 
Support Wrong Planet Awareness!
| View previous topic :: View next topic |
| Author |
Message |
Jellybean
Phoenix
Joined: Apr 21, 2007
Posts: 537
Location: On a cloud floating above Loughborough
|
 Posted: Fri Sep 26, 2008 11:23 am Post subject: Seizures |
 |
|
Hi, I had a seizure (clonic) the other day. It was kinda horrible because I felt a bit weird before I fell over and now I have a massive bruise up my right arm where I fell. Just wondering how many other people have seizures/diagnosed epilepsy because I don't know whether I have it or not yet. My doctor thinks I might have been having petit mal seizures and partial seizures for years! When she mentioned epilepsy I merely said, 'Oh well, just another one to add to the list...' I feel like I am falling apart!
_________________
I am a Tourettey, Aspie obsessive compulsive! |
|
| Back to top |
|
cazzie
Tufted Titmouse
Joined: Sep 16, 2008
Age: 24
Posts: 31
Location: in my own world
|
| Posted: Fri Sep 26, 2008 11:41 am Post subject: i have epilepsy as well |
|
|
hi there i thought i would read your post and rep to it i have epilepsy. i had it sence 2005, and for a long time my boyfriend and friends new what was wrong but the doctors did not wont to now but i have noctual meaning i have them in my sleep. i often get it anytime of the day i had one a few weeks ago and i went very tiyed and i fallasleep and then woke up and i had a seizure i had one last week as well the same happind again.
if you wonna talk to me pm me and we can chat about it and your feeling with it all.
take care caz |
|
| Back to top |
|
Triangular_Trees
What is right is sometimes found on the left.
Joined: Jul 18, 2007
Posts: 2053
|
| Posted: Fri Sep 26, 2008 11:48 am Post subject: |
|
|
Mayhaps I'm just noticing it more, but it seems like this is the 12th thread on epilepsy started this week.
I have temporal lobe seizures. I usually don't fall - just get funny feelings, hallucinations and intense anger. Not sure which is better. I haven't been hurt, but just as you could fall, I'm likely to wallk out in the middle of a freeway because I think I'm in the middle of the woods
How often do you get your aura? - that weird feeling you had before you fell. And does it last long enough that you can get somewhere safe before it happens.
Aside from my nocturnal ones, which seem to be the most common for me, I've always been able to tell 2 hours in advance when I'm going to have a bad seizure. That gives me plenty of time to lay somewhere safe so I'm not in danger of falling and hurting myself
_________________
Did I post an attack on you? If so, please read this before making a reply
http://www.wrongplanet.net/postt74894.html |
|
| Back to top |
|
cazzie
Tufted Titmouse
Joined: Sep 16, 2008
Age: 24
Posts: 31
Location: in my own world
|
| Posted: Fri Sep 26, 2008 11:55 am Post subject: |
|
|
i had all ways nocturnal sz
i can get them anytime of day, for almost 8months i a new kind of sz if it a sz or not.
i go to bed or it can be in the day time i go to sleep and feeling very tiyed. and have to lay down and i fallasleep and then i woke up and i feel myslef shaking. it can be really bad becouse they come out of anywhere.
caz |
|
| Back to top |
|
anbuend
Oak-Type Autie
Joined: Jul 06, 2004
Posts: 3302
|
| Posted: Fri Sep 26, 2008 2:38 pm Post subject: |
|
|
I have complex-partial seizures, sometimes simple-partial. Suspected absence, but never caught one on an EEG. Normally mild and infrequent these days. In the past, have also had myoclonic seizures and atonic seizures.
_________________
"We may seem in the gutter from up there where you are but maybe you don't know we still see the same stars." -Donna Williams |
|
| Back to top |
|
MissConstrue
~Age of Aquarius~
Joined: Feb 05, 2008
Age: 26
Posts: 11893
Location: Anywhere but HERE!
|
| Posted: Fri Sep 26, 2008 9:26 pm Post subject: |
|
|
Yes, I have a seizure disorder that're mal-petite. So they aren't as big as epilepsy.
