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Meowpurr
Sea Gull
Joined: Sep 04, 2008
Posts: 208
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 Posted: Thu Oct 02, 2008 6:41 am Post subject: This is getting annoying, really annoying. |
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Alright can people PLEASE quit saying they have aspergers if they are self diagnosed/undiagnosed?
It's a suspicion. Yes, even if you took the online aspie quiz, it's not a diagnosis.
People who want to learn what aspergers really is are seeing people who think they have it and going oh...okay so aspergers is just not being the best at social skills. Yet it is more than that.
Aspergers is apart of the autism spectrum because there are alot of similarities but when people claim they have aspergers and become a mouthpiece basically stating otherwise that they don't have alot of autism tendencies or issues but claim aspergers it's misrepresentation.
It's misleading also when you say that you have aspergers even though you suspect that you do.
It comes across as though people want to erase the criteria of diagnosis and scribble in their own views of what aspergers is.
So yes not everyone fits the common stereotypes such as the same form of stimming, the same special interests and activities but do people who only think they have aspergers really have the right to "educate" others? Isn't it the same "educating" already tossed out in the media which is also misleading?
Then there are also people who are avoiding other diagnosis period because they've already set it in their heads that it's aspergers because of the internet. What if something else is going on and the person goes postal as a result, murders someone, is actually suffering from something else but then claims they have aspergers and try to make that their reason? |
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kxmode
Velociraptor
Joined: Oct 15, 2007
Posts: 466
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Meowpurr
Sea Gull
Joined: Sep 04, 2008
Posts: 208
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| Posted: Thu Oct 02, 2008 6:52 am Post subject: |
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They can claim they suspect. |
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hale_bopp
Ruffle some Feathers
Joined: Nov 03, 2004
Age: 23
Posts: 6318
Location: New Zealand
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| Posted: Thu Oct 02, 2008 6:54 am Post subject: |
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| Why does it matter? I mean it might help them try and find a place to fit in :/ |
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kxmode
Velociraptor
Joined: Oct 15, 2007
Posts: 466
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| Posted: Thu Oct 02, 2008 7:05 am Post subject: |
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Meowpurr why would you post a comment on a forum full of individuals who are not comfortable with the things you're complaining about in the first place, and then you want everyone to provide a "doctor's certification" that says they OFFICIALLY HAVE AS??? o_o
hale_bopp, i agree.
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Meowpurr
Sea Gull
Joined: Sep 04, 2008
Posts: 208
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| Posted: Thu Oct 02, 2008 7:08 am Post subject: |
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"The online resource and community for Autism and Asperger's"
You do belong here and I don't see why you are getting so defensive for unless you are making a fool of yourself on youtube as an undiagnosed aspie trying to say what aspergers really is.
What about people who know for sure? Is there a community for them? Do people who know for sure even belong here anymore? |
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hale_bopp
Ruffle some Feathers
Joined: Nov 03, 2004
Age: 23
Posts: 6318
Location: New Zealand
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| Posted: Thu Oct 02, 2008 7:16 am Post subject: |
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| Meowpurr wrote: | "The online resource and community for Autism and Asperger's"
You do belong here and I don't see why you are getting so defensive for unless you are making a fool of yourself on youtube as an undiagnosed aspie trying to say what aspergers really is.
What about people who know for sure? Is there a community for them? Do people who know for sure even belong here anymore? |
Yes, of course.. I mean I don't check on a regular basis what someones profile says, so I have NO idea who is diagnosed and who isn't. I just treat it as If someone says they have it, i'll take their word for it. |
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MrMark
Abstract Data Type
Joined: Jul 04, 2006
Age: 50
Posts: 9795
Location: Tallahassee, FL
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| Posted: Thu Oct 02, 2008 7:45 am Post subject: |
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Self-diagnosis is extremely valid. There's an entire generation of us who grew up without the diagnosis. Nobody knows our childhoods better than we do. I know that I have it. It's undeniable.
On the other hand, I'm very concerned about young people who have the official diagnosis but are not actually autistic. These people are not getting therapy appropriate to whatever conditions they actually have. Autism is being diagnosed in record numbers. We all doubt how much doctors really know, except when they diagnose autism.
Should we disregard all of us who are over 40 and will never have the official diagnosis? Do we think we have nothing to contribute to the autism awareness movement? Do we think that we have nothing to offer younger autistics?
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"Keep walking, though there's no place to get to. Don't try to see through the distances. That's not for human beings. Move within, but don't move the way fear makes you move."
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hale_bopp
Ruffle some Feathers
Joined: Nov 03, 2004
Age: 23
Posts: 6318
Location: New Zealand
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| Posted: Thu Oct 02, 2008 7:54 am Post subject: |
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| It seems like you're putting some diagnosed young people into question Mr Mark, and that is just as bad as what the OP said. We know our childhoods too. |
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MrMark
Abstract Data Type
Joined: Jul 04, 2006
Age: 50
Posts: 9795
Location: Tallahassee, FL
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| Posted: Thu Oct 02, 2008 8:04 am Post subject: |
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I'm saying that I feel that we don't need to be as concerned about people who are mistakenly self-diagnosed as we need to be about people who are mistakenly diagnosed by a doctor.
I don't see a lot of people on WP who I feel are mistaken about their self-diagnosis. I see a lot of self diagnosed that I feel are probably correct. I see a lot of people who aren't sure. I see a lot of people with the official diagnosis who I have doubts about.
