nobody believes that I have Asperger's when I tell them

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MattShizzle
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07 May 2009, 2:37 pm

There are some idiots out there who think AS is "made up."



gina-ghettoprincess
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07 May 2009, 2:49 pm

I got yelled at by a teacher for saying I have AS, I was told I am not special and I don't deserve help and I am draining funds away from people with terminal illnesses. That teacher was a bastard. :(


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MattShizzle
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07 May 2009, 3:04 pm

You should report that teacher, unless it was too long ago.



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07 May 2009, 3:08 pm

MattShizzle wrote:
You should report that teacher, unless it was too long ago.


It was only in March, I think (my diary would have the exact date). I have nobody to report to because even the headteacher agreed with him.


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MattShizzle
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07 May 2009, 3:10 pm

I'm not familiar with how it is in England but here there'd be lawyers, advocates for the disabled, the school board, State Dept of education, etc.



dustintorch
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07 May 2009, 6:24 pm

Wow I can't believe a teacher would treat you like that! That person should definitley be fired. I don't think it's made up at all but I'm sure some people who don't understand it would think that. I also don't think it's a disability though. I don't think of myself that way at all. If you think about it actually makes some of us more able in certain aspects of life...just not nessicarily social skills. I was just reading about one person on this website who can learn any musical instrument without lessons, and quickly. I think that's amazing.



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05 Apr 2014, 4:57 pm

dustintorch wrote:
Hi I'm new to the website and I'm not professionally diagnosed with Asperger's. When I try to tell people that I think I have it they actually get mad at me. I want to explain to them all my symptoms but it's a little embarassing. When I was younger:

>I would flap my hands whenever I was excited
>I would bang my head into walls if I was upset or bite my hands....mostly over video games (this is the most embarrasing)
>I was obsessed with video games and drawing super heroes (still am)
>I had no friends from 2nd grade to 8th and I didn't really try to make them.
>was diagnosed with depression in 8th grade and put on anti-depressants...I finally started to make friends
>I was and still am slightly uncomfortable with eye contact.
>always have been told I'm socially awkward and never understand why.

Ever since anti- depressants (which I'm not on anymore) I've been able to make friends alright, but the relationships are difficult for me to understand. I randomly became obsessed with ballet and now I'm a professional ballet dancer with a major company...I think it's because I'm somewhat successful and I can make friends, that nobody believes me. Can anybody give me any insight into this?


I want to be a ballerina too and have asperger, but the people around me are telling me that for this raison it's impossible...because I have difficulties in communicate...discrimination isn't? I have also trouble in picking up quickly, are slow, but I really want it because it's my obsession and life. How did you did to make it as a professional? I have also trouble with eye contact and social rules, make friends and so on...People who don't know autism tells me they don't believe I have either because they don't know this form of autism others simply don't talk to me.



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07 Apr 2014, 5:42 pm

Hi everyone. I am new here in this forum and I have to confess I have been thinking about wiriting here for a while but never had the courage. I am a 23 year-old girl and I think I have Asperger, even if nobody takes this idea seriously. I explain...
(I am Italian so don't take my language mistakes as some kind of deficiency)
I was always the shiest kid, with my parents having to push me so that I could make any social contact, I was confortable only with them and I could spend entire days in my room in my own world; even in kindergarden I did not want to participate in any group acitivty or outdoor activity. I was always very anxious and quiet, I remember my dad once said to me kids should not ask their parents to buy them things and I just became obsessed about it and literally did not ask anything for days because I was afraid I was being rude. In general, I remember me as a kid being very very confused about how to interact with others, and having few friends (like... two) and being afraid they would just 'unfriend' me because I did something wrong. I began taking ballet classes and that was the only kind of sport I could do. In the past few years I have had few friends: usually I am not part of a group, if there is a group I find one person I think I can get along with and that's all; I have had a few of these 'best friends' but 1) I am not their 'best friend' (they explained to me that I don't share much and I always seem cold and not interested...) 2) I find it very difficult to keep the friendship if I am not seeing them in school or on a daily basis for other things. Believe me, I am trying. I have a little sister and my mom is always accusing me of being rude and not caring for her so much. Her favourite things to say to me are 'you have to be more spontaneous, you NEVER do something spontaneously generous for anyone, you never care, you never understand people'.


