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SteelMaiden
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01 Sep 2014, 2:44 pm

I drank two cups of coffee this afternoon to counteract a migraine (caffeine sometimes reverses my migraines). I am really restless and agitated. I keep texting everyone and I cannot concentrate on anything. My thoughts are racing. I can't even read.

This is not like me.

How does caffeine affect you?

I'm going to find another way to end my almost daily migraines (can't take triptans every day and every time I try to increase my Gabapentin I get severe sedation).


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btbnnyr
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01 Sep 2014, 2:55 pm

I drink one cup of coffee in the morning, and it wakes me up, and that is enough for the day.
If I drink coffee or coke after 5 pm, I can't fall asleep until 5 am.


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jk1
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01 Sep 2014, 2:57 pm

I have mentioned this many times here on WP but caffeine doesn't do anything to me. I can have a few cups of coffee or energy drinks and fall asleep easily when I'd rather stay awake (such as before an exam). I'm immune to many things.

Can't you use panadol or something similar for your migraine? Your GP can prescribe something stronger. I think it's best to follow your doctor's instructions.



BirdInFlight
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01 Sep 2014, 2:59 pm

Me and btbnnyr must be twins separated at birth, because I'm exactly the same. I love one cup of coffee in the morning with my breakfast, but I can't have any more for the rest of the day or I won't sleep that night.

OP, have you tried chamomile tea? That stuff makes me so drowsy it should come with a warning about not operating heavy machinery! I was trying it as a mild, natural anti-anxiety method, used two teabags instead of one, and was almost knocked out cold. I felt so sleepy and lethargic that even a night's sleep wasn't enough, woke up still sleepy the next morning and had to cancel work.

Maybe it might work that way for you too -- use a double-dose of chamomile tea to try and counterbalance the caffeine.

.



SteelMaiden
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01 Sep 2014, 3:08 pm

jk1 wrote:
I have mentioned this many times here on WP but caffeine doesn't do anything to me. I can have a few cups of coffee or energy drinks and fall asleep easily when I'd rather stay awake (such as before an exam). I'm immune to many things.

Can't you use panadol or something similar for your migraine? Your GP can prescribe something stronger. I think it's best to follow your doctor's instructions.


Can't take Paracetamol (I don't use brand names for drugs) more than 2-3 times a week, otherwise I can induce Medication Overuse Headache.

I am a pharmacology student who has researched migraines for over six months now. I have textbooks on migraines. I see a neurologist and a GP who don't talk at me, but ask me how I feel about what medication.

I cannot take Ibuprofen, Aspirin or any other NSAID because I'm a haemophiliac.

I can't take opioid painkillers due to induction of nausea and severe constipation.

I have tried Propranolol, Pizotifen and Topiramate before Gabapentin. The first three went awfully. I cannot take Valproate or Amitriptyline due to contraindications and interactions.

I have a Greater Occipital Nerve Block every 2 months. I am needle phobic but they help (although I usually end up having a panic attack and vomiting).

I cannot have Botulinum Toxin injections because I am needle phobic (need 31 injections per visit) and I didn't like the possibility of neck and eye / eyelid muscle weakness.

If Gabapentin doesn't work then either more hardcore medications, or surgery (implantation of a Greater Occipital Nerve, or Vagus Nerve, stimulator).

My GP said that my migraines are one of the most severe she's seen. I have gone blind, collapsed, had seizure-like events, been unable to walk, been unable to speak, having episodes of amnesia and automatism, etc.

It's annoying that so many possible treatments aren't possible.


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SteelMaiden
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01 Sep 2014, 3:11 pm

BirdInFlight wrote:
Maybe it might work that way for you too -- use a double-dose of chamomile tea to try and counterbalance the caffeine..


That is a very good idea.


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Kezzstar
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01 Sep 2014, 5:25 pm

For me, caffeine is just asking for a panic attack. I used to drink a lot of Coke and caffeinated tea and was having meltdowns and panic attacks with alarming regularity, I was so stressed out. Once I cut the caffeine the stress went down (although I still suffer from anxiety whenever I leave the house, which is something I just have to live with) and I only have panic attacks/meltdowns once or twice a year.


