Tyri0n
Master of Coin
Joined: Nov 25, 2012
Age: 26
Posts: 2435
Location: Austin, TX
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 Posted: Tue Dec 18, 2012 7:58 pm Post subject: For those of you who are anti-cure |
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Would you be against a cure for NLD even if such a cure effectively "cured" some people with Aspergers (especially the ones who are misdiagnosed) or reduced the symptoms of others?
What if stem cell treatment to cure NLD ended up effectively curing a significant % cases of Aspergers, justifying those scientists who claim they are related? Would this affect your view of "cures" and Aspergers?
I think this would complicate things because NLD is a specific, quantifiably measured disability whereas Aspergers is supposedly a "difference." It's hard to consider brain damage or inability to drive as a "difference," right? But brain damage and Aspergers cause the same symptoms so....? |
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noxnocturne
With Voldemort
Joined: Nov 06, 2012
Posts: 2693
Location: Harassing Muggles
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| Posted: Tue Dec 18, 2012 8:17 pm Post subject: |
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| No. I like all my quirks and idiosyncrasies, thanks. I don't need curing. |
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Fnord
Enigmatic Threadkilling Metasyntactic Variable
Joined: May 07, 2008
Posts: 17917
Location: Stendec
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| Posted: Tue Dec 18, 2012 8:38 pm Post subject: |
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"Curing" my ASD would change who I am. I've spent 50+ years trying various ways to cope with being an embodiment of the metaphorical "square peg in a round hole", and only the last 3 or 4 years understanding why this was necessary. In this process, I've built up all kinds of coping mechanisms and operant routines to enable me to interact with people who not only have different values than I, but who seem to consider my values either "cute", "weird", or "comedic".
If my ASD were "cured", all of the social cues that I've missed would suddenly flood my mind I'd suddenly be aware of come-ons and threats that I'd never noticed before, and I'd have to respond correctly to gain and maintain the status as an Alpha Male. I'd lose the intellectual "edge" of being able to focus solely on one task for hours at a time and solve any problems that the task presents; instead, I might actually start caring about who is winning on American Idol and X-Factor, and engage in mindless conversations over which judge has better hair. I'd have to stop watching the SyFy channel and start watching ESPN instead! I'd have to trade in my Prius hybrid for a Ram truck, and have fun running people off the road and taking up three parking spaces at the mall ... ohmigawd ... I'd actually enjoy crowded, noisy, smelly places like malls and theaters!
NO!!! I DON'T WANT TO BE THAT PERSON!!! I HATE PEOPLE LIKE THAT!!! NO!!! NO!!! NO!!! BAD CURE!!! BAD CURE!!!
Thank you.
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* Believing that you're worthless allows the comfort of having something to complain about without the discomfort of having to change. |
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glider18
Supporting Member
Joined: Nov 09, 2008
Posts: 6710
Location: Ohio
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| Posted: Tue Dec 18, 2012 8:41 pm Post subject: cure |
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If such a cure ever existed I would not be against it being used on those who wanted it. But I believe it should be up to that individual to decide.
As for me...No cure for me. I like who I am and prefer to remain autistic.
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"My journey has just begun." |
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seaturtleisland
Phoenix
Joined: Feb 23, 2012
Age: 19
Posts: 617
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| Posted: Tue Dec 18, 2012 10:51 pm Post subject: |
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I would actually want a cure.
If it fundamentally changes who I am that doesn't bother me. I would actually enjoy the experience of the change. Being fixed/stuck in one state frustrates me so the prospect of being turned into a different person is something I would like. Obviously I wouldn't be a completely different person. I would be different but some things would stay the same. I'm just saying that if it fundamentally changed who I am I wouldn't feel uncomfortable about it. |
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Verdandi
Miss Kitty Fantastico
Joined: Dec 08, 2010
Posts: 10206
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)
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| Posted: Tue Dec 18, 2012 10:54 pm Post subject: Re: For those of you who are anti-cure |
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| Tyri0n wrote: |
I think this would complicate things because NLD is a specific, quantifiably measured disability whereas Aspergers is supposedly a "difference." It's hard to consider brain damage or inability to drive as a "difference," right? But brain damage and Aspergers cause the same symptoms so....? |
Asperger's Syndrome is also a disability, not just a difference. |
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deltafunction
Cool cool cool
Joined: Jun 05, 2012
Age: 21
Posts: 1088
Location: Lost
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| Posted: Tue Dec 18, 2012 11:03 pm Post subject: |
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| Symptoms the same, causation is different. AS is supposedly caused by a different wiring of the brain. If so, would that not mean that a "cure" would re-wire it so I will lose my unique strengths? No, I would not want a cure. |
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knifegill
Raven
Joined: May 09, 2012
Age: 31
Posts: 101
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| Posted: Wed Dec 19, 2012 12:13 am Post subject: |
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| Sometimes I go on a ketogenic diet if I'm getting too distraction-prone. Just a few weeks and I'm back to okay enough to not feel like a spaz too much. |
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2wheels4ever
Just Another Weirdo From L.A.