Now... I have recently had anxiety issues and as always I did a lot of research on the Internet (that's also my thing: obsessing with things and research a lot) I found the Aspie quiz. Result: 167 AS, 41 NT. That was me. In particular: not being able to maintain eye contact, difficulties in activities like catching a ball or driving, excellent marks and unusually accurate vocabulary, obsession with details and grammar... and many others. I told my mom about the test and she said I had defenetely OCD, she was laughing. I managed to get her to take the quiz and when she got normal scores she told me I had a problem, I was too obsessed with things.. and 'PEOPLE CAN CURE THEMSELVES, IT'S ALL IN YOUR HEAD'. I was shocked. I was asking for help, I mean... I don't know for sure if I am an Aspie, but I really want to get or get not diagnosed so that I can work on anyhting I have and stop this obsessive, anxious life I'm living...or at list learn how to cope with it.

I mean, I pushed myself and went to college and grad school, lived with other people and even went abroad for one semester. It did not work. I did not make any friends and I was so uncontrollably into my obsessions, my world and my anxiety that I gained weight and felt like I was unconcious for 5 months.

I don't think I can seek help alone, but I don't know how to be taken seriously from anyone.
I know this post is long and probably noone will even read all this. I just needed to let it all out and I hope that someone has some words of wisdom for me. Thanks guys.



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07 Apr 2014, 7:58 pm

AliBee wrote:
Hi everyone. I am new here in this forum and I have to confess I have been thinking about wiriting here for a while but never had the courage. I am a 23 year-old girl and I think I have Asperger, even if nobody takes this idea seriously. I explain...
(I am Italian so don't take my language mistakes as some kind of deficiency)
I was always the shiest kid, with my parents having to push me so that I could make any social contact, I was confortable only with them and I could spend entire days in my room in my own world; even in kindergarden I did not want to participate in any group acitivty or outdoor activity. I was always very anxious and quiet, I remember my dad once said to me kids should not ask their parents to buy them things and I just became obsessed about it and literally did not ask anything for days because I was afraid I was being rude. In general, I remember me as a kid being very very confused about how to interact with others, and having few friends (like... two) and being afraid they would just 'unfriend' me because I did something wrong. I began taking ballet classes and that was the only kind of sport I could do. In the past few years I have had few friends: usually I am not part of a group, if there is a group I find one person I think I can get along with and that's all; I have had a few of these 'best friends' but 1) I am not their 'best friend' (they explained to me that I don't share much and I always seem cold and not interested...) 2) I find it very difficult to keep the friendship if I am not seeing them in school or on a daily basis for other things. Believe me, I am trying. I have a little sister and my mom is always accusing me of being rude and not caring for her so much. Her favourite things to say to me are 'you have to be more spontaneous, you NEVER do something spontaneously generous for anyone, you never care, you never understand people'.


Now... I have recently had anxiety issues and as always I did a lot of research on the Internet (that's also my thing: obsessing with things and research a lot) I found the Aspie quiz. Result: 167 AS, 41 NT. That was me. In particular: not being able to maintain eye contact, difficulties in activities like catching a ball or driving, excellent marks and unusually accurate vocabulary, obsession with details and grammar... and many others. I told my mom about the test and she said I had defenetely OCD, she was laughing. I managed to get her to take the quiz and when she got normal scores she told me I had a problem, I was too obsessed with things.. and 'PEOPLE CAN CURE THEMSELVES, IT'S ALL IN YOUR HEAD'. I was shocked. I was asking for help, I mean... I don't know for sure if I am an Aspie, but I really want to get or get not diagnosed so that I can work on anyhting I have and stop this obsessive, anxious life I'm living...or at list learn how to cope with it.

