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Tuttle
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17 Dec 2013, 1:02 pm

How many people on here wear medic alert braclets that say that they're autistic?



skibum
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17 Dec 2013, 1:18 pm

I have a Road ID that I wear when I do sports especially if I go alone. It has an online profile linked to it through a pin number that is etched on it and my profile says that I have Asperger's. I also wrote in my profile that when I am extremely stressed I can go non verbal or have trouble with speech. I love the Road ID because it links any first responder to emergency contacts and any medical info you wish for them to know. Here is the link
http://www.roadid.com/Common/Default.aspx

They make great gifts too. I gave one to someone I love who road bikes a lot. A good friend of mine was killed riding his bicycle, he was an avid roadbiker, so the next year when I discovered Road ID I gave it as gifts as well as getting one for myself.


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Tuttle
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17 Dec 2013, 2:43 pm

I wear one that doesn't link to an online profile. It has that I'm autistic on it as well as other information (that I'm autistic, that I get migraines, and my medication allergies are what I have on it). The autistic part was actually a large part of why I wanted to get it, though the one I got has small text, so the person would have to look closely to see the details.



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17 Dec 2013, 5:10 pm

The Asperger's organization I've had contact with here has a downloadable wallet card that has info on it (also on the small size, print-wise). It's meant mostly for showing to first responders, like ambulance workers and police officers. I can't use it yet because of no official diagnosis, but I did download it and when/if the timing's right, I will carry it.


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Tuttle
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17 Dec 2013, 5:28 pm

I have a wallet card I need to print out too, once I get a way to laminate it. I didn't like the local Asperger's association one, so a group of us made our own; I just haven't printed it out yet, because of not having a way to laminate it. But the medic alert bracelet is right there and visible without me doing anything or showing them anything. Much more useful for me.



Sethno
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17 Dec 2013, 5:44 pm

Tuttle wrote:
I have a wallet card I need to print out too, once I get a way to laminate it. I didn't like the local Asperger's association one, so a group of us made our own; I just haven't printed it out yet, because of not having a way to laminate it. But the medic alert bracelet is right there and visible without me doing anything or showing them anything. Much more useful for me.


If there's an office supply store near you, see if they have sticky-back laminating sheets.

You sandwich the card between the two sheets of see thru stuff, with the sticky sides facing each other.

Press hard, let it sit for a while, and then carefully cut the card out. For the cutting, I use a self-healing rubber-type cutting board, and an exacto knife with a plastic ruler as a straight edge. You might be able to use just a pair of scissors, tho'.



Lumi
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17 Dec 2013, 5:45 pm

I do. it says person with Autism may not respond to verbal commands


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17 Dec 2013, 5:50 pm

I don't have one yet, but I intend to get a card once I get properly diagnosed hopefully sometime early next year. I've been hunting around for ideas for what to put on it; it's tricky to get an adequate amount of information on two sides of a business card.


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17 Dec 2013, 5:58 pm

Them Road ID look great, I might be interested in getting one.


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Tuttle
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17 Dec 2013, 6:39 pm

StarTrekker wrote:
I don't have one yet, but I intend to get a card once I get properly diagnosed hopefully sometime early next year. I've been hunting around for ideas for what to put on it; it's tricky to get an adequate amount of information on two sides of a business card.


For a card I have

https://docs.google.com/document/d/1zYP ... HF52wE/pub

(text for those who don't want to go to the link)

AUTISTIC
I AM DISABLED
-I want to cooperate,
but may not be able to due to my disability.
-I may become non-verbal or have difficulty speaking.
-I may avoid eye contact or make repetitive movements.

PLEASE DO NOT TOUCH ME OR SHOUT

(continued on back)

----

Emergency contacts
1.
2.

To help me:

*Give me at least 15-30 seconds to answer any question
*Provide alternate methods to communicate like paper and pencil
* Explain everything using words; I don’t know nonverbal cues
*Use literal language
*Do not touch me without warning me
*Avoid sirens and flashing lights

---

But like I said, I keep being bad about getting the laminating stuff so I haven't printed it out and made it into a card.



