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vivinator
Toucan
Joined: Nov 16, 2008
Age: 29
Posts: 294
Location: MD
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 Posted: Wed Jun 24, 2009 11:18 am Post subject: |
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| Cerddinen wrote: | | vivinator wrote: |
of course the late-talking plus visual-spatial seemingly rules isn't common with as.
the late-talking could exclude it. not sure how late i talked. well i did call dada and mama and 1.5 yrs.
2 languages were spoken in the house as well.
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The clinician might not have been aware of it but it's normal for simultaneous bilinguals to begin speaking later than monolinguals but when they begin speaking, they speak both languages. It would seem to me that late speech for a simultaneous bilingual shouldn't rule out anything. |
well I never really had a formal neuropsyh eval to dx nld. my only full neuropsych eval was in '91. but 2 neuropsychs think I have it, including the one I am seeing for counseling now
_________________
All men are frauds. The only difference between them is that some admit it. I myself deny it.
-HL Mencken
-as of now official dx is ADHD (inattentive type) but said ADD (314.00) on the dx paper, PDD-NOS and was told looks like I have NLD |
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vivinator
Toucan
Joined: Nov 16, 2008
Age: 29
Posts: 294
Location: MD
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| Posted: Wed Jun 24, 2009 11:24 am Post subject: |
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| exhausted wrote: | well--don't know if anyone else is posting at this thread anymore, but felt i had to jump in anyway.
in 40's and just coming into an awareness of both NLD and AS. the descriptions of NLD especially have given me a strong framework for putting a lot of little mysteries into perspective. once i have health care, will consult a neuropsychologist.
i've always wondered about my "wiring"--at least, as long as it was possible to wonder about such things. knew it was different. (have an almost photographic memory for words and can be highly analytical but can get lost in familiar buildings. didn't ride a bike until 12. math is an enduring mystery. that tricky "left-right thing" still catches me up.)
just wondering how people with NLD feel their social skills are in comparison/contrast with AS? (mine are terrible. even though i understand metaphor, etc. in print--when in one-on-one contact with others, i take most things literally. i can't see the point of small talk. i have difficulty with "appropriate" facial expressions. i don't like eye contact. most of the rules of social etiquette either escape me or make little sense--like gossip, etc. etc., etc.,)
just wanted to put this out there. know it's long. but i'm still
--trying to figure it all out.  |
this thread does limp on. don't see it stopping.
I think NLD social skills can very from very near NT to more serious , but overall worse than AS.
_________________
All men are frauds. The only difference between them is that some admit it. I myself deny it.
-HL Mencken
-as of now official dx is ADHD (inattentive type) but said ADD (314.00) on the dx paper, PDD-NOS and was told looks like I have NLD |
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vivinator
Toucan
Joined: Nov 16, 2008
Age: 29
Posts: 294
Location: MD
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| Posted: Wed Jun 24, 2009 11:30 am Post subject: |
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| vivinator wrote: | | Cerddinen wrote: | | vivinator wrote: |
of course the late-talking plus visual-spatial seemingly rules isn't common with as.
the late-talking could exclude it. not sure how late i talked. well i did call dada and mama and 1.5 yrs.
2 languages were spoken in the house as well.
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The clinician might not have been aware of it but it's normal for simultaneous bilinguals to begin speaking later than monolinguals but when they begin speaking, they speak both languages. It would seem to me that late speech for a simultaneous bilingual shouldn't rule out anything. |
well I never really had a formal neuropsyh eval to dx nld. my only full neuropsych eval was in '91. but 2 neuropsychs think I have it, including the one I am seeing for counseling now |
I did have, I guess a psych-education eval or educational-eval in '07. this included the WAIS and part of the woodcock johnson. nelso denny test for reading comp. etc.
_________________
All men are frauds. The only difference between them is that some admit it. I myself deny it.