I mean, I pushed myself and went to college and grad school, lived with other people and even went abroad for one semester. It did not work. I did not make any friends and I was so uncontrollably into my obsessions, my world and my anxiety that I gained weight and felt like I was unconcious for 5 months.

I don't think I can seek help alone, but I don't know how to be taken seriously from anyone.
I know this post is long and probably noone will even read all this. I just needed to let it all out and I hope that someone has some words of wisdom for me. Thanks guys.


The *entire cognitive profile, among other things, are commonly overlooked by people to know aspergers to a moderate degree, these questions, I think, would give you a better idea, and if you find yourself saying yes to most of these I would buy Tony Attwood's book (or buy it anyway if you're curious.) The professional diagnosis gave me closure on the issue, and I believe it gave me a good bit of credibility to call myself one as well. I personally don't consider self-diagnoses via online quizzes credible, not to say that you have, but credibility is what someone may need for their parent to accept a significant diagnosis.

Other questions to ask yourself:
-Do you have weak short-term memory
-Do you have poor organization skill
-Do you have superior long term memory
-Do you tend to think of thing in black or white terms
-Do you have trouble switching focus/tasks
-Do you have symptoms of ADHD in regards to attention
-Do you tend to take advise literally
-Do you miss friends and/or family when separated for a long time?
-Do you have difficulty seeing "the big picture" and/or being the last to see the big picture
-Are you hyper or hypo sensitive to sensory input



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08 Apr 2014, 4:17 am

dustintorch wrote:
Wow I can't believe a teacher would treat you like that! That person should definitley be fired. I don't think it's made up at all but I'm sure some people who don't understand it would think that. I also don't think it's a disability though. I don't think of myself that way at all. If you think about it actually makes some of us more able in certain aspects of life...just not nessicarily social skills. I was just reading about one person on this website who can learn any musical instrument without lessons, and quickly. I think that's amazing.


Disabilities are generally defined as physical or mental abnormalities which significantly interfere with an individual's ability to function in their daily life.

Autism, even the high-functioning variety, by its very definiton significantly interferes with functioning on a regular basis and so it is a disability.
To be clear: even if you have autistic traits, if they do not constitute a significant impairment to your functioning on a regular basis, i.e. a disability, then you can not be clinically diagnosed as autistic according to most diagnostic criteria which require significant impairment of functioning, again a disability, to be eligible for the diagnosis.

Yes, there are autistics with savant-like abilities and impressive talents which allow them to do well in life.
For every one of those there are a hundred of us who struggle through every single day in dozens of ways.

One of the major issues with portrayals of autism is it's often only the very best & very worst, all of which are actually extremely rare, of the potential autistic traits which people tend to focus on.
In doing so, they end up overlooking what it actually means to be autistic and focus on extreme traits most of us lack. :?



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15 Apr 2014, 11:21 am

First of all, congratulations that You reached Your dream in ballet that is so impressive and a huge achievement!

I relate - to me nobody wanted to believe me either though a psychologist said it (and I now have an official diagnosis too) .

The two main reasons people did not want to believe me was either:

*"oh you're just shy that's why you have those symptoms - everyone's like that but you will get more confident with practice" - divisiveness and attempts to "normalize" you by forcing you to be more social and at worst, thinking you are using Aperger's as an "excuse" to avoid interaction.

OR

*I have a friend who really has Autism Spectrum and she's nothing like you" - from limited encounters having preconceptions about the nature of how an Asperger's person should "be" like.

And more specifically to me, because I'm an immigrant, people often thought my mannerisms/voice/intonation/gestures were just because I'm foreign so they saw it as a cultural thing rather than an Asperger's thing .

It became a big relief in a way to be diagnozed so those doubts go away. But if it is of help to You, the psychologist said that it's something that if you feel you have it and read more and more and find you realting to what you read about it, then it is highly probable you have it - sort of an intuition thing . (And intution is something that only you can know it).