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17 Dec 2013, 6:42 pm

Lumi wrote:
I do. it says person with Autism may not respond to verbal commands


I like the idea of "may not respond to verbal commands" there. My bracelet just says Autistic.

And well "migraines" and "allergic to penicillin" and stuff like that.



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17 Dec 2013, 7:17 pm

Actually mine is a medical alert tag. Thought it would be a good idea since I realistically would not be able to remember to speak or taking out a card explaining. Partly because I have ideational dyspraxia and forget how to make intended movements.


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17 Dec 2013, 7:48 pm

skibum wrote:
I have a Road ID that I wear when I do sports especially if I go alone. It has an online profile linked to it through a pin number that is etched on it and my profile says that I have Asperger's. I also wrote in my profile that when I am extremely stressed I can go non verbal or have trouble with speech. I love the Road ID because it links any first responder to emergency contacts and any medical info you wish for them to know. Here is the link
http://www.roadid.com/Common/Default.aspx

They make great gifts too. I gave one to someone I love who road bikes a lot. A good friend of mine was killed riding his bicycle, he was an avid roadbiker, so the next year when I discovered Road ID I gave it as gifts as well as getting one for myself.


To answer the OP's question, no I don't. I either do fine or freak right the hell out during an emergency. If I'm fine I can tell them and when I freak out, I'm just hysterical and hyperventilating and screaming because I think I'm drying and fighting them touching me and all, and I honestly think their first response, which would probably be either sedation or some kind of horrible can't move in it stretcher thing, would be the best bet. I won't calm down like that until I'm seen by at least one doctor and checked out really well and told several times that I'm not dying, and they may need to be able to prove it too.

But the Road ID is exactly what I'm going to get this friend of the kids who has been coming here for about 11 years. He and my oldest son and my daughter's fiancé were all good friends and hung out together. This kid (he's 26 I think, I should stop calling him that) does extreme sports and really dangerous things like that. He's into it. He sometimes goes out alone too, and although he knows what he's doing and been doing this kind of thing since he was about 12, he could still get hurt. He would wear something like that. Thanks for the heads up!


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Tuttle
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17 Dec 2013, 7:50 pm

Yeah, I use a bracelet instead of just a card (and am specifically curious about people using things that aren't cards here), because of issues with movement too.

I've not gotten diagnosed with it, but all signs point to me having autistic catatonia.



ChameleonKeys
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17 Dec 2013, 9:46 pm

Tuttle wrote:
Yeah, I use a bracelet instead of just a card (and am specifically curious about people using things that aren't cards here), because of issues with movement too.

I've not gotten diagnosed with it, but all signs point to me having autistic catatonia.


This is exactly why I wear either a bracelet or dog-tag style necklace (both from 'lauren's hope') despite carrying cards. I also have two sets of 5 cards laminated and linked in one corner with a metal ring that explain in more detail but I cannot count on being able to get them out. They are always in my pocket (First responders in my country are trained to check pockets, but they are really there for my access if I am able to make myself get them) and my wallet which would also be checked.

My bracelet and dog tag say the same thing as each other so I can choose between them if I need to avoid using one or the other for some reason. They give my name and medical record number in my country, my medical issues and also that I am Deaf and Autistic and mention how to communicate with me. They are available in a range of styles and I chose ones that would both show I am not embarrassed to wear them and that will not provoke too much sensory discomfort.

They have already been real-life tested when I had a seizure in a cafe and the ambulance officers did not skip a beat and followed first the bracelet information then my own instructions from the cards. They treated me with respect and communicated effectively.



Tuttle
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17 Dec 2013, 9:50 pm

ChameleonKeys wrote:
They are available in a range of styles and I chose ones that would both show I am not embarrassed to wear them and that will not provoke too much sensory discomfort.


Yes, sensory discomfort is the reason it took so long for me to find my bracelet. I ended up with one from The ID Band Company.