-HL Mencken
-as of now official dx is ADHD (inattentive type) but said ADD (314.00) on the dx paper, PDD-NOS and was told looks like I have NLD |
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Cerddinen
Butterfly
Joined: Jun 03, 2009
Posts: 9
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| Posted: Wed Jun 24, 2009 5:47 pm Post subject: Re: NLD Information and Support Thread |
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| earthmonkey wrote: |
There's not really one good name that I've found for my learning style apart from autism (which can encompass many learning styles, including those who are very good and very bad at math, and many other varieties of learning), so probably I'd have to find different labels and squash them together. I don't feel like I need a label, but since I have a neuropsych evaluation coming up, I just wanted to see if there was any other thing, or if they would just describe the pattern of strengths and weaknesses as per the IQ test and motor skills test? I had an IQ test and motor skills test from a neuropsychologist about six months ago in high school but the state doesn't think that's good enough and wants to do it over. |
I was diagnosed with NLD by a neuro-psychologist. My neuropsych report, aside from listing diagnoses, also says that I am what is called a full spectrum learner. This means that I must both see and hear information rather than just see it like a visual learner or hear it like an auditory learner. There are also kinisthetic learners who need to go through the motions of doing something in order to learn it. |
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Cerddinen
Butterfly
Joined: Jun 03, 2009
Posts: 9
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| Posted: Wed Jun 24, 2009 5:50 pm Post subject: |
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| pineapple wrote: | "Writing skills" is listed as a weakness? That's surprising to me...since verbal communication is supposed to be our strength. And writing is my best skill (perhaps not evident in my posts), which I've thought was in part thanks to NLD...
Also, do people with NLD have any sort of nickname like "Aspies"? "People with NLD" gets a little ponderous to say. |
I was considered to be a good writer until I hit a particularly high level of expectation. I am good at saying what I want to say but my papers for school are poorly organized. My individual paragraphs are all fine but they often need to be rearranged in order to flow better and be cohesive.
Some people say NLD'er but I don't particularly like it myself. |
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Cerddinen
Butterfly
Joined: Jun 03, 2009
Posts: 9
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| Posted: Thu Jun 25, 2009 8:40 am Post subject: |
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| Lightning88 wrote: | I have NLD and I remember things so much easier when it comes to visual memory rather than hearing it. Here's a good example:
I can listen to a song 300 times and not even learn all the words (not kidding). Yet, I can read the lyrics to the song just three times and memorize it with no problems at all. I don't know if I'm an exception or not, but that is just me. |
I think there is a difference in needing to look at text (reading) and needing to see a picture or diagram. I also need to read things in order to remember them or understand them better much of the time but a picture or diagram would not help me in this at all. I wonder if reading is actually different than visual memory? |
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Poke
Yellow-bellied Woodpecker
Joined: May 16, 2009
Posts: 55
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| Posted: Thu Jun 25, 2009 9:26 am Post subject: |
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I started asking questions at around 9 months. "What's this?" and "What's that?" --which I asked constantly and of everything.
When I was about about 11 months old, my mother took me to visit my great aunt and uncle, who had a picture or something hanging on the wall. Something like this:
Anyway my mother carried me over to it and brought it to my attention. I looked at it, pointed at the area delineated by the cord from which it hung, and said, "Triangle."
Apparently my parents didn't read many books about having babies before they brought me into the world, because they just assumed this mean that I was a little extra smart. Unfortunately, their first thoughts were typical, "Sweet! We're gonna have a doctor/lawyer/etc. in the family" type stuff. Whereas the proper reaction to that kind of behavior should be more along the lines of, "Holy crap, my kid's brain sure is weird!"
I think the socialization issue is worse in some ways for individuals with NLD than it is for those with "pure" Asperger's. NLD doesn't seem to involve as much of the flat affect, etc. that are kind of obvious, surface-level diagnostic elements of AS (of course not everyone with AS has a flat affect, I'm just dealing in generalities here). In other words, I think it's easier for someone with NLD to "get away" with mimicking NT behavior. This is a double-edged knife, though, because NLD (as far as I understand it) is generally harder to detect. Unless you REALLY know what you're looking for, NLD is hard to identify.