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Quill
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01 Sep 2014, 6:28 pm

I don't drink it regularly, but caffeine doesn't seem to affect me at all.



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01 Sep 2014, 6:37 pm

A cup of coffee sends me on the verge of a panic attack and I spend the whole day nauseous. Will pass!



886
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01 Sep 2014, 11:46 pm

if i don't have caffeine i generally can't function and my head throbs the entire day


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SteelMaiden
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02 Sep 2014, 12:25 am

In that case, the evidence says I should quit the caffeine. Which is what I will do, as a taper to avoid withdrawal.


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mr_bigmouth_502
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02 Sep 2014, 2:06 am

Caffeine has different effects on me at different times; sometimes it makes me feel good and helps a bit with my depression, sometimes it makes me feel anxious and irritable, and sometimes it does almost nothing. I'm a bit of a caffeine addict, though I'm not consuming nearly as much as I used to, mainly because I'm often too broke to buy energy drinks, and I have almost no reason to as I'm unemployed. I usually have a couple cups of coffee a day, though even that's less than what I used to have, and I'm not drinking as much pop either.

Truth be told, caffeine used to be one of my special interests, and I was deeply fascinated by trying new energy drinks, comparing labels to see which brands and flavors had more caffeine than others, and of course seeing which ones had the best overall punch. A lot of this was motivated by a misguided attempt at "curing" my depression and brain fog, and making myself feel more motivated to accomplish things. I eventually realized that excess caffeine consumption was actually making me feel worse, and that brain fog and depression were just things I had to deal with as an aspie. Getting a job and learning to appreciate the value of the money I earned helped with this as well.



EzraS
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02 Sep 2014, 2:43 am

I drink Mountain Dew like there's no tomorrow and I don't think it ever has much effect on me. It seems like maybe caffeine in the morning helps clear out the cobwebs....but that's about it. I do think when I have those periods of extreme anxiety it's a good idea to stay away from it and drink something with electrolytes like Gatorade.



mr_bigmouth_502
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02 Sep 2014, 3:02 am

I used to guzzle Mountain Dew like crazy, especially when they FINALLY brought the caffeinated version to Canada, but I found that drinking too much of it made me feel terrible, possibly because of the brominated vegetable oil, and all the extra sugar and caffeine it has compared to most pop. I actually quit drinking it for a while, and now I'm much more conservative with it. I don't make it my main source of fluid intake like I used to. :P



L_Holmes
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02 Sep 2014, 4:23 am

I get mixed results with caffiene. Usually I have to have a lot for it to affect me, and then it will either make me feel kind of energetic and like my mind is going faster, jumping from one thing to the next (I'll play like 5 different songs in my head in one minute). Usually this is ok, when this is happening I usually feel a sense of well-being for some unexplainable reason (almost like I'm high, but not quite to that extent). However, it seems that the other half (or more) of the time with caffiene, I end up how you described. Basically a feeling of agitation because my thoughts are too jumpy; also, my heart might pound a bit and I get short of breath, like I can't get a good breath of air in. Also, my face gets really tingly, similar to how a limb feels when it's had the circulation cut off and it's "asleep".

Same mixed and odd results with Adderall, which I was given for ADD, and I am starting to think I don't have it at all.



InTheDeepEnd
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02 Sep 2014, 10:51 am

mr_bigmouth_502 wrote:
I used to guzzle Mountain Dew like crazy, especially when they FINALLY brought the caffeinated version to Canada, but I found that drinking too much of it made me feel terrible, possibly because of the brominated vegetable oil, and all the extra sugar and caffeine it has compared to most pop. I actually quit drinking it for a while, and now I'm much more conservative with it. I don't make it my main source of fluid intake like I used to. :P


When Mountain Dew Code Red came out they put it in the machine at work and it tasted soooo good I drank 3 a day for 3 days straight. I didn't/couldn't sleep for several nights and couldn't figure out why! LOL Finally figured out it was all the Mountain Dew.