Page 1 of 1 [ 8 posts ] 

Buttercup
Sea Gull
Sea Gull

User avatar

Joined: 7 Oct 2012
Age: 51
Gender: Female
Posts: 203

23 Oct 2014, 10:32 am

I was diagnosed with this recently.
Earplugs and avoidance help, but like my Doc said...I can't live in earplugs.
Does anybody have other recommendations?



AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 61
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

23 Oct 2014, 10:40 am

https://en.wikipedia.org/wiki/Hyperacusis#Treatment

The most common treatment for hyperacusis is retraining therapy which uses broadband noise. Tinnitus Retraining Therapy (TRT), a treatment originally used to treat tinnitus, uses broadband noise to treat hyperacusis. Pink noise can also be used to treat hyperacusis. By listening to broadband noise at soft levels for a disciplined period of time each day, patients can rebuild (i.e., re-establish) their tolerances to sound. Another treatment method is the Berard Auditory Integration Training. When seeking treatment, it is important that the physician determine the patient's Loudness Discomfort Levels (LDL) so that hearing tests (brainstem auditory evoke response) or other diagnostic tests which involve loud noise (MRI) do not worsen the patient's tolerance to sound. If people have access to medical care, steroids are used to treat hyperacusis within 72 hours of the onset of the condition. Treatment is necessary because sounds over 85db are harmful, and entertainment in some public places, such as live music, have sound levels of around 110 to 120 db, (Examples of sound pressure and sound pressure levels).


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


Buttercup
Sea Gull
Sea Gull

User avatar

Joined: 7 Oct 2012
Age: 51
Gender: Female
Posts: 203

23 Oct 2014, 11:19 am

Ok. When they talk about decibel levels are they actual or perceived? I hadn't really thought of it as hazardous if I found sound too loud but others around me did not.
Does anybody know why perceived loud sound can trigger meltdowns?



AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 61
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

23 Oct 2014, 11:33 am

Buttercup wrote:
Ok. When they talk about decibel levels are they actual or perceived? I hadn't really thought of it as hazardous if I found sound too loud but others around me did not.
Does anybody know why perceived loud sound can trigger meltdowns?

For testing purposes, I suspect that they mean actual decibels. But, they should understand the amplified perception that ASDs give to the actual decibels. It sounds to me like the therapy starts at a low volume and slowly increases to a point where normal volumes (for NTs) become acceptable to the patient. But, I haven't tried it (I should), so I don't know for sure.


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


Who_Am_I
Veteran
Veteran

User avatar

Joined: 27 Aug 2005
Age: 40
Gender: Female
Posts: 12,632
Location: Australia

23 Oct 2014, 6:34 pm

Quote:
.I can't live in earplugs.


Why not?


_________________
Music Theory 101: Cadences.
Authentic cadence: V-I
Plagal cadence: IV-I
Deceptive cadence: V- ANYTHING BUT I ! !! !
Beethoven cadence: V-I-V-I-V-V-V-I-I-I-I-I-I-I-I-I-I-I
-I-I-I-I-I-I-I-I! I! I! I I I


Buttercup
Sea Gull
Sea Gull

User avatar

Joined: 7 Oct 2012
Age: 51
Gender: Female
Posts: 203

23 Oct 2014, 7:43 pm

Are you kidding?
If they make earplugs for kids I might try them next. I have very small ear canals and all but one type of earplugs make my ears sore. Sometimes very sore. And I can't find the ones That fit best anymore. I had gun muffs too but they disappeared and I cannot afford another pair.



Who_Am_I
Veteran
Veteran

User avatar

Joined: 27 Aug 2005
Age: 40
Gender: Female
Posts: 12,632
Location: Australia

23 Oct 2014, 9:45 pm

No, I wasn't kidding. Since most people's anatomy allows them to wear earplugs for long periods, I wondered why you were different.
I wasn't to know that you have small ear canals, considering that I've never met you.


_________________
Music Theory 101: Cadences.
Authentic cadence: V-I
Plagal cadence: IV-I
Deceptive cadence: V- ANYTHING BUT I ! !! !
Beethoven cadence: V-I-V-I-V-V-V-I-I-I-I-I-I-I-I-I-I-I
-I-I-I-I-I-I-I-I! I! I! I I I


Buttercup
Sea Gull
Sea Gull

User avatar

Joined: 7 Oct 2012
Age: 51
Gender: Female
Posts: 203

24 Oct 2014, 12:00 pm

Oh! Thanks. I didn't know anybody might consider wearing earplugs all the time an option, but some jobs require it, don't they?
I remember now a doc said this is a cranial nerve crowding problem, hence the crowded ear canals. And surgery is not an option in my case.
I am not having a good day. Some things I'd rather forget.