You could compare AS vs. NLD to stroke vs. hypertension. The effects of a stroke are more noticeable, so at least the individual who has one will get the help they need. But hypertension is just as bad, but unless someone with specialized knowledge ascertains your general condition, it's going to eat away at you silently, unnoticed.
Once again, this is all just pure speculation. I am not an expert. |
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Cerddinen
Butterfly
Joined: Jun 03, 2009
Posts: 9
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| Posted: Thu Jun 25, 2009 12:10 pm Post subject: |
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| starygrrl wrote: |
Actually this is not necessarily true. It is not uncommon for LD-NOS (nld) to be in the diagnosis if both are present. A PDD diagnosis does not necassarily preclude NLD, in fact it could be comorribund diagnosis. It all depends on whether the diagnostician is apt to say NLD is an atypical version of AS (thus getting a PDD-NOS diagnosis) or a learning disorder. If they come from the learning disorder school of thought, its co-morribund, if they come from NLD being atypical AS, AS diagnosis trumps it. It is VERY inconsistant right now. Both AS and NLD though are caused by the same thing, atypical right hemesphere development. |
LD-NOS and NLD are not the same thing. I was only speaking of Asperger's and NLD, not of other pervasive developmental disorders and NLD which may (not sure) be diagnosed as co-morbid disorders. |
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Cerddinen
Butterfly
Joined: Jun 03, 2009
Posts: 9
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| Posted: Thu Jun 25, 2009 12:16 pm Post subject: |
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| Whatsherhame wrote: | Question:
Is it possible to have aspergers and NLD at the same time? Because that's what I apparently have.  |
When you say "apparently", do you mean that this is what you were diagnosed as having or this is what you think you have? |
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exhausted
Phoenix
Joined: Jun 23, 2009
Posts: 552
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| Posted: Tue Jun 30, 2009 6:55 pm Post subject: |
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| Cerddinen wrote: | | pineapple wrote: | "Writing skills" is listed as a weakness? That's surprising to me...since verbal communication is supposed to be our strength. And writing is my best skill (perhaps not evident in my posts), which I've thought was in part thanks to NLD...
Also, do people with NLD have any sort of nickname like "Aspies"? "People with NLD" gets a little ponderous to say. |
I was considered to be a good writer until I hit a particularly high level of expectation. I am good at saying what I want to say but my papers for school are poorly organized. My individual paragraphs are all fine but they often need to be rearranged in order to flow better and be cohesive.
Some people say NLD'er but I don't particularly like it myself. |
(BTW: apologies to anyone who may have read my last post here, which i deleted. realized i went on assumption partially. also, that the bringing up of an apparent controversy may have been an example of flaming.)
anyway--i relate to the changes in writing effectiveness over time. when i was in grade school, i got all kinds of recognition for my writing skills. during college, however--or for most of it anyway--my instructors found the majority of my research papers difficult to comprehend. (run-on sentences, disorganized presentation, etc. those were the main complaints in my case.)
i think it's possible to turn some of that around. these days, my sentences seem almost too short and clipped. i also organize thoughts obsessively, edit obsessively. maybe it's okay to swing to extremes to find a balance, though.
ps: i'd like to know if we have a nickname too. it could be fun 
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word demon. |
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NowhereWoman
Blue Jay
Joined: Jul 02, 2009
Posts: 87
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| Posted: Sat Jul 04, 2009 11:04 am Post subject: |
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Holy cow. I am really, really wondering if this is me.
The one confusing part is that I see comments about loving language and having it come naturally, but having difficulty writing...my handwriting itself is almost unreadable, but I write for a living. HOWEVER...I AM pretty disorganized in my writing. I've wanted to write a book for 30 years, but I CAN NOT organize it...I don't know where to start, where to stop...I've read countless books on the subject but still can't...round it out. I don't know. The things I write professionally are always much shorter than books...way way shorter. That's because I can only "zing" with a quick beginning, middle and ending in a very formulaic way. Give me more freedom than that with a longer piece and I'm seriously lost.