I'm now on klonopin for it which has done wonders. Also I used to drink, that's one thing you have to watch out for. After the drink has worn, I'd have full blown seizures. I would do the same thing and find myself in bruises.
Most of mine are tremors or little jerks or tics from my body joints like my arms and hands. That can be annoying.
_________________
Oh you can't help that. We're all mad here.
__Cheshire
6thSin:Envy |
|
| Back to top |
|
9CatMom
Ailurophile
Joined: Jan 02, 2007
Posts: 5650
|
| Posted: Fri Sep 26, 2008 10:20 pm Post subject: |
|
|
| I have a seizure disorder. Fortunately, however, I am well-controlled with medication and haven't had a problem in over five years. |
|
| Back to top |
|
Triangular_Trees
What is right is sometimes found on the left.
Joined: Jul 18, 2007
Posts: 2053
|
| Posted: Fri Sep 26, 2008 10:33 pm Post subject: |
|
|
| MissConstrue wrote: | Yes, I have a seizure disorder that're mal-petite. So they aren't as big as epilepsy.
|
 That doesn't make sense
Epilepsy isn't a kind of seizure, it is a condition of recurring epileptical seizures. If you have recurring seizures, that aren't NES, you have epilepsy, regardless of the type. If you had more than 2 E seizures, you have epilepsy. If your seizure disorder isn't as big as epilepsy, there is no reason at all to be on medicine. No one needs to be put on medicine because they've had one seizure.
There are people with epilepsy who don't need meds and can live fairly normal lives, and their are people with epilepsy who even with meds and brain surgery can't do much. Epilepsy consisting of absensce seizures as just as much epilepsy as epilepsy consisting of atonic and tonic-clonic seizures
Also, absence seizures are called petite-mal, not mal petite 
In addition to getting the names of your seizures wrong, not knowing what E is, identifying a type of seizure that doesn't match your description of the type you experience, and remembering a type of seizure (petit-mal) that is a lapse of concious activity, it is also rather odd that you would be put on a medicine that is never to be used for those with a history of depression unless all alternatives have been ruled out, and one in which extra care needs to be taken when administered to those with a drinking problem, as you've previously stated you experienced severe depression and alcohol addiction Not to mention its a drug that is only used for short term AED therapy
_________________
Did I post an attack on you? If so, please read this before making a reply
http://www.wrongplanet.net/postt74894.html
Last edited by Triangular_Trees on Sat Sep 27, 2008 10:02 pm; edited 4 times in total |
|
| Back to top |
|
Kelsi
Phoenix
Joined: Jun 23, 2007
Posts: 643
Location: Australia
|
| Posted: Fri Sep 26, 2008 11:27 pm Post subject: |
|
|
| I was diagnosed with temporal lobe epilepsy many years ago, and was told I would have to take carbamazapine (tegretol) for the rest of my life. I only took it for a year and a half. After that, I started taking magnesium and vitamin B6 supplements - no more complex partial seizures! Then I started to miss them, because I used to have some really amazing, 'other worldly' experiences. So, I learnt how to deliberately put myself into a theta state at will, just like shamans do. |
|
| Back to top |
|
slowmutant
Phoenix
Joined: Feb 14, 2008
Age: 29
Posts: 8640
Location: Ontario, Canada
|
| Posted: Fri Sep 26, 2008 11:30 pm Post subject: |
|
|
| I used to have convulsions. Not as violent or prolonged as seizures, but they were significant. What's a "clonic" seizure btw? |
|
| Back to top |
|
Triangular_Trees
What is right is sometimes found on the left.