Joined: May 04, 2012
Age: 41
Posts: 1339
Location: Losing status at the high school
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| Posted: Wed Dec 19, 2012 12:15 am Post subject: |
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Ever stopped to consider that maybe it's the rest of the world who could stand to benefit from a cure for their unpleasant traits, such as doublemindedness and ignorance?
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"You're probably wondering why I'm here, and so am I, so am I" (not that it makes a heck of a lot of a difference anyway) |
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emimeni
Musical Listener
Joined: Sep 29, 2012
Age: 23
Posts: 1064
Location: In my bed, on my laptop
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| Posted: Wed Dec 19, 2012 12:20 am Post subject: |
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| 2wheels4ever wrote: | | Ever stopped to consider that maybe it's the rest of the world who could stand to benefit from a cure for their unpleasant traits, such as doublemindedness and ignorance? |
THIS! EXACTLY!
I wish society was more pro-choice about cure. As it is, people are looked down upon if they choose to attain a pre-natal diagnosis, get a "positive" for a genetic disability, and opt out of an abortion. If a cure for autism or NLD was discovered, would parents be considered medically neglectful if they choose not to seek it out?
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Living with one neurodevelopmental disability which has earned me a few diagnosis'.
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DVCal
Velociraptor
Joined: Apr 05, 2012
Posts: 451
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| Posted: Wed Dec 19, 2012 12:22 am Post subject: |
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| I would welcome a cure with open arms, and FYI while I think it should be a choice for adults, children I disagree with. It should be the parents and doctors decision, not the child. |
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emimeni
Musical Listener
Joined: Sep 29, 2012
Age: 23
Posts: 1064
Location: In my bed, on my laptop
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| Posted: Wed Dec 19, 2012 12:24 am Post subject: |
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| DVCal wrote: | | I would welcome a cure with open arms, and FYI while I think it should be a choice for adults, children I disagree with. It should be the parents and doctors decision, not the child. |
What about teenagers? Heck, what about children above five or so? Should they not get any say at all?
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Living with one neurodevelopmental disability which has earned me a few diagnosis'.
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DVCal
Velociraptor
Joined: Apr 05, 2012
Posts: 451
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| Posted: Wed Dec 19, 2012 12:56 am Post subject: |
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| emimeni wrote: | | DVCal wrote: | | I would welcome a cure with open arms, and FYI while I think it should be a choice for adults, children I disagree with. It should be the parents and doctors decision, not the child. |
What about teenagers? Heck, what about children above five or so? Should they not get any say at all? |
Teenagers, I am OK with them having a choice, but maybe 6 and under it shouldn't be a choice. Don't worry they will grateful once they are cure of their defect. |
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Pileo
Deinonychus
Joined: Dec 20, 2011
Age: 23
Posts: 305
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| Posted: Wed Dec 19, 2012 12:57 am Post subject: |
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Something I've learned from past experience; you're never, ever, ever going to change an anti-cure persons mind regarding a cure for Autism. Never. They can be very adamant about it. Since there is no cure in existence, I've learned to take it with a shrug.
| knifegill wrote: | | Sometimes I go on a ketogenic diet if I'm getting too distraction-prone. Just a few weeks and I'm back to okay enough to not feel like a spaz too much. |
I've responded well to the Keto Diet too. I was skeptical at first but after a couple of weeks, I noticed my symptoms had less of an edge to them. It's no cure, but it's something. |
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emimeni
Musical Listener
Joined: Sep 29, 2012
Age: 23
Posts: 1064
Location: In my bed, on my laptop
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| Posted: Wed Dec 19, 2012 1:03 am Post subject: |
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| DVCal wrote: | | Teenagers, I am OK with them having a choice, but maybe 6 and under it shouldn't be a choice. Don't worry they will grateful once they are cure of their defect. |
How do you know if they'll be grateful? That's right. You don't.
I agree children threeish to fiveish or under shouldn't have a choice, but still.
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Living with one neurodevelopmental disability which has earned me a few diagnosis'.
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