I love words so much. I spoke very early and was using, at minimum, phrases at a year and full sentences at 14 months. I love learning, and then saying, bits and phrases from other languages. When I took Spanish in school, I excelled in Year One because it was all vocabulary memorization and short phrases; I don't remember ever getting below a 95 on a Spanish test. Once I hit Spanish II, though, with verb conjugation, I was lost and did much less well. But I still love saying words and phrases in Spanish...in French...I even know one Japanese phrase that I love to use, but I don't know how to spell it. I have also recently taken an interest in learning Norwegian.
As for the other stuff...as an adult, I used to joke in retrospect that perhaps I'd had a learning disability in school, since I heard over and over, "NW can do so much better. She must just be lazy," yet I KNEW that I simply could not take a test. It was horrible. When I tried to study, the harder I stared at the book, the less the words made sense. Homework was torture for me. But it's odd--when something sparked my interest, if I listened naturally and without anxiety, I would remember the details forever (and still do). I am big on details; people used to call me Ms. Dictionary sometimes, and Ms. Trivial Pursuit other times. 
As for math...holy cow. If only I were a boy, I could unzip and count to 21, but sadly, as a woman, I can only count to 20. (An old joke I made up...doesn't flow so well on paper, though...) Seriously. TORTURE. I remember third grade and learning "sets" (we grouped the numbers with circles around them as an introduction to multiplication). I knew AT THAT MOMENT that I was not "such a smart girl!" like everyone had been saying--instead, it was the opposite; I was a moron.
I've been a moron ever since.
Physically, I have always thought there was something "wrong with" me. I am very nearsighted, but it's not just that. Even with my glasses on, during baseball, the ball would be coming toward me and I'd KNOW, I'd SEE where it was going to fall so I'd lift up my glove and...the ball would fall down a few feet away from me. (Much to the screaming, angry jeers of my teammates. I was always the last person picked for a team.) So many times I was singled out by the gym teacher--"You know, girls can do these things too." (Yeah, I know they're SUPPOSED to be able to do these things too)--to my horrified embarrassment. "NW, here, I'll put my hands over yours and SHOW you how to throw a basketball..." Idiot, I know how to throw. I just don't know how to throw...and have the ball land where I want it to.
My mother and sister were wonderful dancers. I sucked and I still do, and it's so sad because I would LOVE to be able to dance. I am horrified at weddings and that sort of thing because I know I'm going to have to get up and dance and I'll lose the plot of where my body is and my hands will be doing...something...I don't know. I'm uncomfortable in my own skin...I never know where to put my hands, or how to stand (straighter? Less straight? Turn to the side?).
I do get deep interests. So I'm not sure about that part. I've been interested in the middle ages for over ten years now and have been to the library countless times, own my own home library collection basically on this subject, and am constantly online about various intricate details.
It's hard to have been told as a very young child that you're brilliant...then have it ALL change a few years later and to live the rest of your life feeling like the world's leading idiot...like there is just something really, really wrong with you to be so stupid, and worse, to have always been told you "could" do better...but not understanding how you "can" possibly do that. To try and be told "You're not trying!" And to be a social misfit and physically inept.
Last edited by NowhereWoman on Sat Jul 04, 2009 11:12 am; edited 2 times in total |
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NowhereWoman
Blue Jay
Joined: Jul 02, 2009
Posts: 87
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| Posted: Sat Jul 04, 2009 11:07 am Post subject: |
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Oh...I also have some weirdness about...remembering things visually. I don't necessarily recognize a person's face the next time I see him or her...or, I sort of do but can't be sure it's the same person. And when I try to recall the way something looks, it's a blur in my mind. I usually "see" shadows mentally rather than full pictures. I hear my memories instead.
When I first moved to my new house four years ago, I immediately said to myself over and over again, "Beige house with brown shutters. Beige house with brown shutters" to memorize it, because if not, it could have been 10 years later and somebody could say, "What color is your house?" and I wouldn't know. And you know, you have an experience or two like that and you get tired of people giving you that "Is she crazy, or is she retarded?" stare. |
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exhausted
Phoenix
Joined: Jun 23, 2009
Posts: 552
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| Posted: Sat Jul 04, 2009 5:30 pm Post subject: |
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| NowhereWoman wrote: | Oh...I also have some weirdness about...remembering things visually. I don't necessarily recognize a person's face the next time I see him or her...or, I sort of do but can't be sure it's the same person. And when I try to recall the way something looks, it's a blur in my mind. I usually "see" shadows mentally rather than full pictures. I hear my memories instead.