Joined: Jul 18, 2007
Posts: 2053
|
| Posted: Fri Sep 26, 2008 11:32 pm Post subject: |
|
|
| Kelsi wrote: | | I was diagnosed with temporal lobe epilepsy many years ago, and was told I would have to take carbamazapine (tegretol) for the rest of my life. I only took it for a year and a half. After that, I started taking magnesium and vitamin B6 supplements - no more complex partial seizures! Then I started to miss them, because I used to have some really amazing, 'other worldly' experiences. So, I learnt how to deliberately put myself into a theta state at will, just like shamans do. |
I don't miss the creepy illness feelings, or seeing nuclear bombs explode on my hand.
though I suppose if all my aura's were like the one that seemed a memory from a distantly passed life I might like them a lot more. I was sitting with "poor" people in reddish clothing around a campfire - this obviously was in the far past, when people were wanderers. In some ways it was kind of disappointing to learn that was a seizure - it seemed so real and so right. But then maybe it was real 
_________________
Did I post an attack on you? If so, please read this before making a reply
http://www.wrongplanet.net/postt74894.html |
|
| Back to top |
|
slowmutant
Phoenix
Joined: Feb 14, 2008
Age: 29
Posts: 8640
Location: Ontario, Canada
|
| Posted: Fri Sep 26, 2008 11:39 pm Post subject: |
|
|
| People who have visions ... they do not always need to dismissed as mentally ill. In the Bible, all kinds of people had visions, holy visions. I'd love to have some of those. |
|
| Back to top |
|
BokeKaeru
Phoenix
Joined: Jun 23, 2008
Age: 21
Posts: 507
Location: Alternately Los Angeles, CA and Northampton, MA
|
| Posted: Fri Sep 26, 2008 11:41 pm Post subject: |
|
|
| I didn't have the epileptic sort. I had some sort of seizure disorder caused by a congenital brain tumor. I only had the whole collapsing and convulsing thing happen once, though. The other sorts were I'd feel really dizzy, like I was trying to walk on a spinning platform that was floating through the air; I'd feel incredibly cold and exhausted; I'd have deja vu; and I'd smell anesthetics in places nowhere near hospitals or other medical establishments (olfactory hallucinations). I had the tumor removed several years ago, though, and besides occasional twitchiness, I've otherwise been fine. |
|
| Back to top |
|
Saffy
Sea Gull
Joined: Sep 15, 2008
Posts: 230
Location: New Zealand
|
| Posted: Sat Sep 27, 2008 12:27 am Post subject: |
|
|
My son has epilepsy, he has tonic clonic seizures that last for around 10 minutes ( fortunately not too often - he normally ends up in hospital with these )
He has small absence seizures and complex partial seizures. We're currently trying to find a medication that works for him, he gets a fear aura before his complex partial seizures, and runs around terrified completely unaware of what he is doing .. he's hurt himself and others with these ones. I hate them, and I know he does too  We are trying carbamazapine atm.
H has roughly 6-8 complex partial seizures a week and absence seizures many times during the course of a week. The big tonic clonic ones only happen roughly 3-4 times a year. |
|
| Back to top |
|
FireBird
Phoenix
Joined: Feb 13, 2007
Age: 25
Posts: 991
Location: Cow Town
|
| Posted: Sat Sep 27, 2008 12:27 am Post subject: |
|
|
| I had seizures in the past, but I don't have them now. Mine weren't caused by epilepsy, but rather "conversion disorder." That is when the seizures aren't real but rather a result of stress, anxiety or past trauma. Mine looked like grand mal seizures and I had many of them a day back in 2006. Sometimes they were constant and had 60 of them a day. I would fall on the floor, hurt myself, and seize. Conversion disorder is usually temporary, Oh thank God for that! It was so bad at one point that I had to be taken around in a wheelchair because of safety reasons. To the outsider, the doctors thought they were real. My eyes would roll back into my head, I would lose color, of course the shaking, and I wouldn't be able to speak after a seizure for awhile. Back then it was scary and the only reason why we know it isn't real, is because I was tested on 24 hour monitoring EEG and none of the seizures registered on the EEG. Its all in my head. |
|
| Back to top |
|
|
|
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum
|
|
|