I'm sure that the vast majority of officially and self-diagnosed people are actually autistic. I'm not as concerned about the self-diagnosed who are mistaken as I am about mistakenly diagnosed who have received society's official seal of approval from a doctor who may or may not know what he's talking about.
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"Keep walking, though there's no place to get to. Don't try to see through the distances. That's not for human beings. Move within, but don't move the way fear makes you move."
- Rumi (Translated by Coleman Barks) |
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Kelsi
Phoenix
Joined: Jun 23, 2007
Posts: 643
Location: Australia
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| Posted: Thu Oct 02, 2008 8:11 am Post subject: |
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I think that those of us who are self-diagnosed, have done so after extensive research, extensive self-reflection and self-analysis of both past and present, and extensive exploration of forums such as this. Many of us also have family members who have been officially diagnosed. Personally, I am 100% certain that I am an Aspie. It explains EVERYTHING 
If I could afford to go and see Tony Attwood I would. But I'm not going to waste my money or my time going to see some psychiatrist/psychologist who won't understand how I have been able to successfully camouflage myself for so long. |
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MrMark
Abstract Data Type
Joined: Jul 04, 2006
Age: 50
Posts: 9795
Location: Tallahassee, FL
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| Posted: Thu Oct 02, 2008 8:13 am Post subject: |
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| Kelsi wrote: | I think that those of us who are self-diagnosed, have done so after extensive research, extensive self-reflection and self-analysis of both past and present, and extensive exploration of forums such as this. Many of us also have family members who have been officially diagnosed. Personally, I am 100% certain that I am an Aspie. It explains EVERYTHING
If I could afford to go and see Tony Attwood I would. But I'm not going to waste my money or my time going to see some psychiatrist/psychologist who won't understand how I have been able to successfully camouflage myself for so long. |
Indeed.
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"Keep walking, though there's no place to get to. Don't try to see through the distances. That's not for human beings. Move within, but don't move the way fear makes you move."
- Rumi (Translated by Coleman Barks) |
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Erminea
'simplex sigillum veri'
Joined: Jul 18, 2008
Age: 38
Posts: 1268
Location: Bergen op Zoom, Holland
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| Posted: Thu Oct 02, 2008 8:22 am Post subject: annoying, really annoying? |
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In reply to the OP;
I understand what you're saying but be carefull to say that it is impossible someone is able to selfdiagnose. For instance, I've searched (all the stuff I read and surely not only the hundreds and hundreds of sites I visited) for almost twenty years now why I keep on having the same problems over and over again and why I am who I am. And why my family is this way? I know now for 100% sure that I'm autistic and that my father was (he died 7 1/2 years ago) and my uncle is.
Okay, I can't say that I'm absolutely sure that I'm an Asperger but I'm absolutely sure, like I said, that I'm a High Functioning Autist. Maybe it is more Pdd-Nos, but for me, I gave up the need to have an off. diagnosis and do not have the urge to prove it/ myself to you. Don't belief me if you wish so.
On the other hand do you have absolute faith in what psychologists say? I don't. Some good, some bad. But it's no exact science and shrinks can be arbitrary or even wrong. Some of them have not really the best intentions but that's my experience. Maybe one day I'll tell you something more about this.
I think it's really arrogant to say that someone who selfdiagnosed him/herself is in any case wrong. But hey....
Best of luck,
C.
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Danielismyname
Troglodyte descended
Joined: Apr 03, 2007
Posts: 5926
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| Posted: Thu Oct 02, 2008 8:39 am Post subject: |
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The problem I see is that how the disorder and its symptoms are listed don't accurately explain what it actually manifests in appearance. "A lack of nonverbal cues" doesn't explain much in what a lack of exhibiting and appreciating of nonverbal cues manifests as. Professionals are usually better at recognizing what it looks like than someone who just reads this, as they've seen it. To be sure, one will need to see someone who knows what it looks like, and ask what they think.
It only bothers me if self-diagnosed people say that they are diagnosed (a lie) or that their "Autism" is somehow more an accurate picture than someone who is diagnosed. It also bothers me when people who're diagnosed do the same thing in relation to saying their "Autism" is more accurate than anyone else's too, of course. |
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Igor
Yellow-bellied Woodpecker
Joined: Aug 12, 2008
Posts: 69
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| Posted: Thu Oct 02, 2008 8:50 am Post subject: Re: This is getting annoying, really annoying. |
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| Meowpurr wrote: | | Alright can people PLEASE quit saying they have aspergers if they are self diagnosed/undiagnosed? |
Quite simply, no. What does it matter to you what people say? Most of us older people never had the opportunity to be diagnosed. Most of us keep our self-diagnosis to ourselves & anonymously on these boards, so why would you even have an issue with that? Why on Earth would we want to pretend to have a condition which, for many of us, has totally screwed up our lives without the benefit of being able to get any answers or support? Some of us are even old enough that if we had had some form of diagnosis of a "mental illness", we would probably have been thrown into a secure mental hospital.
Besides, with the ability of many GPs not to be able to diagnose psychological conditions correctly, combined with a set of diagnostic criteria which are purely subjective, how can you be sure that everyone with an official diagnosis really has AS? Doctors have been known to be wrong (I had 5 years of being diagnosed with "none specific back pain" until finally a doctor discovered I had a joint eroding disease).
| MrMark wrote: | | Should we disregard all of us who are over 40 and will never have the official diagnosis? Do we think we have nothing to contribute to the autism awareness movement? Do we think that we have nothing to offer younger autistics? |
What he said. |
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