When I first moved to my new house four years ago, I immediately said to myself over and over again, "Beige house with brown shutters. Beige house with brown shutters" to memorize it, because if not, it could have been 10 years later and somebody could say, "What color is your house?" and I wouldn't know. And you know, you have an experience or two like that and you get tired of people giving you that "Is she crazy, or is she retarded?" stare. |
well--keep in mind that, at this point, i'm self-diagnosed. but anyway: howdy, sister.
it's weird, isn't it? finding out there's actually a category for all those "highly personal quirks?" i have wondered for years if there wasn't something a little different about my wiring--largely because some things came so easily, whereas simple addition, simple directions, social skills, etc.--forget it.
i write too. i love to write anyway--fiction. but it takes me forever, and i have to edit obsessively. otherwise, it makes little sense.
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word demon. |
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NowhereWoman
Blue Jay
Joined: Jul 02, 2009
Posts: 87
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| Posted: Sun Jul 05, 2009 4:01 pm Post subject: |
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| exhausted wrote: | | NowhereWoman wrote: | Oh...I also have some weirdness about...remembering things visually. I don't necessarily recognize a person's face the next time I see him or her...or, I sort of do but can't be sure it's the same person. And when I try to recall the way something looks, it's a blur in my mind. I usually "see" shadows mentally rather than full pictures. I hear my memories instead.
When I first moved to my new house four years ago, I immediately said to myself over and over again, "Beige house with brown shutters. Beige house with brown shutters" to memorize it, because if not, it could have been 10 years later and somebody could say, "What color is your house?" and I wouldn't know. And you know, you have an experience or two like that and you get tired of people giving you that "Is she crazy, or is she retarded?" stare. |
well--keep in mind that, at this point, i'm self-diagnosed. but anyway: howdy, sister.
it's weird, isn't it? finding out there's actually a category for all those "highly personal quirks?" i have wondered for years if there wasn't something a little different about my wiring--largely because some things came so easily, whereas simple addition, simple directions, social skills, etc.--forget it.
i write too. i love to write anyway--fiction. but it takes me forever, and i have to edit obsessively. otherwise, it makes little sense. |
Hello, my sister in freakinesss! Yes, it's very odd, and lifting, to go from "well, I've always just been a freak" to "oh...you mean there's a name for that?"
Me too on math and directions. At the age of 28, I once called my sister SOBBING--actually, my oldest son and I were both sobbing--from having worked on a homework word problem for ONE HOUR; something about trains and speed and...and...I don't know. She gave us the answer in about four seconds. Thank God. We can laugh about it now.
As for directions, I always tell people I could get lost on the way to the bathroom and that I wish those Ronald McDonald feet led me to and from everywhere...and they always laugh...not realizing it's not a joke.
Hugs to you, friend and fellow writer. |
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LostInSpace
The Librarian
Joined: Apr 17, 2007
Age: 25
Posts: 2519
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| Posted: Sat Jul 11, 2009 12:36 pm Post subject: |
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| twinky333 wrote: | | I have to make an effort to see pictures in my mind and they are very blurry like snapshots coming from a dark mist. I never have a visual video or movie in my head, not for memories, day dreaming or planning. I do not see the lay out of a grocery store or the features of a person's face. |
This sounds like me. I have to try very hard to picture even the face of someone in my family, and usually the best I can do is to picture it in a vague way for just a split second. When I picture things, it is usually just parts of them that I can see, and they fade in and out. I certainly can't get any information from what I picture in my head- if I didn't encode it verbally when I first saw it (like "this person has wavy hair"), I will not be remember it through picturing it. Pretty much the opposite of Cam Jansen (who has a photographic memory), who pictures things and then can notice new details based on her mental picture.
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