Also RE: other posts, that is atrocious what the teacher said! There is a website Autism.org.uk that maybe be of help it has list of services one is 'provides impartial, confidential information, advice and support on education rights and entitlements' provides impartial, confidential information, advice and support on education rights and entitlements.

RE: I agree also I don't see it as a disability, perhaps more (if one is to use conventional psychology words) akin to another variant to Myers-Briggs personality type?



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16 Apr 2014, 6:21 am

From everything you have said, I believe you.

I think the disbelief we encounter stems from the fact that a great many people have little awareness or understanding of autism spectrum disorders. It's probably them, not you.

Welcome to wrong planet :D



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16 Apr 2014, 3:19 pm

MattShizzle wrote:
There are some idiots out there who think AS is "made up."


As you see on this thread and elsewhere on this site there are more then a few people including so called professionals who think that way or think it is real but vastly over diagnosed. The massive increase in diagnosis is fueling this backlash.

Professionals who tend to feel this way seem to be psychologists/therapists who do not specialize in autism as well as specialists in childhood autism. Not all professionals in these categories feel that way. It really is a matter of luck if you get help or belittled and bullied.

While there were legitimate scientific reasons why Aspergers was subsumed into the greater "Autism Spectrum Disorder" in the DSM 5 manual the feeling that Aspergers was becoming "trendy" and vastly overdiagnosid was a factor.

If you can afford to see a person who is a specialist in Autism Spectrum Disorders who is knowlgable in how it presents in your age group and gender do so. Understand Aspergers and is more then social awkwardness and lack of eye contact. It also involves sensory issues, executive functioning deficits, obsessive repetitive interests and behaviors.

Many people even so called professional think of it only as a social "deficit". As noted above many others will see you are somewhat "normal" and not even take into consideration the years of hard work you put in learning these skills, the exhaustion you feel from constantly having to "act" and being on guard. If you were autistic as a young kid you are now no matter well you cope.

It sucks that is this way in many locales but since it is we have to help each other. Even if you are not autistic social communication difficulties is very tough to deal with. On this website no matter what issue you have there will be somebody here who has or is going through it.

Welcome all the new members that posted in this thread.


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16 Apr 2014, 3:29 pm

mikemmlj wrote:
I'm having the same issues. My Psychiatrist says I have Asperger's but my Psychologist said i have Dyssemia. Don't cut off other possible diagnosis options because you are comfortable with this one.


It had not heard of Dyssemia before this post. It really resembles the new "Social (Pragmatic) Communications Disorder" from the DSM 5 manual

http://www.iidc.indiana.edu/?pageId=368


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16 Apr 2014, 4:25 pm

After reading this thread I think they need to flip the terminology...those on the autism spectrum need to be called neurotypical and all those off it should be called assburgers.



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08 Jul 2014, 8:14 am

ironangel wrote:
welcome to WP :D


regarding this one...

"and now I'm a professional ballet dancer with a major company...I think it's because I'm somewhat successful and I can make friends, that nobody believes me"

its a BIG WOW!
I think when you are high functioning and able to "perform" it doesn't fit with the media portrayal of someone with Aspergers.. I've been told I look normal so can't have Aspergers I disclosed I had Aspergers because I was being ostracised by several new people in an adult education class as they said I was "odd" I naively thought it might help but they had preconceptions that they were not willing to let go of. Sadly it ended for me many happy years learning Tai
Chi and I have become socially isolated for many years. I found the repetitive movements and patterns of Tai Chi relaxing. I can understand that Ballet may be the same for you. I am not sure I performed but I could copy very well so it looked like a performance and I too think some of the negativity towards myself was because I was more advanced in the form than others. Being socially inept meant I could not counteract the hostility with charm and disclosing I had Aspergers was taken as an excuse but in other situations with others that might not have been the response so can't advise if that is right or wrong thing to do