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southwestforests
Phoenix
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Joined: Jul 19, 2009
Age: 46
Posts: 1138
Location: A little ways south of the river
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 Posted: Mon Nov 30, 2009 1:49 pm Post subject: Fibromyalgia - Why is it Controversial illness? |
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Saw link to this on AOL.
My Dad was one of the Navy's first known cases of
Fibro, even before it had a name 20 years ago.
I now have it. My wife has it.
| Quote: | | Fibromyalgia - Why is it Controversial illness? |
http://mychannelnews.info/fibromyalgia/fibromyalgia-why-is-it-controversial-illness/
| Quote: | Fibromyalgia, also known as FM or FMS, is similar to rheumatism, but is distinguished from other rheumatic conditions like tendinitis or bursitis because the discomfort and stiffness is widespread, while in tendinitis or bursitis the pain is localized to a categorical area. It is characterized by protracted discomfort all over the body with multiple tender points, serious fatigue, sleep Problems, anxiousness and depression and all can be happening at the same time. The precise reason for fibromyalgia isn’t known, and ladies are ten times surer to notice the effects of FM than men.
Fibromyalgia is categorized as either first or secondary. Idiopathic fibromyalgia is another name for the primary form. The secondary form of this debilitating disease is due to several conditions such as cancer, lupus, hypothyroidism, or HIV, as well as any kind of physical trauma.
Fibromyalgia is a major neurological condition that causes discomfort in the musculoskeletal system. A main characteristic of fibromyalgia is an obvious state of fatigue that takes over the entire body. Though the discomfort reported by people with fibromyalgia is present, it happens in-house of unusual brain activity.
Fibromyalgia Controversy
Fibromyalgia is a very debatable disorder among the medical community. Doctors having differing viewpoints about the particular causes and risk factors of the illness. Although the discusses continue upon this matter, a discovery implies that fibromyalgia is in fact a neurological disorder." |
 | Quote: | | ...a discovery implies that fibromyalgia is in fact a neurological disorder." |
That would make sense as my paternal Grandmother, my Dad, and now I, all have Neuropathy, albeit different forms.
And Dad's sister, my Aunt, developed MS a decade or so back.
Something is neurologically wrong in this family and looks to be hereditary.
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you feel a loss of energy, loss of power, a sense of spiritual deadness."
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jojocatlady
Emu Egg
Joined: Dec 09, 2009
Posts: 8
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| Posted: Sun Dec 13, 2009 9:41 pm Post subject: |
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Oftentimes, what doctors don't understand, they ridicule.
Have you ever tried going off gluten completely for at least three weeks?
Joanne |
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jojocatlady
Emu Egg
Joined: Dec 09, 2009
Posts: 8
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| Posted: Sun Dec 13, 2009 9:43 pm Post subject: |
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Oftentimes, what doctors don't understand, they ridicule.
Have you ever tried going off gluten completely for at least three weeks?
Joanne |
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Friskeygirl
Phoenix
Joined: Jun 26, 2009
Age: 25
Posts: 661
Location: State of Confusion
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| Posted: Mon Dec 14, 2009 2:04 pm Post subject: |
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Is it similar to Lupus, some of my relatives have this or fibromyalgia
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roadracer
Phoenix
Joined: Nov 10, 2008
Posts: 669
Location: Pennsylvania
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| Posted: Wed Dec 16, 2009 11:43 pm Post subject: |
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the reason why it is such a controversial illness, is because 90% of the time it is something else that the doctors cant figure out, so they just give up and dx it as fibromyalgia. Alot of experts argue that it does not even exist at all, but most experts would agree that it is misdiagnosed at a really high rate.
My grandma, she had pain that kept getting worse over some years, they gave her a dx of fibromyalgia and told her there was not much they could do about it, that she would just have to live with it. A second opinion, and yet another opinion told her the same thing, that it was just fibro and old age. In reality, she had cancer, but by the time they found out about it, it was to late and she died from it.
This sort of story is common, doctors cant figure out what is wrong, so it is a easy answear to give to someone demanding a answear for there symtoms. For my grandma, it was probably just easier for the doctors to tell themselfs that this is a older women, and that it is not worth wasting time, that we will just give her a dx of fibro because she is going to die eventualy anyway.
Maybe I am a little biased since I had to watch my grandma lay there screaming in pain while she was dying, but I really dont think fibromyalgia really exist, there has to be a reason for your symtoms, and if you look hard and long enough, you might find out what is causing them and potentialy cure the symtoms and pain you experience
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FuzzyElephants
Blue Jay
Joined: Dec 17, 2009
Age: 23
Posts: 95
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| Posted: Fri Dec 18, 2009 11:38 pm Post subject: |
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@roadracer- that makes sense. I don't that much about Fibro but i'd assume that it's like IBS in that it's a... what the word for it... what they dx when they've ruled out all other plausible explanations for the symptoms. The problem comes up when dr's start just dx-ing it without ruling anything else out or running any tests. Basically they just don't want to do their damn job. Crap like that pisses me off.
I don't personally know that much about it but I know that alot of people think that people who have fibro are either faking, just whining, or are drug seeking. I don't personally think that (and I know how painful it is to get comments like that). It's one thing to think fibro isn't an actual condition because it's something else that dr's just aren't finding, it's another all togeather to reject the fact that someone is in pain and needs medical help. That crap really pisses me off and I think that's part of the controversy. |
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