms of monogenic, the first broad category is confined to people diagnosed in the first year of life, and the remaining forms of monogenic which are termed MODY are all forms of insulin sensitive diabetes. |
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