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NLD Information and Support Thread
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LostInSpace
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PostPosted: Sat Jul 11, 2009 12:42 pm    Post subject: Reply with quote

Lightning88 wrote:

I can listen to a song 300 times and not even learn all the words (not kidding). Yet, I can read the lyrics to the song just three times and memorize it with no problems at all. I don't know if I'm an exception or not, but that is just me.


Remembering something by reading it is more "verbal" than "visual". I have NLD and actually don't have a good auditory memory because of problems with sustained attention to auditory information (although my visual memory is far worse). I can remember anything I read though. Yes, technically reading something should be visual, but when you are reading, you are taking in information which is encoded verbally rather than just remembering a picture. Especially when you consider that most people "hear" the words in their head as they are reading. Unless you are actually creating a visual memory of the page which you then read off later, the information is being encoded verbally in your head. Having the lyrics written down rather than listening to them just let you process the words at your own rate- you don't need the constant attention and rapid, sequential auditory processing to decode and then encode written words as you do for spoken words.
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LostInSpace
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PostPosted: Sat Jul 11, 2009 12:52 pm    Post subject: Reply with quote

Cerddinen wrote:

Your description of NLD is the best one I've ever seen. I actually copied it and pasted it to my livejournal yesterday before I became a member of this forum. I put that I didn't write it but I didn't know the name of the author. If you'd like me to credit you somehow, just let me know how. Thanks for writing it.


You're welcome! I enjoyed writing it- NLD is a major interest for me so I wrote it mainly from memory based on different things I've read over the years. Don't worry about crediting me. If you want to, you can just call me "LostInSpace" though. I'm glad you found it helpful, and I'll have to check out your livejournal!
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LostInSpace
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PostPosted: Sat Jul 11, 2009 1:02 pm    Post subject: Reply with quote

Cerddinen wrote:
pineapple wrote:
"Writing skills" is listed as a weakness? That's surprising to me...since verbal communication is supposed to be our strength. And writing is my best skill (perhaps not evident in my posts), which I've thought was in part thanks to NLD...
Also, do people with NLD have any sort of nickname like "Aspies"? "People with NLD" gets a little ponderous to say.


I was considered to be a good writer until I hit a particularly high level of expectation. I am good at saying what I want to say but my papers for school are poorly organized. My individual paragraphs are all fine but they often need to be rearranged in order to flow better and be cohesive.


That's basically what I've read about NLD. I know it sounds weird to say that writing can be a weakness with NLD (and it isn't for me), but there is quite a bit out there that suggests that NLDers have difficulty with organization of writing, transitions, being cohesive, etc. I do have difficulty with writing transitional sentences (same with speaking- I tend to introduce new topics abruptly) and with staying all in the same tense (I tend to skip between past and present if I'm not careful), but overall I don't have the typical NLD writing problems.
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LostInSpace
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PostPosted: Sat Jul 11, 2009 1:16 pm    Post subject: Reply with quote

NowhereWoman wrote:
Oh...I also have some weirdness about...remembering things visually. I don't necessarily recognize a person's face the next time I see him or her...or, I sort of do but can't be sure it's the same person. And when I try to recall the way something looks, it's a blur in my mind. I usually "see" shadows mentally rather than full pictures. I hear my memories instead.


This is totally me. I will meet someone, and the next time I see them I will think they look sort of familiar, but it will be ages before I can consistently know that this is the same person without confusing them with someone else. I've been working at my current job for 6 months now, and there are still some of my co-workers that I can't consistently tell apart (it's not like they look like each other either). It helps if you can focus on one particular feature of the person to remember. That is a strategy that I have been trying to use lately.

Quote:
When I first moved to my new house four years ago, I immediately said to myself over and over again, "Beige house with brown shutters. Beige house with brown shutters" to memorize it, because if not, it could have been 10 years later and somebody could say, "What color is your house?" and I wouldn't know. And you know, you have an experience or two like that and you get tired of people giving you that "Is she crazy, or is she retarded?" stare.


This is called "verbal mediation" and it is a lifeline for NLDers (also for people who have had a right hemisphere stroke, interestingly enough). This is how I function in life. I have to deliberately encode things verbally in order to remember them. Especially when it comes to remembering directions, and especially in nightmarish places like parking garages or parking lots where there are no good landmarks.

Honestly, it's no wonder NLDers have problems with anxiety. So many little things in everyday life are just so ridiculously difficult. How many people dread parking in a parking lot because they know how much difficulty they will have finding their car? Or even just getting it into the parking spot? I just feel like so much of what is around me, both my in my physical environment and in social situations, is information that I can't process. It's like walking through a fog- you get individual fragments of clarity as something becomes visible through the fog, but most of what it is going on you are just not privy to because you can't "see" (process) it.
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zen_mistress
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PostPosted: Sun Jul 26, 2009 5:04 am    Post subject: Reply with quote

LostInSpace wrote:


Honestly, it's no wonder NLDers have problems with anxiety. So many little things in everyday life are just so ridiculously difficult. How many people dread parking in a parking lot because they know how much difficulty they will have finding their car? Or even just getting it into the parking spot?


I dont get anxiety from the parking itself (unless it is an awkward space) but if I pull into a parking lot and there are one or more cars circling around with me I become frozen and dont know what to do because a car could stop, or more cars could appear, and then I might try to pull into a space but I do it at a wrong angle and have to back out again but another car has appeared behind me and I cant back so I freeze again... you get the idea...
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Alexithymian
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PostPosted: Mon Aug 03, 2009 6:03 pm    Post subject: Reply with quote

Hi,

I hope this doesn't sound pedantic, specially for a first post, but after browsing this topic I have the feeling most of you people have the wrong idea of NLD.
To put it short, NLD doesn't exist anymore.

In order to avoid confusion among neurologists and psychiatrists around the world, there is booklet called: 'DSM' (Diagnostic and Statistical Manual of Mental Disorders)
Currently they are (or should be) using version 4 'DSM-IV', containing the standard definition of every disorder currently diagnosed. (sorry, I hate to use the ugly word disorder in this context, but whatever...)

In this version you will NOT find the definition of NLD; while in the older versions you did.
Why? Because people with NLD actually fit in other phenotypes like ADD, Aspergers and Dyssemia with greater accurancy.

People diagnosed with NLD in the past, probably have Aspergers or something else related.
So, there is no such thing as having NLD and Aspergers at the same time... besides you probably have neither of them, because the term of what you have doesn't exist yet, neurologists are just n00bs. Very Happy

Hope this puts an end to the confusion.
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GreatCeleryStalk
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PostPosted: Mon Aug 03, 2009 11:12 pm    Post subject: Reply with quote

Forget parking lots... I had a hard time figuring out where my desk was in class when I was in elementary school.
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GreatCeleryStalk
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PostPosted: Mon Aug 03, 2009 11:15 pm    Post subject: Reply with quote

Alexithymian wrote:
Hi,

I hope this doesn't sound pedantic, specially for a first post, but after browsing this topic I have the feeling most of you people have the wrong idea of NLD.
To put it short, NLD doesn't exist anymore.

In order to avoid confusion among neurologists and psychiatrists around the world, there is booklet called: 'DSM' (Diagnostic and Statistical Manual of Mental Disorders)
Currently they are (or should be) using version 4 'DSM-IV', containing the standard definition of every disorder currently diagnosed. (sorry, I hate to use the ugly word disorder in this context, but whatever...)

In this version you will NOT find the definition of NLD; while in the older versions you did.
Why? Because people with NLD actually fit in other phenotypes like ADD, Aspergers and Dyssemia with greater accurancy.

People diagnosed with NLD in the past, probably have Aspergers or something else related.
So, there is no such thing as having NLD and Aspergers at the same time... besides you probably have neither of them, because the term of what you have doesn't exist yet, neurologists are just n00bs. Very Happy

Hope this puts an end to the confusion.


Erm. No. NLD is not a current diagnostic category in the DSM-IV. It wasn't in the DSM-III either. Yes, there's a high incidence of co-morbidity for AS in people with NLD (or the other way around). The most current research on NLD doesn't appear to support your claims, however.
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LostInSpace
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PostPosted: Wed Aug 05, 2009 9:46 pm    Post subject: Reply with quote

Here is an interesting website talking about some differences between NLD and AS:

http://www.aane.org/asperger_resources/articles/miscellaneous/asperger_nonverbal_learning.html
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LostInSpace
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PostPosted: Wed Aug 05, 2009 9:49 pm    Post subject: Reply with quote

Alexithymian wrote:

In this version you will NOT find the definition of NLD; while in the older versions you did.
Why? Because people with NLD actually fit in other phenotypes like ADD, Aspergers and Dyssemia with greater accurancy.


Actually, NLD has never been included in the DSM, although it was first identified in the 1960s. It is expected to be included in the next version of the DSM however (estimated to be published in 2012), as it has been studied in much more detail since the last revision and much more is known about it. Are you sure you are not confusing NLD with something else, like PDD-NOS? (the term "Pervasive Developmental Disorder" probably *won't* be in the next DSM)
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Seraphim
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PostPosted: Fri Aug 07, 2009 2:13 am    Post subject: Reply with quote

I read the whole NLD (or NVLD) topic on Wikipedia and that is me exactly. Explained a lot of my standardized test scores when I was in school. I did brilliantly on Language Mechanics and Spelling, but Reading Comprehension was dismal (I won't mention math because, well, it's hard being math's friend). Currently, I am AS/NLD--and darn proud of it! Very Happy
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Grace09
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PostPosted: Thu Sep 03, 2009 10:49 pm    Post subject: Reply with quote

My stepson was diagnosed with NVLD in the beginning of this year, he is 13. It seems to fit him to a T, the social problems, the difficulty with math, etc. In fact, before I knew NVLD existed, I had decided he must have AS or something close to it. However, some people here have said he sounds more like HFA. He had a speech delay, he didn't speak until he was 4 years old which is the only thing that doesn't really fit, because it seems kids with NVLD are the early talkers and early readers. However, that is what the psychoeducational evaluation said, he has NVLD. There is a huge gap between his VIQ and his PIQ and I thought that is what decides it? but if I look at the DMS criteria for HFA, yes that fits him to a T as well, very much so. Could he have both?
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Luluchan531
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PostPosted: Wed Sep 09, 2009 4:17 pm    Post subject: Reply with quote

@ Grace09: Actually yes. 80% of those with AS have symptoms of NLD so it's entirely possible that your son could have both.
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GreatCeleryStalk
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PostPosted: Wed Sep 09, 2009 7:49 pm    Post subject: Reply with quote

Luluchan531 wrote:
@ Grace09: Actually yes. 80% of those with AS have symptoms of NLD so it's entirely possible that your son could have both.


It's more likely that 80% of NLD diagnoses have AS as a comorbid. NLD generally requires some form of right hemisphere brain damage/white matter malformation in order for diagnosis to occur. The diagnostic criteria for the two disorders are very similar and they share some major traits, but are very, very different.

An example:

My visual-spatial memory is absolutely rubbish (I have NLD). My friend with AS has an excellent visual-spatial memory. He rarely gets lost, excellent sense of direction, etc. I can get lost in classroom or a parking lot very easily.

I can generally manage better/more appropriate eye contact than my friend with AS, although our impairment with non-verbal behavior is similar; I sometimes have a little more social intuition than he does.
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Grace09
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PostPosted: Wed Sep 09, 2009 11:32 pm    Post subject: Reply with quote

GreatCeleryStalk wrote:

I can generally manage better/more appropriate eye contact than my friend with AS, although our impairment with non-verbal behavior is similar; I sometimes have a little more social intuition than he does.

Socially my stepson is in no-mans land. I mean, I don't know. I really don't think he's AS because they seem to be good at things like math and science. The NVLD fits, but he is not, like I dunno, the NVLD types here so beyond where he is. I think, if I have to guess and I have to guess because there's no way my husband (his dad) will have an assessments that isn't required, is that he has NVLD and HFA. Unless the school requires more assessments he won't get another diagnosis other than NVLD. A psychologist gave him a standardized test which showed the difference in the PIQ and the VIQ. It can't assess the way he stands really close (sometimes on my toes) or the volume of his voice, you know? It can't test that his conversations go one way and are obsessively about object, etc. I am grateful he got the diagnosis of NVLD because I had come to the conclusion he had something like AS and my husband told me I was nuts.

It's interesting, someone said it will be in the next DSM? Can a psychologist diagnose AS or HFA or does it need to be a psychiatrist? I know it's not a mental illness but I read somewhere it needs to be evaluated from a psychiatric history?
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